Re: [CMLHope] New Canary hatchings

2018-06-06 Thread Pete Pabon
Get Outlook for iOS From: 'Jeanie' via CMLHope Sent: Wednesday, June 6, 2018 4:45:57 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] New Canary hatchings Hi all Actually my mother was called Jean but I never have been. Don’t know

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Pete Pabon
Every two months From: 'Jeanie' via CMLHope Sent: Sunday, September 3, 2017 8:07 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] 3 months off Gleevec How often are u getting tested. Thanks. My Motto: Faith and Pills With Love

[CMLHope] Clinical trials

2016-08-06 Thread Pete Pabon
Just curious to know if anyone is involved with clinical trials concerning stoping Gleevec. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To

RE: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-15 Thread Pete Pabon
Diagnosed 1999Gleevec 200015 years still no phillies found Date: Fri, 15 Jan 2016 10:18:43 -0500 Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... From: wa2...@gmail.com To: cmlhope@googlegroups.com Well now I got a much refreshing title. Being that everyone is a leader of this

RE: [CMLHope] Platelets

2015-06-14 Thread Pete Pabon
Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems

RE: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-15 Thread Pete Pabon
jeanie, Who is your doctor at Moffitt Date: Wed, 14 Jan 2015 21:32:26 -0800 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com CC: icandoall...@aol.com Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? I am my own advocate, I do have two ONCs. One is at a new

RE: [CMLHope] Shingles Vaccine Zostavax

2014-12-10 Thread Pete Pabon
What is your Drs. name To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Shingles Vaccine Zostavax From: cmlhope@googlegroups.com Date: Wed, 10 Dec 2014 11:49:58 -0500 Hi Peter, Just last visit with my onc specialist named Jessica Altman who is on staff a Northwestern Univ. of Chicago,

RE: [CMLHope] Re: Millie

2014-07-03 Thread Pete Pabon
Chris my deepest condolences.Sleep Mighty Warrior From: ho...@ptd.net To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Millie Date: Thu, 3 Jul 2014 22:09:58 -0400 Hospice just called. Mom has passed. Chris -- -- [CMLHope] A support group of http://cmlhope.com

RE: [CMLHope] PCRU

2012-12-21 Thread Pete Pabon
Congratulations 13 yr SurvivorMerry Christmas and a Happy New Year to you. To: CMLHope@googlegroups.com Subject: [CMLHope] PCRU From: margoo...@aol.com Date: Fri, 21 Dec 2012 13:05:42 -0500 Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and

RE: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections

2012-09-06 Thread Pete Pabon
yes Date: Thu, 6 Sep 2012 09:59:26 -0600 Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections From: ballroom...@gmail.com To: cmlhope@googlegroups.com Just curious; Does ANYONE see my messages? regardless of the content I never see a reply.I know that a lot of you seem

RE: [CMLHope] Side effects

2012-03-11 Thread Pete Pabon
I have been on Gleevec for 10 yrs and once in a while I start feeling Nausea. It comes and goes. From: myvet...@aol.com Date: Sun, 11 Mar 2012 11:56:04 -0400 Subject: [CMLHope] Side effects To: cmlhope@googlegroups.com Hi group, Question, for the last few days I have been getting

RE: [CMLHope] Gleevac

2011-01-26 Thread Pete Pabon
Has anyone had a problem with High protein in the Urine? From: myvet...@aol.com Date: Wed, 26 Jan 2011 12:42:54 -0500 Subject: Re: [CMLHope] Gleevac To: cmlhope@googlegroups.com Hi group, I have a question. Has anyone had a problem about getting to much sun. Over heated while

RE: [CMLHope] Re: Price of Gleevec keeps going up

2011-01-09 Thread Pete Pabon
Always good to hear from a long time survivor. I'll be going on 11 yrs. God Bless If half a century of living has taught me anything at all, it has taught me that nothing can bring you peace but yourself. Good evening all, hope everyone had a wonderful new years. I am 33 year survivor

RE: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment

2010-07-02 Thread Pete Pabon
Here we go again!!! Date: Fri, 2 Jul 2010 07:15:08 -0700 Subject: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment From: dsh...@midwaynet.net To: cmlhope@googlegroups.com You really crack me up that you posted this for

RE: [CMLHope] Re: Neighbors--Marcie Helene

2010-04-09 Thread Pete Pabon
Just a hint to the wise NEVER put your personal phone #'s on a E-mail. From: seloe...@cox.net To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Neighbors--Marcie Helene Date: Fri, 9 Apr 2010 18:19:48 -0400 Ditto! My home phone number is 703-573-4029. You can reach me

RE: [CMLHope] Anyone gone off medication after remission?

2010-02-12 Thread Pete Pabon
I have also discussed coming off Gleevec. I have been in remission 8 yrs but my doctor felt I should stay on. Date: Fri, 12 Feb 2010 07:03:00 -0800 Subject: [CMLHope] Anyone gone off medication after remission? From: ansaris...@gmail.com To: cmlhope@googlegroups.com Hi All, I

RE: [CMLHope] An Update about the Recent CT Scan

2010-02-09 Thread Pete Pabon
I have had the same pain in the left side for years. It comes and goes. I have had Ct scan xrays all kinds of test and they keep telling me they can't find anything. Good Luck Date: Tue, 9 Feb 2010 11:33:17 -0800 Subject: [CMLHope] An Update about the Recent CT Scan From:

[CMLHope] Moffitt

2010-01-07 Thread Pete Pabon
I am also a patient at Moffitt. My Dr. is Dr Paul Chervenick Date: Thu, 7 Jan 2010 09:19:09 -0500 Subject: Re: [CMLHope] Sprycel and Tylenol From: tina...@gmail.com To: cmlhope@googlegroups.com Jeanie, I am also a patient at Moffitt Cancer Center. It sure is a small world. =). I

RE: [CMLHope] Skip Duffie

2009-11-24 Thread Pete Pabon
My prayers are with Skip. Date: Tue, 24 Nov 2009 18:49:19 -0800 From: maggy...@bellsouth.net Subject: Re: [CMLHope] Skip Duffie To: cmlhope@googlegroups.com Sending a prayer out to Skip ! --- On Sat, 11/21/09, Zavie Miller zmil...@sympatico.ca wrote: From: Zavie Miller

[CMLHope] Re: Kelly

2009-10-18 Thread Pete Pabon
Dear ICANDOALLTTC, PRAISE THE LORD From: icandoall...@aol.com Date: Sun, 18 Oct 2009 18:31:30 -0400 Subject: [CMLHope] Re: Kelly To: cmlhope@googlegroups.com Jesus is real, and for us who believe in Him have the right to talk about Him and sing His praises all day long

[CMLHope] Re: Gleevec

2009-01-20 Thread Pete Pabon
I have been on Gleevec going on 8 yrs. I have experience all of the side effects and thru this group I have learned to deal with most side effects. 80% of my info has come from this group. Recently I had problems with Gastritis and my Dr. Whom was married to A leukemia specialist recommended

[CMLHope] Re: Low Platelets

2008-08-29 Thread Pete Pabon
Just like to add. I've been on Gleevec 8 yrs. and they have always been low. From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [CMLHope] Re: Low PlateletsDate: Fri, 29 Aug 2008 14:11:44 -0400 My platelets have always been low. 100-112 My Onc. in Moffitt tells me not to worry but I do.

[CMLHope] Re: UDDER CREAM

2008-08-09 Thread Pete Pabon
I found the udder cream at walmarts. It works really well. Date: Sat, 9 Aug 2008 03:07:40 -0700From: [EMAIL PROTECTED]: [CMLHope] UDDER CREAMTo: CMLHope@googlegroups.com Hey Sister Brother Survivors. . . FYI~~my 2 cents only During my adjustment to Gleevec, after trying 5 anti-nausea

[CMLHope] Re: Cialis

2008-08-05 Thread Pete Pabon
. Suzzie--- On Mon, 8/4/08, Pete Pabon [EMAIL PROTECTED] wrote: From: Pete Pabon [EMAIL PROTECTED]Subject: [CMLHope] Re: CialisTo: [EMAIL PROTECTED]: Monday, August 4, 2008, 12:33 PM After 8 yrs of gleevec I still have

[CMLHope] Re: chapped lips pills in the morning

2008-08-05 Thread Pete Pabon
I find that the bigger to breakfast the better I deal with the Gleevec. I eat ham eggs with homefries. I have tried cereal but it dosen't help. I also have tried everytning for my lips but nothing seems to work. I'm happy to see these feedbacks on side effects. It helps to know your not

[CMLHope] Re: Cialis

2008-08-04 Thread Pete Pabon
After 8 yrs of gleevec I still have Nausea. My oncol. tells me its not the Gleevec but I tend to differ. From: [EMAIL PROTECTED]: Mon, 4 Aug 2008 11:18:17 -0400Subject: [CMLHope] Re: CialisTo: CMLHope@googlegroups.com Hi Gang, Woke up around 7 a.m. Saturday and within 5 minutes I

[CMLHope] Re: Cold Extremities

2007-11-01 Thread Pete Pabon
I also suffered from the cold. I started taking B-12 shots every month and the cold feeling has gone away. From: [EMAIL PROTECTED] To: CMLHope@googlegroups.com Subject: [CMLHope] Cold Extremities Date: Wed, 31 Oct 2007 19:57:56 -0700 Hi, everyone. My husband has CML, and has been on

[CMLHope] Re: Hello to All

2007-09-30 Thread Pete Pabon
Hi Sue, I am 60 yrs old and was Diag in 1999. I have been in remission for yrs. My DR claims there hasn't been any signs of Phillies for years. I read your message and truer words have never been spoken. I feel exactly as U do. Thanks for making my day. From: [EMAIL PROTECTED] To:

[CMLHope] Re: Anyone Have Acid Reflux

2007-08-05 Thread Pete pabon
I have been suffering from this for the last 4 months.I've had a colonoscopy and esophagogastroduodenoscopy. My doctors verdict was Gastrtis. I feel it is the Gleevec. By the way, I just celebrated my 8 yrs of Cml. I just had my latest BMB and still no Phillies. My cml doctor says that I have not

[CMLHope] Re: (Nausea)

2006-10-23 Thread Pete pabon
Dave, thanks for the input I was beginning to think I was the only one feeling these changes. Everyone has beauty but not everyone sees it. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com

[CMLHope] Re: (Nausea)

2006-10-23 Thread Pete pabon
Grennie,mine started every morning then went away and now I feel it every once in awhile Everyone has beauty but not everyone sees it. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com -

[CMLHope] Re: (Nausea)

2006-10-20 Thread Pete pabon
I usually get it in the morning. Sometimes it goes away right away and other times I feel it all day. I'm beginning to realize that if I eat a lot the day before it's not so bad. I have been waiting for my next appointment with my Onc. to ask him to give me medication for the nausea.Diag 7/99