Re: [CMLHope] Prayers are offered.

2016-05-03 Thread Marty Gartenberg
Oh yes Beth, How well I remember those days of early CML. A lot of changes for sure. Believe me there were a lot of very bad days but also some good days, but at least they were all days and GOD put upon me to survive this. Beth, as well as everyone is concerned, each and every one of you are

Re: [CMLHope] Prayers are offered.

2016-05-03 Thread bkbarney via CMLHope
CPK doubled in the last two months to 700. Monoclonal protein they had been tracking for the last two years is up...BCR abl will hopefully be a good result... Then we plan from there... Marty, I just went to the national Bone Marrow Transplant Survivors conference this weekend...I went as the

Re: [CMLHope] Prayers are offered.

2016-05-03 Thread 'Icandoallttc' via CMLHope
What are the changes in your blood work if u don't mind sharing Beth?I have several things out of range but just slightly. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib

Re: [CMLHope] Prayers are offered.

2016-05-03 Thread 'Icandoallttc' via CMLHope
Yes Beth I miss your uplifting posts. I know we are all fighting and it gets to be hard, but sharing does help. I am doing good on Ponatinib with few side effects but the side pain I with me all the time. And yes Beth waiting to get our blood results can be scary. It always surprises me