Re: [TMIC] Hi,
CONGRATULATIONS!! Tell her to keep up the good work.we're pulling for all of you! janh
Re: [TMIC] Loss of a Friend
How very sad!! He was such a positive person as he worked for those of us with tm..my prayers go out to his familyI hope that they can gather strength from the role he played for others. Sincerely, janh
Re: [TMIC] Have I been cut off
I got your message..don't know about the digest...have heard of some others who haven't received their digest..janh
Re: [TMIC] loss of bowel control
Frank, Don't give up!! I danced for the first time on the 9th anniversary of the day I was hospitalized/diagnosed!! janh Stillwater, OK
[TMIC] (no subject)
MERRY CHRISTMAS AND A HEALTHY, HAPPY NEW YEAR! JANH
Re: [TMIC] so stiff
One warning about blaming every little twitch on tm.I discovered when I had the tia and broke my leg that the fatigue and shortness of breath that I had always faulted tm for, was in fact the blockage in my left carotid..since the rotorooter surgery, the shortness of breath is much better, as for fatigue, who can tell at this busy! time of year?? janh Stillwater, OK
Re: [TMIC] neda
My first thought is whenever I get weaker, I have a UTI or bladder infection...is he seeing his doc or an urologist for his weaking condition and bladder dysfunction? Keep us updated...janh Stillwater, OK
Re: [TMIC] Hi Everyone
I, too, get up thinking I can take on the world, only to be brought back to earth and my couch more rapidly than I like!! I've learned to let things go that aren't absolutely necessary in our lives..and still continue to rest to store up energy to continue our social activities.After all, Frank has enough burden on his shoulders just taking care of my needs without stopping the rest of his life!! Take care, jan
Re: [TMIC] Newly Diagnosed/Mild case
Rick, Just be certain that you're not overdoing the potassium, or anything else for that matter, getting any of that screwed up is as bad, if not worse, than not taking it..in other words let your doctoer know these things you'e doing and keep up regular lab check-ups... Just my 2¢ , from experience...janh Stillwater, OK
Re: [TMIC] Newly Diagnosed/Mild case
Your symptoms sound familiar.especially the fatigueit's major and you need to listen to your body when it says it's tired, stop and rest!! or other symptoms seem to magnify!! Exerciserehab if possible.your doctor can presribe the rehabit is most helpful.especially early on so you can learn what you can and can't do.then you can work on that on your own Sorry you had to join our group..but glad you found us...you're welcome to ask any thing that you wonder about.someone here will understand what you mean..no two of us are alike/nor do we all share the same symptoms, etc.. Again, welcome! janh Stilwater, OK
Re: [TMIC] leg spasms at night
I know this sounds weird, but, it works for me and many others...put a bar of soap, any but ivory or camay, between the bottom sheet and the mattress protector on your bed and keep your legs near this "hump" in the sheet and see if it doesn't help...it has helped my leg cramps and also has been reported to help some with restless leg syndrome. Hope it works for you.janh Stillwater, OK
Re: [TMIC] Re: Medicare and meds
Both of us are on Medicare.and have State Employee insurance as our seecondary.The secondary has a drug plan and they've told us that they're going to enroll all membership to the Medicare drug plan and incorporate it into our present drug plan with no changes except those annual changes they make in what it costs for their services...We've used the heck out of that program and medicare and are completely happy with how much they cover!! Medicare has taken care of me since the onset of tm and I've been very pleased!! I've been in the hospital 3 more times since then and Frank has had numerous surgeries and they (with our secondary) have covered it all except our copay for doc visits and drugs. Of course, we do pay Medicare Part B and pay to get our secondary insurance..which is stilll less than I paid for our health insurance while I was still teaching!! It certainly has made life easier not having to worry about the financial end of all our various ails!! Just my 2¢.janh Stilllwater, OK
Re: Fw: [TMIC] Spill
Someone sent an article about Lyrica and when it got to side effects.early in list is mentioned diabetis..and since I have steroid induced diabetis, I wouldn't try it... course, I quit all pain meds etc for tm a few years ago and just live with it...the side effects (mostly weight gain!) weren't worth it!! besides, I take enough 'have to have' meds the way it is.blood pressure, diabetis, water retention, etc and then vitamins..I feel like a pharmacy!! or like I should own the pharmacy!! janh Stillwater, OK
Re: [TMIC] pain
Katrina, Don't give up hope!! EVER!!! Time and a positive attitude will go a long way.. I've been a tmer for 8½ yrs and today I have more feeling than beforeas long as I was numb/paralyzed to t8 I didn't have pain...the tingling came along and then the heavier pain as I improved.. I do think that a Physical Therapist is important part of improvement.at least when I had home care after leaving the hospital, the Physical Therapist was major help in regaining my walking skills.and continued physical therapy is also important part of improvement...and you can do the phsyical therapy at home after a therapist has shown you what to do. I do want to say that I appreciate the situation you're in and to let you know that we understand that life for the caretakers in our lives are very stressful!!! Please know we're thinking of you...keep us updated. Hugs, janh
