Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread Myvety2k via CMLHope
Hi Jeanie, I'm sure that after a period of time the count will get better. I wish I had your creatine mine is always between 1.3 to 1.56. Hang in their things Will Work Out for you. I'll be thinking of you. greenie In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time,

Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread 'Icandoallttc' via CMLHope
Oh sorry Marty They are listed as C1535 k/ul Since he told me they were in the millions I assume this is millions. I hope the new med starts bringing them down. He lowered my allopurinol to 100 mgs daily. How are you? Prayers Blessings Jeanie 18's  On Jan 30, 2015, at 3:02 PM, Marty

Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread Marty Gartenberg
Hi Jeanie, That's right it is in the millions. Allopurinol is not what will bring this down it is Hydrea that will do that. Don't worry this will all work out. I remember whenever I took a blood test I used to sweat until I got the results and when I finally got the results back I just had to

Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread Marty Gartenberg
Hi Jeanie, Could you clarify something? Your platelets are ??? by chance did you leave out the period? Your Creation is very good, I wish that mine were that low. Mine was at the last count 9.8. That is why I am on dialysis. By the way, the rest of your counts are really not all that bad.

Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread 'Icandoallttc' via CMLHope
Thanks for the uplift Greenie. I've got to go back Monday to get it checked again. Yes I hanging in there and good luck to you too! Prayers Blessings Jeanie 18's  On Jan 30, 2015, at 1:22 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Hi Jeanie, I'm sure that after a

[CMLHope] Update Jeanie's blood counts

2015-01-30 Thread 'Icandoallttc' via CMLHope
Hi all, The following counts were all high on latest blood test: RDW 62.5 Platelet counts 1535 Basophils Auto 0.30 k/ul Immature Gran Auto 0.34 k/ul Potassium 5.6 Bun 25 mg/dl Creatine 1.1 Prayers Blessings Jeanie 18's  On Jan 30, 2015, at 8:00 AM, Icandoallttc icandoall...@aol.com wrote:

Re: [CMLHope] Update Jeanie's blood counts

2015-01-30 Thread 'Susan Zimmerman' via CMLHope
Dear Jeanie, Will surely be praying for you. Don't panic, and don't even be anxious! Worry accomplishes nothing except wasting time. I have not been on lately cuz of my own battles. We have God on our side, like Marty says! Loved that emoticon of him hugging you!!! Here's my only

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-30 Thread 'Icandoallttc' via CMLHope
Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib.I had blood work done yesterday. My WBC came down but the platelets keep going up. Still

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-30 Thread Myvety2k via CMLHope
Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the hole pill in makes me sleepy. 1/2 works better but that puts me into low gear. But it does take away the nausea. greenie In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time,

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-30 Thread 'Icandoallttc' via CMLHope
Kk Greenie. The doctor gave me Proclorperazine. It didn't help me that much but meclizine did. We all have to find what works for us. Good luck and hang in there. Prayers Blessings Jeanie 18's  On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote:

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-30 Thread Myvety2k via CMLHope
I all the good news was short termed, I woke up yesterday and the nausea came back so I'm thinking I may have picked up some bug. Grace she's O.K. time will tell. So far this morning I feel find but will see our the rest of the day goes. greenie In a message dated 1/29/2015 9:51:44