Re: [CMLHope] Info update

2016-02-12 Thread Marty Gartenberg
Hi John, What are your WBC now? I know a man who lives in Canada a very long time ago actually more then 35 years ago and he never took any TKI's but he did take something and it did "burn out his Leukemia" but unfortunately he has to have blood transfusions I think every two weeks. He is the long

Re: [CMLHope] Info update

2016-02-12 Thread John Barrons
Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next have a cbc a week this Tuesday. John Sent from my iPad > On Feb 12, 2016, at 6:59 AM, Marty Gartenberg wrote: > > Hi John, > > What are your WBC now? I know a man who lives in Canada a very long time ago > actually more

Re: [CMLHope] Info update

2016-02-12 Thread Marty Gartenberg
Ok, let's see what happens at your next blood test. I just had one this morning and sorry to say my WBC was only 1.87 so that puts me having a problem with immunity but I know that it is coming from the CMV virus that I am having so I have to be very careful until the reduced medication starts to w

Re: [CMLHope] Info update

2016-02-12 Thread 'Susan Zimmerman' via CMLHope
Dear Marty, So sorry to hear about the mouth sores and low wbc. UGH!!! We are all rooting for you to beat this problem with immunity ASAP. You are not complaining, just stating a reason for us to pray for you! If we don't know about it we can't zero in on it in intercessory prayer. You've

Re: [CMLHope] Info update

2016-02-12 Thread 'Icandoallttc' via CMLHope
I hope every thing will be good John. Did they treat your CML while you were in the hospital? Did they increase your ponatinib to get the counts down? Do they do PCR test on your blood? I got a bill from Moffitt and it was over $2000. I found out it is the PCR test that's so expensive. They ne

Re: [CMLHope] Info update

2016-02-12 Thread Marty Gartenberg
Susan, Susan what am I to do with you? you are so sweet and for this. I have no doubt that everything will turn out well for you and your family just as is has been doing for me, Shelly and our children. I'm sure that you can imagine everything that I have been through and also so have you. I also

Re: [CMLHope] Info update

2016-02-12 Thread bkbarney via CMLHope
Dear Marty and Susan, Just a note to thank you for your posts, and for keeping us informed so we can stay connected, and keep you both in our hearts and prayers. You both have been through so muchyet your attitudes and spirits really are remarkableI think your faiths seem to play a