Re: [TMIC] Stem Cell Research
No more than Dr.s know about TM I believe that any research they are doing anywhere is good. and no more than they know and all that is available to us from what they have found I reckon any guess is good. I'm just glad that the function dictates rule works for us as we share what has made a difference A scary thought and yet perhaps a thankful Thought Dalton is I fear most people that were attacked as hard and high on the spine as you were cannot tell us of any differences that have worked. Thankful in that you can spring back and fourth in your episodes and vent frustrations and share experience. --- On Sat, 4/16/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Stem Cell Research To: Susan Ebling slebl...@gmail.com, James Berg molokai...@gmail.com Cc: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Date: Saturday, April 16, 2011, 11:13 PM So: If the sheath grew back, would you still see damage to the cns via an mri? Or would it show that things looked clear? I have had tough time with attacks of contractions, first across the back, then across the front. And pain and weakness in both arms and legs, pain and buzzing to just above the elbows and knees, and banding and numbness in crotch, no stamina, so forth. I also get confused and can't line up things as before. Dr sauid anomalies in brainstem, on the pons. Any ideas??? Dalton From: Susan Ebling slebl...@gmail.com Date: Sat, 16 Apr 2011 19:31:06 -0500 To: James Berg molokai...@gmail.com Cc: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Stem Cell Research Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 16 Apr 2011 17:31:39 -0700 James I am sorry to hear that TM took that much from you. I have a very strong right leg and a spasming, crazy, buzzing left leg. I am told I am lucky. . . but I have a serious 'hitch in my get along'! (not to mention the other affects of TM). take care Susan On Sat, Apr 16, 2011 at 6:30 PM, James Berg molokai...@gmail.com wrote: How much mobilitiy do you have? The prliminary research done on rats, took them from being unable to walk to total repair. I know that is the goal of the Shepherd research- Myself, I have no legs at all, nada--plenty of spasms, painful vibrating or buzzing and a very stiff belly band. MRI shows no improvement, nor any enlargemnt of the lesion. On Sat, Apr 16, 2011 at 11:58 AM, john snodgrass jcs...@yahoo.com wrote: what did i get a miracle or just sheath regrowth? My Neuro told me that the mri showed last year that the sheith had grown back. i asked why did i still have these problems? he said it is the damaged nerves inside. he said if the sheith were still damaged then i would have worse problems because of no insulation surrounding that area of the cns. whatever the deal,i am thankful that the problems are not worse! bad enough as it is,,, so if this new research can lead to helping others with cns problems,,i wish them God speed! seen a video,,a lot of people need it everyday ! --- On Sat, 4/16/11, Susan Ebling slebl...@gmail.com wrote: From: Susan Ebling slebl...@gmail.com Subject: Re: [TMIC] Stem Cell Research To: James Berg molokai...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com Date: Saturday, April 16, 2011, 3:40 PM encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg molokai...@gmail.com wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. -- Susan L. Ebling -- Susan L. Ebling
[TMIC] Stem Cell Research
Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012.
Re: [TMIC] Stem Cell Research
encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg molokai...@gmail.com wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. -- Susan L. Ebling
Re: [TMIC] Stem Cell Research
what did i get a miracle or just sheath regrowth? My Neuro told me that the mri showed last year that the sheith had grown back. i asked why did i still have these problems? he said it is the damaged nerves inside. he said if the sheith were still damaged then i would have worse problems because of no insulation surrounding that area of the cns. whatever the deal,i am thankful that the problems are not worse! bad enough as it is,,, so if this new research can lead to helping others with cns problems,,i wish them God speed! seen a video,,a lot of people need it everyday ! --- On Sat, 4/16/11, Susan Ebling slebl...@gmail.com wrote: From: Susan Ebling slebl...@gmail.com Subject: Re: [TMIC] Stem Cell Research To: James Berg molokai...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com Date: Saturday, April 16, 2011, 3:40 PM encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg molokai...@gmail.com wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. -- Susan L. Ebling
Re: [TMIC] Stem Cell Research
How much mobilitiy do you have? The prliminary research done on rats, took them from being unable to walk to total repair. I know that is the goal of the Shepherd research- Myself, I have no legs at all, nada--plenty of spasms, painful vibrating or buzzing and a very stiff belly band. MRI shows no improvement, nor any enlargemnt of the lesion. On Sat, Apr 16, 2011 at 11:58 AM, john snodgrass jcs...@yahoo.com wrote: what did i get a miracle or just sheath regrowth? My Neuro told me that the mri showed last year that the sheith had grown back. i asked why did i still have these problems? he said it is the damaged nerves inside. he said if the sheith were still damaged then i would have worse problems because of no insulation surrounding that area of the cns. whatever the deal,i am thankful that the problems are not worse! bad enough as it is,,, so if this new research can lead to helping others with cns problems,,i wish them God speed! seen a video,,a lot of people need it everyday ! --- On *Sat, 4/16/11, Susan Ebling slebl...@gmail.com* wrote: From: Susan Ebling slebl...@gmail.com Subject: Re: [TMIC] Stem Cell Research To: James Berg molokai...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com Date: Saturday, April 16, 2011, 3:40 PM encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg molokai...@gmail.comhttp://mc/compose?to=molokai...@gmail.com wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. -- Susan L. Ebling
Re: [TMIC] Stem Cell Research
that's what i pray for REPAIR/RESTORE-- I'm in pain AND can't walk. Would LOVE to be able to walk. How much mobilitiy do you have? The prliminary research done on rats, took them from being unable to walk to total repair. I know that is the goal of the Shepherd research- Myself, I have no legs at all, nada--plenty of spasms, painful vibrating or buzzing and a very stiff belly band. MRI shows no improvement, nor any enlargemnt of the lesion. encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg http://mc/compose?to=molokai...@gmail.commolokai...@gmail.com wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. --
Re: [TMIC] Stem-cell research
Regina, I was referring to being treated when the trials are (hopefully) successfully completed. That is what I thought Patricia meant. I probably mis-read what she wrote. I'm also guessing there will be trials on a wider range of SCI caused diseases. Kevin Regina Rummel wrote: Kevin, I think the trials are on _recently_ injured spinal cord injuries. R *From:* Kevin Wolfthal wolft...@optonline.net *To:* Patricia Cooley patticoo...@wi.rr.com; tmic-list@eskimo.com *Sent:* Friday, January 23, 2009 4:42:49 PM *Subject:* Re: [TMIC] Stem-cell research Patti, If the trials are successful, and the pharmaceutical company can get the treatments approved, I don't see why anyone with an SCI injury wouldn't be treated. It will of course have to prove profitable and we'll see how the insurance companies deal with it. But it's a hopeful start. Kevin Patricia Cooley wrote: KEVIN: IT SOUNDS WONDERFUL. I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM AND NOT JUST ACCIDENT VICTIMS. ALSO, SINCE I AM ABLE TO GET AROUND WITH A WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED. IT WILL BE INTERESTING. THANKS FOR LETTING US KNOW. PATTI IN WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net mailto:wolft...@optonline.net] Sent: Friday, January 23, 2009 3:52 PM To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Stem-cell research http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
Re: [TMIC] Stem-cell research
http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
Re: [TMIC] Stem-cell research
Patti, If the trials are successful, and the pharmaceutical company can get the treatments approved, I don't see why anyone with an SCI injury wouldn't be treated. It will of course have to prove profitable and we'll see how the insurance companies deal with it. But it's a hopeful start. Kevin Patricia Cooley wrote: KEVIN: IT SOUNDS WONDERFUL. I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM AND NOT JUST ACCIDENT VICTIMS. ALSO, SINCE I AM ABLE TO GET AROUND WITH A WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED. IT WILL BE INTERESTING. THANKS FOR LETTING US KNOW. PATTI IN WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Friday, January 23, 2009 3:52 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Stem-cell research http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
Re: [TMIC] Stem-cell research
I had the same concern, Patti..Jeanne ---Original Message--- From: Kevin Wolfthal Date: 1/23/2009 6:43:12 PM To: Patricia Cooley; tmic-list@eskimo.com Subject: Re: [TMIC] Stem-cell research Patti, If the trials are successful, and the pharmaceutical company can get the treatments approved, I don't see why anyone with an SCI injury wouldn't be treated. It will of course have to prove profitable and we'll see how the insurance companies deal with it. But it's a hopeful start. Kevin Patricia Cooley wrote: KEVIN: IT SOUNDS WONDERFUL. I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM AND NOT JUST ACCIDENT VICTIMS. ALSO, SINCE I AM ABLE TO GET AROUND WITH A WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED. IT WILL BE INTERESTING. THANKS FOR LETTING US KNOW. PATTI IN WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Friday, January 23, 2009 3:52 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Stem-cell research http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom. floral.jpgb_floral.jpg
Re: [TMIC] Stem-cell research
interesting Kevin, Thanks for posting this. I'm sure we will all be wondering and watching how these experiments turn out. I'm sure there will be many more in the future. Perhaps one day it will help all of us. Heather in Calgary - Original Message - From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Friday, January 23, 2009 2:52 PM Subject: Re: [TMIC] Stem-cell research http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
[TMIC] Stem-cell research
http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
[TMIC] TMIC - Stem Cell research
As Promised, Bush Vetoes New Stem Cell Bill
POSTED: 1:43 pm EDT June 20, 2007
UPDATED: 2:07 pm EDT June 20, 2007
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WASHINGTON -- Pushing back against the Democratic-led Congress,
President George W. Bush vetoed a bill Wednesday that would have eased
restraints on federally funded embryonic stem cell research.
Democrats, who had made the stem cell legislation a top priority when
they took control of the House and Senate in January, were quick to
denounce the president's decision.
This is just one example of how the president puts ideology before
science, politics before the needs of our families, just one more
example of how out of touch with reality he and his party have become,
Sen. Hillary Rodham Clinton, D-N.Y., told the Take Back America
conference of liberal activists Wednesday.
White House spokesman Tony Snow said the veto is not an attempt to
muzzle science, but more an attempt to respect people's conscience on
such an issue.
To blunt criticism, the White House said Bush is issuing an executive
order directing the Health and Human Services Department to promote
research into cells that -- like human embryonic stem cells -- also hold
the potential of regenerating into different types of cells that might
be used to battle disease.
Senate Majority Leader Harry Reid is expected to schedule a vote to
override the veto, although he doesn't appear to have enough votes for a
two-thirds majority.
Copyright 2007 by The Associated Press
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redistributed.
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Hockley O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
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coverage is bound and no change to your insurance program is confirmed
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[TMIC] Stem Cell Research - Dr. Douglas Kerr
Hello Ms. Harris My name is Michael Deiner. I am the President of the Greater Lebanon Valley Lion's Club in Lebanon PA. I found your name on the Transverse Myelitis Support Group of Pennsylvania web site. I need help getting the word out about a special event and speaker in our area. Dr. Douglas Kerr is coming to Myerstown PA to speak on Stem Cell Research. We are in the beginning stages of building a website and promotional materials to sponsor this information. Presently the website can be found here: http://www.lebanoncolions.org/LionsSpeakers/Index.htmlwww.lebanoncolions.org/LionsSpeakers/Index.html We expect to have save the date postcards sent out after the new year. Any help you could offer would be appreciated. This event is expected to bring interested parties from all over the country. The majority of the proceeds will go directly to Dr. Kerr's research. More information on the speaker and event can be found below. Thank you in advance for your help. Renewed Vision to Restoring Life. ?xml:namespace prefix = o ns = urn:schemas-microsoft-com:office:office / Dr. Douglas Kerr of Johns ?xml:namespace prefix = st1 ns = urn:schemas-microsoft-com:office:smarttags /Hopkins Hospital and University, Baltimore MD, is making some incredible strides in stem cell research. He is also considered one of the premier physicians on the leading edge of this technology. Dr. Kerr agreed to join the mission of The Greater Lebanon Valley Lions Club to help understand and educate not only researchers and other scientist in the field but to help clear though many of the misconceptions to what Stem Cell research is all about for the general public. (Learn the Facts) In todays world of technology and scientific advances, we are only steps away from being able to regenerate damaged nerves in the body. Nerves control every part of the body and they affect all of our senses and actions. Diseases that cause nerve damage like Multiple Sclerosis and Transverse Myelitis affects Millions of people in the US and possibly some one you know. Dr. Kerr has been featured on multiple news media venues including: ABC News, CNN, NPR, CBS Early Show, and Associated Press. His ground breaking research has been the subject of discussion and lectures all over the world. However, research in this field is very costly, and if we do not generate the funds needed, the research may not get completed in time to help the ones we love. Your presence to support this event could really help define the mission of Dr. Kerr's research as well as the objectives of The Greater Lebanon Valley Lion's Club. The Event: Renewed Vision to Restoring Life When: May 4th, 2007 6:00 to 7:00 Cash Bar 7:15 8:15 Dr. Douglas Kerr Where: Lantern Lodge Convention Center, Myerstown PA. 17067 Dinner Includes: Filet Mignon Crab Cake Cost: Tax Deductible Donation $100 Reservations must be made by April 15th, 2007 To order tickets, please call 717.273.3767 For more information on Dr Kerr and the Event Thank you and I hope you join us for this wonderful dinner and talk. Lion President, Michael Deiner
[TMIC] Stem Cell Research
Title: AOL Email Jim Lubin wrote: You are not removing stem cells from something that has already died When a woman has an abortion, do the stem cells die immediately? I am obviously ignorant on the subject and most likely have no place in even making a comment, but it just seems as though if they are only going to be discarded with the rest of the fetus, can't we find a way to utilize them? I guess that as long as the fetus is alive, it is considered a life, and ifharvesting the stem cells while the fetusis considered living, kills it, then we are committing murder. DuhI think I finally got it...and have no choice but to agree with those of you who say "not at the price of another's life." Jude
