Re: [TMIC] My son Chris OFF TOPIC
many prayers From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Saturday, October 8, 2011 8:50 PM Subject: Re: [TMIC] My son Chris OFF TOPIC Re: [TMIC] My son Chris OFF TOPIC So very sorry to read this! My deepest condolences. May you be granted strength and comfort in this difficult time. Akua MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX --
Re: [TMIC] My son Chris OFF TOPIC
My condolences to you and your family. God will make a way somehow just keep the faith. Ella
RE: [TMIC] My son Chris OFF TOPIC
Jane, I'm sorry for the loss of your son, Chris. God will sustain you thru this difficult time. Stay with us and know many TMers will be lifting you up in prayer as you mourn the loss of both your son and daughter. My condolences to you. Patti - Michigan On Thu, Oct 6, 2011 at 6:10 PM, celr...@aol.com wrote: MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] My son Chris OFF TOPIC
So very sorry to read this! My deepest condolences. May you be granted strength and comfort in this difficult time. Akua MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX --
Re: [TMIC] My son Chris OFF TOPIC
Jane, I'm so sorry for the loss of your daughter and son. Please accept my condolences at this difficult time. Kevin celr...@aol.com wrote: MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] My son Chris OFF TOPIC
Jane, I don’t understand why some people go through life with little problems, and some like you, carry a huge load.I am so very sorry. God will be with you and will give you strength, just put yourself in His hands.Feel free to vent all you like. Janice From: celr...@aol.com Sent: Thursday, October 06, 2011 5:10 PM To: TMIC-LIST@eskimo.com Subject: [TMIC] My son Chris OFF TOPIC MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] My son Chris OFF TOPIC
Oh my Jane...I am so very, very sorry Barbara H. On Thu, Oct 6, 2011 at 6:10 PM, celr...@aol.com wrote: ** MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] My son Chris OFF TOPIC
oh dear Jane, I am so very sorry, from the bottom of my heart. Please know that you can always come here to your TM friends. Love and prayers, Linda (Eagle, ID) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Thursday, October 06, 2011 4:10 PM Subject: [TMIC] My son Chris OFF TOPIC MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
RE: [TMIC] My son Chris OFF TOPIC
Jane, I wish there was something I can do or say to take this immense pain from you. Please know your TM family is always going be here for you. Jeron From: celr...@aol.com Date: Thu, 6 Oct 2011 18:10:43 -0400 To: TMIC-LIST@eskimo.com Subject: [TMIC] My son Chris OFF TOPIC MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
RE: [TMIC] My son Chris OFF TOPIC
Jane, Happy moments, PRAISE GOD. Difficult moments, SEEK GOD. Quiet moments, WORSHIP GOD. Painful moments, TRUST GOD. Every moment, THANK GOD. And may He hold you in His loving arms and comfort you. _ From: celr...@aol.com [mailto:celr...@aol.com] Sent: Thursday, October 06, 2011 3:11 PM To: TMIC-LIST@eskimo.com Subject: [TMIC] My son Chris OFF TOPIC MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] My Son
Janet, I pray for you and your son and for a cure for these diseases soon. Hang in there..I'm trying to. Kevin Janet Dunn wrote: Hello all you fellow TM’rs. It is with such a heavy heart, and with tears rolling down my face that I write this. My 15 year old son, who has struggled with his legs for a year now, undiagnosed, has finally been diagnosed. While it is not life threatening, it is TM. I am so sad. I do not know what to think. When I was diagnosed he is the only child of my four that asked if it was hereditary, and I said no. He replied “Good, then I won’t get it.” Now they strongly think he has it. I am so sad. So hurt – probably angry if I allow that emotion. I worry about his future. I know he can be productive, but really – two people in the same family having this beast of a disease? What are the chances? The only common denominator, other than the gene pool, is that he was in the same vehicle accident that I was in 8 years ago. And he was on the same side of the truck that I was on, in the back seat. Why so long to manifest? I don’t know. He has seen me and my trials, so he knows what is ahead. Does anyone know if this beastly condition can be hereditary? He is already talking about not having children in case it is. I am so sad, so discouraged. I know that he is lucky – he can walk with a cane – for that I am thankful. He has not gone to school for a year because of the pain, and the exhaustion. I know that Tracy out there has an eleven year old daughter with it. I am just wondering if anyone else has two family members afflicted with this thing? I simply cannot stop the tears. It is one thing for me, at 47, to face life with this, but to have my son have it too, at 15 is almost too much. Thanks for listening. Janet
Re: [TMIC] My Son
Janet, I'm so sorry.It must be awful to hear the diagnosis for your son. You would think they would have looked at tm sooner since you have it. Do you know why they took so long to get the diagnosis? Just know that all on the list are thinking of you and your son. Cheryl in Easthampton,Mass. --- On Thu, 5/6/10, Janet Dunn j.d...@shaw.ca wrote: From: Janet Dunn j.d...@shaw.ca Subject: [TMIC] My Son To: 'Transverse Myelytis' tmic-list@eskimo.com Date: Thursday, May 6, 2010, 12:30 PM Hello all you fellow TM’rs. It is with such a heavy heart, and with tears rolling down my face that I write this. My 15 year old son, who has struggled with his legs for a year now, undiagnosed, has finally been diagnosed. While it is not life threatening, it is TM. I am so sad. I do not know what to think. When I was diagnosed he is the only child of my four that asked if it was hereditary, and I said no. He replied “Good, then I won’t get it.” Now they strongly think he has it. I am so sad. So hurt – probably angry if I allow that emotion. I worry about his future. I know he can be productive, but really – two people in the same family having this beast of a disease? What are the chances? The only common denominator, other than the gene pool, is that he was in the same vehicle accident that I was in 8 years ago. And he was on the same side of the truck that I was on, in the back seat. Why so long to manifest? I don’t know. He has seen me and my trials, so he knows what is ahead. Does anyone know if this beastly condition can be hereditary? He is already talking about not having children in case it is. I am so sad, so discouraged. I know that he is lucky – he can walk with a cane – for that I am thankful. He has not gone to school for a year because of the pain, and the exhaustion. I know that Tracy out there has an eleven year old daughter with it. I am just wondering if anyone else has two family members afflicted with this thing? I simply cannot stop the tears. It is one thing for me, at 47, to face life with this, but to have my son have it too, at 15 is almost too much. Thanks for listening. Janet
Re: [TMIC] My Son
I've got many wild ideas about causes, but heredity is not one of them. What he shares with you is the environment and perhaps, and only perhaps sensitivity to certain insults/assaults. It was strange to me that this didn't manifest til i went to Rochester where there were people who knew what it was. I remember awhile back we tried anecdotally to see if there were regional/location clusters. As mine is idiopathic and the months i spent in the hospital were mainly about endless painful tests that yeiled not one clue, I urge you not to give into the idea that it is somehow you. There is a lot wrong with our air, our water, our food, our medication, our environment. I am sorry to hear such sad news. I wish you both healing and strength. Akua --
Re: [TMIC] My Son
Janet,
My heart goes out to your son, yourself and your family.
I wonder why it has taken a whole year to diagnose him.
I don't know if TM is hereditary. However I figure that there is a big
connection with autoimmune conditions in a family. I have TM (I'm 65 this
year) TM since 2003, my sister 3 years younger has MS, diagnosed in 1991, my
sister 7 years younger has Ulcerative Colitis, diagnosed in 1972, my father had
Rheumatoid Arthritis. These are all autoimmune conditions.
My daughter purchased some extra health insurance sor hereself this past year.
She had to declare any conditions in the immediate family, parents, siblings
etc. Since I have TM they would not insure her health against MS. So that
tells me that the insurance people also figure there is a connection.
You have every right to feel all your emotions of sad, hurt and angry. Now
that they have diagnosed him I do hope that the doctors will be able to help
him with medications to relieve some of his pain and fatigue if he is not
already on meds for these issues.
Please keep posting and use us as one of your sounding boards. Perhaps seeing
a professional to help you and your son deal with the psycological effects that
this disability takes on us could help as well.
{{{Hugs}}} to you and your son and family
Heather in Calgary
- Original Message -
From: Janet Dunn
To: 'Transverse Myelytis'
Sent: Thursday, May 06, 2010 10:30 AM
Subject: [TMIC] My Son
Hello all you fellow TM'rs.
It is with such a heavy heart, and with tears rolling down my face that I
write this.
My 15 year old son, who has struggled with his legs for a year now,
undiagnosed, has finally been diagnosed. While it is not life threatening, it
is TM.
I am so sad. I do not know what to think. When I was diagnosed he is the
only child of my four that asked if it was hereditary, and I said no. He
replied Good, then I won't get it.
Now they strongly think he has it. I am so sad. So hurt - probably angry if
I allow that emotion. I worry about his future. I know he can be productive,
but really - two people in the same family having this beast of a disease?
What are the chances?
The only common denominator, other than the gene pool, is that he was in the
same vehicle accident that I was in 8 years ago. And he was on the same side
of the truck that I was on, in the back seat. Why so long to manifest? I
don't know. He has seen me and my trials, so he knows what is ahead.
Does anyone know if this beastly condition can be hereditary? He is already
talking about not having children in case it is.
I am so sad, so discouraged. I know that he is lucky - he can walk with a
cane - for that I am thankful. He has not gone to school for a year because of
the pain, and the exhaustion. I know that Tracy out there has an eleven year
old daughter with it. I am just wondering if anyone else has two family
members afflicted with this thing?
I simply cannot stop the tears. It is one thing for me, at 47, to face life
with this, but to have my son have it too, at 15 is almost too much.
Thanks for listening.
Janet
RE: [TMIC] My Son
Hi Cheryl That is the really odd thing. I said that it was TM right away when it happened, but they poo pooed me, as they know best and said it wasn’t. Even the specialists in BC Children’s hospital said no. He had a bad headache from the lumbar puncture that they gave him, and they concentrated on that. They put it down to a psyche case, since he could walk without the cane sometimes. We had to go through a psych evaluation and everything, so when the year was up, then they revisited it. We actually took him to Alberta to get the diagnosis. The neurologist there at least has some experience with TM. I am hanging in, and he, of course, is being tough. Thanks for the email. Janet From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: May 6, 2010 4:25 PM To: Janet Dunn Cc: tmic-list@eskimo.com Subject: Re: [TMIC] My Son Janet, I'm so sorry.It must be awful to hear the diagnosis for your son. You would think they would have looked at tm sooner since you have it. Do you know why they took so long to get the diagnosis? Just know that all on the list are thinking of you and your son. Cheryl in Easthampton,Mass. --- On Thu, 5/6/10, Janet Dunn j.d...@shaw.ca wrote:
