Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment

2010-07-06 Thread Skip Duffie
Hi: I feel fine in fact great, except for the infusions I need you would not know I had CML I am not sure about where I go from here I see the doc in Aug.  I am hoping it will be back on one of the drugs like imatinib, nilotinib or dasatinib.  I feel that the drug Xjade caused all my past prob

[CMLHope] New member

2010-07-06 Thread Severinsen
Hi all. I am a newly diagnosed CML patient. I am 30 years old, and live in Denmark. I will start my medication monday the 12th of july, it will be Tasigna. I will be participating in a test group, aiming at getting Tasigna approved as standard treatment i Denmark. Gleevec is the present standard

Re: [CMLHope] New member

2010-07-06 Thread TEDBDD
Severinsenwelcome to the "club". It was a shock to all of us I am sure when we were first diagnosed. The fortunate thing is that we have a type of Leukemia that is treatable with some amazing drugs. I, too started out on Tasigna first in an protocol study at MD Anderson Cancer center

Re: [CMLHope] New member

2010-07-06 Thread Martin Gartenberg
Hi Severinsen, Welcome to this group. Although I am not on any medications for CML I had to have a bone marrow transplant more then 21+ years ago. I make sure to keep up on the latest things that can help with the management of CML or any other types of Leukemia. Believe me Severinsen you can co

Re: [CMLHope] New member

2010-07-06 Thread Mustardny
Hi Severinsen, Sorry you have CML but I found that it is a disease that is very treatable & that this is a very good Group to be a part off. I was diagnosed with CML in June '05, started taking Gleevec right away & have been doing ok to this day. I found this group a little while aft

Re: [CMLHope] Re: Hi Greenie

2010-07-06 Thread Mustardny
Welcome Nadia, I think that your english is just fine. Frank In a message dated 7/5/2010 9:45:13 P.M. Eastern Daylight Time, nadia...@earthlink.net writes: Thank you so much to all of you. I read all yours mail every days, but never post because my poor English. You mak

Re: [CMLHope] New member

2010-07-06 Thread sylwia
Hi, Severinsen I'm so sorry you belong to this group because of you have CML :( But the bright side is you can find really nice and helpful people in here. I know it because from time to time I'm a lurking member of this group. I joined this group last year because I have wanted to know much more

RE: [CMLHope] Re: Hi Greenie

2010-07-06 Thread Nadiia Noles
Thanks' Frank, I hope I will improve if I post on the net. Take care Nadia From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of mustar...@aol.com Sent: Tuesday, July 06, 2010 2:30 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Hi Greenie Welcome Nadia, I thi

RE: [CMLHope] Re: Hi Greenie

2010-07-06 Thread Nadiia Noles
Thank you Pete for the mail. I look in Moffit the credential from Dr. Chervenick, and I think he is the right one. Again thank you Nadia From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Pete Pabon Sent: Monday, July 05, 2010 7:46 PM To: cmlhope@googlegroups.com Subjec