Re: [TMIC] ADEM
Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols ; Amanda Diskey ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
Re: [TMIC] ADEM
Did you have a sudden attack the way most of us did with TM or was it gradual? Don't mean to bug you, just curious. Janice From: Butcher, Bernie (SFS) Sent: Wednesday, March 17, 2010 7:28 AM To: Janice Nichols ; Amanda Diskey ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. Yes, it is similar, I really don't feel any different, just the double vision in 2007, which I recovered from BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, March 16, 2010 11:27 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols ; Amanda Diskey ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
RE: [TMIC] ADEM
With TM, it started with shoulder pain, went to doctor he found weakness in left side, arm leg Hospitalized for 10 days, lots of steroids antibiotics. After that, I could walk OK but left arm tingly and uncoordinated. 2005, started falling, used cane, then in 2006, walker - 2008: electric wheelchair I can walk with walker, but only 15 minutes. At days end, completely shot Still working and driving, but driving is getting scary BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, March 17, 2010 1:18 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Did you have a sudden attack the way most of us did with TM or was it gradual?Don't mean to bug you, just curious. Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Wednesday, March 17, 2010 7:28 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. Yes, it is similar, I really don't feel any different, just the double vision in 2007, which I recovered from BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, March 16, 2010 11:27 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey mailto:adis...@yahoo.com Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
RE: [TMIC] ADEM
I am amazed byal l of you who are able to work (as in paid employment). I am ambitious, but can't imagine working to a schedule. My hat is off to each of you. Patti - Michigan Butcher wrote: With TM, it started with shoulder pain, went to doctor he found weakness in left side, arm leg Hospitalized for 10 days, lots of steroids antibiotics. After that, I could walk OK but left arm tingly and uncoordinated. 2005, started falling, used cane, then in 2006, walker - 2008: electric wheelchair I can walk with walker, but only 15 minutes. At days end, completely shot Still working and driving, but driving is getting scary BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, March 17, 2010 1:18 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Did you have a sudden attack the way most of us did with TM or was it gradual?Don't mean to bug you, just curious. Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Wednesday, March 17, 2010 7:28 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. Yes, it is similar, I really don't feel any different, just the double vision in 2007, which I recovered from BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, March 16, 2010 11:27 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey mailto:adis...@yahoo.com Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
RE: [TMIC] ADEM
Thanks. My company has set me up to work 2 days/week at home. More if it snows or rains bad BERNARD BUTCHER Honeywell Engineering 516-577-5868 -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Wednesday, March 17, 2010 1:53 PM To: Butcher, Bernie (SFS); Janice Nichols; tmic-list@eskimo.com; Amanda Diskey Subject: RE: [TMIC] ADEM I am amazed byal l of you who are able to work (as in paid employment). I am ambitious, but can't imagine working to a schedule. My hat is off to each of you. Patti - Michigan Butcher wrote: With TM, it started with shoulder pain, went to doctor he found weakness in left side, arm leg Hospitalized for 10 days, lots of steroids antibiotics. After that, I could walk OK but left arm tingly and uncoordinated. 2005, started falling, used cane, then in 2006, walker - 2008: electric wheelchair I can walk with walker, but only 15 minutes. At days end, completely shot Still working and driving, but driving is getting scary BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, March 17, 2010 1:18 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Did you have a sudden attack the way most of us did with TM or was it gradual?Don't mean to bug you, just curious. Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Wednesday, March 17, 2010 7:28 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. Yes, it is similar, I really don't feel any different, just the double vision in 2007, which I recovered from BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, March 16, 2010 11:27 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey mailto:adis...@yahoo.com Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
Re: [TMIC] ADEM
I agree with Patti. I would think you would be so worn out by the end of the day, that you would be doing harm to yourself. Do you try to catch up with rest on the weekends? Janice -- From: Butcher, Bernie (SFS) bernie.butc...@honeywell.com Sent: Wednesday, March 17, 2010 1:01 PM To: pjv1...@chartermi.net; Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com; Amanda Diskey adis...@yahoo.com Subject: RE: [TMIC] ADEM Thanks. My company has set me up to work 2 days/week at home. More if it snows or rains bad BERNARD BUTCHER Honeywell Engineering 516-577-5868 -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Wednesday, March 17, 2010 1:53 PM To: Butcher, Bernie (SFS); Janice Nichols; tmic-list@eskimo.com; Amanda Diskey Subject: RE: [TMIC] ADEM I am amazed byal l of you who are able to work (as in paid employment). I am ambitious, but can't imagine working to a schedule. My hat is off to each of you. Patti - Michigan Butcher wrote: With TM, it started with shoulder pain, went to doctor he found weakness in left side, arm leg Hospitalized for 10 days, lots of steroids antibiotics. After that, I could walk OK but left arm tingly and uncoordinated. 2005, started falling, used cane, then in 2006, walker - 2008: electric wheelchair I can walk with walker, but only 15 minutes. At days end, completely shot Still working and driving, but driving is getting scary BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, March 17, 2010 1:18 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Did you have a sudden attack the way most of us did with TM or was it gradual?Don't mean to bug you, just curious. Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Wednesday, March 17, 2010 7:28 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. Yes, it is similar, I really don't feel any different, just the double vision in 2007, which I recovered from BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, March 16, 2010 11:27 PM To: Butcher, Bernie (SFS); Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM Bernie, Do you feel different having MS too?Aren't the symptoms-pain, weak legs, etc- the same as TM, or not? I realize TM doesn't affect your vision, but for the rest, is it pretty similar? Janice From: Butcher, Bernie (SFS) mailto:bernie.butc...@honeywell.com Sent: Tuesday, March 16, 2010 6:47 AM To: Janice Nichols mailto:jan...@centurytel.net ; Amanda Diskey mailto:adis...@yahoo.com ; tmic-list@eskimo.com Subject: RE: [TMIC] ADEM That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey mailto:adis...@yahoo.com Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
RE: [TMIC] ADEM
That's my understanding too. Up until 2008, my leasons were seen in my spinal cord. Then in late 2007 I started seeing double, MRI showed a lesion in my optic nerve. That's when it became MS Bernie From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, March 15, 2010 11:13 PM To: Amanda Diskey; tmic-list@eskimo.com Subject: Re: [TMIC] ADEM I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey mailto:adis...@yahoo.com Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
Re: [TMIC] ADEM
I thought those with MS had the brain scars and we, TM, have spinal scars. Janice From: Amanda Diskey Sent: Friday, March 12, 2010 2:48 PM To: tmic-list@eskimo.com Subject: [TMIC] ADEM So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
