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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 mailto:sally.wilkin...@genesisdesign.uk.com sally.wilkin...@genesisdesign.uk.com http://www.genesisdesign.uk.com/ www.genesisdesign.uk.com http://www.twitter.com/genesis3ddesign Description: Description: Twitter http://twitpic.com/photos/Genesis3DDesign Genesis Portfolio image001.jpg
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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 mailto:sally.wilkin...@genesisdesign.uk.com sally.wilkin...@genesisdesign.uk.com http://www.genesisdesign.uk.com/ www.genesisdesign.uk.com http://www.twitter.com/genesis3ddesign Description: Description: Twitter http://twitpic.com/photos/Genesis3DDesign Genesis Portfolio image003.jpg
[TMIC] Can CCSVI help with TM?
Have you guys heard anything about CCSVI + CHRONIC CEREBROSPINAL INSUFFICIENCY? There is much talk of it helping people with MS, but England do not do this procedure, and Scotland do, but you can not get an appointment as they are so busy. As I understand it, in people with MS many of them can have thickening of the arteries in the neck. If that is the case when they are tested they insert balloons in the arteries, which helps with the blood flow and toxins etc., so much so that it really can help with their symptoms, and brain fog. So it MIGHT help TM'ers too I have looked quite extensively on the internet including the MS site, but there is conflicting info on there, so I am now trying to ask around because I often feel that, to save money the UK policy to everything, is to remain sceptical? When I had breast cancer I became more aware of what they did not tell in terms of treatment and options, and what perhaps worked in other countries but that was still not acceptable in the UK! So if any of you have come across this, and have information or commentsthey would be most welcome! Also Rob Pall, I have lost your e-mail address. Please e-mail me at work. Ta! Many thanks Sally in the UK. (whose husband Roger has TM)
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I have been trying to unsubscribe for days as I am going on holiday, and will get into trouble if all the messages keep coming through on this work computer. I can not seem to do this.this time and have any trouble in the past! Cheers Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 mailto:sally.wilkin...@genesisdesign.uk.com sally.wilkin...@genesisdesign.uk.com
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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 mailto:sally.wilkin...@genesisdesign.uk.com sally.wilkin...@genesisdesign.uk.com
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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
[TMIC] Bladder control
Hi Guys Thank you to all of you who replied! I have forwarded your e-mails to my husband, who I will make sure understands your comments, and gets checked out by his doc for any prostate problems! Thanks again Sx Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
[TMIC] Bladder control
Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
[TMIC] Jude
Years ago when I did not know which way was up Jude helped me so much. It's my husband that has TM, and I really struggled with so many issues I was not even sure I had the strength to stay with him, and Jude was there to help me and she often made me laugh too. I hope it will be possible for someone to tell her that I am thinking of her and am sending her every positive thought I have in my head. Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com
[TMIC] have you heard of HSP?
Hi there My husband Roger has had TM for 9 years! BUT...his mother has had problems with her legs for years. His brother who was a paramedic also has problems with his legs now, and after about a year trying to find out what the problem is, has been told he has Hereditary spastic paraplegia! If you look at the symptoms for HSP it is very similar to TM. We understand there is a blood test to identify HSP, which Roger will get very soon hopefully. So there we are trying to get our heads round TM still.. and this comes along just to blow our tiny minds! You may all know of HSP, in which case please TELL ME WHAT YOU KNOW!! Also if you have a family member with similar symptoms to you, it might be an idea to investigate HSP? I have no idea what your politics are, but please let me wish you all a wonderful day. I am from the UK and your new president has given so many people here a bit of hope, which is such a positive thing! Kind regards Sally in the UK
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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 [EMAIL PROTECTED]
[TMIC] The name of the drug
Which I totally forgot to mention (just call me a twonk!) is Alemtuzumab Sorry guys Sally in the UK
FW: [TMIC] MS drug /maybe??
Hi there This is excellent information, and the reason that I re-subscribed. I am a wife of a TM'er in the UK, and wanted to find out if this drug was suitable for people that have TM. In the UK the media never cover TM. Do we know yet? I only came back on line on Friday so I may have missed something regarding this matter! Any information would be greatly received. Many people helped me a great deal a couple of years ago, as I had so many questions, and a husband unwilling to ask, and doctors in the UK in the dark about TM. Thank you so much to those people. I must say that one of the reasons I did not stay on the list was that people said they would pray for me, which I found very upsetting and also annoying. In the subject heading I had no idea before I read their post that it would contain such statements, so I am not sure about the advice given to Sandy? How do you know to delete it before you have read it? And if you read it before deleting the damage is done. I am an atheist and I would never think to mention it. Positive thoughts can mean many things to many people, so why not just say that? Sandy and Rob are so right when they say it's just not a place for politics or religion. BUT if you mark the content in the subject heading and people on the list think they might be offended they can DELETE! Anyway this is just the opinion of a TM'ers wife from the UK! Please take no notice of my ramblings if it gives offence! Kind regards Sally in the UK! -Original Message- From: Trudy OGILVIE [mailto:[EMAIL PROTECTED] Sent: 25 October 2008 01:05 To: TMIC-LIST@eskimo.com Subject: [TMIC] MS drug /maybe?? My daughter saw this article on Yahoo and sent it on to me. Very interesting since some of us have TM/MS I thought you might want to read it... It's certainly an improvement over what's being going on with some of the TM'ers on this list. :) Frank. welcome back!! you certainly arrived with an agenda!!! Now read this article tell us what you think and then have your martini... There is always Hope! Trudy - Researchers at the University of Cambridge said they have found that alemtuzumab, a drug originally developed . LONDON (AFP) - Researchers at the University of Cambridge said Thursday they have found that a drug originally developed to treat leukaemia can halt and even reverse the debilitating effects of multiple sclerosis (MS). In trials, alemtuzumab reduced the number of attacks in sufferers and also helped them recover lost functions, apparently allowing damaged brain tissue to repair so that individuals were less disabled than at the start of the study. The ability of an MS drug to promote brain repair is unprecedented, said Dr Alasdair Coles, a lecturer at Cambridge university's department of clinical neurosciences, who coordinated many aspects of the study. We are witnessing a drug which, if given early enough, might effectively stop the advancement of the disease and also restore lost function by promoting repair of the damaged brain tissue. The MS Society, Britain's largest support charity for those affected by the condition, said it was delighted at the trial's results, which must be followed up with more research before the drug can be licensed. This is the first drug that has shown the potential to halt and even reverse the debilitating effects of MS and this news will rightly bring hope to people living with the condition day in, day out, said head of research Lee Dunster. MS is an auto-immune disease that affects millions of people worldwide, including almost 100,000 in Britain and 400,000 in the United States. It is caused by the body's immune system attacking nerve fibres in the central nervous system, and can lead to loss of sight and mobility, depression, fatigue and cognitive problems. There is no cure, and few effective treatments. In the trial, 334 patients diagnosed with early-stage relapsing-remitting MS who had not previously been treated were given alemtuzumab or interferon beta-1a, one of the most effective licensed therapies for similar MS cases. After three years, alemtuzumab was found to reduce the number of attacks the patients suffered by 74 percent over the other treatment, and reduce the risk of sustained accumulation of disability by 71 percent over interferon beta-1a. Many individuals who took alemtuzumab also recovered some of their lost functions, becoming less disabled by the end, while the disabilities of the other patients worsened, the study in the New England Journal of Medicine said. Alastair Compston, professor of neurology and head of the clinical neurosciences department at Cambridge, said alemtuzumab was the most promising experimental drug for the treatment of MS. He expressed hope that further trials will confirm that it can both stabilise and allow some recovery of what had previously been assumed to be irreversible disabilities. Alemtuzumab was developed in Cambridge and has been
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Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 [EMAIL PROTECTED]
[TMIC] TM question from Sally/UPDATE!
May I just tell all of you how fantastic you all are! Thank you so much! have had so many of you contact me both on and off the list, and I have just written this to Cody, which is by way of an update and might make my thoughts a bit clearer to you guys? Thank you so much for taking time out to write to me. I do know how lucky we are and I think in a way that's why I felt so angry with my husband. He did get TM from a flu shot in Dec 2000, and is now the very best he has been health wise since then. Every specialist back, neuro ETC has told us through the years that they and their families DO NOT HAVE THESE JABS Roger has avoided them on that basis and because of what happened to him in 2000. That is why I am so shocked that he would put himself in grave danger. The consequences of his actions in having this pneumonia shot could make him far worse, and he may have to cancel the spinal implant op he is due to have in May. Which we fort very hard for. He has under gone intensive physio at the end of 2006 to enable him to have this op..so I see it as him trying to sabotage our current life and his op. I have had counseling so that I could grief about the loss of my husband's fitness and mood swings etc and to come to terms with being his career on an on-going basis. I resolved all of those issues and felt we were going from strength to strength. I am now not sure how much I respect him anymore, and do know that if his level of disability increases as a result of this shot I will not be able to continue as it was self inflicted. He is not an idiot which makes this harder to bear. I feel I am being totally rational, and this the only way I have managed to calm down and stop crying by giving myself permission to leave if I have to. I am what I am.. as they say! Kind regards Sally in the UK
[TMIC] TM question from Sally!
Hi Guys I really need to run something by you please. My husband who you may remember got TM in Dec 2000, and who can walk with a stick, got TM from a flu jab we are sure. He went to the Doc's on Thursday and the nurse in the surgery said he should have a jab for pneumonia. He ran that past the Doctor who said I don't see why not ??? So he had it done there and then. He then told me he'd had it done. How could anyone be so incredibly stupid? Why would he tell me? And how can I work through this? I have not lost my health to TM but I have lost a lot of my husband to TM. My life has been devastated by TM too. As you can tell I'm very hurt, angry and frightened. You can also get horrific side effects from this 2nd jab so I am terrified for his health and wondering how our marriage can carry on if he suffers no adverse side effects or further disability as he has been so stupid and did not even discuss it with me 1st. I do know this though I will run as far and as fast as I can if something else happens to him coz as far as I'm concerned its self inflicted this time. I would really welcome your thoughts and comments.especially if you can shed any light on wot might of motivated him to have this jab, and then to tell me? I have been awake crying since 4am and now I'm at work I keep getting upset again. Sorry to come to the list with all of this but my other friends do not quite understand the implications here! Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 [EMAIL PROTECTED]
[TMIC] Hello!
Any idea when the TMers in the UK might receive their copy of the journal please? Thanks Sally in the UK. Sally Wilkinson Busness Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 [EMAIL PROTECTED]
[TMIC] Another fish oil question! Perhaps to the TM ladies only?
Sorry to ask this but has anyone found that their stomach bloats right out taking fish oil? Ive been on it for nearly a week plus I am not due a period for 2 weeks and I have been watching my food intake. 2 years ago I had lost 6 stone but have been really stuck and now really want to lose more as I really do need to! I have a pair of black jeans that are the measure of my previous weight loss which I have worn for the last 2 years (WELL NOT EVERY DAY AND I HAVE WASHED THEM!!) Which now will not do up! Which seems so odd as I have been taking the fish oil. and dieting for 2 weeks! Plus may I state that it is my husband that has TM, so I hope you dont mind me joining in on this one? Take good care of yourselves Sally in the UK
[TMIC] could this help?
My husband recently trailed a device to help his back pain and to help him be steadier on his feet! We are in the UK, so forgive me if you guys already know all about this! Its a bit bigger than a mobile phone and has wires and electrodes x2 which are placed near the top of the spine and near the bottom of the spine. It sends pulses from 1 electrode to the other. Its called Acticare. After using it for a week my husband felt that the pain was greatly reduced and that his walking got faster and steadier! He had to hand it back to the pain clinic after a week, and went home and ordered one via the internet, which arrived the next day. ( it was £200) Over the last few weeks he feels the benefit more and more. Of course you have to charge it and be without it sometimes, and than the pain is back to its usual levelbut you know that you can get the device back on and you will soon feel much better! You would have to have help to put the sticky gel pads on as they go right in the middle of your back! If anyone wants any further info please let me know and I will try and help! It was Harrietts e-mail that inspired me to share! Hope it helps someone. Kind regards Sally in the UK.
[TMIC] Glucosamine
Hi Guys Do any of you already take the above and has it had any positive benefits? Also is this new or is it what Ive seen advertised a lot in the UK to strengthen bones? Sorry to be such a ding bat..but hey thats just me! Many thanks in advance Sally in the UK.
