Re: [TMIC] About Lynne--Our ROSEOFRENO.

2009-07-26 Thread ROSEOFRENO
Dear Grace ~
 
   I cried when I read your letter.  When God  laid it on my heart to help 
you
I knew you were in troublebut I had no idea exactly how  much trouble...
and I didn't know your state of mind at that time.until  now.  Thank God
you are still with us..!  The love and wealth of  information you share 
with this list is 
invaluable.
 
   I am absolutely thrilled to hear you are paying  it forward with your 
Advocacy
Group!!!  To say I am humbled by your words is an  understatement.
I am so glad I resubscribed to the list. I may have missed  your letter 
and that
very well may be the most beautiful letter anyone has ever  written about me
my entire life..so thank you Gracie!  When a  person finds out that 
some
small gesture they made impacts so many lives in such a  positive way as you
starting your Advocacy Group.well. it makes any  sacrifice so 
worthwhile...!
 
   As I get older I get closer to our Father and I  try even harder to 
listen to what
He wants me to do.  You have just confirmed for me that  some of the 
difficult
decisions I've had to make recently have  been the right ones! 
 
   I'm going to teach my grandbabies the importance  of paying it 
forward
I think the younger generation has missed the boat on  thismost of them
have never even heard the expression.
 
   Sending love,   Lynn
 
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Re: [TMIC] About Lynne--Our ROSEOFRENO.

2009-07-26 Thread Grace M.

  *Dearest Lynn,  *



  *Thank you so much for your most kind words.  You know, several months
 before you helped me, I had totally given up the advocacy effort, leaving it
 all in the hands of our founder, Tim Mulvihill. (Deceased since March of
 2008, and now the angel on my shoulder.)  I was so ill back then, both in
 body and soul, and the often sad stories of other patients and the deaths
 that the group had experienced, were just too much for me.  Tim and I both,
 spent many hours crying over the telephone to each other.  He was an
 extremely loving and kind man, and the plight of patients affected him
 deeply.*



  *The day that I received that envelope and card from you, I cried like a
 baby.  Can you ever imagine how wonderful it was to know that someone who
 didn't know me from Adam, actually cared?  It opened my eyes and helped me
 to realize that the singular most important thing I could ever do, would be
 to let others suffering from this *thing* know that that there was someone
 out there, who cared what happened to them.  *



  *It's still bittersweet for me, and every now and again, I start to feel
 overwhelmed and need to withdraw just a bit.  I know in my heart that I'll
 never give it up, and will continue to do the best that I can to reach out
 to patients, and to spread NMO awareness.  (The good and great Lord has
 blessed me with a very big mouth.  ;-)  *



  *Much love,  *



  *Gracie*



Re: [TMIC] About Lynne--Our ROSEOFRENO.

2009-07-26 Thread jrushton
 What a beautiful note, GracieJeanne
 
---Original Message---
 
From: Grace M.
Date: 7/26/2009 4:31:15 PM
To: roseofr...@aol.com
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] About Lynne--Our ROSEOFRENO.
 
Dearest Lynn,  
 
Thank you so much for your most kind words.  You know, several months before
you helped me, I had totally given up the advocacy effort, leaving it all in
the hands of our founder, Tim Mulvihill. (Deceased since March of 2008, and
now the angel on my shoulder.)  I was so ill back then, both in body and
soul, and the often sad stories of other patients and the deaths that the
group had experienced, were just too much for me.  Tim and I both, spent
many hours crying over the telephone to each other.  He was an extremely
loving and kind man, and the plight of patients affected him deeply.
 
The day that I received that envelope and card from you, I cried like a baby
  Can you ever imagine how wonderful it was to know that someone who didn't
know me from Adam, actually cared?  It opened my eyes and helped me to
realize that the singular most important thing I could ever do, would be to
let others suffering from this *thing* know that that there was someone out
there, who cared what happened to them.  
 
It's still bittersweet for me, and every now and again, I start to feel
overwhelmed and need to withdraw just a bit.  I know in my heart that I'll
never give it up, and will continue to do the best that I can to reach out
to patients, and to spread NMO awareness.  (The good and great Lord has
blessed me with a very big mouth.  ;-)  
 
Much love,  
 
Gracie
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