date:20100107

*Hello Regina,*

*Recurrent TM is not *always* indicative of MS.  There are very rare cases
(And Linda is one of them) of people experiencing relapsing TM.  I myself
experience relapsing LETM (Longitudinal Extensive Transverse Myelitis.) as a
result of Devic's NMO.  Linda also has Sjogren's, which on occasion can
cause relapsing attacks of TM.  Much more goes into the diagnosis of
Multiple Sclerosis than simply the presence of spinal lesions.*
**
*Laura, I have Devic's NMO.  It involves the spinal cord, optic nerve,
brainstem, and in a percentage of cases, the brain proper.  Unfortunately,
it can be and often is, fatal.*
**
* Respectfully,*
*Grace (Devic's NMO since 2005)*
**

**

Re: [TMIC] Linda's recurrent TM

2010-01-07 Thread frank


Frank explained some time ago that one ocurrence is TM, the second one 
indicates MS. Perhaps I misunderstood.


Yes, That is exactly correct


F

Re: [TMIC] Linda's recurrent TM

2010-01-07 Thread Barbara H.

No, it is not correct, according to the articles I quoted earlier and
according to the experience of several people here.. Some people have more
than one attack without having further symptoms of MS. A second attack
indicates MS is a strong possibility, but it isn't always MS. With more than
one attack but no lesions on the brain or other MS indicators, people are
then diagnosed with recurrent TM.

Barbara H.
http://barbarah.wordpress.com

On Thu, Jan 7, 2010 at 2:53 PM, fr...@franksheldon.com wrote:

 Frank explained some time ago that one occurrence is TM, the second one
 indicates MS.  Perhaps I misunderstood.

 Yes, That is exactly correct

 F

Re: [TMIC] Linda's recurrent TM

2010-01-07 Thread kimr1999

That would be me Frank
 With more than one attack but no lesions on the brain or other MS indicators, 
people are then diagnosed with recurrent TM.

--- On Thu, 1/7/10, Barbara H. barbara...@gmail.com wrote:

From: Barbara H. barbara...@gmail.com
Subject: Re: [TMIC] Linda's recurrent TM
To: fr...@franksheldon.com
Cc: Regina Rummel regina...@sbcglobal.net, tmic-list@eskimo.com
Date: Thursday, January 7, 2010, 2:58 PM

No, it is not correct, according to the articles I quoted earlier and according 
to the experience of several people here.. Some people have more than one 
attack without having further symptoms of MS. A second attack indicates MS is a 
strong possibility, but it isn't always MS. With more than one attack but no 
lesions on the brain or other MS indicators, people are then diagnosed with 
recurrent TM.

Barbara H.
http://barbarah.wordpress.com

On Thu, Jan 7, 2010 at 2:53 PM, fr...@franksheldon.com wrote:

Frank explained some time ago that one occurrence is TM, the second one 
indicates MS.  Perhaps I misunderstood.

Yes, That is exactly correct

F

Re: [TMIC] Linda's recurrent TM

2010-01-07 Thread jrushton

From what I read and have studied, Barbara, you are right..  Plus the 
inflammation in the spinal fluid.  Jeanne in Dayton, WA

Re: [TMIC] Linda's recurrent TM

 *Hi Frank,*
 **
 *I love you dearly but I beg to differ. Although a second episode of TM
 *can* be indicative of MS, it is not always.  Recurrent TM occurs in NMO,
 rare cases of Sjogren's, rare cases of Cogans, in conjunction with LUPUS
 (Which usually but not always indicates NMO)  There are also cases of NMOIgG
 seropositive cases of relapsing TM, which are in the NMO spectrum.  There
 are also rare cases of idiopathic relapsing TM which is nothing more than
 that.*
 **
 *Current research bears this out and can be provided upon request.  No
 harm, no foul.*
 **
 *Respectfully,*
 *Grace  *

RE: [TMIC] Linda's recurrent TM


Hi all - 

 

Thank you Grace for the very accurate explanation.  Grace is correct, I do NOT 
have MS.  My challenges stem from having Sjogrens, which has become very 
aggressive over the last 10 yrs or so.  TM was an added gift almost 8 years 
ago.  My docs try very hard to suppress my immune system so that hopefully I 
will not be hit up high again in the cervical area.  The attack before this one 
did get my spine at T2.  Thankfully PT did help to regain some of what I lost.  
But this last attack has been the worst.  You all know the feeling - 1 step 
forward, 2 steps backward.  Trying very hard in aqua therapy - would really 
like to get back at least some of what I have lost.  Never give up.

 

I mentioned that I had a question I was going to post.  Well - Janice you 
little sweetie - we don't get away with anything here - she keeps us on our 
toes.

 

I know there are some people here who are on Imuran.  I have had no problems at 
all with it for the last 6 yrs.  Then 3 mos ago my white count (blood) was low, 
it has since resolved.  Now my liver function is elevated and I am having blood 
tests again tomorrow.  Hopefully this has resolved itself also.  IF not, and 
Grace feel free to jump in here, my doc has said probably time to look at 
another chemo drug - they're all nasty, but I know about some of the 
alternatives and they are even nastier. And for those of you who do not know, I 
am also on Rituxan infusions every 6 months.

 

If anyone has had difficulties with Imuran, were you changed to another med, 
and if so, which one, and how are you doing on it?

 

Probably way more info than anyone needs.  But I'm sure there are others who 
have gone through this (or similar) and maybe this will also help someone in 
our group who reads the posts but doesn't respond often.

 

Thanks guys for listening and any help you may have to offer

 

Linda (Eagle, Id)


 


Date: Thu, 7 Jan 2010 14:39:42 -0500
Subject: Re: [TMIC] Linda's recurrent TM
From: grace...@gmail.com
To: regina...@sbcglobal.net
CC: tmic-list@eskimo.com


Hello Regina,
 
Recurrent TM is not *always* indicative of MS.  There are very rare cases (And 
Linda is one of them) of people experiencing relapsing TM.  I myself experience 
relapsing LETM (Longitudinal Extensive Transverse Myelitis.) as a result of 
Devic's NMO.  Linda also has Sjogren's, which on occasion can cause relapsing 
attacks of TM.  Much more goes into the diagnosis of Multiple Sclerosis than 
simply the presence of spinal lesions.
 
Laura, I have Devic's NMO.  It involves the spinal cord, optic nerve, 
brainstem, and in a percentage of cases, the brain proper.  Unfortunately, it 
can be and often is, fatal.
 
 Respectfully,
Grace (Devic's NMO since 2005)

Re: [TMIC] Linda's recurrent TM


 *Hi Irish,  *



 *Y**ou've already done methotrexate both oral and injections, haven't
 you?  Has your doctor conisdered CellCept? (Mycophenolate Mofetil)  We do
 have some members at Devic's Support that have used it while also using
 Rituxan.  Are you on a full gram of Rituxan per infusion?  How much Imuran
 are you currently using---I'm thinking 150-200 mgs?   My neuro had me
 totally phase out the Imuran after Rituxan kicked in.  Like you, on one
 occasion I experienced a really low white count, and on another, elevated
 liver enzymes.  Both times I had to stop using it until everything was back
 in order.   *



 *XOXO *



 *Gracie*

 * *

RE: [TMIC] Linda's recurrent TM


Hi Grace,

 

Yes I gave myself methotrexate injections for 2 years, then doc changed to 
Imuran.  At the beginning of this last attack he did mention CellCept, and yes 
I am on a full gram of Rituxam per infusion.  Have been on 150 mg Imuran for 6 
yrs, and with all these crappy meds I am still relapsing.  Gotta do 
something.  The thought of losing more is not much of a comfort.

 

hugs,

Linda


 


Date: Thu, 7 Jan 2010 15:38:28 -0500
Subject: Re: [TMIC] Linda's recurrent TM
From: grace...@gmail.com
To: cherp...@msn.com
CC: regina...@sbcglobal.net; tmic-list@eskimo.com




Hi Irish,  
 

You've already done methotrexate both oral and injections, haven't you?  Has 
your doctor conisdered CellCept? (Mycophenolate Mofetil)  We do have some 
members at Devic's Support that have used it while also using Rituxan.  Are you 
on a full gram of Rituxan per infusion?  How much Imuran are you currently 
using---I'm thinking 150-200 mgs?   My neuro had me totally phase out the 
Imuran after Rituxan kicked in.  Like you, on one occasion I experienced a 
really low white count, and on another, elevated liver enzymes.  Both times I 
had to stop using it until everything was back in order.   
 

XOXO 
 

Gracie

RE: [TMIC] Linda's recurrent TM


Hi Regina,

 

Thank you for your kind thoughts.  Not to worry, I'm looking forward to good 
news and better days too.  I'm faithfully doing water therapy 3x a week (for 
almost 3 months now) and my body already is starting to feel better.  Gee, as 
an added bonus I might even get a little bit buff  ha  Oh and to answer 
your question, yes my doctor diagnosed me with recurrent TM when I lived in 
Seattle.  My Neuro  Rheumatologist here wanted to start from scratch 
themselves, so all tests, MRIs etc re-done - same conclusions.  What was so 
strange to me when TM hit was that my Rheumatologist was not surprised in the 
least because I had had aggressive Sjogrens since 1988 - and he was my doc 
during all those years.  I am quite thankful I never knew beforehand that TM 
could happen!  Would not have cared to have that cloud hanging over my head all 
those years.   

 

Hope you're feeling better - did you ever find some good shoes?  I personally 
don't think they exist

 

Linda

 

 


 


Date: Thu, 7 Jan 2010 10:22:02 -0800
From: regina...@sbcglobal.net
To: tmic-list@eskimo.com
Subject: [TMIC] Linda's recurrent TM






Linda,
I don't like the sound of recurrent TM.
Frank explained some time ago that one ocurrence is TM, the second one 
indicates MS.  Perhaps I misunderstood.
Did your doctor tell you that you had recurrent TM?
How can we tell that we have it without an MRI?
Caring for you, Linda and always hoping for good news.
R

[TMIC] Sjogren's

2010-01-07 Thread Regina Rummel

Linda,
Ever since I was diagnosed with Sjogren's, I had had to use eye drops often and 
regularly.  I wonder if it causes more than just dry eyes.  
You say that you are glad that you didn't know the condition could lead to TM.  
I wouldn't even have known what TM was.  But as I noted earlier, I read on a 
doctor's report that the central nervous system could be affected.  Lupus was 
another problem the rhumatologist warned me about.  
I'm also wondering if Devic's and Sjogren have anything in common since the 
eyes are affected.   The optic nerve and the lacrimal glands are close 
together, aren't they?  Grace, you would know.
Janice, I'm beginning to sound like you with questions; you're rubbing off on 
me.
Take care,
R

[TMIC] OY Nursing Homes

2010-01-07 Thread Kevin Wolfthal



Has anyone had family members try to force you into a nursing home 
against your will?


it may be the most dehumanizing experience one can have,

How did you handle it?

Kevin

Re: [TMIC] Some really comfortable shoes.

*Found some more shoes that are really comfortable.  Go to the *Shoes for
Crews* website.  My daughter has a pair of these shoes and I've actually
tried them out and worn them a few times.  They're designed for people who
are on their feet a lot, and really *grab* the floor---no slipping and
sliding.  She bought them because she really liked their look and feel.  The
styles are limited, but they do have some really neat women's shoes.  I'm
going to be ordering two pairs---one a lace up and the other a loafer.
They're worth checking out. *
**
*Gracie   *

Re: [TMIC] Sjogren's

*Hi Regina,  *
**
*They've actually identified the autoimmune antibody that is a marker for
Devic's NMO.  Although one can have a concurrent diagnosis of NMO AND
Sjogren's (Which is extremely rare.), I don't think that they are related
with the exception that both are autoimmune diseases, at leat I have not yet
read anything to that effect in the literature.*
**
*dDd you doctor not explain to you that Sjogren's can affect parts of the
body other than the eyes?*
**
*
Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome

Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine
Moorehttp://www.suite101.com/profile.cfm/daisyelaine
   This article describes the clinical and diagnostic differences between
primary and secondary Sjogren's syndrome.

 Sjogren's disease is a chronic autoimmune disease that occurs as a
localized syndrome primarily causing mouth and eye dryness (sicca syndrome)
or as a systemic disease affecting multiple organs. Sjogren's is suspected
of affecting about 2-3 million Americans, 90 percent of them women.
Frequently, the condition remains unrecognized and untreated, and when
treated, the average diagnosis is reported to take 3.5 years. Women in their
fourth decade of life are most likely to be affected. The complaint most
often listed at the time of diagnosis is mouth dryness. In Sjogren's
syndrome, white blood cells known as lymphocytes invade the exocrine glands.
The exocrine glands produce needed moisture for lubricating and bathing the
body's organs.

Continued at:

http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes
Grace


*

Fwd: [TMIC] Sjogren's (Amended)

 *Hi Regina,  *
**
*They've actually identified the autoimmune antibody that is a marker for
Devic's NMO.  Although one can have a concurrent diagnosis of NMO AND
Sjogren's (Which is extremely rare.), I don't think that they are related
with the exception that both are autoimmune diseases, at leat I have not yet
read anything to that effect in the literature.  *
**
*No Regina, the optic damage that occurs in Devic's NMO is limited to the
optic nerve and disk.  It is much more destructive that the ON which is
encountered in MS, and permanent blindness is a relatively common
occurence. *
**
*Did your doctor not explain to you that Sjogren's can affect parts of the
body other than the eyes?*
**
*
Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome

Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine
Moorehttp://www.suite101.com/profile.cfm/daisyelaine
   This article describes the clinical and diagnostic differences between
primary and secondary Sjogren's syndrome.

 Sjogren's disease is a chronic autoimmune disease that occurs as a
localized syndrome primarily causing mouth and eye dryness (sicca syndrome)
or as a systemic disease affecting multiple organs. Sjogren's is suspected
of affecting about 2-3 million Americans, 90 percent of them women.
Frequently, the condition remains unrecognized and untreated, and when
treated, the average diagnosis is reported to take 3.5 years. Women in their
fourth decade of life are most likely to be affected. The complaint most
often listed at the time of diagnosis is mouth dryness. In Sjogren's
syndrome, white blood cells known as lymphocytes invade the exocrine glands.
The exocrine glands produce needed moisture for lubricating and bathing the
body's organs.

Continued at:

http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes
Grace


*

Re: [TMIC] Some really comfortable shoes.

Hi Grace,

Thanks for the shoe website.  I just visited.  I saw one pair of shoes in 
particular that looked very comfortable and maybe softer than some of the 
others looked.  That was the Hawk under women's casual.  Have you tried that 
one?  I've got to do something.  I stopped to pick up a prescription on the way 
home from aqua therapy and everybody around me gasped and said aren't your feet 
freezing  (it was 23 degrees)  I had flip flops on.  My explanation was 
that I had just been at the pool.  Which I had - but have to tell you that 
explanation worked really well.  The truth of the matter was I couldn't feel my 
feet, so of course I didn't know if they were cold or not, and I have tried 
wearing all kinds of shoes, and the neuropathic crap starts and I end up 
getting them off my feet asap.  Ho Hum  I know I have lots of company on 
this subject.

Linda
  - Original Message - 
  From: Grace M.mailto:grace...@gmail.com 
  To: L T CHERPESKImailto:cherp...@msn.com 
  Cc: Regina Rummelmailto:regina...@sbcglobal.net ; TM 
Listmailto:tmic-list@eskimo.com 
  Sent: Thursday, January 07, 2010 4:05 PM
  Subject: Re: [TMIC] Some really comfortable shoes.


  Found some more shoes that are really comfortable.  Go to the *Shoes for 
Crews* website.  My daughter has a pair of these shoes and I've actually tried 
them out and worn them a few times.  They're designed for people who are on 
their feet a lot, and really *grab* the floor---no slipping and sliding.  She 
bought them because she really liked their look and feel.  The styles are 
limited, but they do have some really neat women's shoes.  I'm going to be 
ordering two pairs---one a lace up and the other a loafer.  They're worth 
checking out. 

  Gracie

Re: [TMIC] Sjogren's

Sorry about that!  By the way, I do not know what Sjogrens entails - 
can someone help me?
Janice

From: Regina Rummel 
Sent: Thursday, January 07, 2010 4:34 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] Sjogren's

  Linda,
  Ever since I was diagnosed with Sjogren's, I had had to use eye drops 
often and regularly.  I wonder if it causes more than just dry eyes.  
  You say that you are glad that you didn't know the condition could lead 
to TM.  I wouldn't even have known what TM was.  But as I noted earlier, I read 
on a doctor's report that the central nervous system could be affected.  Lupus 
was another problem the rhumatologist warned me about.  
  I'm also wondering if Devic's and Sjogren have anything in common since 
the eyes are affected.   The optic nerve and the lacrimal glands are close 
together, aren't they?  Grace, you would know.
  Janice, I'm beginning to sound like you with questions; you're rubbing 
off on me.
  Take care,
  R

Re: [TMIC] Some really comfortable shoes.

Me too - about not knowing if my feet are cold or not.   It is weird.   But 
then, so is the rest of my body from the chest down!
Janice

From: L T CHERPESKI 
Sent: Thursday, January 07, 2010 7:44 PM
To: Grace M. 
Cc: Regina Rummel ; TM List 
Subject: Re: [TMIC] Some really comfortable shoes.

Hi Grace,

Thanks for the shoe website.  I just visited.  I saw one pair of shoes in 
particular that looked very comfortable and maybe softer than some of the 
others looked.  That was the Hawk under women's casual.  Have you tried that 
one?  I've got to do something.  I stopped to pick up a prescription on the way 
home from aqua therapy and everybody around me gasped and said aren't your feet 
freezing  (it was 23 degrees)  I had flip flops on.  My explanation was 
that I had just been at the pool.  Which I had - but have to tell you that 
explanation worked really well.  The truth of the matter was I couldn't feel my 
feet, so of course I didn't know if they were cold or not, and I have tried 
wearing all kinds of shoes, and the neuropathic crap starts and I end up 
getting them off my feet asap.  Ho Hum  I know I have lots of company on 
this subject.

Linda
  - Original Message - 
  From: Grace M. 
  To: L T CHERPESKI 
  Cc: Regina Rummel ; TM List 
  Sent: Thursday, January 07, 2010 4:05 PM
  Subject: Re: [TMIC] Some really comfortable shoes.

  Found some more shoes that are really comfortable.  Go to the *Shoes for 
Crews* website.  My daughter has a pair of these shoes and I've actually tried 
them out and worn them a few times.  They're designed for people who are on 
their feet a lot, and really *grab* the floor---no slipping and sliding.  She 
bought them because she really liked their look and feel.  The styles are 
limited, but they do have some really neat women's shoes.  I'm going to be 
ordering two pairs---one a lace up and the other a loafer.  They're worth 
checking out. 

  Gracie

Re: [TMIC] Sjogren's

Thanks, Grace.Now I at least know what you are dealing with.You would 
think TM is enough to deal with.   Hope it disappears!
Janice

From: Grace M. 
Sent: Thursday, January 07, 2010 5:19 PM
To: regina...@sbcglobal.net 
Cc: tmic-l...@eskimo.net 
Subject: Re: [TMIC] Sjogren's

Hi Regina,  

They've actually identified the autoimmune antibody that is a marker for 
Devic's NMO.  Although one can have a concurrent diagnosis of NMO AND Sjogren's 
(Which is extremely rare.), I don't think that they are related with the 
exception that both are autoimmune diseases, at leat I have not yet read 
anything to that effect in the literature.

dDd you doctor not explain to you that Sjogren's can affect parts of the body 
other than the eyes?

Sjogren's Subtypes
Primary Sjogren's Disease VS Sjogren's Syndrome 
Apr 24, 2006 Elaine Moore 

This article describes the clinical and diagnostic differences between primary 
and secondary Sjogren's syndrome. 

Sjogren's disease is a chronic autoimmune disease that occurs as a localized 
syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a 
systemic disease affecting multiple organs. Sjogren's is suspected of affecting 
about 2-3 million Americans, 90 percent of them women. Frequently, the 
condition remains unrecognized and untreated, and when treated, the average 
diagnosis is reported to take 3.5 years. Women in their fourth decade of life 
are most likely to be affected. The complaint most often listed at the time of 
diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as 
lymphocytes invade the exocrine glands. The exocrine glands produce needed 
moisture for lubricating and bathing the body's organs.

Continued at:

http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes

Grace

Re: [TMIC] Some really comfortable shoes.

That's me too Janice.  From the chest down - but a little with the hands and 
arms too.
Linda
  - Original Message - 
  From: Janice Nicholsmailto:jan...@centurytel.net 
  To: L T CHERPESKImailto:cherp...@msn.com ; Grace 
M.mailto:grace...@gmail.com 
  Cc: Regina Rummelmailto:regina...@sbcglobal.net ; TM 
Listmailto:tmic-list@eskimo.com 
  Sent: Thursday, January 07, 2010 7:37 PM
  Subject: Re: [TMIC] Some really comfortable shoes.

  Me too - about not knowing if my feet are cold or not.   It is weird.   But 
then, so is the rest of my body from the chest down!
  Janice

  From: L T CHERPESKImailto:cherp...@msn.com 
  Sent: Thursday, January 07, 2010 7:44 PM
  To: Grace M.mailto:grace...@gmail.com 
  Cc: Regina Rummelmailto:regina...@sbcglobal.net ; TM 
Listmailto:tmic-list@eskimo.com 
  Subject: Re: [TMIC] Some really comfortable shoes.

  Hi Grace,

  Thanks for the shoe website.  I just visited.  I saw one pair of shoes in 
particular that looked very comfortable and maybe softer than some of the 
others looked.  That was the Hawk under women's casual.  Have you tried that 
one?  I've got to do something.  I stopped to pick up a prescription on the way 
home from aqua therapy and everybody around me gasped and said aren't your feet 
freezing  (it was 23 degrees)  I had flip flops on.  My explanation was 
that I had just been at the pool.  Which I had - but have to tell you that 
explanation worked really well.  The truth of the matter was I couldn't feel my 
feet, so of course I didn't know if they were cold or not, and I have tried 
wearing all kinds of shoes, and the neuropathic crap starts and I end up 
getting them off my feet asap.  Ho Hum  I know I have lots of company on 
this subject.

  Linda
- Original Message - 
From: Grace M.mailto:grace...@gmail.com 
To: L T CHERPESKImailto:cherp...@msn.com 
Cc: Regina Rummelmailto:regina...@sbcglobal.net ; TM 
Listmailto:tmic-list@eskimo.com 
Sent: Thursday, January 07, 2010 4:05 PM
Subject: Re: [TMIC] Some really comfortable shoes.

Found some more shoes that are really comfortable.  Go to the *Shoes for 
Crews* website.  My daughter has a pair of these shoes and I've actually tried 
them out and worn them a few times.  They're designed for people who are on 
their feet a lot, and really *grab* the floor---no slipping and sliding.  She 
bought them because she really liked their look and feel.  The styles are 
limited, but they do have some really neat women's shoes.  I'm going to be 
ordering two pairs---one a lace up and the other a loafer.  They're worth 
checking out. 

Gracie

Re: [TMIC] OY Nursing Homes

Not to be nosy, but why were they trying to do that? 
Janice

--
From: Kevin Wolfthal wolft...@optonline.net
Sent: Thursday, January 07, 2010 4:54 PM
To: tmic-list@eskimo.com
Subject: [TMIC] OY Nursing Homes

Has anyone had family members try to force you into a nursing home against 
your will?

it may be the most dehumanizing experience one can have,

How did you handle it?

Kevin

Re: [TMIC] Some really comfortable shoes.

2010-01-07 Thread jrushton

Same here, Janice...exactly the same!! Jeanne

[TMIC] Check out this trike motorcycle

2010-01-07 Thread kimr1999

Check out this trike motorcycle that they built on American Chopper
it's done for the Christoher Reeve foundation,,
 
we could call ourselves TM Trikers!!!
 
 
http://tlc.discovery.com/videos/american-chopper-season-6-clips-wheelchair-chopper-plans.html

Re: [TMIC] Sjogren's (Amended)

Grace, thanks for posting this Sjogrens site. I have to say, of all the info I
have read, this is the ONLY place that has actually mentioned Transverse
Myelitis - up to 1% with Sjogrens! My doctor explained it to me when I got TM,
but I had no idea what he was talking about - still sitting there in a fog with
a totally numb body. I kind of feel like the doctor explained it to me again
today, except today I actually know what he was talking about! I don't know,
maybe ignorance was bliss at that time...

Regina, did you read the articles and were you a bit surprised?

Linda

- Original Message -
From: Grace M.mailto:grace...@gmail.com
To: regina...@sbcglobal.netmailto:regina...@sbcglobal.net
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Thursday, January 07, 2010 4:23 PM
Subject: Fwd: [TMIC] Sjogren's (Amended)

Hi Regina,

They've actually identified the autoimmune antibody that is a marker for
Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's
(Which is extremely rare.), I don't think that they are related with the
exception that both are autoimmune diseases, at leat I have not yet read
anything to that effect in the literature.

No Regina, the optic damage that occurs in Devic's NMO is limited to the
optic nerve and disk. It is much more destructive that the ON which is
encountered in MS, and permanent blindness is a relatively common occurence.

Did your doctor not explain to you that Sjogren's can affect parts of the
body other than the eyes?

Sjogren's Subtypes
Primary Sjogren's Disease VS Sjogren's Syndrome
Apr 24, 2006http://www.suite101.com/daily.cfm/2006-04-24 Elaine
Moorehttp://www.suite101.com/profile.cfm/daisyelaine

This article describes the clinical and diagnostic differences between
primary and secondary Sjogren's syndrome.

Sjogren's disease is a chronic autoimmune disease that occurs as a localized
syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a
systemic disease affecting multiple organs. Sjogren's is suspected of affecting
about 2-3 million Americans, 90 percent of them women. Frequently, the
condition remains unrecognized and untreated, and when treated, the average
diagnosis is reported to take 3.5 years. Women in their fourth decade of life
are most likely to be affected. The complaint most often listed at the time of
diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as
lymphocytes invade the exocrine glands. The exocrine glands produce needed
moisture for lubricating and bathing the body's organs.

Continued at:

http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypeshttp://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes

Grace

Re: [TMIC] Update