[CMLHope] Re: Weight Watchers have a good trip Greenie

In a message dated 6/21/2007 7:07:22 A.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Greenie and it sounds like a wonderful trip. Yes, my oldest son is 51 years old this year and where did all those years go? I still worry and love him just as I did when he was young, I read a pass

[CMLHope] Re: pain killers

Hi thanks Susan and Lori for the replies I don't really have bone pain I believe I may have torn my rotator cup my Dr has prescribed Ibuprofen 400mg and is sending me for an ultrasound.It seems to be helping .Boy I will confess since being dx with cancer every time I do get pain somewhere mi f

[CMLHope] My Genzyme Report

Well, after having the last one come in saying "none detected", this one four months later came in with a huge jump.."positive: Major Breakpoint 0.013%" I said a "huge" jump.my husband didn't think it was so bad, but I thought compared with past results, it was. This is how it's been s

[CMLHope] Re: My Genzyme Report

Oh Suzie I dont have any answer for you - just a hug. I know that no matter what anyone says, you will probably be a tad more concerned until the next one shows a downward trend again... Maybe its not such a big jump, but that does not stop everything jumping to the front of your mind in a big wa

[CMLHope] Re: My Genzyme Report

Suzie I do not think you need to worry. Some variation is common, particularly in people with very low PCR numbers. There are certain labs in the world that are supposedly so good they think they can predict a relapse if the test result only doubles on 2 consecutive tests. Most CML experts thin

[CMLHope] Re: My Genzyme Report

Hi, I have always had only a down trend with my PCR results, except of one time. I was concerned at that time, but my oncologist told me that a lot of times they see this up and down shifts in PCR's. However I understand your concern. It doesn't make any sense. One time it says that your test

[CMLHope] Need help with a decission

Just a little bit of my history with CML. I have been diagnosed in February 2005. I am on 600 mg of Gleevec. I have a water retention side effect and that's it... oh well also I am tired ... of course. I am almost forgetting about this side effect : ) Anyway, I have been a patient of prof.