Re: [CMLHope] Cml and Shingles vaccine

2015-06-12 Thread Marty Gartenberg
Hi Kothal, Good question. I spoke with my doctor about this and since I have had two episodes of the Harpies Zoster virus (Shingles) he told me to go ahead and have the vaccine. However I am not or have ever been on any TKI's because they were not yet available 26 years ago when I had my bone marr

[CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread Peter
My hematologist said, there are no data or studies available about this subject, so nobody really knows. For this reason, no doctor will recommend it. Zostavax contains a live virus; if your immune system is not up to snuff, you could well end up getting shingles from the vaccine. He said, it is

Re: [CMLHope] Cml and Shingles vaccine

2015-06-12 Thread ANGELYN ESDERS
My doctor did not recommend the vaccination to me. I woke up one morning last year with blisters on my shoulder. Recognizing what it was, I was at the hospital within half an hour and received immediate medication. The patch of shingles stayed at about 2" by 3", and healed quickly.  The real pro

Re: [CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread 'Icandoallttc' via CMLHope
I chose not too however I do take a flu shot yearly. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 12, 2015, at 8:21 AM, Peter wrote: > > My hematologist said, there are no data or stud

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 1 topic

2015-06-12 Thread John Barrons
Hi I do not know whether gleevec or the other drugs got rid of 355g. I don't whether I still have it or not. The reason I went on ponatinib was that the other drugs were not working any more. John B Sent from my iPad > On Jun 11, 2015, at 6:19 AM, cmlhope@googlegroups.com wrote: > > > cmlhope

Re: [CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread Marty Gartenberg
Angie who knows what to say about this? Some doctors say no while others say yes. Since I already got the shingles way before my kidney transplant and way after my bone marrow transplant it was fine then. But now after my kidney transplant and that I am on a lot of immune suppressive drugs, frankly

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 6 updates in 1 topic

2015-06-12 Thread 'Icandoallttc' via CMLHope
Same reason I went on ponatinib. It's working so far 6 months into treatment. My platelets and WBC were in the millions when I started it. Good luck John. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib Jan

Re: [CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread 'Icandoallttc' via CMLHope
So right Marty. Never had them but did have chicken pox. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 12, 2015, at 11:31 AM, Marty Gartenberg wrote: > > Angie who knows what to say a

Re: [CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread Marty Gartenberg
So right Marty. Never had them but did have chicken pox. If you already had the chicken pox then the virus is already in you. Just be sure if you see a small rash just starting then contact your doctor. If you do start to get the shingles then there is a cream called silver sulfur dyne. Ask your d

[CMLHope] Re: Cml and Shingles vaccine

2015-06-12 Thread Joan
I was in a trial for a while to test if a shingle vaccine could be made without the live virus. The results have not been released yet. I was diagnosed with CML in 2003. Joan On Friday, June 12, 2015 at 12:59:23 AM UTC-5, Poongothai Ramasamy wrote: > > > > > > > *Hi friends! Just want to know

[CMLHope]

2015-06-12 Thread Poongothai R
Thanks Marty for the information you have shared. Kothai. Pls share anyone in the group has had Shingles vaccine -- -- [CMLHope] A support group of http://cmlhope.com - You received this message becau