RE: [TMIC] Baclofen Pump
Doesnt sound like a bad decision to me, I am thrilled for you. I was to have a baclofen/dilaudid pump placed but due to constant infections I have to be re evaluated and reconsidered. Best of luck Rob!! So glad you had really good results with it!! Amy in Ohio To: tmic-list@eskimo.com From: robthe...@aol.com Date: Sat, 16 Feb 2013 19:25:45 -0500 Subject: [TMIC] Baclofen Pump After doing the trial last week and having really good results, I have decided to go ahead with the Baclofen Pump. I have scheduled an appointment with the surgeon in 2 weeks. Now that I have made the decisioncan anybody tell me why it might be the wrong one? Thanks Rob in New Jersey
Re: [TMIC] Re: Lyrica, Psychiatric Evaluations
Also keep in mind that Lyrica takes about two weeks to normalize. During startup you will experiences Increased dizziness and sleepiness. And don't worry about dependence. It's way too late for those considerations. We are in constant pain from contracting a terrible disease. We must not fall into the false game of comparing ourselves to others or to our old selves. Dalton Garis New York, New York On Feb 16, 2013, at 11:18 PM, Betty Clark xbeecla...@gmail.com wrote: Hi Dalton, I've always taken Gabapentin (or Neurontin) at two 300 mg capsules every six hours with an additional 7.5 - 325 Hydrocodone-Acetaminaphine to calm nerves and relieve pain. I have been tempted to request from my doctor trying Lyrica, as I've been experiencing break-through pain and nerve reactions around the last hour of my cycle, but am hesitant to try something different and not have it work. I've also contemplated staggering my meds so I'm taking one of them every 12-6-12-6 o'clock and the other every 9-3-9-3 o'clock. What dosage of Gabapentin and Lyrica have you taken, and what is the difference in the amount of time they are effective? Thanks, Betty On 2/16/2013 9:53 AM, Dalton Garis wrote: I found that Lyrica and Gabapentin do different things; Gaba is better for calming nerves and allows me to drink more caffeine without blowing up. But it is not as effective on pain as is Lyrica. When I just took Lyrica no pain but couldn't drink much coffee; but when I took less Lyrica and added some Gabapentin then the pain was still down—most of the time—and I could tolerate a lot more coffee drinking. Funny thing. Lyrica just killed the burning and needles and voltages, just flattened it. Perfect is good enough, right? Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Janet Dunn j.d...@shaw.ca Date: Saturday, 16 January 2013 1:44 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 15 Feb 2013 22:44:42 -0800 II was on Lyrica for many years - and it works great. I cold turkey quit taking it in November. Since then I have been getting by on Oxycontin, or Oxycodone, sometimes both. However - when the burning pain and the numbness and whatnot gets too great, I will still take a dose or two of the Lyrica as it really does help. I may eventually go back on it full time - depending on how the next few months pan out. I prefer the Lyrica over gabapentin because I can take less of it with greater results. Oxy is getting very difficult if not impossible to get in my town. Janet On 15/02/2013 8:20 PM, heyjude48...@aol.com wrote: Hello Everyone, As you know I am having the Medtronic pain pump put in. I went for my first consultation yesterday. Before they put in the pump I have to have a psychiatric consultation to see if I'm going to be a good candidate. I'm sure it's been a long time, but has anyone had a psychiatric consultation before. I need to know what to expect. I don't know why but I'm kind of nervous about it. I have my heart set on having this surgery because if I don't then I will have to have my leg amputated. There are no other Dr.s who want to continue with oral medication. I also have to go on Lyrica instead of Oxycodone. Has anyone taken Lyrica for pain, not depression? I appreciate your answers and look forward to reading them, Thanks, I love you, Jude, Michigan
Re: [TMIC] Re: Lyrica, Psychiatric Evaluations
Sent from my iPad On 17 Feb 2013, at 12:54, Dalton Garis malugss...@gmail.com wrote: Also keep in mind that Lyrica takes about two weeks to normalize. During startup you will experiences Increased dizziness and sleepiness. And don't worry about dependence. It's way too late for those considerations. We are in constant pain from contracting a terrible disease. We must not fall into the false game of comparing ourselves to others or to our old selves. Dalton Garis New York, New York On Feb 16, 2013, at 11:18 PM, Betty Clark xbeecla...@gmail.com wrote: Hi Dalton, I've always taken Gabapentin (or Neurontin) at two 300 mg capsules every six hours with an additional 7.5 - 325 Hydrocodone-Acetaminaphine to calm nerves and relieve pain. I have been tempted to request from my doctor trying Lyrica, as I've been experiencing break-through pain and nerve reactions around the last hour of my cycle, but am hesitant to try something different and not have it work. I've also contemplated staggering my meds so I'm taking one of them every 12-6-12-6 o'clock and the other every 9-3-9-3 o'clock. What dosage of Gabapentin and Lyrica have you taken, and what is the difference in the amount of time they are effective? Thanks, Betty On 2/16/2013 9:53 AM, Dalton Garis wrote: I found that Lyrica and Gabapentin do different things; Gaba is better for calming nerves and allows me to drink more caffeine without blowing up. But it is not as effective on pain as is Lyrica. When I just took Lyrica no pain but couldn't drink much coffee; but when I took less Lyrica and added some Gabapentin then the pain was still down—most of the time—and I could tolerate a lot more coffee drinking. Funny thing. Lyrica just killed the burning and needles and voltages, just flattened it. Perfect is good enough, right? Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Janet Dunn j.d...@shaw.ca Date: Saturday, 16 January 2013 1:44 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 15 Feb 2013 22:44:42 -0800 II was on Lyrica for many years - and it works great. I cold turkey quit taking it in November. Since then I have been getting by on Oxycontin, or Oxycodone, sometimes both. However - when the burning pain and the numbness and whatnot gets too great, I will still take a dose or two of the Lyrica as it really does help. I may eventually go back on it full time - depending on how the next few months pan out. I prefer the Lyrica over gabapentin because I can take less of it with greater results. Oxy is getting very difficult if not impossible to get in my town. Janet On 15/02/2013 8:20 PM, heyjude48...@aol.com wrote: Hello Everyone, As you know I am having the Medtronic pain pump put in. I went for my first consultation yesterday. Before they put in the pump I have to have a psychiatric consultation to see if I'm going to be a good candidate. I'm sure it's been a long time, but has anyone had a psychiatric consultation before. I need to know what to expect. I don't know why but I'm kind of nervous about it. I have my heart set on having this surgery because if I don't then I will have to have my leg amputated. There are no other Dr.s who want to continue with oral medication. I also have to go on Lyrica instead of Oxycodone. Has anyone taken Lyrica for pain, not depression? I appreciate your answers and look forward to reading them, Thanks, I love you, Jude, Michigan
Re: [TMIC] Re: Lyrica, Psychiatric Evaluations
I am on lyrica (pregablin) 2 x a day for pain and anxiety. I have found it agrees with me much more than gabapentin did. Jude, I have recently had a psychiatric evaluation to determine what service would be best for my depression - not sure if it'll be the same. Nikki. Durham, UK. Sent from my iPad On 17 Feb 2013, at 16:55, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Sent from my iPad On 17 Feb 2013, at 12:54, Dalton Garis malugss...@gmail.com wrote: Also keep in mind that Lyrica takes about two weeks to normalize. During startup you will experiences Increased dizziness and sleepiness. And don't worry about dependence. It's way too late for those considerations. We are in constant pain from contracting a terrible disease. We must not fall into the false game of comparing ourselves to others or to our old selves. Dalton Garis New York, New York On Feb 16, 2013, at 11:18 PM, Betty Clark xbeecla...@gmail.com wrote: Hi Dalton, I've always taken Gabapentin (or Neurontin) at two 300 mg capsules every six hours with an additional 7.5 - 325 Hydrocodone-Acetaminaphine to calm nerves and relieve pain. I have been tempted to request from my doctor trying Lyrica, as I've been experiencing break-through pain and nerve reactions around the last hour of my cycle, but am hesitant to try something different and not have it work. I've also contemplated staggering my meds so I'm taking one of them every 12-6-12-6 o'clock and the other every 9-3-9-3 o'clock. What dosage of Gabapentin and Lyrica have you taken, and what is the difference in the amount of time they are effective? Thanks, Betty On 2/16/2013 9:53 AM, Dalton Garis wrote: I found that Lyrica and Gabapentin do different things; Gaba is better for calming nerves and allows me to drink more caffeine without blowing up. But it is not as effective on pain as is Lyrica. When I just took Lyrica no pain but couldn't drink much coffee; but when I took less Lyrica and added some Gabapentin then the pain was still down—most of the time—and I could tolerate a lot more coffee drinking. Funny thing. Lyrica just killed the burning and needles and voltages, just flattened it. Perfect is good enough, right? Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Janet Dunn j.d...@shaw.ca Date: Saturday, 16 January 2013 1:44 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 15 Feb 2013 22:44:42 -0800 II was on Lyrica for many years - and it works great. I cold turkey quit taking it in November. Since then I have been getting by on Oxycontin, or Oxycodone, sometimes both. However - when the burning pain and the numbness and whatnot gets too great, I will still take a dose or two of the Lyrica as it really does help. I may eventually go back on it full time - depending on how the next few months pan out. I prefer the Lyrica over gabapentin because I can take less of it with greater results. Oxy is getting very difficult if not impossible to get in my town. Janet On 15/02/2013 8:20 PM, heyjude48...@aol.com wrote: Hello Everyone, As you know I am having the Medtronic pain pump put in. I went for my first consultation yesterday. Before they put in the pump I have to have a psychiatric consultation to see if I'm going to be a good candidate. I'm sure it's been a long time, but has anyone had a psychiatric consultation before. I need to know what to expect. I don't know why but I'm kind of nervous about it. I have my heart set on having this surgery because if I don't then I will have to have my leg amputated. There are no other Dr.s who want to continue with oral medication. I also have to go on Lyrica instead of Oxycodone. Has anyone taken Lyrica for pain, not depression? I appreciate your answers and look forward to reading them, Thanks, I love you, Jude, Michigan
Re: [TMIC] Baclofen Pump
Rob you have to do what you think is best and if its the Baclofen pump then go for it. Good luck, keep us posted on how it goes. Nikki. Durham, UK. Sent from my iPad On 17 Feb 2013, at 11:33, amy shultz mic...@hotmail.com wrote: Doesnt sound like a bad decision to me, I am thrilled for you. I was to have a baclofen/dilaudid pump placed but due to constant infections I have to be re evaluated and reconsidered. Best of luck Rob!! So glad you had really good results with it!! Amy in Ohio To: tmic-list@eskimo.com From: robthe...@aol.com Date: Sat, 16 Feb 2013 19:25:45 -0500 Subject: [TMIC] Baclofen Pump After doing the trial last week and having really good results, I have decided to go ahead with the Baclofen Pump. I have scheduled an appointment with the surgeon in 2 weeks. Now that I have made the decisioncan anybody tell me why it might be the wrong one? Thanks Rob in New Jersey
[TMIC] Unidentified subject!
RE: [TMIC] Re: Lyrica, Psychiatric Evaluations
I take 900 mg of Gabapentin at 7am and 1pm and 1200mg gabapentin at 9pm. I have not tried Lyrica but have tried Cymbalta without success. I am having trouble with doctors wanting/willing to prescribe my pain medicine as well. I was told by the pain/pallitive doctor We will NEVER prescribe opiates for you again!! This was do to them saying I have a Mast Cell Reaction to them. Seeming they werent giving me anything for pain other the Naprosen I started taking my Dilaudid again on my own. I had just had it filled for 900 tablets right before they stopped them. I took them withOUT any problems or reactions. I think the doctors over reacted and seeming they dont like to prescribe them it gave them an easy way out. I refused to settle for it and being in constant pain at high levels I continued taking it. I was always up front and honest with them about taking it. Surprisingly they never really told me to not take it. As for the Psychiatric Evaluation its just a routine test they do. To make sure of where your head is and family history I think. I am sure they will ask lots of questions and perhaps have you fill out alot of paper work as well. I am sure its not that they have any concerns its just routine. Please don't be nervous. Look at the prize in the end...Better pain relief...better quality of living Best wishes Jude Amy In Ohio CC: tmic-list@eskimo.com From: malugss...@me.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Date: Sun, 17 Feb 2013 07:45:55 -0500 To: xbeecla...@gmail.com I'm ok with 300 Gabapentin and 150 Lyrica (Pregabelin) 2x/day with an additional dose of Lyrica for breakthrough pain. With the Prozac and Dilantin also added in 2x/day that brings my medication bill down to just $161.30/month. When I took just Lyrica and before I had substituted Gabapentin I was paying almost double that per month. Dg Dalton GarisNew York, New York On Feb 16, 2013, at 11:18 PM, Betty Clark xbeecla...@gmail.com wrote: Hi Dalton, I've always taken Gabapentin (or Neurontin) at two 300 mg capsules every six hours with an additional 7.5 - 325 Hydrocodone-Acetaminaphine to calm nerves and relieve pain. I have been tempted to request from my doctor trying Lyrica, as I've been experiencing break-through pain and nerve reactions around the last hour of my cycle, but am hesitant to try something different and not have it work. I've also contemplated staggering my meds so I'm taking one of them every 12-6-12-6 o'clock and the other every 9-3-9-3 o'clock. What dosage of Gabapentin and Lyrica have you taken, and what is the difference in the amount of time they are effective? Thanks, Betty On 2/16/2013 9:53 AM, Dalton Garis wrote: I found that Lyrica and Gabapentin do different things; Gaba is better for calming nerves and allows me to drink more caffeine without blowing up. But it is not as effective on pain as is Lyrica. When I just took Lyrica no pain but couldn't drink much coffee; but when I took less Lyrica and added some Gabapentin then the pain was still down—most of the time—and I could tolerate a lot more coffee drinking. Funny thing. Lyrica just killed the burning and needles and voltages, just flattened it. Perfect is good enough, right? Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Janet Dunn j.d...@shaw.ca Date: Saturday, 16 January 2013 1:44 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 15 Feb 2013 22:44:42 -0800 II was on Lyrica for many years - and it works great. I cold turkey quit taking it in November. Since then I have been getting by on Oxycontin, or Oxycodone, sometimes both. However - when the burning pain and the numbness and whatnot gets too great, I will still take a dose or two of the Lyrica as it really does help. I may eventually go back on it full time - depending on how the next few months pan out. I prefer the Lyrica over gabapentin because I can take less of it with greater results. Oxy is getting very difficult if not impossible to get in my town. Janet
Re: [TMIC] Baclofen Pump
Only time will tell you if the decision was right or not. I had the same feelings before I had my nerve implant put in, but it could not have been a better decision. If you do not try it, you would always wonder how much it would have helped you.This way, you will know. Trying things to better our situation is all we can do.I feel you are doing the right thing. After all, you can always have it taken out if it does not work and then you will not spend your time wondering about it. But, from what I have heard of the pump, you probably will do well. Good luck and keep us posted. Janice From: Robert Pall Sent: Saturday, February 16, 2013 6:25 PM To: tmic-list@eskimo.com Subject: [TMIC] Baclofen Pump After doing the trial last week and having really good results, I have decided to go ahead with the Baclofen Pump. I have scheduled an appointment with the surgeon in 2 weeks. Now that I have made the decisioncan anybody tell me why it might be the wrong one? Thanks Rob in New Jersey
