Re: [TMIC] Jude (hey Jude) Talked on Phone
GREAT NEWS!!! --- On Mon, 7/26/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: [TMIC] Jude (hey Jude) Talked on Phone To: tmic tmic-list@eskimo.com Date: Monday, July 26, 2010, 10:23 PM Prayers, antibiotics, food and fluids have all helped Jude recover from her latest UTI. I talked with her tonight on the telephone and I'm amazed how well she sounds. Jude does not remember my visit last week. She was surprised when her husband told her I had visited. That's how sick she was. Jude remembers writing to the tmic and asking Does anyone remember jude, but she doesn't remember getting any responses. I told her to give it a try again, because we are answering and writing, but she doesn't respond to us. She might have Dave set up the laptop tomorrow. I'm going to send her a note and put something in the subject line so she recognizes me and opens my post. Jude answered when I called on her home phone. I don't know if she uses the cell phone or not. I'm going to check in on her and see if I can get some addresses on her laptop. Maybe we can get her back to helping us with her experience and intelligence. Patti - Michigan Blessings to all Patti - Michigan
[TMIC] good to see posts
it is good to see emails from this list. having been over 2 years with TM there have been times of depression that I have never experienced even with the depression you have with the death of loved ones. I did read of this depression, I think it was on the ninds website, and understood it when it happened. I just determined that it was not clinical and decided to go to sleep. when i woke up it was gone. My Neurologist said my faith and good humor would be instrumental in my recovery. He is determined that i will.
Re: [TMIC] good to see posts
Have you just found this website?I am not familiar with your name. Regardless, we welcome you with open arms! You are right, the depression from TM is not clinical/chemical, it is the isolation felt from having such a rare disease and your life as you have always know it, taken from you. Those are 2 big hits that have left most of us on some kind of medication for depression.I take Zoloft. Faith and good humor are huge assets, along with determination to improve as far as possible. How has TM left you physically? Can you walk, or do you use a wheelchair? Do you have family support? You are under no obligation to answer these questions, we all just have a pretty good idea of each other's situation through conversations like this.Some people like to stay more private. Regardless, we welcome any comments, questions, etc. Hope to hear from you, Janice from Missouri From: john snodgrass Sent: Tuesday, July 27, 2010 6:49 AM To: transverse myelitis Subject: [TMIC] good to see posts it is good to see emails from this list. having been over 2 years with TM there have been times of depression that I have never experienced even with the depression you have with the death of loved ones. I did read of this depression, I think it was on the ninds website, and understood it when it happened. I just determined that it was not clinical and decided to go to sleep. when i woke up it was gone. My Neurologist said my faith and good humor would be instrumental in my recovery. He is determined that i will.
Re: [TMIC] TM Info request
Thank you Betty this info is awesome. My spirits have really been uplifted today .Your testimony is very encouraging, I have had TM since 2002 and I agree with you there is not a time frame for our healing. This is in the hands of God. I reuse to believe this healing will not take place .I regained most of my sensation back in my entire body. I have gone through everything almost everyone else have and at time I still do. I never put my focus on my illness,but on my healer. I just finished 10 weeks of therapy and now I am in a wellness program to aid in strengthening my muscles. My hands are numb most of the time. I can still use them to do most anything with. My feet and hands are hot and cold a lot of time now more than ever. I will not give up on believing I will not overcome this disease. I take care of my grandson who is autistic every day. When school starts I will start back to driving him too and from school .I keep going and keep believing that the next day will bring me closer to a healing. I pray to God for all, that we will be healed and get our lives back, and also thank Him for letting us see another day. If anyone have pain in their hip joints and weak ankles please tell me how you are coping with it. I know my ankles are weak and is causing my feet to turn. You should really see my shoes. I just returned from a Family Reunion in Chicago Via Cleveland and flew by myself. 5 hours sitting and it seemed like I held that position for 3 days afterward. I had my cane with me and used it and was not ashamed. I turned 61 on Sunday and I am really blessed in the Lord. It is not the TM that bothers me but the other diseases that attack my body. I had a life-threatening bout with MRSA in April and almost died. my blood was highly infected. I was going into renal failure with the right kidney and came out healed.That's one of the reasons I refuse to give up on our healing from this disease. God brought me out of that and He can bring me out of this. Be blessed in the Healer, Think on my signature. There is none so amazing as God There is none so amazing as God Peggy Wilson In a message dated 7/26/2010 8:21:03 P.M. US Mountain Standard Time, jan...@centurytel.net writes: Betty, thanks for chiming in and letting us get to know you and your situation. I wanted to tell you that some of us have had improvements several years after the 2-year mark.So never give up. Your symptoms - fatigue, skin sensations/not, tingly feelings under the skin, pain, banding - are what we are all dealing with, not to mention the balance and walking problems, for those who can walk. That is what is so great about this website. You can talk, vent, recommend, enlighten, etc.We can all learn/help from each other, whether it is emotional help or medical help.I am glad you are doing as well as you are and, please, keep emailing us. We can always use input. Janice From: _Beeclark_ (mailto:beecl...@aol.com) Sent: Monday, July 26, 2010 5:59 PM To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] TM Info request Hi Craig. My name is Betty, I'm 57 years old live in northern California. My journey into TM started the morning after Easter in April, 2006 (no previous symptoms or illness). I woke w/ a numb right arm. I also had intense pain around the back of my neck between my shoulder blades. Then I noticed both big toes felt numb. After the Dr. did an EKG, X-ray blood test, I went home to wait for results. That evening, both legs, besides feeling numb, started spasming got so bad, my husband went to an all-night pharmacy to get a Rx to get me through the night. At 2:00 the next afternoon my GP finally said to go to Emergency. After an hour-and-a-half MRI Spinal Tap, the on-call neurologist said I had TM, fortunately at C7 only. However, paralyzed by this time from the chest down w/no hand function, I spent 4 days in the hospital on Solumedrol treatments, which arrested the virus, then was x'ferred to a local recovery center for 4 wks of intensive physical occupational therapy where I regained most of the use of my legs arms/hands. My right leg is nearly completely recovered. I still have a hitch in my left leg went to PT 2X/week. I can walk – though somewhat unsteadily due to balance issues w/the left leg/foot (also intensified by the use of Neurontin/Gabapentin). I've been left w/ a kind of surface skin numbness... I have gross touch sensation (I can feel it if I rub my right leg or upper torso) h owever, if I'm scratched w/ something sharp, I don't feel it. My left leg (the bad one) has much less sensation. Ever since, I've spent every week 2X/wk w/a hand specialist because my hand function never returned completely. However small, I have gained progress over time in strength function thru the use of
[TMIC] Fw: Clorox vs Peroxide.....this is good
I found this very interesting - hope you do too. Janice - Original Message - Clorox vs Peroxide VERY interesting and inexpensive. This was written by Becky Ransey of Indiana (a doctor's Wife), and I want to share it with you. She was over recently for coffee and smelled the bleach I was using to clean my toilet and counter tops. This is what she told me. 'I would like to tell you of the benefits of that Plain little ole bottle of 3% peroxide you can get for under $1.00 at any drug store. What does bleach cost? My husband has been in the medical field for over 36 years, And most doctors don't tell you about peroxide. Have you Ever smelled bleach in a doctor's office? NO!!! Why? Because it smells, and it is not healthy! Ask the nurses who work in the doctor's offices, and ask them if they use bleach at home. They are wiser and know better! Did you also know bleach was invented in the late 40's? It's chlorine, folks! And it was used to kill our Troops. Peroxide was invented during WWI in the 20's. It was used to save and help cleanse the needs of our troops and hospitals. Please think about this: 1. Take one capful (the little white cap that comes with the bottle) and hold in your mouth for 10 minutes daily, then spit it out. (I do it when I bathe.) No more canker sores, and your teeth will be whiter without expensive pastes. Use it instead of mouthwash. 2. Let your toothbrushes soak in a cup of peroxide to keep them free of germs. 3. Clean your counters and table tops with peroxide to kill germs and leave a fresh smell. Simply put a little on your dishrag when you wipe, or spray it on the counters. 4. After rinsing off your wooden cutting board, pour peroxide on it to kill salmonella and other bacteria. 5. I had fungus on my feet for years until I sprayed a 50/50 mixture of peroxide and water on them (especially the toes) every night and let dry. 6. Soak any infections or cuts in 3% peroxide for five to ten minutes several times a day. My husband has seen gangrene that would not heal with any medicine but was healed by soaking in peroxide. 7. Fill a spray bottle with a 50/50 mixture of peroxide and Water and keep it in every bathroom to disinfect without Harming your septic system like bleach or most other Disinfectants will. 8. Tilt your head back and spray into nostrils with your 50/50 mixture whenever you have a cold, plugged sinus. It will bubble and help to kill the bacteria. Hold for a few minutes, and then blow your nose into a tissue. 9. If you have a terrible toothache and cannot get to a dentist right away, put a capful of 3% peroxide into your mouth and hold it for ten minutes several times a day. The pain will lessen greatly. 10. And of course, if you like a natural look to your hair, spray the 50/50 solution on your wet hair after a shower and comb it through. You will not have the peroxide-burnt blonde hair like the hair dye packages but more natural highlights if your hair is a light brown, reddish, or dirty blonde. It also lightens gradually, so it's not a drastic change. 11. Put half a bottle of peroxide in your bath to help get rid of boils, fungus, or other skin infections. 12. You can also add a cup of peroxide instead of bleach to a load of whites in your laundry to whiten them. If there is blood on clothing, pour it directly on the soiled spot. Let it sit for a minute, then rub it and rinse with cold water. Repeat if necessary. 13. I use peroxide to clean my mirrors. There is no smearing, which is why I love it so much for this. 14. Another place it's great is in the bathroom, if someone has been careless has wet on the floor around the toilet it's begun to smell of urine. Just put some peroxide in a spray bottle spray. In the blink of any eye all the smell will be gone the bacteria eliminated! I could go on and on. It is a little brown bottle no home should be without! With prices of most necessities rising, I'm glad there's a way to save tons of money in such a simple, healthy manner! ' This information really woke me up. I hope you gain something from it, too. Pass it on! Clorox vs peroxide VERY interesting and inexpensive =
Re: [TMIC] good to see posts
John, it is understandable to feed a Loss for what we once Had depression is one of the hardest things to admit for me (now on Cymbalta). I have tried to stay up beat and happy but have days that I just want to sleep and forget TM came into my life. But after joining this site I have come to realize I had to learn to depend on others, and use friends on this site for support. We all have different symptoms from TM but also a lot of us have the same. We are all in this together and no topic or question is off limits. We are here for each other for support, encouragement and questions. --- On Tue, 7/27/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] good to see posts To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Date: Tuesday, July 27, 2010, 8:23 AM Have you just found this website? I am not familiar with your name. Regardless, we welcome you with open arms! You are right, the depression from TM is not clinical/chemical, it is the isolation felt from having such a rare disease and your life as you have always know it, taken from you. Those are 2 big hits that have left most of us on some kind of medication for depression. I take Zoloft. Faith and good humor are huge assets, along with determination to improve as far as possible. How has TM left you physically? Can you walk, or do you use a wheelchair? Do you have family support? You are under no obligation to answer these questions, we all just have a pretty good idea of each other's situation through conversations like this. Some people like to stay more private. Regardless, we welcome any comments, questions, etc. Hope to hear from you, Janice from Missouri From: john snodgrass Sent: Tuesday, July 27, 2010 6:49 AM To: transverse myelitis Subject: [TMIC] good to see posts it is good to see emails from this list. having been over 2 years with TM there have been times of depression that I have never experienced even with the depression you have with the death of loved ones. I did read of this depression, I think it was on the ninds website, and understood it when it happened. I just determined that it was not clinical and decided to go to sleep. when i woke up it was gone. My Neurologist said my faith and good humor would be instrumental in my recovery. He is determined that i will.
[TMIC] Re: bowel and bladder problems.
Thanks Gerry, My urologist also started me on my new medications which is Flomax .4 mg. I have been on it now for 2 weeks and will see him again in 2 more weeks. I haven't seen a improvement yet, but it may be too early. In my first visit, he did check my prostate and it's fine at this time. He says he has had other TM patients and thinks he will be able to help me too. Hope everyone is having a better day with this, Todd in CC, TX --- On Fri, 7/23/10, Gerry Surette suret...@sympatico.ca wrote: From: Gerry Surette suret...@sympatico.ca Subject: bowel and bladder problems. To: toddtm2...@sbcglobal.net Date: Friday, July 23, 2010, 5:56 AM Hi Todd i just recovered from chronic myleopathy. like trying to pass an elephant through my penis. this is a great by product of TM. I went to a urologist and he prescribed. flomax .4mg one a day. since the side effect is dizzyness I take mine at night before i go to bed. he mentioned that 50-60% of male adults over 50 have enlarged prostate .since i have taken this .my bowels and bladder have returned to normal hope this helps gerry in Montreal Canada
RE: [TMIC] Re: bowel and bladder problems.
Hey Rob, Thanks for the reply.
OMG, I didn't know it would take that LONG. LOL
Thanks again for the help,
Todd in CC, TX
--- On Tue, 7/27/10, Robert Pall rp...@neillsupply.com wrote:
From: Robert Pall rp...@neillsupply.com
Subject: RE: [TMIC] Re: bowel and bladder problems.
To: Todd Tarno toddtm2...@sbcglobal.net
Date: Tuesday, July 27, 2010, 3:10 PM
I am on Flowmax and it can take up to six months until you notice any
difference!
Rob in New Jersey
From: Todd Tarno [mailto:toddtm2...@sbcglobal.net]
Sent: Tuesday, July 27, 2010 3:47 PM
To: TMIC
Subject: [TMIC] Re: bowel and bladder problems.
Thanks Gerry,
My urologist also started me on my new medications which is Flomax .4 mg. I
have been on it now for 2 weeks and will see him again in 2 more weeks. I
haven't seen a improvement yet, but it may be too early. In my first visit, he
did check my prostate and it's fine at this time. He says he has had other TM
patients and thinks he will be able to help me too.
Hope everyone is having a better day with this,
Todd in CC, TX
--- On Fri, 7/23/10, Gerry Surette suret...@sympatico.ca wrote:
From: Gerry Surette suret...@sympatico.ca
Subject: bowel and bladder problems.
To: toddtm2...@sbcglobal.net
Date: Friday, July 23, 2010, 5:56 AM
#yiv793450562 #yiv793450562yiv1141935581 .yiv793450562yiv1141935581hmmessage P {
PADDING-RIGHT:0px;PADDING-LEFT:0px;PADDING-BOTTOM:0px;MARGIN:0px;PADDING-TOP:0px;}
#yiv793450562 #yiv793450562yiv1141935581 .yiv793450562yiv1141935581hmmessage {
FONT-SIZE:10pt;FONT-FAMILY:Verdana;}
Hi Todd i just recovered from chronic myleopathy. like trying to pass an
elephant through my penis. this is a great by product of TM. I went to a
urologist and he prescribed. flomax .4mg one a day. since the side effect is
dizzyness I take mine at night before i go to bed. he mentioned that 50-60%
of male adults over 50 have enlarged prostate .since i have taken this .my
bowels and bladder have returned to normal hope this helps gerry in Montreal
Canada
RE: [TMIC] good to see posts
I feel so much luckier than most of you, because I am a 62-year-old professor; which means that, even after a fit of spasms that leave me temporarily unable to talk or use my legs, I can still write papers and continue working on a book I hope will be read (it is my second) someday soon. I can also plan my lectures around these attacks by lecturing in the morning, before they are due. Never mind that I can no longer drive and must sell my car, or that I have had to give up so many things. No one is remembered for having a great life of sports and enjoyments. Or that we liked a good cigar after dinner (I did!); or that we went to the beach in summers and knew how to enjoy ourselves. What we will be remembered for is the way we acted toward others, especially those who could do us no good; if we ever seemed to do things for others for which only the good deeds themselves would have been the payoff; that if we were religious, our religion was in our heart and not so much in our mouth; and if our talk made things easier for others, not harder. I saw my life before TM as 2-dimentional, filled with many things I enjoyed but which made no difference for others; but now I am trying to make it 3-dimensional, going upward from that surface I used to live on, to attempt to include the dimension of earning my day by doing something useful for others whenever I have the strength, even if it is just getting along with my neighbor. It doesn't mean I reject any material aid to fight the disease I can get. Ends depend on means. So, for depression, for instance, I discovered that pushing up daily dosages of Omega-3, has ABSOLUTELY helped me fight depression. I have taken 40mg/day of Prozac for about 12 years, with only some success. But after taking large daily doses of Omega-3 I have actual jolly moments for the first time since I was 3-years-old. And I take 600 mg/day of Lyrica, to stop that feeling of being flensed from head to toe. Unfortunately, I haven't had much luck with the fits, seizures or whatever you want to call them. Lately, they have left me dazed and wondering what happened. No matter. I have an appointment on a day not known to me or of my choosing. I imagine being behind some poor soul making excuses for not doing more to make that own little world of friends and acquaintances better off by any measure at all. Did the news not reach you about a day like this?-from parents, friends, from studying, reading things, or hearing about it from others-nothing? I don't want to be in that position. I want to have anticipated it! I don't succeed too often, but there are some nights I can lie down with satisfaction that the day went pretty well, that I was able to get something done. Maybe it's just getting dressed and making myself presentable for the day, and that was it. This letter is too long and preachy. But I have come to the conclusion that the only difference between heaven and hell is the neighbors. Dalton _ From: kimr1999 [mailto:kimr1...@bellsouth.net] Sent: Tuesday, July 27, 2010 1:05 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] good to see posts John, it is understandable to feed a Loss for what we once Had depression is one of the hardest things to admit for me (now on Cymbalta). I have tried to stay up beat and happy but have days that I just want to sleep and forget TM came into my life. But after joining this site I have come to realize I had to learn to depend on others, and use friends on this site for support. We all have different symptoms from TM but also a lot of us have the same. We are all in this together and no topic or question is off limits. We are here for each other for support, encouragement and questions. --- On Tue, 7/27/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] good to see posts To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Date: Tuesday, July 27, 2010, 8:23 AM Have you just found this website?I am not familiar with your name. Regardless, we welcome you with open arms! You are right, the depression from TM is not clinical/chemical, it is the isolation felt from having such a rare disease and your life as you have always know it, taken from you. Those are 2 big hits that have left most of us on some kind of medication for depression.I take Zoloft. Faith and good humor are huge assets, along with determination to improve as far as possible. How has TM left you physically? Can you walk, or do you use a wheelchair? Do you have family support? You are under no obligation to answer these questions, we all just have a pretty good idea of each other's situation through conversations like this.Some people like to stay more private. Regardless, we welcome any comments, questions, etc. Hope to hear from you, Janice from Missouri From: john
Re: [TMIC] good to see posts
Yes, Dalton, you have learned to change your attitude.Hard to do after a life-altering disease has hit you. I am finding I am at a point of taking 2 steps forward to 1 backward. Problem is: with this disease, it doesn't stay the same; there are bumps in the road. But we are learning how to handle each situation as it comes. Janice From: Dalton Garis Sent: Tuesday, July 27, 2010 6:44 PM To: 'kimr1999' ; 'john snodgrass' ; 'transverse myelitis' Subject: RE: [TMIC] good to see posts I feel so much luckier than most of you, because I am a 62-year-old professor; which means that, even after a fit of spasms that leave me temporarily unable to talk or use my legs, I can still write papers and continue working on a book I hope will be read (it is my second) someday soon. I can also plan my lectures around these attacks by lecturing in the morning, before they are due. Never mind that I can no longer drive and must sell my car, or that I have had to give up so many things. No one is remembered for having a great life of sports and enjoyments. Or that we liked a good cigar after dinner (I did!); or that we went to the beach in summers and knew how to enjoy ourselves. What we will be remembered for is the way we acted toward others, especially those who could do us no good; if we ever seemed to do things for others for which only the good deeds themselves would have been the payoff; that if we were religious, our religion was in our heart and not so much in our mouth; and if our talk made things easier for others, not harder. I saw my life before TM as 2-dimentional, filled with many things I enjoyed but which made no difference for others; but now I am trying to make it 3-dimensional, going upward from that surface I used to live on, to attempt to include the dimension of earning my day by doing something useful for others whenever I have the strength, even if it is just getting along with my neighbor. It doesn't mean I reject any material aid to fight the disease I can get. Ends depend on means. So, for depression, for instance, I discovered that pushing up daily dosages of Omega-3, has ABSOLUTELY helped me fight depression. I have taken 40mg/day of Prozac for about 12 years, with only some success. But after taking large daily doses of Omega-3 I have actual jolly moments for the first time since I was 3-years-old. And I take 600 mg/day of Lyrica, to stop that feeling of being flensed from head to toe. Unfortunately, I haven't had much luck with the fits, seizures or whatever you want to call them. Lately, they have left me dazed and wondering what happened. No matter. I have an appointment on a day not known to me or of my choosing. I imagine being behind some poor soul making excuses for not doing more to make that own little world of friends and acquaintances better off by any measure at all. Did the news not reach you about a day like this?-from parents, friends, from studying, reading things, or hearing about it from others-nothing? I don't want to be in that position. I want to have anticipated it! I don't succeed too often, but there are some nights I can lie down with satisfaction that the day went pretty well, that I was able to get something done. Maybe it's just getting dressed and making myself presentable for the day, and that was it. This letter is too long and preachy. But I have come to the conclusion that the only difference between heaven and hell is the neighbors. Dalton From: kimr1999 [mailto:kimr1...@bellsouth.net] Sent: Tuesday, July 27, 2010 1:05 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] good to see posts John, it is understandable to feed a Loss for what we once Had depression is one of the hardest things to admit for me (now on Cymbalta). I have tried to stay up beat and happy but have days that I just want to sleep and forget TM came into my life. But after joining this site I have come to realize I had to learn to depend on others, and use friends on this site for support. We all have different symptoms from TM but also a lot of us have the same. We are all in this together and no topic or question is off limits. We are here for each other for support, encouragement and questions. --- On Tue, 7/27/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] good to see posts To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Date: Tuesday, July 27, 2010, 8:23 AM Have you just found this website?I am not familiar with your name. Regardless, we welcome you with open arms! You are right, the depression from TM is not clinical/chemical, it is the isolation felt from having such a rare disease and your life as you have
[TMIC]
I wrote an address down a few weeks ago, and now don't remember why I wrote it down.Can someone tell me what this address goes to/is it correct: www.myelitie.org It seems it was to register for something. Can you guys help me? Janice
