Norm, it is so nice to hear from you and get caught up! I am so glad to hear that you are still holding your own with ...Tasigna..that is great news Elevel years!!!! So sorry about the death of your cousin. sounds so hard and sad... and that your Hans is sick...that is a heart breaker as well....glad he is being spoiled rotten by his parents Happy you got to go cruising!!! Sounds wonderful...do keep in touch with us here!!!
I miss Millie and Zavie too... Take good care, love and care, 18's Beth. -----Original Message----- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Mar 2, 2016 10:30 am Subject: Re: [CMLHope] Re: Hey, what happened to everyone? Hi Norm and so happy to hear from you. I miss our Tasigna group. I lost my remission last year and am now on Ponatinib. It has my blood doing good with few side effect. That foot problem can hurt!!! Rub a lot of castor oil on it and soak in Epsom salts. I had the heel probably a few years ago and it lasted for 2 years. Put a castor oil pack on at night. I haven't been able to cruise lately and miss it. We are planning a Christmas cruise if my health holds up. Do you hear from our Tasigna group?? Sounds like you are doing great!!! I'm glad your eyes are better. Stay in touch and yes, I sure miss Millie!!!! Love My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 1, 2016, at 8:16 AM, Norm <norm5...@hotmail.com> wrote: I am still alive and kicking but one of my kickers is giving me fits. I think it is plantar fasciitis. I haven't posted in awhile and miss Millie may she rest in peace. Jeanie is my cruise mentor and my wife and I along with a few other friends just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, and Cozumel. We were busy with one of my cousin staying here quite often while he was being treated for stage 4 Melanoma, he passed and is walking with Jesus now. Way too young and such a very good person. My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were given the devastating news that he has lymphoma. I never knew it would be so difficult to have to deal with the knowledge that one day, much sooner than expected, I would have to ease his way to a comfortable ending. I dread this as he was my buddy and comfort while I was recovering from my relapse of CML. He is being spoiled even more than ever now and will be until that time comes. Millie would understand. April 1st will mark 13 years since my diagnosis and the start of Gleevec. As some know, I relapsed and Gleevec no longer worked. I was fortunate enough to get in the clinical trial for AMN107 during the phase 1 study. As you can tell, it worked but not before I entered blast and was one very sick puppy. I believe that one night the angel of death came for me and for some reason let me stay. All I know is Dr Kantarjian tells me to thank God and I do. My son has finished his tour of duty with the USMC and has been discharged as a Sargent with the Achievement medal. We are extremely proud of our son, and our daughter who is still teaching photography to high schoolers. I have been training my replacements at work so I can eventually retire. I am ready but they are not.....lol.. My macular degeneration is stable and I have not had any shots in my eye for almost 6 months. Still legally blind and that will not change during my lifetime I suppose. I have been playing a lot of golf with my younger brother and we are having a great time together. He is a good brother that will come and pick me up and take me golfing even if it means spending the whole day with me. Life is good. This past December marked 11 years that I have been on Tasigna. I have never been undetectable but it is generally only a few cells in 10 thousand. I will try to check in more often but life has been keeping me so busy. Blessings to all Norm On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: Why the silence? I miss everyone. 18's, Marty -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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