[CMLHope] Re: Tasigna

Jeanie, Hi! I've been on Tasigna since July. I take 800 mg. (400 twice a day). I just got the results of my first FISH and PCR (done by peripheral blood) since starting Tasigna. I was totally UNDETECTABLE! Wasn't that great? I was taken off Gleevec because of fluid retention and acc

[CMLHope] Procrit

Hi everyone, Has been a long time since I've posted, but read frequently. Just a quick history...was diagnosed in 1997...have been on Gleevec since 1999...am currently on 800mg day since I can't remember..2002?? anyway..besides memory loss..:)...feel pretty good..no really bad side effects..just

[CMLHope] Re: Procrit

Here is the FDA warning: http://www.fda.gov/medwAtch/safety/2008/epo_DHCP_03102008.pdf Since Procrit and other anemia drugs are mainly used by people on chemotherapy, you and your doctor would need to discuss whether the risks cited by the FDA apply directly to your situation, and whether those

[CMLHope] Re: Procrit

Hi Jody, I was reading your e-mail and you said that your research nurse was Mary Beth. Is that the same Mary Beth Riley from Northwestern University Research Center in Chicago? I was in a trial their on STI571 with Novartis starting in Feb of 2000. Just wondering. I have to drive to

[CMLHope] Re: Procrit

Thanks, Trey for the link...my Onc and I did discuss, and although he said "no one was sure" about CML and procriteven my 23 yr old son said it was a no brainer..."mom, why would you even risk taking Procrit now with the warning..just learn to live/cope with the tiredness" I guess I can put u

[CMLHope] Re: Procrit

Hi Greenie, No, It's Mary Beth Rios out of MD Anderson in Houston. She's been right by my side since 1998 when I started with my first clinical trial of HHT/Ara-c...she has a daughter who lives in Chicago though..going to med school, I think! ;) I hate snow and cold too...my bones hurt WAY too

[CMLHope] Medical Articles 9/23

Medical Articles 9/23 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To

[CMLHope] Re:

I don't have any experience with rash caused by Gleevec but when I read this I immediately thought that you should notify your oncologist. Best of luck, -Kevin Williams Sprycel 140mg Diagnosed 6/2000 On Sep 22, 12:48 pm, "larry" <[EMAIL PROTECTED]> wrote: > Hello to all the warriors out there  

[CMLHope] Re: Hi Millie, my onc just put me on Tasigna; need your input

Hi Millie and thanks for the quick input. I'm so happy you are doing good on Tasigna. I am looking forward to feeling better also. I am trying now to get the drug through my insurance; has to have preapproval. The onc gave me a 7 day starter kit. Thanks again. I am taking it at 5 AM and 5 PM. I

[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE

Hi Jeanie,  I'm so sorry to hear this news and I will continue to pray for you and all of our CML friends.  I will be watching for your post as to the course of action your doctor takes.  Jim Rodeghier --- On Tue, 9/16/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[E