Re: Re: [TMIC] TMIC Neurontin--does it exhaust you?
Hi all, I am switching to amitryteline (sp?) from neurontin. I stopped the neurontin and started all at once (doctor's rec) and went nuts...this is when one can experience suicidal thoughts (really). I decided to wane the dose of neurontin (was on 1800 and now am taking half that for the week) and perhaps even a nother smaller dose next week. Amitryptilene is an older antidepressant that treats pain, especially in the neck I was told. I feel a bit like a yo-yo and sorry for me staff! In any case the foggy feeling is lessening already. I also hate TM--makes me long for my previous normal physicala and mental state. I wake up every morning and wait for the pain to ensue. But I can function which I am very grateful for. Jill From: Pieter and Heather pieterheat...@shaw.ca To: Todd Tarno toddtm2...@sbcglobal.net; TMIC tmic-list@eskimo.com Sent: Mon, April 19, 2010 5:45:04 PM Subject: Re: Re: [TMIC] TMIC Neurontin--does it exhaust you? I too wish I could do Lyrica. Especially if it would leave me in less of a fog all day long. I hate TM. I really really hate this. Heather in Calgary - Original Message - From: Todd Tarno To: TMIC Sent: Monday, April 19, 2010 1:17 PM Subject: Fw: Re: [TMIC] TMIC Neurontin--does it exhaust you? Hey Jill everyone, My doctor told me to switch neurontin to Lyrica cold-turkey, because they where in the same family. I had the worst headache for 5 days and then I was fine. So I don't recommend doing like that, but it's faster. Why I like Lyrica for me, is that I only need to take it twice a day instead of 3 times a day. When I was on neurontin in the middle of the day, I would start to feel pain and then knew I had forgotten my second dose of neurontin. The neurontin would make me a little foggy and that might have been why I would forget the second dose. I wished we all could do well on Lyrica, Todd in CC, TX --- On Sat, 4/17/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? To: Neil McNeil n_...@hotmail.com, Janice Nichols jan...@centurytel.net, tmic-list@eskimo.com, we4king...@verizon.net, Jill Posner posnerj...@yahoo.com Date: Saturday, April 17, 2010, 8:54 PM Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: Re: [TMIC] TMIC Neurontin--does it exhaust you?
Jill, How much amitryptilene are you going to take? Let us know how it works out for you. Heather in Calgary - Original Message - From: Jill Posner To: Pieter and Heather ; Todd Tarno ; TMIC Sent: Monday, April 26, 2010 10:04 AM Subject: Re: Re: [TMIC] TMIC Neurontin--does it exhaust you? Hi all, I am switching to amitryteline (sp?) from neurontin. I stopped the neurontin and started all at once (doctor's rec) and went nuts...this is when one can experience suicidal thoughts (really). I decided to wane the dose of neurontin (was on 1800 and now am taking half that for the week) and perhaps even a nother smaller dose next week. Amitryptilene is an older antidepressant that treats pain, especially in the neck I was told. I feel a bit like a yo-yo and sorry for me staff! In any case the foggy feeling is lessening already. I also hate TM--makes me long for my previous normal physicala and mental state. I wake up every morning and wait for the pain to ensue. But I can function which I am very grateful for. Jill -- From: Pieter and Heather pieterheat...@shaw.ca To: Todd Tarno toddtm2...@sbcglobal.net; TMIC tmic-list@eskimo.com Sent: Mon, April 19, 2010 5:45:04 PM Subject: Re: Re: [TMIC] TMIC Neurontin--does it exhaust you? I too wish I could do Lyrica. Especially if it would leave me in less of a fog all day long. I hate TM. I really really hate this. Heather in Calgary - Original Message - From: Todd Tarno To: TMIC Sent: Monday, April 19, 2010 1:17 PM Subject: Fw: Re: [TMIC] TMIC Neurontin--does it exhaust you? Hey Jill everyone, My doctor told me to switch neurontin to Lyrica cold-turkey, because they where in the same family. I had the worst headache for 5 days and then I was fine. So I don't recommend doing like that, but it's faster. Why I like Lyrica for me, is that I only need to take it twice a day instead of 3 times a day. When I was on neurontin in the middle of the day, I would start to feel pain and then knew I had forgotten my second dose of neurontin. The neurontin would make me a little foggy and that might have been why I would forget the second dose. I wished we all could do well on Lyrica, Todd in CC, TX --- On Sat, 4/17/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? To: Neil McNeil n_...@hotmail.com, Janice Nichols jan...@centurytel.net, tmic-list@eskimo.com, we4king...@verizon.net, Jill Posner posnerj...@yahoo.com Date: Saturday, April 17, 2010, 8:54 PM Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Fw: Re: [TMIC] TMIC Neurontin--does it exhaust you?
Hey Jill everyone, My doctor told me to switch neurontin to Lyrica cold-turkey, because they where in the same family. I had the worst headache for 5 days and then I was fine. So I don't recommend doing like that, but it's faster. Why I like Lyrica for me, is that I only need to take it twice a day instead of 3 times a day. When I was on neurontin in the middle of the day, I would start to feel pain and then knew I had forgotten my second dose of neurontin. The neurontin would make me a little foggy and that might have been why I would forget the second dose. I wished we all could do well on Lyrica, Todd in CC, TX --- On Sat, 4/17/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? To: Neil McNeil n_...@hotmail.com, Janice Nichols jan...@centurytel.net, tmic-list@eskimo.com, we4king...@verizon.net, Jill Posner posnerj...@yahoo.com Date: Saturday, April 17, 2010, 8:54 PM Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: Re: [TMIC] TMIC Neurontin--does it exhaust you?
I too wish I could do Lyrica. Especially if it would leave me in less of a fog all day long. I hate TM. I really really hate this. Heather in Calgary - Original Message - From: Todd Tarno To: TMIC Sent: Monday, April 19, 2010 1:17 PM Subject: Fw: Re: [TMIC] TMIC Neurontin--does it exhaust you? Hey Jill everyone, My doctor told me to switch neurontin to Lyrica cold-turkey, because they where in the same family. I had the worst headache for 5 days and then I was fine. So I don't recommend doing like that, but it's faster. Why I like Lyrica for me, is that I only need to take it twice a day instead of 3 times a day. When I was on neurontin in the middle of the day, I would start to feel pain and then knew I had forgotten my second dose of neurontin. The neurontin would make me a little foggy and that might have been why I would forget the second dose. I wished we all could do well on Lyrica, Todd in CC, TX --- On Sat, 4/17/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? To: Neil McNeil n_...@hotmail.com, Janice Nichols jan...@centurytel.net, tmic-list@eskimo.com, we4king...@verizon.net, Jill Posner posnerj...@yahoo.com Date: Saturday, April 17, 2010, 8:54 PM Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Neurontin was awful for me. I was on it for the first year, 1998, and tried again in 2002. It made me exhausted and I couldn't think straight. I always felt as if my brain was buzzing, just an awful feeling. I prefer the symptoms of the illness over those of that drug. I only took 100mg, 3 times a day. I think either you can handle a med or you can't and I am one that doesn't handle many. Lori -- From: pjv1...@chartermi.net Sent: Saturday, April 17, 2010 9:54 PM To: Neil McNeil n_...@hotmail.com; Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com; we4king...@verizon.net; Jill Posner posnerj...@yahoo.com Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you
Are there other options? Yes, I take Phenobarbital 15 mg in AM and 45 mg. at bed time instead of Neurontin or Lyrica (Both tried and failed). I go to Dr. Kerr along with visits to Dr. Ware at the Montreal General Hospital Pain Center where I receive excellent care. F
Re: [TMIC] TMIC Neurontin--does it exhaust you
I tried Neurontin or Lyrica both make me lathargic and could not function. I was switched to Cymbalta 60mg a day and feel better. I can tell if I miss a day Kim TM -T10 10/06/09 --- On Sun, 4/18/10, fr...@franksheldon.com fr...@franksheldon.com wrote: From: fr...@franksheldon.com fr...@franksheldon.com Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you To: Jill Posner posnerj...@yahoo.com, Janice Nichols jan...@centurytel.net, Neil McNeil n_...@hotmail.com, we4king...@verizon.net, tmic-list@eskimo.com Date: Sunday, April 18, 2010, 8:01 AM Are there other options? Yes, I take Phenobarbital 15 mg in AM and 45 mg. at bed time instead of Neurontin or Lyrica (Both tried and failed). I go to Dr. Kerr along with visits to Dr. Ware at the Montreal General Hospital Pain Center where I receive excellent care. F
[TMIC] TMIC Neurontin--does it exhaust you?
I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan Jill Posner posnerj...@yahoo.com wrote: I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Jill, That is what Lyrica did to me too - bloat, swell, bloat.Hated it. I take Neurontin with no side affects, but I only take 1500 mg's.Hope you find something that works better for you. Janice From: Jill Posner Sent: Saturday, April 17, 2010 5:23 PM To: Janice Nichols ; Neil McNeil ; we4king...@verizon.net ; tmic-list@eskimo.com Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
[TMIC] TMIC Neurontin--does it exhaust you?
Different for everyone I see. Neurontin made me swell up. I am on Lyrica. 75mg a.m. 150 mg p.m. Sure has helped the banding and burning. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: April 17, 2010 8:25 PM To: Jill Posner; Neil McNeil; we4king...@verizon.net; tmic-list@eskimo.com Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? Jill, That is what Lyrica did to me too - bloat, swell, bloat.Hated it. I take Neurontin with no side affects, but I only take 1500 mg's.Hope you find something that works better for you. Janice From: Jill Posner mailto:posnerj...@yahoo.com Sent: Saturday, April 17, 2010 5:23 PM To: Janice mailto:jan...@centurytel.net Nichols ; Neil McNeil mailto:n_...@hotmail.com ; we4king...@verizon.net ; tmic-list@eskimo.com Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
Re: [TMIC] TMIC Neurontin--does it exhaust you?
I used 2400 mgs for two years. In the beginning it zombified me and made me bloat a little, but with time those effects wore off. It helped me a lot. Grace
Re: [TMIC] TMIC Neurontin--does it exhaust you?
Hi Jill, I've had TM now since Sept 6, 2003. I was on 3200 mg of Neurontin (900 mg 4 times a day) for about the first 2 years. It, along with all the other meds wiped me out but my body learned to tolerate it after a some months. I then went down to 2400 mg a day -- 600 mg 4 times a day now for the past 4 1/2 years. Never eliminates the pain but makes it tolerable. I tried Lyrica but after the first 10 days my feet, ankles and calves were badly swollen and I felt like I was walking on rockers and could not get my shoes tied tightly. So the neuro put me back on Neurontin (actually Gabapentin for me). I found that the Lyrica made a difference in the pain but the side effects were not good for me. He told me that about 7% of patients have swelling side effects to the Lyrica. I also take 40 mg Baclofen/day (10 mg with each dose of Gabapentin) for the spasms. Then 4 mg of Zanaflex before bed. Heather in Calgary - Original Message - From: Jill Posner To: Janice Nichols ; Neil McNeil ; we4king...@verizon.net ; tmic-list@eskimo.com Sent: Saturday, April 17, 2010 4:23 PM Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
