Re: [CMLHope] Does anyone remember Zavie and Ida Miller or Lottie?

2016-03-02 Thread ANGELYN ESDERS
I remember dear Zavie! We were going to Ottawa once and I asked him if he would join us for lunch. He was a guide at the art gallery in Ottawa and took us through. He was  such a nice fellow. He was the first one I contacted when I went into remission. I am not sure, but I think I was #68 or 69

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread bkbarney via CMLHope
Hi Sherri! Glad to hear from you. I hope they get to the bottom of the swelling for you...Lymphedema clinic might be a good idea...they can even teach you some home massage things to do to try and reduce the swelling..but finding the source first seems like the best idea..hang in there...I

Re: [CMLHope] Re: Hey, what happened to everyone?

2016-03-02 Thread bkbarney via CMLHope
Norm, it is so nice to hear from you and get caught up! I am so glad to hear that you are still holding your own with ...Tasigna..that is great news Elevel years So sorry about the death of your cousin. sounds so hard and sad... and that your Hans is sick...that is a heart breaker as

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread 'Icandoallttc' via CMLHope
Hi Beth and thanks for asking. The side pain is ongoing and they can't find out what is causing it. I had a chest X-ray but it revealed all is good. I feel it's to do with gallbladder surgery I had years ago. Back is on the mend so I'm fighting on. Blessing and love My Motto: Faith and

Re: [CMLHope] Re: Hey, what happened to everyone?

2016-03-02 Thread 'Icandoallttc' via CMLHope
Hi Richard. So glad to hear you are well. Warm in fl but we had a few cold days. Fruit trees are full of blooms and I think the danger of frost is over. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Re: Hey, what happened to everyone?

2016-03-02 Thread 'Icandoallttc' via CMLHope
So sorry about your faithful friend. I pray he has a peaceful end. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 1,

Re: [CMLHope] Re: Hey, what happened to everyone?

2016-03-02 Thread 'Icandoallttc' via CMLHope
Hi Norm and so happy to hear from you. I miss our Tasigna group. I lost my remission last year and am now on Ponatinib. It has my blood doing good with few side effect. That foot problem can hurt!!! Rub a lot of castor oil on it and soak in Epsom salts. I had the heel probably a few

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread 'Icandoallttc' via CMLHope
Hi all. My sisters legs and feet swell really bad. She takes 2 diuretics. She has never been on any tkis. She recently chose to have leg vein ablation. She says this has really helped. Maybe you could look into it. She had to have a heart pacer put in also. Good luck. My Motto: Faith

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread Marty Gartenberg
Hi Sherri, That's very strange that none of those diuretics haven't worked, who knows maybe your a "late bloomer" so how long were you on them? And are you elevating your legs when you sleep? How about your salt intake? I also drink some seltzer water during the day and it seems to help me. No

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread Marty Gartenberg
Hi Judy, If your waiting to get your password by getting an email from someone it won't help. However you can get your password by going into "forget your password" and put in your user name. It will let you know that you will be able to get a new password of your choosing. Been there done that

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 11 updates in 1 topic

2016-03-02 Thread 'Dr. Francis Farrell' via CMLHope
?Peripheral Neuropathy. Any indication of Diabetes? Sent from my iPad > On Mar 2, 2016, at 4:30 AM, cmlhope@googlegroups.com wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > Hey, what happened to everyone? - 11 Updates > Hey, what

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread sherri swanson
Hi Angie, Thanks for the good wishes. I haven't heard of anyone with the edema issues I have that are on Gleevec. I am on a rather high dose at 600mg, and have been since I started. In my case the doctors blame Gleevec for everything. I had a toe nail that was falling off from fungus and he told

Re: [CMLHope] Hey, what happened to everyone?

2016-03-02 Thread sherri swanson
Hi Marty, My doctor put me on Furosemide 20mg & potassium as I have low potassium to begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg and still nothing. He switched me to a different drug Spironalactone, generic for Aldactone and still no trips to the bathroom and the