Re: [CMLHope] Re: Changing to Sprycel not Tasigna after all.

2010-08-24 Thread ICANDOALLTTC
Hi and good luck to you. I think one of the most important things about taking Tasigna is not having any food with it. For some reason it just quit working for me after 8 months. I am doing good on Sprycel but there is the risk of the pleural infusion on that also. So we are at risk no

Re: [CMLHope] Re: Millie if it ain't broke don't fix it

2010-08-24 Thread ICANDOALLTTC
Hi I am on 100 mgs of Sprycel daily; no joint pain at all. My onc says if it ain't broke don't fix it. If he is doing good PCR wise on Sprycel, I don't know why you would change. Is there a reason? Jeanie3 In a message dated 8/23/2010 5:05:44 P.M. Pacific Daylight Time, ho...@ptd.net

[CMLHope] Re: Millie if it ain't broke don't fix it

2010-08-24 Thread peg
Hi Karyn, I'm a mom of 20ish boys too, so I share your pain for your son. PCR is important but from my perspective so is quality of life. I acheived PCR very quickly on Gleevec, but for me the GI and muscle side effects were so painful and debilitating that I had no quality of life and am

RE: [CMLHope] Re: Millie if it ain't broke don't fix it

2010-08-24 Thread Tony Lanoue
I take fish oil everyday it has an anti-inflammatory effect _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of kary...@comcast.net Sent: August-24-10 12:12 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Millie if it ain't broke don't fix it Hi,

Re: [CMLHope] Re: Millie if it ain't broke don't fix it

2010-08-24 Thread Bkbarney
Dear Karyne, I too have CML and had horrible bone and joint pain on Gleevec as well as extreme fatigue and swelling...I could not work, could not function. On Tasigna, I traded in all those side effects for others, but much less debilitating...I can work full time, have no muscle or joint