[CMLHope] To Marty advise

2016-05-30 Thread 'Jeanie' via CMLHope
I was wondering if you could give her some advice. She is set up for a BMT but can't decide. Thanks Sent from my iPhoneI love to see people get on this page and talk about living with CML rather than dying from CML... I believe if you truly want to see the face of cancer walk into a transplan

Re: [CMLHope] To Marty advise

2016-05-30 Thread Marty Gartenberg
Hi Jeanie, There is a lot to answer, so I will write in between her lines in CAPS so I don't want to miss anything that I want to say. It may also be a good idea if you put her (I don't even know) her name or maybe some of the things I would like to ask her. I believe that you must have my email a

Re: [CMLHope] To Marty advise

2016-05-30 Thread 'Jeanie' via CMLHope
Thank you so much. I will try and find out her name and I invited her to join our group. That is some good advice and she seems young enough to go through the BMT. I'll copy and paste it to her Thanks again. Love you so very much Sent from my iPhone > On May 30, 2016, at 12:09 PM, Marty Gar

Re: [CMLHope] Pictures

2016-05-30 Thread 'Jeanie' via CMLHope
Thank you so very much Marty. If I knew then what I knew today I think I would have Had the transplant. My onc at that time thought I Was too old. However I'm still alive and kicking After 4 tkis. I am sick; I can't seem to kick this flu. Just resting after my vacation. I sure had a good

Re: [CMLHope] Pictures

2016-05-30 Thread Marty Gartenberg
Yes Jeanie, we are still all kicking! Jeanie what happened in the past according to your oncologist about you being to old should remain in the past and I will tell you why. I also want you to think about something called BASHERT, which I have already mentioned many times. It's meaning is it was m

Re: [CMLHope] Pictures

2016-05-30 Thread kathy walls
I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna in December because of horrible side effects, I got an awful rash and cysts. Switched to Gleevev and I feel much better, but did dr said at this le

Re: [CMLHope] Pictures

2016-05-30 Thread Marty Gartenberg
Hi Kate, First of all if you have CML then you have the Philadelphia Chromosome. What bothers me is if the oncologist told you about you never reaching remission, then what level was he talking about? Have you taken any PCR tests yet? And if you did then what were the results? But since you are a

Re: [CMLHope] Pictures

2016-05-30 Thread Marty Gartenberg
On Mon, May 30, 2016 at 9:27 PM, kathy walls wrote: > I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh > yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna > in December because of horrible side effects, I got an awful rash and > cysts. Switched to