[CMLHope] Re: To Dane

2006-07-10 Thread Cheryl-Anne
Hey Dane, These are awesome pictures - the entire family looks great. Love and all good things, Cheryl-Anne --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because

[CMLHope] Re: CML Clinical Trials

2006-07-10 Thread Cheryl-Anne
I think if I needed to be in a clinical drug trial I would much rather go with the investigational new drug rather than the higher dose study. The data points to the fact that there really isn't much of a difference in benefit by reaching a 3 log reduction sooner and that even slow responders ove

[CMLHope] Re: To Dane

2006-07-10 Thread Dane
Thanks all for the encouraging words! I just hope that the good news holds for the next few tests! Regards and prayers. Dane --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received thi

[CMLHope] Re: Hi I'm New and have a couple of questions

2006-07-10 Thread Terry Dailey
Sorry to hear about Vanessa. I was diagnosed in April of 04 and put on 400mg of gleevec and have been in remission for almost two years now. My blood counts go up and down but now stay within safe guidelines. As has been mentioned Gleevec can cause some side effects, but some people have them worst

[CMLHope] Re: Hi I'm New and have a couple of questions

2006-07-10 Thread Renee
Looks like you have gotten losts of responses already. I started out on 400mg/daily or Gleevec. After 6 months, the dosage was up'd to 600mg/daily. My oncologist said that 600mg was the "optimal" dosage. I wish you and your wife great success with Gleevec. It does have a lot of side effects, b

[CMLHope] Re: Hi I'm New and have a couple of questions

2006-07-10 Thread caronpea
Steve, I don't have much more to add than what everyone else has said. I was diagnosed in June/06. I was put on Allopurinol for two weeks, and started 400 mg of Gleevec a few days after the Allopurinol. In the beginning I was a little more tired than usual, and experienced some heartburn which

[CMLHope] Re: Hi I'm New and have a couple of questions

2006-07-10 Thread Trey
Many of us who have CML do not have a normal blood count. Gleevec is an outside regulator that cannot duplicate the internal regulators perfectly, but it often gets close enough. You might call our blood count status "CML normal", because it is normal enough for a healthy life, but would look od

[CMLHope] Can someone help with the terminology?

2006-07-10 Thread Priesty
Hi wondered if anyone can help. I'm struggling with a few of teh acronyms and some of the terminology. What does PCRU refer to explicitly? I assume it relates to full remission but if someone could clarify , that would be great. In addition, having read a number of the topics I gather that the st

[CMLHope] Re: Can someone help with the terminology?

2006-07-10 Thread Cheryl-Anne
Hello Steve, Sorry your wife Vanessa has become a member of our club, but on the other hand there are quite a few new drugs out there to help us all. It was interesting that you mentioned that your wife was first put on Interferon, and then switched to Gleevec. The exciting thing is that IFN is