[TMIC] Hey Jude...it's me!
Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
RE: [TMIC]
OMG Nerve Pain. Yikes. I get it in the banding around my torso. Down my right leg, on the outside, from the top of the hip to the bottom of the foot, and some on the left foot too, but not nearly as bad. It gets bad enough that I want to check out some times. I have found that lyrica helps. And percodan. And now my pain doctor has me on cesamet and oxycontin just to keep me sane. And the cold: We just came through a -40 degree temperature spell - that was awful. I actually had to stay at home for a few days as my mobility was seriously affected. This morning it is only -20, so my legs are only half as bad. Lol. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 19, 2009 9:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] Nerve Pain
Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] Hey Jude...it's me!
Hey, Jude!! Great to see your name pop up, and what a jolly letter, too. I bet Harley has alot to do with that..Frank is always telling me what our 2 Shih Tzus and our daughter's Shih Tzu are doing they keep him running!! Glad to hear that Dave is fitting into retirement life It is my fondest hope that you don't have a broken ankle! one consolation tho'...if they cast it you won't ne able to feel the itch when it gets to that stage of healing... I have much left to do for our fanily gathering this week so I'll get off here. Again, it's good to hear from you!! Hugs, janh Stillwater, OK Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
Re: [TMIC] asking for prayers
Barbara, My prayers go out to your son and all your family, just know he's getting the help he needs. Please keep us updated on his condition. Hugs, janh Stillwater, OK From: Barbara Alma balmat...@aol.com To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:55:18 PM Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday. He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA
Re: [TMIC] asking for prayers
Consider it done, Barbara. Gracie
Re: [TMIC]
*Neve pain or neuropathic pain, refers to the type of pain that is being experienced, not a particular location. * ** *Neuropathic Pain *Neuropathic pain results from injury to nerves in either the central nervous system or the peripheral body. It can be described as burning, tingling, shooting, stabbing, or shocking. Injury to the brain, brain tumors, diabetic neuropathy, and herpes zoster are all examples of things that may cause this type of pain. Neuropathic pain can be more difficult to treat than nociceptive. * *
RE: [TMIC]
Janice: I don't know if I can help, but my pain isn't bad at all. I have been experiencing what I call a Charlie horse in the back of my thigh in my left leg (that is my good one) and it goes down the leg to my foot and causes my foot to turn in until the spasm is over. When I try to straighten it, I can't keep it straight it goes right back. It only lasts for a few seconds. It helps if I try to straighten out my leg as you would with a regular Charlie horse. The most of my discomfort is in my feet which I think is neuropathy. My feet always feel so cold they actually burn. It is funny though but they don't bother me at night when I go to bed I hope this helps. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Saturday, December 19, 2009 10:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
RE: [TMIC] asking for prayers
Barb: I am so very sorry to all the problems Daniel is having. Rest assured I will include him in my prayers, and will him to my prayer basket. I pray for all the TM'ers every night, but I will say a special prayer just for Daniel. I believe in prayers too, without them I don't think I could cope. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Saturday, December 19, 2009 11:55 PM To: tmic-list@eskimo.com Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday. He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA
RE: [TMIC] Hey Jude...it's me!
Hi Jude: I am so glad to receive your post. We haven't heard from you in a long while and I was beginning to worry about you. I know the loss of our dear Pam has affected all of us. I think about her all the time and miss her and the jokes she used to post. I know I haven't been posting a lot lately and I think the loss of Pam had a lot to do with it. I am so sorry to hear you may have broken your foot. At least when something like that happens we don't feel the pain so much. Let us know what happens when you see the Doc. It sounds like you and Dave are both enjoying the new addition to your family. Pets can do so much to enrich our lives. With Dave retiring, it gives him an outlet that he needs. So much has been happening here. My daughter, who lives down the street, is relocating up north to Waupaca. As a result, we have our house for sale so we can be close to family. At this stage of our lives, we need to be near family. The last time we moved was before TM, so it is going to be so much harder as I have difficulty doing all that needs to be done. We haven't sold our home yet, but during the holidays not too many people are out looking. I just pray that it will be sooon. I will miss my granddaughters so very much. I wish you, Dave and Harley a very Merry Christmas and a Happy New Year and hope to see more posts from you next year! Patti - Wisconsin om: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Sunday, December 20, 2009 7:30 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey Jude...it's me! Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
Re: [TMIC] asking for prayers
Barbara, I am so so sorry to hear about your son. I also believe in prayer and will do my best for you and your son. Please keep us informed on how he is doing. Janice From: Barbara Alma Sent: Saturday, December 19, 2009 11:55 PM To: tmic-list@eskimo.com Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday. He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA
Re: [TMIC] asking for prayers
It is done, dear Barbara..Jeanne in Dayton, WA ---Original Message--- From: Jan Hargrove Date: 12/20/2009 9:43:43 AM To: Barbara Alma; tmic-list@eskimo.com Subject: Re: [TMIC] asking for prayers Barbara, My prayers go out to your son and all your family, just know he's getting the help he needs. Please keep us updated on his condition. Hugs, janh Stillwater, OK From: Barbara Alma balmat...@aol.com To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:55:18 PM Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA SuperStock_1196-107.jpg
Re: [TMIC] Nerve Pain
Yes, Janice, and Kevin, I'm sure most of us can relate exactly to what you both say. The pain never seems to go away but oh, when it gets bad it is really bad.. I explained mine like the pain of the worst burn I've ever had. It gets so bad it almost makes you not want to breathe for fear of making it worse.. Jeanne in Dayton, WA ---Original Message--- From: kevin weilacher Date: 12/20/2009 8:17:50 AM To: Janice Nichols; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice SuperStock_1196-107.jpg
RE: [TMIC] Hey Jude...it's me!
Jude so glad to see your back! You were missed by all! Kim --- On Sun, 12/20/09, Patricia Cooley patticoo...@wi.rr.com wrote: From: Patricia Cooley patticoo...@wi.rr.com Subject: RE: [TMIC] Hey Jude...it's me! To: 'Jude Hoops' heyjude48...@aol.com, tmic-list@eskimo.com Date: Sunday, December 20, 2009, 11:34 AM Hi Jude: I am so glad to receive your post. We haven’t heard from you in a long while and I was beginning to worry about you. I know the loss of our dear Pam has affected all of us. I think about her all the time and miss her and the jokes she used to post. I know I haven’t been posting a lot lately and I think the loss of Pam had a lot to do with it. I am so sorry to hear you may have broken your foot. At least when something like that happens we don’t feel the pain so much. Let us know what happens when you see the Doc. It sounds like you and Dave are both enjoying the new addition to your family. Pets can do so much to enrich our lives. With Dave retiring, it gives him an outlet that he needs. So much has been happening here. My daughter, who lives down the street, is relocating up north to Waupaca. As a result, we have our house for sale so we can be close to family. At this stage of our lives, we need to be near family. The last time we moved was before TM, so it is going to be so much harder as I have difficulty doing all that needs to be done. We haven’t sold our home yet, but during the holidays not too many people are out looking. I just pray that it will be sooon. I will miss my granddaughters so very much. I wish you, Dave and Harley a very Merry Christmas and a Happy New Year and hope to see more posts from you next year! Patti - Wisconsin om: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Sunday, December 20, 2009 7:30 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey Jude...it's me! Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
RE: [TMIC] Hey Jude...it's me! (ATT. PATTI)
Dan read your post and asked that I send this. Hope everyone is having a nice day.Ella In a message dated 12/20/2009 3:52:18 P.M. Eastern Standard Time, MontzMagic writes: IT-SO NICE TI SEE SOMEONE REMEMBERED HER IN THERE- THANKS PATRICIA-TELL HER- I GRIEVE ALSO VERY VERY MUCH-DO THAT FOR ME
Re: [TMIC] Hey Jude...it's me!
Congratulations on your new family member. I yearn for a pooch. I love my remaining kitty, but like dogs and cats together. sigh. I know too well that dogs require daily long walks, which i can't do. So celebrate! Harley will tell you stories about what he found if you ask him, and he will love you up. so sorry to hear about the foot. I'm having mouth problems. Had my wisdom tooth removed and felt no pain after. But weeks later have incredible wrenching. Dentist says its muscle spasms and it is scary bad and i go through PTSD flashbacks of the pain on the way to TM. BUT i'm thinking he's right because ibuprofen wipes it out, as awful as it is, and so do warm compresses. I'm perversely bothered by two days of ibuprofen use-- don't like this on top of my required aspirin but i am too distracted with mouth pain plus the dull hum of TM's pain in the butt. I wish you healing and joy. Happy Holidays! Akua -- http://www.akuadesigns.etsy.com http://www.artfarmpaperwworks.etsy.com
Re: [TMIC]
Those are the same areas that I've dealt with. Bachlophen (no clue on the spell) neurotin really made a difference Sent from my Verizon Wireless BlackBerry -Original Message- From: Janet Dunn j.d...@shaw.ca Date: Sun, 20 Dec 2009 06:41:07 To: 'Janice Nichols'jan...@centurytel.net; tmic-list@eskimo.com Subject: RE: [TMIC] OMG Nerve Pain. Yikes. I get it in the banding around my torso. Down my right leg, on the outside, from the top of the hip to the bottom of the foot, and some on the left foot too, but not nearly as bad. It gets bad enough that I want to check out some times. I have found that lyrica helps. And percodan. And now my pain doctor has me on cesamet and oxycontin just to keep me sane. And the cold: We just came through a -40 degree temperature spell - that was awful. I actually had to stay at home for a few days as my mobility was seriously affected. This morning it is only -20, so my legs are only half as bad. Lol. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 19, 2009 9:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
[TMIC] I love you guys
I just came on to TMIC and am overwhelmed at the show of support by my family here. It is so heartwarming to see how many have came on and offered up support and prayers for our family at this time. We were told this morning that Dan will be in the hospital for about a week, and that he should be fine, but it will take a while for him to recover from this. We can be patient .. although it is hard watching him go through this. Again, thank you all and I cannot express how much this means to me. Hugs, Barbara A in Auburn CA
Re: [TMIC] Hey Jude...it's me!
Hi Jude, So good to see you here! Last time we talked, you were getting acquainted with your new computer. It looks like you're now the Master! Harley sounds adorable! Please post a picture of him when you can. Jude, you know we all miss Pam. I don't think a day goes by that I don't think about the long phone conversations we had. I did send Dan a note to let him know that we are thinking of him also. Let's hope that ankle is not broken. Now that your computer knows who's BOSS, please keep posting so we all know how you're doing. love and hugs, Linda - Eagle, ID - Original Message - From: Jude Hoopsmailto:heyjude48...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, December 20, 2009 6:30 AM Subject: [TMIC] Hey Jude...it's me! Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
Re: [TMIC] asking for prayers
Barbara, I'm sorry to hear that your son is sick. Have already said a prayer for him and will continue. Please keep us updated as you are able. hugs, Linda (ID) - Original Message - From: Barbara Almamailto:balmat...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, December 19, 2009 10:55 PM Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday. He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA
Re: [TMIC]
It does help and is very similar to mine, except I do have that *...@#$^* sharp pain!! Hate it.When I go in to my pain management doc on 12/31, he will put stuff in my back in several places and I will be a new woman - for a while! Janice From: Patricia Cooley Sent: Sunday, December 20, 2009 10:20 AM To: 'Janice Nichols' ; tmic-list@eskimo.com Subject: RE: [TMIC] Janice: I don't know if I can help, but my pain isn't bad at all. I have been experiencing what I call a Charlie horse in the back of my thigh in my left leg (that is my good one) and it goes down the leg to my foot and causes my foot to turn in until the spasm is over. When I try to straighten it, I can't keep it straight it goes right back. It only lasts for a few seconds. It helps if I try to straighten out my leg as you would with a regular Charlie horse. The most of my discomfort is in my feet which I think is neuropathy. My feet always feel so cold they actually burn. It is funny though but they don't bother me at night when I go to bed I hope this helps. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Saturday, December 19, 2009 10:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] I love you guys
You, your family, and Dan are welcome as sunshine. We may not have the answers but we do have the love and support that has no end. Merry Christmas, dear ones...Jeanne in Dayton, WA ---Original Message--- From: Barbara Alma Date: 12/20/2009 6:50:35 PM To: tmic-list@eskimo.com Subject: [TMIC] I love you guys I just came on to TMIC and am overwhelmed at the show of support by my family here. It is so heartwarming to see how many have came on and offered up support and prayers for our family at this time. We were told this morning that Dan will be in the hospital for about a week, and that he should be fine, but it will take a while for him to recover from this. We can be patient .. although it is hard watching him go through this. Again, thank you all and I cannot express how much this means to me. Hugs, Barbara A in Auburn CA SuperStock_1196-107.jpg
Re: [TMIC] Hey Jude...it's me!
Re: [TMIC] Hey Jude...it's me!Akua, I am deathly afraid of tooth pain - again it is too close to the nerve pain from TM. Hope you get those spasms under control and gone soon! Janice From: Akua Sent: Sunday, December 20, 2009 3:47 PM To: Jude Hoops ; tmic-list@eskimo.com Subject: Re: [TMIC] Hey Jude...it's me! Congratulations on your new family member. I yearn for a pooch. I love my remaining kitty, but like dogs and cats together. sigh. I know too well that dogs require daily long walks, which i can't do. So celebrate! Harley will tell you stories about what he found if you ask him, and he will love you up. so sorry to hear about the foot. I'm having mouth problems. Had my wisdom tooth removed and felt no pain after. But weeks later have incredible wrenching. Dentist says its muscle spasms and it is scary bad and i go through PTSD flashbacks of the pain on the way to TM. BUT i'm thinking he's right because ibuprofen wipes it out, as awful as it is, and so do warm compresses. I'm perversely bothered by two days of ibuprofen use-- don't like this on top of my required aspirin but i am too distracted with mouth pain plus the dull hum of TM's pain in the butt. I wish you healing and joy. Happy Holidays! Akua -- http://www.akuadesigns.etsy.com http://www.artfarmpaperwworks.etsy.com
Re: [TMIC] Nerve Pain
DITTOJanice From: jrushton Sent: Monday, December 21, 2009 11:38 AM To: kevin weilacher ; tmic Subject: Re: [TMIC] Nerve Pain Yes, Janice, and Kevin, I'm sure most of us can relate exactly to what you both say. The pain never seems to go away but oh, when it gets bad it is really bad.. I explained mine like the pain of the worst burn I've ever had. It gets so bad it almost makes you not want to breathe for fear of making it worse.. Jeanne in Dayton, WA ---Original Message--- From: kevin weilacher Date: 12/20/2009 8:17:50 AM To: Janice Nichols; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) -- From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice SuperStock_1196-107.jpg
Re: [TMIC]
I also take Baclofen and Neurontin.I feel it is a good combination - keeps my legs settled down so I can sleep at nite. Janice From: rj_ran...@yahoo.com Sent: Sunday, December 20, 2009 6:41 PM To: Janet Dunn ; 'Janice Nichols' ; tmic-list@eskimo.com Subject: Re: [TMIC] Those are the same areas that I've dealt with. Bachlophen (no clue on the spell) neurotin really made a difference Sent from my Verizon Wireless BlackBerry From: Janet Dunn j.d...@shaw.ca Date: Sun, 20 Dec 2009 06:41:07 -0700 To: 'Janice Nichols'jan...@centurytel.net; tmic-list@eskimo.com Subject: RE: [TMIC] OMG Nerve Pain. Yikes. I get it in the banding around my torso. Down my right leg, on the outside, from the top of the hip to the bottom of the foot, and some on the left foot too, but not nearly as bad. It gets bad enough that I want to check out some times. I have found that lyrica helps. And percodan. And now my pain doctor has me on cesamet and oxycontin just to keep me sane. And the cold: We just came through a -40 degree temperature spell – that was awful. I actually had to stay at home for a few days as my mobility was seriously affected. This morning it is only -20, so my legs are only half as bad. Lol. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 19, 2009 9:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] Hey Jude...it's me!
thanks Janice... it feels like nerve/root pain, but it's where the tooth no longer is. It has awakened me for two nights-- just like TM used to, so I'm getting desperate. Hope it will be gone by Christmas. Happy solstice! Akua Akua, I am deathly afraid of tooth pain - again it is too close to the nerve pain from TM. Hope you get those spasms under control and gone soon! Janice From: mailto:a...@artfarm.comAkua Sent: Sunday, December 20, 2009 3:47 PM To: mailto:heyjude48...@aol.comJude Hoops ; mailto:tmic-list@eskimo.comtmic-list@eskimo.com Subject: Re: [TMIC] Hey Jude...it's me! Congratulations on your new family member. I yearn for a pooch. I love my remaining kitty, but like dogs and cats together. sigh. I know too well that dogs require daily long walks, which i can't do. So celebrate! Harley will tell you stories about what he found if you ask him, and he will love you up. so sorry to hear about the foot. I'm having mouth problems. Had my wisdom tooth removed and felt no pain after. But weeks later have incredible wrenching. Dentist says its muscle spasms and it is scary bad and i go through PTSD flashbacks of the pain on the way to TM. BUT i'm thinking he's right because ibuprofen wipes it out, as awful as it is, and so do warm compresses. I'm perversely bothered by two days of ibuprofen use-- don't like this on top of my required aspirin but i am too distracted with mouth pain plus the dull hum of TM's pain in the butt. I wish you healing and joy. Happy Holidays! Akua -- http://www.akuadesigns.etsy.com http://www.artfarmpaperwworks.etsy.com --
Re: [TMIC]
Can u mentally function after neurotin? I'm writing my dissertation so I'm always battle - ok which to deal with as the greater distrator - pain or lala land lol Sent from my Verizon Wireless BlackBerry -Original Message- From: Janice Nichols jan...@centurytel.net Date: Sun, 20 Dec 2009 22:43:22 To: rj_ran...@yahoo.com; Janet Dunnj.d...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] I also take Baclofen and Neurontin.I feel it is a good combination - keeps my legs settled down so I can sleep at nite. Janice From: rj_ran...@yahoo.com Sent: Sunday, December 20, 2009 6:41 PM To: Janet Dunn ; 'Janice Nichols' ; tmic-list@eskimo.com Subject: Re: [TMIC] Those are the same areas that I've dealt with. Bachlophen (no clue on the spell) neurotin really made a difference Sent from my Verizon Wireless BlackBerry From: Janet Dunn j.d...@shaw.ca Date: Sun, 20 Dec 2009 06:41:07 -0700 To: 'Janice Nichols'jan...@centurytel.net; tmic-list@eskimo.com Subject: RE: [TMIC] OMG Nerve Pain. Yikes. I get it in the banding around my torso. Down my right leg, on the outside, from the top of the hip to the bottom of the foot, and some on the left foot too, but not nearly as bad. It gets bad enough that I want to check out some times. I have found that lyrica helps. And percodan. And now my pain doctor has me on cesamet and oxycontin just to keep me sane. And the cold: We just came through a -40 degree temperature spell – that was awful. I actually had to stay at home for a few days as my mobility was seriously affected. This morning it is only -20, so my legs are only half as bad. Lol. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 19, 2009 9:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] I love you guys
I don't think there is anything harder in the world than watching your child suffer. Bless you and your family. Janice From: Barbara Alma Sent: Sunday, December 20, 2009 6:50 PM To: tmic-list@eskimo.com Subject: [TMIC] I love you guys I just came on to TMIC and am overwhelmed at the show of support by my family here. It is so heartwarming to see how many have came on and offered up support and prayers for our family at this time. We were told this morning that Dan will be in the hospital for about a week, and that he should be fine, but it will take a while for him to recover from this. We can be patient .. although it is hard watching him go through this. Again, thank you all and I cannot express how much this means to me. Hugs, Barbara A in Auburn CA
Re: [TMIC]
Actually, I have never felt any affect mentally with neurontin.I take 1800 mg a day - what do you take?Janice From: rj_ran...@yahoo.com Sent: Sunday, December 20, 2009 10:46 PM To: Janice Nichols ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Can u mentally function after neurotin? I'm writing my dissertation so I'm always battle - ok which to deal with as the greater distrator - pain or lala land lol Sent from my Verizon Wireless BlackBerry From: Janice Nichols jan...@centurytel.net Date: Sun, 20 Dec 2009 22:43:22 -0600 To: rj_ran...@yahoo.com; Janet Dunnj.d...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] I also take Baclofen and Neurontin.I feel it is a good combination - keeps my legs settled down so I can sleep at nite. Janice From: rj_ran...@yahoo.com Sent: Sunday, December 20, 2009 6:41 PM To: Janet Dunn ; 'Janice Nichols' ; tmic-list@eskimo.com Subject: Re: [TMIC] Those are the same areas that I've dealt with. Bachlophen (no clue on the spell) neurotin really made a difference Sent from my Verizon Wireless BlackBerry From: Janet Dunn j.d...@shaw.ca Date: Sun, 20 Dec 2009 06:41:07 -0700 To: 'Janice Nichols'jan...@centurytel.net; tmic-list@eskimo.com Subject: RE: [TMIC] OMG Nerve Pain. Yikes. I get it in the banding around my torso. Down my right leg, on the outside, from the top of the hip to the bottom of the foot, and some on the left foot too, but not nearly as bad. It gets bad enough that I want to check out some times. I have found that lyrica helps. And percodan. And now my pain doctor has me on cesamet and oxycontin just to keep me sane. And the cold: We just came through a -40 degree temperature spell – that was awful. I actually had to stay at home for a few days as my mobility was seriously affected. This morning it is only -20, so my legs are only half as bad. Lol. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: December 19, 2009 9:15 PM To: tmic-list@eskimo.com Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] Hey Jude...it's me!
I am so glad to hear from you!It's about time.Is Harley a pup or an older dog?I love animals too. We just got a new computer and it does take some time adjusting. I hope you have made contact with the doc's to get all of your currant problems taken care of. Let us know what they find. So glad to have you back, Janice From: Jude Hoops Sent: Sunday, December 20, 2009 7:30 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey Jude...it's me! Hi Guys, It's been a while, but it's me, Jude... For those of you who recall my name, I'm sorry it has taken so long for me to get back into the swing of things. The death of our dear Pam really took the wind out of my sails and laid me low for all this time. Not one darn thing has changed in my life except that we have added another mouth to feed, and he eats constantly and I have yet to find a food that he won't eat. His name is Harley, after Dave's best human friend and is part Spaniel/Beagle. Harley is white with silvery/black large spots and a black circle around one eye. Once Dave figures out how to send pictures to the Internet we will post some of the whole family. Dave is adjusting well to being retired, especially now that he has a buddy to hang around with. I'm not sure what they do out there, but they go tramping through the woods behind the house and chase squirrels and whatever else. Harley puts his nose to the ground and pulls poor Dave along behind him whether Dave wants to go there or not. I have remained pretty much stuck in my bed due to almost constant UTI's and a serious aversion to wearing briefs although I have to when I go out which is not often. In fact, I now even have a doctor who makes home visits and I really like him so far. I need to call him as soon as his office opens and make arrangements to go to the hospital since I believe I have one seriously broken ankle/foot. This brittle-bone disease is for the birds. I was inspecting my feet and toes for whatever one checks their Transverse Myelitis feet against; black spot, spider webs and such, and just like several years ago, I heard a cracking sound and although I have very little sensation, it does seem to hurt quite a bit. So anyway...what's up will all of you people? What kind of trouble have my old friends gotten into? C'mon, spit it out...You know I will get it out of you sometime...as the old adage goes, you can run, but you can't hide. Ok, let's start with you Doctor Rick; have you and the fam gone on any neat excursions out into the wilds of the world? And how is Terry doing? Still up and getting around in spite of good old TM? Miss Ella...I haven't heard a word from you or any of your 105 sisters. I'm sure that you are busy getting ready for some celebration or another. I know it's got to be someone's birthday or something. I now have a new computer with which I am having a love/hate relationship with. This one does all kinds of new tricks and treats, but it's not the right time of year for that so it's not cooperating. It's got to have something to do with that inch or so of white stuff littering the ground, looking like it's going to stay for three or four months. And now, if Dave agrees that I need to be seen by the doc, I will probably need to go out for x-rays. Well friends, I won't take up any more of your time and will let you know what the Dr. has to say and if I get casted, what color I will choose. Lots and lots of love, Jude...
