Re: [TMIC] Weird feelings around eyes
Frank and all It's been 3 years now from onset (5/32/03) and I have not had any new events so the tm diagnosis still stands. My face involvement began in the hospital within the first week of onset. The right side of my face, nose, lips and mouth were numb and tingling. When I sucked in with my lips my mouth felt like I had just brushed with a super minty toothpaste even if I hadn't brushed. It stayed like that for months. Now my face is my indicator that I have over extended myself and need to rest. I know it is weird, but my neuro says it is another unexplained symptom of tm. He is a good friend of one of the doctors at the tm center at JH and an excellent neuro, so I trust him. He follows the same protocol as the center and tries the same drug therapies. But, then again, I have always been a WEIRD one. So... Debbie staying weird in SC - Original Message - From: frankfranksheldoncom [EMAIL PROTECTED] To: Debbie Martin [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Thursday, May 18, 2006 10:19 AM Subject: Re: [TMIC] Weird feelings around eyes I have had facial involvement from tm. It intensifies when I am tired/fatigued/too hot. It really affects my nose, lips, chin and cheeks. I have the eye muscles twitches, too. I have never read that TM can affect the facial nerves. the facial nerves do not come off the spinal cord. It sounds like MS to me. You may just have to wait for an abnormal MRI. Good Luck F
[TMIC] Weird facial feelings
That is so interesting. I also burn my mouth frequently, but don't realize it when it is happening. Were your arms affected to? Sometimes mine drive me nuts. My hands always have little spasms going on and they can really hurt at times. My face isn't painful, just extremely irritating when the itching starts. Then there is the tickle that runs along side my nose that seems to stay. And when my nose starts itching it is rather embarrasing. I just have to keep rubbing it. Ahhh...tm can be quite humorous. Walk like a drunk and scratch like and addict...what a sight! - Original Message - From: Lori Biehler [EMAIL PROTECTED] To: 'Debbie Martin' [EMAIL PROTECTED]; 'frankfranksheldoncom' [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Thursday, May 18, 2006 10:58 AM Subject: RE: [TMIC] Weird feelings around eyes Debbie, I also have facial involvement and so do many others. The face nerves that are involved for me are at C2. It is my right side and after 8 years, when I breath in through my mouth it still feels warm and without any temp feeling. I also at times burn the inside of my mouth because I can't tell the temperature. My very first symptom was a burning on the inside of my right nasal passage, almost like I had gone swimming and had water in my nose, yet much more intense. At the first symposium in 1999, a gentleman spoke about how his sneezes start and then stop when it hits the numb area. I was very happy to hear that others had the same symptoms. Lori -Original Message- From: Debbie Martin [mailto:[EMAIL PROTECTED] Sent: Thursday, May 18, 2006 10:37 AM To: frankfranksheldoncom; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Weird feelings around eyes Frank and all It's been 3 years now from onset (5/32/03) and I have not had any new events so the tm diagnosis still stands. My face involvement began in the hospital within the first week of onset. The right side of my face, nose, lips and mouth were numb and tingling. When I sucked in with my lips my mouth felt like I had just brushed with a super minty toothpaste even if I hadn't brushed. It stayed like that for months. Now my face is my indicator that I have over extended myself and need to rest. I know it is weird, but my neuro says it is another unexplained symptom of tm. He is a good friend of one of the doctors at the tm center at JH and an excellent neuro, so I trust him. He follows the same protocol as the center and tries the same drug therapies. But, then again, I have always been a WEIRD one. So... Debbie staying weird in SC - Original Message - From: frankfranksheldoncom [EMAIL PROTECTED] To: Debbie Martin [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Thursday, May 18, 2006 10:19 AM Subject: Re: [TMIC] Weird feelings around eyes I have had facial involvement from tm. It intensifies when I am tired/fatigued/too hot. It really affects my nose, lips, chin and cheeks. I have the eye muscles twitches, too. I have never read that TM can affect the facial nerves. the facial nerves do not come off the spinal cord. It sounds like MS to me. You may just have to wait for an abnormal MRI. Good Luck F
Re: [TMIC] OK, another *graphic * question and another smile
I just have to add that this post did make me giggle, but fortunately the fart did not escape! I, too, have had the same issue. I do think it has somethingto with a lack of sphincter control. I sure have had my share of little pops when I really don't want them to happen. So, I guess I am not much help with a solution, but I can offer much empathy! Debbie in SC - Original Message - From: Krissy Z To: TM List ; TMA-New-England Sent: Friday, May 05, 2006 1:41 PM Subject: [TMIC] OK, another *graphic * question OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified!Krissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Get amazing travel prices for air and hotel in one click on Yahoo! FareChase
Re: [TMIC] Flu shot anyone?
I did not have a problem with the flu shot last year. My neurologist feels that there is a greater likely hood of getting much sicker with the flu. So, I took the shot and did just fine. I will get another this year. Debbie in SC - Original Message - From: Bobby Piper To: tmic-list@eskimo.com Sent: Tuesday, November 08, 2005 11:23 PM Subject: [TMIC] Flu shot anyone? I want to know who is getting the flu shot? I have mixed feelings about this. Last year I was just out of the hospital and steroided to the max and was told I did'nt need to take it. I am a walking wounded, back at work as a hospice nurse now. I am afraid not to get for fear of the fluand afraid of my immune system going nuts either way. Not been dx'd with MS but that is still looming out there as a possibility any input is appreciated. Also, does anyone have "sinking" spells, all at once it just feels as though all energy has drained not sleepy just wiped out? today I had this happen and my feet were tingling and legs felt terribly waek almost trembly! Am I weird or what? Becky
