RE: [TMIC] Update on Mike
Yes I agree with Janice. Your attitude alone is amazing. 'For I know the thoughts and plans that I have for you, says the Lord, thoughts and plans for welfare and peace and not for evil, to give you hope in your final outcome' Jeremiah 29:11 You are in our prayers, Tami _ From: Janice [mailto:jan...@centurytel.net] Sent: Sunday, September 27, 2009 10:29 PM To: Jill Hammond; Anna Jim ; Annie ; Becky Steve; Beth Greg; Bob Beverly ; Carole Matteson; Char Brower; Cheryl Hammond; Cindy Dunn; Craig Candi; David Brooks; Denise Pam; Elaine Boos; Eric Eri; Fred Susan; Gil Mari; 'James Fulmer'; Jan Hlavaty-LaPosa ; Jim and Bobbi ; Johanna ; Judy Karl; Keenan; Kendra ; Lenny Lisa; Lisa ; Lynn Jade; Mari Gary; marie swanson; Mike Nancy; Nancy; Noah ; Pat Allegretti; Pat and Corky; Pat Doebele; Pat Massey ; Paula ; PJ ; Ron ; Sally; Sarah Bell-Schell ; Sharon Steve ; 'Sheri Meyer'; Steve Gail ; Steve and Jo; Susan Ted Roth ; Tmic; Tom Deb ; Wayne ; Zsolt Patty Cc: tmic-l...@eskimo.net; ed Subject: Re: [TMIC] Update on Mike Mike, You don't know me from Adam, but I am a TM'er and following these emails. You have my prayers, but also my complete respect for your courage and outlook/attitude that endears you to all of us.I guess you realize you have the dubious honor of being the one that I can look at and say he is worse off than I am.You have a lot to fight and it sounds as if you have a lot of fight in you.Don't think that because we are not there with you that you are not in our thoughts and prayers. Please keep us posted - we care - and God bless. Janice, Missouri - Original Message - From: Jill mailto:3jmhamm...@clearwire.net Hammond To: Anna mailto:jnawil...@roadrunner.com Jim ; Annie mailto:annielyman1...@yahoo.com ; Becky mailto:mcsmi...@adelphia.net Steve ; Beth mailto:g...@comcast.net Greg ; Bob mailto:b.doerfl...@gmail.com Beverly ; Carole mailto:carolematte...@hotmail.com Matteson ; Char Brower mailto:charsreti...@hotmail.com ; Cheryl Hammond mailto:i...@todaydata.com ; Cindy Dunn mailto:cdunn53...@aol.com ; Craig mailto:bur...@comcast.net Candi ; David mailto:ba...@shawneelink.net Brooks ; Denise mailto:burpee...@msn.com Pam ; Elaine Boos mailto:elaineb...@bellsouth.net ; Eric mailto:ericshamm...@hotmail.com Eri ; Fred mailto:graceann1...@charter.net Susan ; Gil mailto:cdav...@dc.rr.com Mari ; 'James Fulmer' mailto:jedi...@gmail.com ; Jan mailto:janet.hlavaty-lap...@dhs.gov Hlavaty-LaPosa ; Jim and Bobbi mailto:jimbobk...@msn.com ; Johanna mailto:mjber...@verizon.net ; Judy mailto:romocharlo...@hotmail.com Karl ; Keenan mailto:kee...@seattlegeek.net ; Kendra mailto:kwa...@comcast.net ; Lenny Lisa mailto:len.l...@verizon.net ; Lisa mailto:l...@lisalundt.com ; Lynn mailto:lynn.mari...@pfpa.mil Jade ; Mari mailto:wordfromwis...@smtel.com Gary ; marie mailto:swansonbythe...@comcast.net swanson ; Mike mailto:mmccallis...@soundandsea.com Nancy ; Nancy mailto:npurcell1...@yahoo.com ; Noah mailto:n...@noahconrad.com ; Pat Allegretti mailto:paa...@gmail.com ; Pat and Corky mailto:pjgren...@hotmail.com ; Pat mailto:grandmap...@comcast.net Doebele ; Pat Massey mailto:patrick.mas...@dhs.gov ; Paula mailto:paula.lazz...@attachmate.com ; PJ mailto:pjn...@yahoo.com ; Ron mailto:ron.brook...@att.net ; Sally mailto:sa...@bsorenson.com ; Sarah mailto:maeb...@vandals.uidaho.edu Bell-Schell ; Sharon mailto:pianica...@comcast.net Steve ; 'Sheri Meyer' mailto:sheme...@cisco.com ; Steve mailto:crescentc...@nwi.net Gail ; Steve and Jo mailto:stevejojohn...@msn.com ; Susan mailto:susanema...@mchsi.com Ted Roth ; Tmic mailto:tmic-list@eskimo.com ; Tom mailto:t...@ddoel.com Deb ; Wayne mailto:wme...@ci.everett.wa.us ; Zsolt mailto:zdor...@comcast.net Patty Sent: Sunday, September 27, 2009 11:25 AM Subject: [TMIC] Update on Mike Hi, everyone! First a little update on what has happened since the last update a couple weeks ago, and then the schedule for the next round.. Radiation has really started to take a toll on me. Last Friday, Jill took me in for my 12th rad treatment. The Tomotherapy machine that they are using is state of the art. Even thought our son took me in to have the old bowling ball shaved, now, my eyebrows are falling out. We think we may have the perfect Halloween costume, Dr. really not-so-evil. All I need now is to find the hairless cat to complete the costume. Had a feeding tube put in last Thursday I have completely lost the sense of smell, and most of taste. The salivary glands are so far gone that it is painful to swallow. Now, I eat 8 cans a day of a liquid nutrient, and some of my hydration. This is accomplished by a large syringe to a port in my stomach just below the rib cage. Jill and I were able to pick this up very quickly. By the way, for the first time in many moons, today I was able to get into a size 34 waist, yahoo.
RE: [TMIC] Looking for TMr's for support groups
Tami from Fort Smith, AR _ From: Tracey L. Black [mailto:tracey.bl...@hnoins.com] Sent: Wednesday, September 16, 2009 11:16 AM To: heyjude48...@aol.com; cherp...@msn.com; TMIC-LIST@eskimo.com Subject: RE: [TMIC] Looking for TMr's for support groups Tracey (mother of Ashlee), Biglerville, PA Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, September 16, 2009 12:12 PM To: cherp...@msn.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Looking for TMr's for support groups Hello All, This is Jude, from Michigan In a message dated 9/15/2009 9:27:40 P.M. Eastern Daylight Time, cherp...@msn.com writes: Linda Cherpeski - Eagle, Idaho (Boise area) - Original Message - From: Patricia Cooley mailto:patticoo...@wi.rr.com To: 'Butcher, Bernie (S mailto:bernie.butc...@honeywell.com FS)' ; 'Robert mailto:rp...@neillsupply.com Pall' ; 'Janice' mailto:jan...@centurytel.net ; 'Jill mailto:jillybean60...@yahoo.com Z' ; 'Catherine' mailto:camoa...@yahoo.com ; 'Laura Beaudin' mailto:laura.beau...@gmail.com Cc: 'kevin weilacher' mailto:hwyfli...@yahoo.com ; 'Transverse mailto:tmic-list@eskimo.com Mylitis Group' Sent: Tuesday, September 15, 2009 8:28 AM Subject: RE: [TMIC] Looking for TMr's for support groups Patti - S.E. Wisconsin From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Tuesday, September 15, 2009 6:48 AM To: Robert Pall; Janice; Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: RE: [TMIC] Looking for TMr's for support groups Barney - LI, NY _ From: Robert Pall [mailto:rp...@neillsupply.com] Sent: Tuesday, September 15, 2009 7:44 AM To: Janice; Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: RE: [TMIC] Looking for TMr's for support groups Rob-Marlboro New Jersey _ From: Janice [mailto:jan...@centurytel.net] Sent: Monday, September 14, 2009 11:20 PM To: Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: Re: [TMIC] Looking for TMr's for support groups Janice - Columbia, Missouri - Original Message - From: Jill Z mailto:jillybean60...@yahoo.com To: Catherine mailto:camoa...@yahoo.com ; Laura Beaudin mailto:laura.beau...@gmail.com Cc: kevin mailto:hwyfli...@yahoo.com weilacher ; Transverse Mylitis Group mailto:tmic-list@eskimo.com Sent: Sunday, September 13, 2009 9:54 PM Subject: Re: [TMIC] Looking for TMr's for support groups Jill From Chicago --- On Sun, 9/13/09, Laura Beaudin laura.beau...@gmail.com wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: Re: [TMIC] Looking for TMr's for support groups To: Catherine camoa...@yahoo.com Cc: kevin weilacher hwyfli...@yahoo.com, Transverse Mylitis Group tmic-list@eskimo.com Date: Sunday, September 13, 2009, 8:29 PM ...and I'm Laura from Edmonton, Alberta. :) On Sun, Sep 13, 2009 at 7:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass.
RE: [TMIC] test
Coming in loud clear. _ From: Robert Pall [mailto:rp...@neillsupply.com] Sent: Friday, May 15, 2009 7:31 AM To: tmic Subject: [TMIC] test Can anyone let me know if you are rec'g this.it appears I am not getting any mail.perhaps just a slow mail day!
RE: [TMIC] DEPRESSION,READ MY STORY.long winded
I thought I was the only one who used the shower to cry.I am with you - my family is my lifeline too. Thanks for sharing, Tami _ From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Friday, May 15, 2009 11:47 AM To: 'jeff bernier'; msersl...@yahoogroups.com; tmic-list@eskimo.com Subject: RE: [TMIC] DEPRESSION,READ MY STORY.long winded JEFF: THANK YOU FOR SHARING YOUR STORY. IT SOUNDS THAT DESPITE ALL YOU HAVE BEEN THROUGH, YOU ARE STRONGER THAN YOU GIVE YOURSELF CREDIT. IT MAKES ME BELIEVE THAT I WILL ALSO SURVIVE. I WAS DIAGNOISED LAST JUNE, BUT I HAVE COME A LONG, LONG WAY SINCE THEN. IN THE BEGINNING, I SPENT A LOT OF TIME CRYING IN THE SHOWER SO NO ONE WOULD HEAR ME AND PLOT HOW I WOULD END MY LIFE. THE THOUGHT OF MY HUSBAND, GIRLS, AND GRANDDAUGHTERS IS WHAT PULLED ME THROUGH. I COULDN'T DO THAT TO THEM AND I AM GLAD I DIDN'T. I STILL HAVE MOMENTS WHEN I FEEL SO SORRY FOR MYSELF, BUT DO COME OUT OF IT. THE THROUGHT OF MS SOMETIME IN THE FUTURE SCARES ME TO DEATH, BUT YOU CAN'T DO ANYTHING ABOUT IT. I WILL CROSS THAT BRIDGE IF AND WHEN THAT HAPPENS. I HAVE IMPROVED MORE THAN I EVER EXPECTED. I USE A WALKER, BUT CAN ALSO WALK AROUND THE HOUSE WITHOUT ANYTHING BY HOLDING ONTO FURNITURE AND WALLS WHEN NEEDED. I NEVER EVER EXPECTED THAT TO HAPPEN. I STILL HAVE HOPE FOR FURTHER IMPROVEMENT BUT ONLY TIME WILL TELL. I KNOW THAT WE ALL EXPERIENCE MANY OF THE SAME THOUGHTS AND FEELINGS, AND I AM GLAD WE HAVE EACH OTHER TO VOICE THEM. THANKS AGAIN FOR SHARING. PATTI IN WISCONSIN From: jeff bernier [mailto:jeffsmokeea...@yahoo.com] Sent: Thursday, May 14, 2009 2:13 PM To: msersl...@yahoogroups.com; tmic-list@eskimo.com Subject: [TMIC] DEPRESSION,READ MY STORY.long winded THIS IS MEANT TO BE A LITTLE ADVICE FOR ANYONE ON THE LIST THAT IS OR HAS,SUFFERED FROM DEPRESSION AND REALLY AIMED AT THE NEWER DX MEMBERS HERE,MOST OF US THAT HAVE BEEN HERE AWHILE CAN ATTEST TO MY STORY AND WE ALL HAVE OUR OWN. IT WAS A BEAUTIFULL SUNNY SAT MORNING FEB 5 2000,I WAS A FIREFIGHTER/PARAMEDIC AT A STRUCTURE FIRE,I HAD MY CAREER GOING INTO FULL SWING AND WAS LOVING WHAT I WAS DOING,I FELT AS THOUGH I FOUND MY TRUE CALLING.AT 30 YEARS OLD WITH 12 YEARS ON THE JOB ALREADY,I HAD 4 BEAUTIFULL CHILDREN AND A WIFE THATS I LOVED DEARLY,EVERYTHING IN MY LIFE WAS WHERE I WANTED IT.THEN CAME THE FALL,I WAS ENTERING A BUILDING AND SLIPPED AND FELL ON ONE STEP WITH ABOUT 70 LBS OF GEAR ON AND WENT BACKWARDS LANDING HARD ON MY HEELS AND COLLAPSING IN THE SNOW AND HAVING EVERYTHING TURN WHITE FROM MY FACE BEING BURRIED IN THE SNOW. I FELT A SHOCKWAVE GO UP MY SPINAL CHORD AND IT SCARED THE HELL OUT OF ME,BECAUSE I HAD HEARD OF THIS HAPPENING TO OTHER PEOPLE,WITH IN WEEKS I WAS IN A WHEELCHAIR AND DX WITH TRANSVERSE MYELITIS AND GETTING NO ANSWERS,IVE LEARNED THE FIRST YEAR IS TOTAL CONFUSION AND SPENT HOPING YOULL WALK AGAIN,THE SECOND YEAR IS THE WORST BECAUSE REALITY SETS IN AND YOU START TO REALISE THERES NO TURNING BACK AND YOU STRUGGLE TO ACCEPT WHAT HAS HAPPENED TO YOU,THATS WHEN I FOUND THIS LIST AND REALISED THAT HEY! THERE IS OTHERS OUT THERE WITH SIMILAR CONDITIONS,I CREDIT THE MEMBERS OF THIS LIST AND MY CHILDREN FOR PREVENTING ME FROM TAKING MY LIFE AND I KNOW THERES MEMBERS ON HERE THAT HAVE THOUGHT ABOUT IT,ITS THE HUMAN RESPONSE WHEN YOUVE HIT ROCK BOTTOM.ITS NOT WORTH IT,THERES SO MUCH TO LIVE FOR AND LIGHT AT THE END OF THE TUNNEL. WELL HERE IS THE TWIST TO THIS STORY,I WAS DX WITH MS IN JUNE 2005 AND THIS BROUGHT A WHOLE NEW SET OF FEELINGS AND CONFUSION AND AGAIN I CAME BACK TO THIS LIST. LAST MOTHERSDAY MYSELF AND MY WIFE OF 16 YEARS SEPERATED AND MY HEART WAS CRUSHED,I NEVER HAD THE TIME TO DEAL WITH MY OWN HURT AND INTERNAL STRUGGLE BECAUSE I WAS DEALING WITH MY KIDS PAIN,THE HOUSE I WAS LIVING IN WAS PUT UP FOR SALE BY MY OWN FAMILY AND I WAS GIVEN 3 MONTHS TO FIND A PLACE TO LIVE 2 WEEKS AFTER THE SPLIT UP.IN OCTOBER IT FINALLY HIT ME FULL FORCE WHAT HAD HAPPENED AND I WENT BACK INTO A DEEP STATE OF DEPRESSION AND COULDNT FIND AWAY TO CLAW MYSELF OUT,I LOST 65 LBS AND MADE 13 TRIPS TO THE HOSPTIAL,BUT I BEAT IT AND THIS IS MY POINT.IF YOUR AT ROCK BOTTOM THERES ONLY ONE WAY TO GO AND THATS UP,I DUG MYSELF OUT TWICE WITH NO MEDICATION AND NO SHRINK,THERE IS SUNLIGHT AT THE TOP OF THE BARREL YOU JUST NEED TO FIND A WAY TO GET TO IT.YOU ARE IMPORTANT TO SO MANY PEOPLE IN YOUR LIFE AND ITS ABOUT BEING TRUE YOURSELF AND THOSE THAT LOVE YOU. AS FOR ME IM OK AND GOING DAY BY DAY,IM STILL BEST FRIENDS WITH MY WIFE AND I WOULD DO ANYTHING FOR HER,OUR KIDS ARE DOING GOOD AND COPING,I HAVE DAYS WHEN MEMORIES HIT,BUT IVE LEARNED METHODS TO COPE WITH IT.IF ANYONE ON THIS LIST NEEDS A VOICE OR SOMONE TO CHAT WITH.PLEASE CONTACT ME AT dsrtstr...@yahoo.com . DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
RE: [TMIC] Quality of Medical Care
Jude, You are an inspiration to all of us. I am so happy you are doing better - it is exciting to hear about the new changes! Tami _ From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Sunday, May 10, 2009 10:35 AM To: heyjude48...@aol.com; tmic-list@eskimo.com Subject: RE: [TMIC] Quality of Medical Care HI SWEETIE: IT IS SO GOOD TO HEAR FROM YOU. I HAVE BEEN WATCHING FOR POSTS FROM YOU, BUT I KNEW YOU WERE STILL RECOVERING FROM YOUR SURGERY AND KNEW YOU WOULD WRITE AS SOON AS YOU WERE ABLE. I AM SO GLAD YOU ARE ABLE TO SIT UP SEVERAL TIMES A DAY. HOPEFULLY, AS YOU RECUPERATE THAT TIME CAN BE EXTENDED. MAYBE AS YOU RECOVER YOU WOULD BE ABLE TO GET OUTSIDE AND ENJOY WARMER WEATHER AND GET SOME SUN. TAKE CARE OF YOURSELF AND DON'T OVER DUE. BLESSINGS ON YOU. PATTI IN WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Sunday, May 10, 2009 3:11 AM To: tmic-list@eskimo.com Subject: [TMIC] Quality of Medical Care Hello Everyone, It has been some time since I posted to the List, so some of you may not know who I am. I have been off-line because of some bad pressure ulcers on my behind that ended up going all the way to the bone and I had to have surgery to repair them. I can now sit up for short periods of time...long enough to use my laptop for the first time. Thanks to all of you who sent cards, gifts and Prayers during the time I was in the hospital and home recuperating. I have had strange sensations up and down my legs since the surgery, and have even thought I was getting feeling and possibly movement back, but nothing has been lasting more than a few moments. The docs have just given me permission to sit in my wheelchair for one hour in the morning and once in the evening. I am taking PT three times a week to build up my upper body so that transferring will be easier. Shoot...I've been up a while, answered several emails and read everything on the List that I have been missing out on, and now I find myself too tired and in too much pain to continue this at this time. I will finish this later. My love and Prayers go out to all of you. May God keep you safe, continue being your resting place, and may He keep giving us reason to Hope in our recovery. Jude _ Recession-proof vacation ideas. Find http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlc ntustrav0002 free things to do in the U.S.
RE: [TMIC] Fw: my transverse myelitis story
Janice, Thank you for saying this about the 2 year mark. I am getting close to it and found myself getting nervous and down thinking this is it. You guys keep me going! Thanks, Tami _ From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Thursday, May 07, 2009 9:21 AM To: 'Janice'; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] Fw: my transverse myelitis story YOU ARE RIGHT JANICE. I GUESS AS LONG AS I AM DRAWING A BREATHE I WILL HOPE AND WORK TOWARDS ANY IMPROVEMENT NO MATTER HOW LONG IT TAKES. THANKS FOR THE ENCOURAGEMENT. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Wednesday, May 06, 2009 8:38 PM To: Patricia Cooley; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Fw: my transverse myelitis story Amanda and Patti, When you think of the 2-year mark, don't be too disappointed if you are not where you want to be. I let it be a big thing for me and was panicky when 2 years came and I wasn't where I wanted to be and felt there would be no more recovery. Recovery still happens. Your body doesn't know 2 years from butkus!The doc's are only saying the biggest hunk of recovery comes a b o u t then. There will be more. Also, I think something happens in the adjustment to your body. You begin to accept, but are still working for improvement. At least, that was the way it is for me at 28 months of TM. Janice - Original Message - From: Patricia mailto:patticoo...@wi.rr.com Cooley To: 'Amanda Diskey' mailto:adis...@yahoo.com ; pjv1...@chartermi.net ; tmic-list@eskimo.com Sent: Wednesday, May 06, 2009 10:37 AM Subject: RE: [TMIC] Fw: my transverse myelitis story AMANDA: IT IS OBVIOUS THAT YOU HAVE BEEN PUT THROUGH THE WRINGER. I AM SO SORRY FOR ALL YOU HAVE SUFFERED. I WAS DIAGNOISED WITH TM LAST JUNE. WHEN IT HAPPENED I WAS UNABLE TO MOVE MY LEGS AND HAD NO FEELING. IN THE LAST 11 MONTHS I HAVE COME A LONG, LONG WAY. THE BIGGEST CHANGE HAS BEEN IN THE LAST 2-3 MONTHS. I HAD BEEN ABLE TO USE A WALKER, BUT I FIGURED I WOULD NEVER BE ABLE TO USE A CANE. BUT, ALL OF A SUDDEN I FIND THAT I CAN USE A CANE AND EVEN WALK WITHOUT A WALKER OR CANE. I DO NEED TO GRAB HOLD OF FURNITURE OR THE WALL, BUT I AM ABLE TO WALK SHORT DISTANCES. SO PLEASE DON'T GIVE UP. KEEP UP WITH YOUR THERAPY. I THINK IN MY CASE I WAS FORTUNATELY DISGNOISED IMMEDIATELY AND PUT ON STEROIDS RIGHT AWAY. EVERYONE HAS SAID THAT IMPROVEMENT COULD HAPPEN WITHIN THE FIRST 2 YEARS, SO WE HAVE A LONG WAY TO GO BEFORE WE REACH THAT POINT. DON'T GIVE UP. WE ARE HERE FOR EACH OTHER SO KEEP US POSTED. PATTI IN WISCONSIN _ From: pjv1...@chartermi.net pjv1...@chartermi.net To: tmic-list@eskimo.com; Amanda Diskey adis...@yahoo.com Sent: Wednesday, May 6, 2009 6:38:49 AM Subject: Re: [TMIC] Fw: my transverse myelitis story Amanda, I have chills from reading your story and I think they started when I read that you can wiggle your toes. I hope you continue to acquire movement and will keep us up-to-date on your accomplishments. I was still healing at nine months and pray that you are too. Patti - Michigan Amanda Diskey adis...@yahoo.com wrote: - Forwarded Message From: Amanda Diskey adis...@yahoo.com To: wllo...@tampabay.rr.com Sent: Tuesday, May 5, 2009 12:33:53 PM Subject: my transverse myelitis story Hello, I am Amanda a 30 year old single mother of two awesome kids, and this is my story about the worst day of my life! I got up that day and helped my boyfriend clean his daddy's house, we ate lunch when we were finished, and I went outside for a smoke. While smoking my cigarette I started having chest pains, and my right arm was hurting so I went back in and laid on the couch. About an hour later, or maybe more, I decided to go to the ER in case I was having a heart attack. They took me back immediately, but they could find nothing wrong with me. After six hours of tests I told them the chest pains were probably caused by my GERD (acid reflux) because it had happened to me before, and I wanted to go on home. After I left i noticed one of my knees buckled every time I took a step, but I didn't think much of it. I went to bed early cause I just didn't feel good, and I woke up about 11 p.m. because my back was on fire like it was sunburnt. There was a rash across my shoulders and down my spine. I was feeling really bad, and I told my boyfriend I needed to go back to the hospital. When I went to get out of bed I almost fell in the floor, but he caught me. I could not stand so he had to carry me to the car along with both kids. So here we go, I have to stop on the way and started throwing up over and over again. I finally get to my second hospital of the day only to run tests until 6 a.m. and finally admitted to a room where they left me lay for 12 more hours without even monitoring me. When the
RE: [TMIC] Fw: my transverse myelitis story
Mindy, Good luck let us know how it helps! Tami _ From: Lawrence King [mailto:we4king...@verizon.net] Sent: Thursday, May 07, 2009 9:50 AM To: tmic-list@eskimo.com Cc: Lawrence King Subject: Re: [TMIC] Fw: my transverse myelitis story I recently passed my 2 year mark and today I am going to try out a TEN's unit so wish me luck! Mindy the Artist On May 7, 2009, at 10:25 AM, Tami Streeter wrote: Janice, Thank you for saying this about the 2 year mark. I am getting close to it and found myself getting nervous and down thinking this is it. You guys keep me going! Thanks, Tami _ From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Thursday, May 07, 2009 9:21 AM To: 'Janice'; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] Fw: my transverse myelitis story YOU ARE RIGHT JANICE. I GUESS AS LONG AS I AM DRAWING A BREATHE I WILL HOPE AND WORK TOWARDS ANY IMPROVEMENT NO MATTER HOW LONG IT TAKES. THANKS FOR THE ENCOURAGEMENT. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Wednesday, May 06, 2009 8:38 PM To: Patricia Cooley; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Fw: my transverse myelitis story Amanda and Patti, When you think of the 2-year mark, don't be too disappointed if you are not where you want to be. I let it be a big thing for me and was panicky when 2 years came and I wasn't where I wanted to be and felt there would be no more recovery. Recovery still happens. Your body doesn't know 2 years from butkus!The doc's are only saying the biggest hunk of recovery comes a b o u t then. There will be more. Also, I think something happens in the adjustment to your body. You begin to accept, but are still working for improvement. At least, that was the way it is for me at 28 months of TM. Janice - Original Message - From: Patricia mailto:patticoo...@wi.rr.com Cooley To: 'Amanda mailto:adis...@yahoo.com Diskey' ; pjv1...@chartermi.net ; tmic-list@eskimo.com Sent: Wednesday, May 06, 2009 10:37 AM Subject: RE: [TMIC] Fw: my transverse myelitis story AMANDA: IT IS OBVIOUS THAT YOU HAVE BEEN PUT THROUGH THE WRINGER. I AM SO SORRY FOR ALL YOU HAVE SUFFERED. I WAS DIAGNOISED WITH TM LAST JUNE. WHEN IT HAPPENED I WAS UNABLE TO MOVE MY LEGS AND HAD NO FEELING. IN THE LAST 11 MONTHS I HAVE COME A LONG, LONG WAY. THE BIGGEST CHANGE HAS BEEN IN THE LAST 2-3 MONTHS. I HAD BEEN ABLE TO USE A WALKER, BUT I FIGURED I WOULD NEVER BE ABLE TO USE A CANE. BUT, ALL OF A SUDDEN I FIND THAT I CAN USE A CANE AND EVEN WALK WITHOUT A WALKER OR CANE. I DO NEED TO GRAB HOLD OF FURNITURE OR THE WALL, BUT I AM ABLE TO WALK SHORT DISTANCES. SO PLEASE DON'T GIVE UP. KEEP UP WITH YOUR THERAPY. I THINK IN MY CASE I WAS FORTUNATELY DISGNOISED IMMEDIATELY AND PUT ON STEROIDS RIGHT AWAY. EVERYONE HAS SAID THAT IMPROVEMENT COULD HAPPEN WITHIN THE FIRST 2 YEARS, SO WE HAVE A LONG WAY TO GO BEFORE WE REACH THAT POINT. DON'T GIVE UP. WE ARE HERE FOR EACH OTHER SO KEEP US POSTED. PATTI IN WISCONSIN _ From: pjv1...@chartermi.net pjv1...@chartermi.net To: tmic-list@eskimo.com; Amanda Diskey adis...@yahoo.com Sent: Wednesday, May 6, 2009 6:38:49 AM Subject: Re: [TMIC] Fw: my transverse myelitis story Amanda, I have chills from reading your story and I think they started when I read that you can wiggle your toes. I hope you continue to acquire movement and will keep us up-to-date on your accomplishments. I was still healing at nine months and pray that you are too. Patti - Michigan Amanda Diskey adis...@yahoo.com wrote: - Forwarded Message From: Amanda Diskey adis...@yahoo.com To: wllo...@tampabay.rr.com Sent: Tuesday, May 5, 2009 12:33:53 PM Subject: my transverse myelitis story Hello, I am Amanda a 30 year old single mother of two awesome kids, and this is my story about the worst day of my life! I got up that day and helped my boyfriend clean his daddy's house, we ate lunch when we were finished, and I went outside for a smoke. While smoking my cigarette I started having chest pains, and my right arm was hurting so I went back in and laid on the couch. About an hour later, or maybe more, I decided to go to the ER in case I was having a heart attack. They took me back immediately, but they could find nothing wrong with me. After six hours of tests I told them the chest pains were probably caused by my GERD (acid reflux) because it had happened to me before, and I wanted to go on home. After I left i noticed one of my knees buckled every time I took a step, but I didn't think much of it. I went to bed early cause I just didn't feel good, and I woke up about 11 p.m. because my back was on fire like it was sunburnt. There was a rash across my shoulders and down my spine. I was feeling really bad, and I told my boyfriend I needed to go back to the hospital
RE: [TMIC] difficulties
Thank you - everything was fine when I went to bed last night, but woke up this morning feeling sad again over this thing we all live with. I guess it's the hope that keeps us from giving up so sometimes when we wake up and realize it's still here, it seems more than we can take. We can never give up even when it feels like that would be the easier thing to do. Your words are exactly what I needed to hear this morning. _ From: Westgold [mailto:westg...@interlog.com] Sent: Saturday, May 02, 2009 5:47 PM To: tmic-list@eskimo.com Subject: [TMIC] difficulties Difficulties Difficult challenges can come into your life when you least expect them, and when you can ill afford them. Yet there they are, bullying their way into your world. If you try to ignore them or deny them, they just get bigger and more problematic. The more you let them worry you and get you down, the more helpless they make you. A life full of challenge is often stressful and uncomfortable, but it is vastly better than the alternative, which is a life full of nothing. Your own particular challenges may seem extremely unfair, and they probably are. But that doesn't make them any less real, nor does it make you any less obligated to confront and endure them. Accept the challenges when they appear, and you're well on the way to overcoming them. Though they bring disruption and pain, they also bring growth and power. Sometimes what is best for us, is not what we would choose. Life is difficult and in it we find unimaginable joy. Accept it all and live it for all it's worth.
RE: [TMIC] New Month, New Efforts
Akua, Good for you! Poetry is a true talent. Tami -Original Message- From: Akua [mailto:a...@artfarm.com] Sent: Friday, May 01, 2009 4:41 PM To: tmic-list@eskimo.com Subject: [TMIC] New Month, New Efforts April was National Poetry Month and I met the challenge of writing at least one poem a day every day in response to prompts. Over 30 new works!!! I am so proud of me, as since contracting TM, my writing has suffered, as has my reading. I wrote a couple of poems about my condition-- which I generally avoid. Yesterday after a long struggle(10 months) I got to see a neurologist a few blocks away, who listened, renewed my script for Naltrexone and is pursuing getting me therapy at home! (The neurologist I went to in my pcp's practice took my money and told me he only does stroke would ONLY refer me Strong Hospital, which is 110 unreachable (and unaffordable $700 roundtrip) miles away and refused to renew my script) I slept today until 1p.m. (9 hours) and i didn't realize how much energy it took. I found out that the deadline for the 5310 grants for paratransit vehicles was today. But I learned that there is a taxi service that has a van in the city next-door. Their costs are prohibitive ($36), but not outlandish ( like the school bus company that charges $75 just to show up). Again if anyone has any information on nonprofit startups or funding for paratransits, it would be welcome. Happy May Day! Akua --
RE: [TMIC] SURG ON FRIDAY
Jeff, Our positive thoughts prayers are with you! Tami _ From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Wednesday, April 29, 2009 2:38 PM To: Pieter and Heather; tmic Subject: Re: [TMIC] SURG ON FRIDAY Jeff, go into the surgery with a prayer and come out with one. We will all be waiting to hear from you with good news!! Jeanne ---Original Message--- From: Pieter and mailto:pieterheat...@shaw.ca Heather Date: 4/29/2009 1:45:49 PM To: jeff mailto:jeffsmokeea...@yahoo.com bernier; msersl...@yahoogroups.com; tmic-list@eskimo.com Subject: Re: [TMIC] SURG ON FRIDAY Jeff, Good luck with your surgery. Let us know how you make out. Heather in Calgary - Original Message - From: jeff mailto:jeffsmokeea...@yahoo.com bernier To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Sent: Wednesday, April 29, 2009 12:41 PM Subject: [TMIC] SURG ON FRIDAY I HAVE SURG ON FRIDAY TO REMOVE A MASS ON THE BACK OF MY NECK,AFTER YEARS OF BEING DX WITH MS AND THE DOCS TELLING ME IT ISNT RELATED TO MY CONDITION IM FINALLY GETTING IT TAKEN OUT. JUST A NOTE,I KNOW 2 OTHER PEOPLE THAT HAVE HAD THE SAME PROBLEM AS MY SELF,ONE OF THEM WAS WAS DX WITH MS 22 YEARS AGO.THEY BOTH HAD THE MASS REMOVED AND ARE NOW FUNCTIONING NORMALLY WITH NO OTHER COMPLICATIONS,SO GO FIGURE! JEFF DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
RE: [TMIC]
Grace, Thank you for your post. I find myself longing to go there just to know I have tried everything too, but it is so far and financially out of the question for now. My dreams for big lottery winnings have just changed just a bit from what they used to be. Speaking of dreams, I dreamed I was roller skating last night - it was wonderful and though some may think it silly, it gives me hope. Thanks, Tami _ From: Grace M. [mailto:grace...@gmail.com] Sent: Friday, April 24, 2009 10:11 AM To: Janice Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Hi Janice, It's Mayo treatment protocol for NMO that has kept me on my feet and still alive. *What would Hopkins or Mayo do that would make any difference in your recovery?* For me at this point, nothing---it is what it is. Sometimes we just have to bite the bullet, swallow hard, and accept things for what they are. I know that I will have future attacks of TM, blindness, and eventually brain lesions---unless of course, a cure is discovered. I also know that I could die during an acute attack. More than a few of our Advocacy Group members have passed since our launching in 2006. That being said, it is research by the bigger and more prominent facilities, that has allowed me to have the standard of care that I now enjoy. I've got an unbelievable neuro here in PA. I consider myself to be so lucky that he took an active interest in my case, and successfully diagnosed me. He is at the University of Pittsburgh Medical Center, and it is quite prestigious in it's own right. In the beginning, whenever I was new to all of this, I spent my waking moments grasping at straws. *Maybe they're wrong---they have to be wrong? Maybe if I did this? Maybe if I saw this neuro or that neuro? Maybe if I went to this hospital?* ad infinitum. I quite effectively robbed myself of a good quality of life. I was just too busy wallowing in my own grief at that point. One day, I just made up my mind that I would dedicate myself to learning about this *thing* and helping and educating others. It was the one thing that i could still do at that point. This is a rambling post I know, but there is a point. Whenever I decided to get busy doing what I had to do, I started to collect any and all technical papers that I could get my hands on concerning this disease. What I found, was that the bulk of research was coming out of the Mayo Clinic and Japan. I managed to locate other patients nationally and worldwide (And it was not an easy task as NMO is incredibly rare, much more so than TM from other causes.), and discovered that a high percentage of them were Mayo patients. They were diagnosed and placed on treatment protocols, and were experiencing the best degree of stability that could be expected. Now, we always suggest a visit to the Mayo for newly diagnosed patients, or those who are still in the diagnostic process. Their level of expertise is phenomenal. Right now, I am sitting her on pins and needles waiting for the American Academy of Neurology meeting to be completed, as Phase I of the NMO+ Genetic Study that myself and many of our members are participating in, is complete and preliminary results are to be announced at the meeting. My own neuro will be there, but is unable to stay for the entirety, and I cannot wait to see him in a week or two, to find out what the scoop is. The point of all of this is---if you have an opportunity to go to the Mayo or Hopkins, by all means do so. Will you get a different slant on your disease or disorder? Maybe not, maybe all has been done that can be done, but at the very least, you will know that you have been seen by the best, and can put your mind at rest. I hope that I haven't offended anyone. Grace
RE: [TMIC]
Oh but I love the 70's! Great music! Tami _ From: kimr1...@bellsouth.net [mailto:kimr1...@bellsouth.net] Sent: Friday, April 24, 2009 11:09 AM To: tstree...@abf.com; 'Grace M.'; 'Janice' Cc: Tami Streeter; tmic-list@eskimo.com Subject: RE: [TMIC] ok that is scary, I also dreamed I was roller skating agan (ok it was the 70's and roller disco) but I was moving all over the floor! -- Original message from Tami Streeter tstree...@abf.com: -- Grace, Thank you for your post. I find myself longing to go there just to know I have tried everything too, but it is so far and financially out of the question for now. My dreams for big lottery winnings have just changed just a bit from what they used to be. Speaking of dreams, I dreamed I was roller skating last night - it was wonderful and though some may think it silly, it gives me hope. Thanks, Tami _ From: Grace M. [mailto:grace...@gmail.com] Sent: Friday, April 24, 2009 10:11 AM To: Janice Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Hi Janice, It's Mayo treatment protocol for NMO that has kept me on my feet and still alive. *What would Hopkins or Mayo do that would make any difference in your recovery?* For me at this point, nothing---it is what it is. Sometimes we just have to bite the bullet, swallow hard, and accept things for what they are. I know that I will have future attacks of TM, blindness, and eventually brain lesions---unless of course, a cure is discovered. I also know that I could die during an acute attack. More than a few of our Advocacy Group members have passed since our launching in 2006. That being said, it is research by the bigger and more prominent facilities, that has allowed me to have the standard of care that I now enjoy. I've got an unbelievable neuro here in PA. I consider myself to be so lucky that he took an active interest in my case, and successfully diagnosed me. He is at the University of Pittsburgh Medical Center, and it is quite prestigious in it's own right. In the beginning, whenever I was new to all of this, I spent my waking moments grasping at straws. *Maybe they're wrong---they have to be wrong? Maybe if I did this? Maybe if I saw this neuro or that neuro? Maybe if I went to this hospital?* ad infinitum. I quite effectively robbed myself of a good quality of life. I was just too busy wallowing in my own grief at that point. One day, I just made up my mind that I would dedicate myself to learning about this *thing* and helping and educating others. It was the one thing that i could still do at that point. This is a rambling post I know, but there is a point. Whenever I decided to get busy doing what I had to do, I started to collect any and all technical papers that I could get my hands on concerning this disease. What I found, was that the bulk of research was coming out of the Mayo Clinic and Japan. I managed to locate other patients nationally and worldwide (And it was not an easy task as NMO is incredibly rare, much more so than TM from other causes.), and discovered that a high percentage of them were Mayo patients. They were diagnosed and placed on treatment protocols, and were experiencing the best degree of stability that could be expected. Now, we always suggest a visit to the Mayo for newly diagnosed patients, or those who are still in the diagnostic process. Their level of expertise is phenomenal. Right now, I am sitting her on pins and needles waiting for the American Academy of Neurology meeting to be completed, as Phase I of the NMO+ Genetic Study that myself and many of our members are participating in, is complete and preliminary results are to be announced at the meeting. My own neuro will be there, but is unable to stay for the entirety, and I cannot wait to see him in a week or two, to find out what the scoop is. The point of all of this is---if you have an opportunity to go to the Mayo or Hopkins, by all means do so. Will you get a different slant on your disease or disorder? Maybe not, maybe all has been done that can be done, but at the very least, you will know that you have been seen by the best, and can put your mind at rest. I hope that I haven't offended anyone. Grace
RE: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Thank you for letting us know! Tami _ From: montzma...@aol.com [mailto:montzma...@aol.com] Sent: Friday, March 20, 2009 9:56 AM To: tmic-list@eskimo.com Subject: [TMIC] JUDE!!! I JUST GOT OFF THE PHONE WITH JUDE. SHE WAS WAITING FOR THE AMBULANCE. SHE WAS VERY UPBEAT, SHE DID WHAT I TOLD HER SHE PUT MAKEUP ON HER JEWELRY TOO. SHE WILL LOOL LIKE A QUEEN WHEN SHE GETS TO THE HOSPITAL.THEY WILL TAKE IT OFF AND DAVE WILL TAKE IT WITH HIM. DAVE WILL CALL ME WHEN HER SURGERY IS OVER. I WILL CALL ELLA, LINDA AND I AM SURE THAT PATTI WILL BE INFORMED BY DAVE. THEY WILL POST TO THE LIST. SHE KNOWS THAT ALL OF US ARE PRAYING FOR HER. SHE IS NOT AFFRAID AT ALL SHE TOLD ME. WE LAUGHED AND CHATTED UNTIL THE AMBULANCE GOT THERE!!! GOD BLESS US ALL TIAD PAM!!! _ Feeling the pinch at the grocery store? Make dinner http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001 for $10 or less.
RE: [TMIC] Prayers and Love
Yes Jude, I feel like I know you and you will especially be on my mind and in my prayers tomorrow. You are special and have so much to give others in the words you send. Thank you for sharing your life and I look forward to seeing your posts again once you are feeling better. Tami _ From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Thursday, March 19, 2009 9:48 AM To: heyjude48...@aol.com; TMIC-LIST@eskimo.com Subject: [TMIC] Prayers and Love Dear Jude: Please know that we are all praying for you and sending you so much love you would need a semi to carry it all. We will all be thinking of you tomorrow and we do every day, but we will be sending extra prayers for complete success with your surgery and a very quick recovery. You are an inspiration to all of us with your faith and love for all of us. I love to read you beautiful words when you are up to sending to the site. We will all be waiting for news about your surgery. We hope that Patti in Michigan will keep us informed as soon as she has any information. Much love and Blessings to you and Dave. Patti in Wisconsin
RE: [TMIC] Hi Everyone
Hi Janice. Glad to meet you. I am Tami from Arkansas. I am 42 and have had TM for 1 ½ years. _ From: Janice [mailto:jan...@centurytel.net] Sent: Tuesday, March 17, 2009 10:43 AM To: celr...@aol.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Hi Everyone Hi!I am Janice from Missouri.Been a 62- year old TM victim for 2 years and just venturing out on the computer to meet others with TM. Hope you are doing well. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Tuesday, March 17, 2009 8:27 AM Subject: [TMIC] Hi Everyone How is Jude doing. I have'nt seen any postings for some reason or other. I had to subscribe again. I have been concerned about all.Jane in Splendora Tx _ Feeling the pinch at the grocery store? Make dinner http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001 for $10 or less.
RE: [TMIC] update granddad
What a precious little blessing! And I love her name. Tami _ From: wim from holland [mailto:wim_from_holl...@hotmail.com] Sent: Tuesday, March 10, 2009 5:59 AM To: TMIC Subject: [TMIC] update granddad Importance: High I'll try again. On this photo she had the same pose as we saw her on a photo in the womb. Vingers in het mouth and a hand besides her head. The first time I sended more but they did not came trough. Wim from Holland _ Plan je feest, nodig mensen uit en deel je foto's met Windows http://windowslive.microsoft.nl/WL/Explore/Events Live Events
[TMIC] My TM experience
It is so nice to read everyones story. Like you all, I was hit with TM blindsided. I was actually about 5 hrs from home for a job interview when it happened. We were in the process of relocating and my husband and daughter had already made the official move. I went up on a Friday night for a job interview on Monday. Sunday night I was up off and on all night just not feeling good. I made it to the interview but my left leg was already lagging so I had to lift it in the car to go. I went back to our new home and got in bed and I remember my hip was hurting a lot so when my husband came home from work we headed to the hospital. After sitting in the ER for a couple of hours, my walking was getting worse and worse so they wheeled me to the exam room in a wheelchair. The ER doctor listed several things this could be and decided to admit me for tests. Got to my room and went into the bathroom. When I tried to get up my knees went out from under me and I havent been able to walk since. I spent 1 ½ weeks in intensive care while they were trying to determine what it was. At first, they thought it was Guillain-Barre Syndrome, but when after the spinal tap, confirmed it was TM. I was in the rehab hospital for about 6 weeks. I couldnt move any part of my lower body my hip flexors were not working so I couldnt do much but lie in bed unless someone helped me up. I now have my right leg back but the left is pretty limp. I can transfer and dont have bathroom issues and really not a lot of pain. I have been back to work full time for about a year. Lucky for me, I had a job in a corporate office so when Im at work in my little cubicle, I feel like Im even with everyone else and the customers and internal employees on the phone have no idea Im in a wheelchair. Needless to say we didnt relocate, we came back home after the 8 weeks away. I am so thankful I was in a bigger city when it happened so the diagnosis was made pretty quickly. Who knows how it would have gone here in our smaller town. I was so scared for so long and it really is nice to know there are other people out there who know exactly what I have and am still going through. Tami
RE: [TMIC] Loving thoughts
I also agree. Our faith is the most important thing to some of us and that's how we make it through this life. I also would like to know about some of the other religions and their history. Thanks for having the courage to bring this up. Tami _ From: Trudy Ogilvie [mailto:mother...@gmail.com] Sent: Wednesday, March 04, 2009 9:10 PM To: jrushton Cc: heyjude48...@aol.com; tmic Subject: Re: [TMIC] Loving thoughts I agree Jeanne, we will keep our site. And of course I also agree that we will continue to thank God and let our fellow TM'ers know that we are praying for them. But I am talking more about sharing our faith with each other. For example, maybe I'd like to share something I read during my morning meditation. Or a book, such as The Shack. I am a born and raised Irish Catholic and I would not mind if someone might have some questions about Catholicism. I'd like to learn some of the festivals that the Jewish community celebrate. I have no desire to change anyone's religion but I would love to learn more about someone else's religion. I read Max Lucado and Henri Nouwen and the poems of Rumi (the Sufi Poet). What are your thoughts about suffering and how do your beliefs help you? But this is a website for TM not religious beliefs. So if we agree to put OT-Religious content' then only those who want to will open the e-mail and share their thoughts. Maybe it will work, maybe it won't but I'd like to give it a try. Trudy On Tue, Mar 3, 2009 at 10:55 AM, jrushton jrush...@columbiaenergyllc.com wrote: Hello, dear one... Not to worry.. We will keep our site. We have such family of friends that I don't want to take a chance on losing any of you. I would imagine that if you don't want to thank God and talk about prayer, you would probably be uncomfortable on here. We seem to come thru no matter what 'decisions' are made in how to handle that issue! :) And thank you so much for the update on you!!! Love you all..Jeanne in Dayton ---Original Message--- From: heyjude48...@aol.com Date: 3/3/2009 6:17:08 AM To: TMIC-LIST@eskimo.com Subject: [TMIC] Loving thoughts Hello All, Just wanted to keep you informed as to what is going on here in snowy, c,c,c,cold, gray and nasty Michigan. As usual, I have another UTI but this time it is being treated? differently. My doctor is at a loss as to what antibiotic to put me on because I have become immune to all of them that can be given orally. The doctor is consulting with my infectious disease specialist to see if he can come up with something given by IV at home. I am so tired of going to the hospital, but may have to if the doc cannot come up with something. I believe that today I see the wound care specialist. Dave says that when he changes the dressings, the wounds look pretty good. One side has quite a bit of drainage that is looking a bit green but that's all. Hopefully, I will be on something soon to get everything under control. Rick called me yesterday. What a dear friend. I am so fortunate to have friends like all of you that I can depend upon to help keep me positive when I'm not feeling well. I got a sweet card from Trudy. The card is lovely on it's own, but the words Trudy wrote are very special. Faithful Pam calls me almost every day...the last time she called we talked forever. Who else calls? Ella is a regular, Linda checked in with me last week and I know that I am missing someone. Please forgive me, my friend. I appreciate the outpouring of love. I can't help but think that our group is a very special entity and hate to think of everyone leaving and going to the Yahoo site. Does anyone know if Jim Lubin has anything to do with the other site? He works so hard to maintain this List, I hate to think of people abandoning him simply for a change of pace. It is my hope that people will keep their place on this List and if they feel the need to meet new people and read about new ideas and such, I hope that they can belong to two sites and not eliminate this one. Unfortunately, I only have enough energy to answer email on this one. Well, please take my loving thoughts with you today and enjoy whatever it is that you will be doing. Your Jude _ A Good Credit Score is 700 or Above. See yours in just 2 easy steps! http://pr.atwola.com/promoclk/100126575x1219957551x1201325337/aol?redir=htt p:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID% 3D62%26bcd%3DfebemailfooterNO62
RE: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I have only been on this board for a few weeks, but from what I can see, Jude is an exceptional lady. I wish I knew her as well as you all do, but for sure my thoughts and prayers are with her and her family. Tami From: montzma...@aol.com [mailto:montzma...@aol.com] Sent: Wednesday, January 21, 2009 9:41 AM To: tmic-list@eskimo.com Subject: [TMIC] JUDE! I JUST SPOKE WITH JUDE., ITS NOT GOOD NEWS AT ALL.THE DR. JUST LEFT AND TOLD HER THE INFECTION IS THRU HER WHOLE BODY. THEY NOW ARE CALLING IN A INFECTIOUS DISEASE DR, WELL ITS TO LATE. SHE TOLD ME FOR ALL WHO PRAY TO PRAY FOR HER.SHE DOES NOT THINK THERE IS ANYTHING THEY CAN DO FOR HER. SHE DOES NOT WANT DAVE TO KNOW YET WHAT THE DOCTOR TOLD HER. DAVE MADE A COMMENT TO HER THAT HE IS AFFRAID OF LOOSING HER. SHE WANTS US TO HELP DAVE THRU THIS. ELLA, PATTI AND I HE KNOWS THE BEST. I PROMISED WE WOULD BE THERE FOR HIM. I HAVE CALLED HIM AND E-MAILED HIM.SHE IS SUFFERING SO BAD I CANNOT HARDLY SEE THE KEYBOARD FROM TRYING NOT TO CRY. SHE IS IN MC CLAIRNES HOSPITAL HER ROOM IS 1205. THE HOSPITAL NUMBER IS 810-342-2173 ITS HARD FOR HER TO GET TO THAT PHONE. HER CELL SHE HAS WITH HER ITS 810-252-5841.IF SHE DOES NOT ANSWER SHE IS SLEEPING ARE IN SEVERE PAIN. I AM SO SAD BUT I KNEW THIS WOULD HAPPEN EVNTUALLY.JUDE DOES NOT WANT US CRYING ABOUT HER BUT TO JUST REMEMBER HER. SHE WILL ALWAYS BE WITH ME, SHE IS MY ANGEL AND WILL BE IN MY HEART ALWAYS .I WISH I COULD BE WITH HER BUT I CANNOT. I HOPE PATTI SEES THIS AND COULD GO AND SING TO HER, SHE LIKES THAT AND SEEING PATTI. I AM GOING TO WRITE PATTI JUST IN CASE SHE DID NOT GET THIS MESSAGE! NO MATTER WHAT HAPPENS I HOPE JUDE GOES QUIETLY IN HER SLEEP WITH NO PAIN. BUT SHE DIED TWICE ON US BEFORE SO WE JUST HAVE TO WAIT THIS OUT GOD BLESS JUDE AND DAVE AND OUR TM FAMILY! _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=Dec emailfooterNO62 yours in just 2 easy steps!
