Re: [TMIC] Re: tmic-digest Digest V2012 #91
After my initial--6 days on IV Steriods and I left the hospital a week later, the doctor gave me a vial of steriod pills to take if I felt the TM was reaching into my upper body, I suppose to stop it. I don't live near a hospital and have to be flown to one. Luckily I have never had a recurring episode but then again I have only been a TMer for two years. Unluckily I have no lower body function and am confined to a chair. 2 cent worth. On Sun, Feb 19, 2012 at 1:44 AM, Dalton Garis malugss...@gmail.com wrote: idiopathic: a pathogen we idiots can't identify D. From: Bernie Pelow bpe...@austin.rr.com Date: Sun, 19 Feb 2012 00:38:21 -0600 To: TMIC tmic-list@eskimo.com, Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 *Hey Dalton and all TM Family, In my initial care 22 years ago, I was put on an IV drip of steroids for my 2 month stay in the hospital. My immune system is shot; period. I have to take all kinds of precautions to make sure I don't get sick. But it happens now and again no matter how hard I try. My TM was called idiopathic by some doctors, some said it came from the flu I had just gotten over. Regardless of what it's cause was, when I get sick I start feeling tingling in my hands and arms, upper abdomen and face. Every time the treatment is a mass dose of steroids, as the doctors believe that is recurring TM, I've had 5 episodes over the years. I have grown to hate steroids, they make me miserable, cranky, I get insomnia, migraine headaches, and I gain weight which is very hard to lose when your my age and stuck in a chair. But if these drugs are keeping me from deteriorating any further, I'll take them until my last days if need be. Just my 2 cents of sharing... Peace, Bernie in Texas PS - Sorry if the typing is large, my eyes have gotten real bad this past year. From: Dalton Garis malugss...@gmail.com malugss...@gmail.com To: James Berg molokai...@gmail.com molokai...@gmail.com; a...@artfarm.com Cc: tmic-list@eskimo.com Sent: Saturday, February 18, 2012 5:39 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 ** * *Yes;* * * *I had four days of steroid drip in the beginning to reduce the spinal inflammation and hopefully prevent any new lesions. But that was during the initial stage when my spine seemed to be on fire.* * * *But after that I only received a steroid drip during a flair-up about six month's later, but no more often.* *Pleas* *Please try to see someone else if you can. You can go to Webmd to search for a doctor who knows about TM/MS.* * * *Best,* * * *Dalton*
Re: [TMIC] Re: tmic-digest Digest V2012 #91
Well said, mate. BobbyJim - Original Message - From: Dalton Garis To: Bernie Pelow ; TMIC Sent: Sunday, February 19, 2012 5:44 AM Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 idiopathic: a pathogen we idiots can't identify D. From: Bernie Pelow bpe...@austin.rr.com Date: Sun, 19 Feb 2012 00:38:21 -0600 To: TMIC tmic-list@eskimo.com, Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 My TM was called idiopathic by some doctors, some said it came from the flu I had just gotten over.
Re: [TMIC] Re: tmic-digest Digest V2012 #91
That is very accurate information Akua has provided not only to you,but to the whole community. I too have never heard of steroids being continuously prescribed. My doctors weened me off them after a few weeks. They didn't help anyway. Jim On Fri, Feb 17, 2012 at 6:37 PM, a...@artfarm.com wrote: On Feb 17, 2012, at 10:40 PM, tmic-digest-requ...@eskimo.com wrote: * what do i do* Wishing you the best, Candy. ™ does not turn into anything… there is no prescribed route for it. I am alarmed that you are prescribed steroids continuously --- the jury is out as to its efficacy as an intervention and I hadn't heard of it prescribed continuously. Sounds like you need may need some second and third opinions. When I was first in the hospital I made a list of the recommended drugs, looked each up got print outs and did a spread sheet of effect and side effects. My recent tests included a CT scan, lung capacity and bone density. My bone density has diminished from my paralysis and (perhaps) steroid use. My vitamin regimen includes calcium, D, Folic acid, iron to remediate the losses due to ™. Hopefully you've had a blood screen -- became anemic as a result of this condition. Just a few thoughts…. ™ left me paralyzed and in pain, BUT my pain once an 8 is now about a 3 and i only take one drug for ™ -- low dose naltrexone. That all be well, Akua
Re: [TMIC] Re: tmic-digest Digest V2012 #91
Yes; I had four days of steroid drip in the beginning to reduce the spinal inflammation and hopefully prevent any new lesions. But that was during the initial stage when my spine seemed to be on fire. But after that I only received a steroid drip during a flair-up about six month's later, but no more often. Pleas Please try to see someone else if you can. You can go to Webmd to search for a doctor who knows about TM/MS. Best, Dalton From: James Berg molokai...@gmail.com Date: Sat, 18 Feb 2012 09:54:21 -1000 To: a...@artfarm.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 18 Feb 2012 11:58:02 -0800 That is very accurate information Akua has provided not only to you,but to the whole community. I too have never heard of steroids being continuously prescribed. My doctors weened me off them after a few weeks. They didn't help anyway. Jim On Fri, Feb 17, 2012 at 6:37 PM, a...@artfarm.com wrote: On Feb 17, 2012, at 10:40 PM, tmic-digest-requ...@eskimo.com wrote: what do i do Wishing you the best, Candy. does not turn into anything there is no prescribed route for it. I am alarmed that you are prescribed steroids continuously --- the jury is out as to its efficacy as an intervention and I hadn't heard of it prescribed continuously. Sounds like you need may need some second and third opinions. When I was first in the hospital I made a list of the recommended drugs, looked each up got print outs and did a spread sheet of effect and side effects. My recent tests included a CT scan, lung capacity and bone density. My bone density has diminished from my paralysis and (perhaps) steroid use. My vitamin regimen includes calcium, D, Folic acid, iron to remediate the losses due to . Hopefully you've had a blood screen -- became anemic as a result of this condition. Just a few thoughts. left me paralyzed and in pain, BUT my pain once an 8 is now about a 3 and i only take one drug for -- low dose naltrexone. That all be well, Akua
Re: [TMIC] Re: tmic-digest Digest V2012 #91
my Dr had me on steroids for about a week to slow my auto immune system way down because that was what was attacking my spine.i havent had them since. From: Dalton Garis malugss...@gmail.com To: James Berg molokai...@gmail.com; a...@artfarm.com Cc: tmic-list@eskimo.com Sent: Saturday, February 18, 2012 5:39 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 Yes; I had four days of steroid drip in the beginning to reduce the spinal inflammation and hopefully prevent any new lesions. But that was during the initial stage when my spine seemed to be on fire. But after that I only received a steroid drip during a flair-up about six month's later, but no more often. Pleas Please try to see someone else if you can. You can go to Webmd to search for a doctor who knows about TM/MS. Best, Dalton From: James Berg molokai...@gmail.com Date: Sat, 18 Feb 2012 09:54:21 -1000 To: a...@artfarm.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 18 Feb 2012 11:58:02 -0800 That is very accurate information Akua has provided not only to you,but to the whole community. I too have never heard of steroids being continuously prescribed. My doctors weened me off them after a few weeks. They didn't help anyway. Jim On Fri, Feb 17, 2012 at 6:37 PM, a...@artfarm.com wrote: On Feb 17, 2012, at 10:40 PM, tmic-digest-requ...@eskimo.com wrote: what do i do Wishing you the best, Candy. ™ does not turn into anything… there is no prescribed route for it. I am alarmed that you are prescribed steroids continuously --- the jury is out as to its efficacy as an intervention and I hadn't heard of it prescribed continuously. Sounds like you need may need some second and third opinions. When I was first in the hospital I made a list of the recommended drugs, looked each up got print outs and did a spread sheet of effect and side effects. My recent tests included a CT scan, lung capacity and bone density. My bone density has diminished from my paralysis and (perhaps) steroid use. My vitamin regimen includes calcium, D, Folic acid, iron to remediate the losses due to ™. Hopefully you've had a blood screen -- became anemic as a result of this condition. Just a few thoughts…. ™ left me paralyzed and in pain, BUT my pain once an 8 is now about a 3 and i only take one drug for ™ -- low dose naltrexone. That all be well, Akua
Re: [TMIC] Re: tmic-digest Digest V2012 #91
*Hey Dalton and all TM Family, In my initial care 22 years ago, I was put on an IV drip of steroids for my 2 month stay in the hospital. My immune system is shot; period. I have to take all kinds of precautions to make sure I don't get sick. But it happens now and again no matter how hard I try. My TM was called idiopathic by some doctors, some said it came from the flu I had just gotten over. Regardless of what it's cause was, when I get sick I start feeling tingling in my hands and arms, upper abdomen and face. Every time the treatment is a mass dose of steroids, as the doctors believe that is recurring TM, I've had 5 episodes over the years. I have grown to hate steroids, they make me miserable, cranky, I get insomnia, migraine headaches, and I gain weight which is very hard to lose when your my age and stuck in a chair. But if these drugs are keeping me from deteriorating any further, I'll take them until my last days if need be. Just my 2 cents of sharing... Peace, Bernie in Texas PS - Sorry if the typing is large, my eyes have gotten real bad this past year. From:Dalton Garis malugss...@gmail.com To: James Berg molokai...@gmail.com; a...@artfarm.com Cc: tmic-list@eskimo.com Sent: Saturday, February 18, 2012 5:39 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 * * * *Yes;* * * *I had four days of steroid drip in the beginning to reduce the spinal inflammation and hopefully prevent any new lesions. But that was during the initial stage when my spine seemed to be on fire.* * * *But after that I only received a steroid drip during a flair-up about six month's later, but no more often.* *Pleas* *Please try to see someone else if you can. You can go to Webmd to search for a doctor who knows about TM/MS.* * * *Best,* * * *Dalton*
[TMIC] Re: tmic-digest Digest V2012 #91
On Feb 17, 2012, at 10:40 PM, tmic-digest-requ...@eskimo.com wrote: what do i do Wishing you the best, Candy. ™ does not turn into anything… there is no prescribed route for it. I am alarmed that you are prescribed steroids continuously --- the jury is out as to its efficacy as an intervention and I hadn't heard of it prescribed continuously. Sounds like you need may need some second and third opinions. When I was first in the hospital I made a list of the recommended drugs, looked each up got print outs and did a spread sheet of effect and side effects. My recent tests included a CT scan, lung capacity and bone density. My bone density has diminished from my paralysis and (perhaps) steroid use. My vitamin regimen includes calcium, D, Folic acid, iron to remediate the losses due to ™. Hopefully you've had a blood screen -- became anemic as a result of this condition. Just a few thoughts…. ™ left me paralyzed and in pain, BUT my pain once an 8 is now about a 3 and i only take one drug for ™ -- low dose naltrexone. That all be well, Akua
