Re: [TMIC] tysabri
On Fri, Oct 16, 2009 at 8:24 AM, Grace M. grace...@gmail.com wrote: *Hi Deb, * ** *Re: Tysabri. I go to a very large teaching and research facility for my Rituximab infusions, and have a lot of MS friends that are using Tysabri. Many have had really good results, including a reduction of relapses and improvement in their EDSS, and stable lesion loads. Most seem to be very happy with it.* ** *Gracie * On Fri, Oct 16, 2009 at 7:04 AM, Deb Monteleone aiki...@optonline.netwrote: Hi, I am thinking of going on tysabri, anyone out there on it. If so do you have side affects and do do feel better? I'm currently on copaxone for just over a year. Starting to forget my shots and spoke to some people who's symptoms got better on tysabri. Thanks for any input, Deb, Long Island ny
Re: [TMIC] new therapy for paralyzed
After a quick glance at the website..I notice just a few things that make me wonder. First, He doesn't list any credentials. It doesn't appear that he's a doctor of any sort. He says he's a therapist. He doesn't even say what type of therapist. Second, a quick Google search brings up virtually nothing about him or this place. That's usually not a very good indicator. The website is designed and hosted by the guy himself. That's pretty second rate. Not very professional. This also may be nitpicking, but I noticed some misspellings. You typically won't find that in a website for a professional service. $6,000 for 2 hours a day for 5 days of treatment. Sure, he says that he has 100% success rate but I'm a skeptical S.O.B. especially when it comes to my health and my money. Sounds kind of hokey that manipulating the bottom of your feet with his thumbs and some lotion is going to work. Certainly, if this were the case, this would have been discovered a long time ago. I'd get an opinion from a degreed, qualified, and certified neurologist on this before I went forward with it. We all wish that it were this simple Amandaand if $6,000 were all it took to fix us I'm sure that more of us wouldn't be the walking wounded that we are. Be careful with this Kevin Weilacher N.E. Ohio (Canton) From: Amanda Diskey adis...@yahoo.com To: tmic-list@eskimo.com Sent: Thu, October 15, 2009 8:14:27 PM Subject: [TMIC] new therapy for paralyzed Hello all: I know I don't post often, but I came across something on the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to turn the nerves back on through a form of massage on your feet. I spoke with him on the phone yesterday and he called my house 4 times today. Check out the website below and let me know what you think! www.nsctherapyproject.com I thought it was interesting, but maybe I am too gullable
RE: [TMIC] new therapy for paralyzed
I NEVER HEARD OF THIS, BUT I WOULD BE VERY CAUTIOUS, ESPECIALLY SINCE THEY CALLED YOU 4 TIMES IN ONE DAY. THEY SEEM TO ANXIOUS TO SELL YOU SOMETHING. I WOULD THINK IF THEIR CLAIMS WERE TRUE, WE WOULD HAVE HEARD MORE ABOUT IT. EVEN IF YOU GET NAMES OF PEOPLE THEY CLAIM TO HAVE HELPED, THEY COULD BE PAID FOR THEIR CLAIMS AND ARE JUST FAKING IT. IT WOULD BE WONDERFUL IF IT WERE TRUE. PATTI - WISCONSIN From: Amanda Diskey [mailto:adis...@yahoo.com] Sent: Thursday, October 15, 2009 7:14 PM To: tmic-list@eskimo.com Subject: [TMIC] new therapy for paralyzed Hello all: I know I don't post often, but I came across something on the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to turn the nerves back on through a form of massage on your feet. I spoke with him on the phone yesterday and he called my house 4 times today. Check out the website below and let me know what you think! www.nsctherapyproject.com I thought it was interesting, but maybe I am too gullableImage removed by sender. ~WRD000.jpg
[TMIC] Thank You!
I want to thank you all for your help! I knew it would be too good to be true! I just needed to ask, this list was the only place I trusted to go! I was planning to ask my neuro, but my appt with him is six weeks away. Anyway, I feel kind of silly for believing him! lol I have some reflexology socks so I will just get my honey to start rubbing them for me! Thank you all so very much!
Re: [TMIC] new therapy for paralyzed
Excellent advice from Kevin. I also would check with the Better Business Bureau. ~ Lynn In a message dated 10/16/2009 7:38:10 A.M. Pacific Daylight Time, hwyfli...@yahoo.com writes: After a quick glance at the website..I notice just a few things that make me wonder. First, He doesn't list any credentials. It doesn't appear that he's a doctor of any sort. He says he's a therapist. He doesn't even say what type of therapist. Second, a quick Google search brings up virtually nothing about him or this place. That's usually not a very good indicator. The website is designed and hosted by the guy himself. That's pretty second rate. Not very professional. This also may be nitpicking, but I noticed some misspellings. You typically won't find that in a website for a professional service. $6,000 for 2 hours a day for 5 days of treatment. Sure, he says that he has 100% success rate but I'm a skeptical S.O.B. especially when it comes to my health and my money. Sounds kind of hokey that manipulating the bottom of your feet with his thumbs and some lotion is going to work. Certainly, if this were the case, this would have been discovered a long time ago. I'd get an opinion from a degreed, qualified, and certified neurologist on this before I went forward with it. We all wish that it were this simple Amandaand if $6,000 were all it took to fix us I'm sure that more of us wouldn't be the walking wounded that we are. Be careful with this Kevin Weilacher N.E. Ohio (Canton) From: Amanda Diskey adis...@yahoo.com To: tmic-list@eskimo.com Sent: Thu, October 15, 2009 8:14:27 PM Subject: [TMIC] new therapy for paralyzed Hello all: I know I don't post often, but I came across something on the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to turn the nerves back on through a form of massage on your feet. I spoke with him on the phone yesterday and he called my house 4 times today. Check out the website below and let me know what you think! _www.nsctherapyproject.com_ (http://www.nsctherapyproject.com/) I thought it was interesting, but maybe I am too gullable
Re: [TMIC] new therapy for paralyzed
this is exciting but almost too good to be true. Lately my feet have been falling off/leaving the feet rests--- but i don't feel them move, nor can i do it voluntarily. I'm hoping that it's a good sign, but i would so like to be able to pull myself up and stand--- it would make life a zillion percent better because then i could transfer in and out of cars and use a public restroom and travel ahhh Akua Hello all: I know I don't post often, but I came across something on the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to turn the nerves back on through a form of massage on your feet. I spoke with him on the phone yesterday and he called my house 4 times today. Check out the website below and let me know what you think! http://www.nsctherapyproject.comwww.nsctherapyproject.com I thought it was interesting, but maybe I am too gullable -- http://www.akuadesigns.etsy.com http://www.artfarmpaperwworks.etsy.com
Re: [TMIC] tysabri
What symptoms are we talking about? Janice - Original Message - From: Deb Monteleone aiki...@optonline.net To: TMIC tmic-list@eskimo.com Sent: Friday, October 16, 2009 6:04 AM Subject: [TMIC] tysabri Hi, I am thinking of going on tysabri, anyone out there on it. If so do you have side affects and do do feel better? I'm currently on copaxone for just over a year. Starting to forget my shots and spoke to some people who's symptoms got better on tysabri. Thanks for any input, Deb, Long Island ny
[TMIC] OT: Companions and Homemakers
Is anyone familiar with a home-care service called Companions and Homemakers? I called them today and they sounded decent for light cooking, cleaning and laundry. Just wondering if anyone has used them and how they were? Thanks, Kevin
Re: [TMIC] tysabri
*Janice, I believe that Deb is talking about her MS symptoms. * ** *Gracie* On Fri, Oct 16, 2009 at 7:44 PM, Janice jan...@centurytel.net wrote: What symptoms are we talking about? Janice - Original Message - From: Deb Monteleone aiki...@optonline.net To: TMIC tmic-list@eskimo.com Sent: Friday, October 16, 2009 6:04 AM Subject: [TMIC] tysabri Hi, I am thinking of going on tysabri, anyone out there on it. If so do you have side affects and do do feel better? I'm currently on copaxone for just over a year. Starting to forget my shots and spoke to some people who's symptoms got better on tysabri. Thanks for any input, Deb, Long Island ny
