This was sent to me, and I thought it was worth sending it on to all of you.
--- On Fri, 1/8/10, Lottie Duthu lota...@comcast.net wrote:
From: Lottie Duthu lota...@comcast.net
Subject: Fw: Disgraceful disgusting
To: Undisclosed recipient lota...@comcast.net
Date: Friday, January 8, 2010,
Hey Greenie: I have not been on CML Hope for awhile, and have not spoken to
you in quite awhile. I am going to get to my daughters house to play WWii
Bowling too LOL. Hope your doing well. I knew you were moving around a bit
this past year. I will try to get on more often. I am doing good
it
the next few days. I would rather B in MO the weather here sucks. We are 2.1
miles south of Lake Michigan. If I head north from my door. Greenie
-Original Message-
Date: Monday, December 14, 2009 7:24:33 pm
To: cmlhope@googlegroups.com
From: Susan Armour suzzienovem...@yahoo.com
Subject: RE
Hi Joan: You said avoiding citrus helps. You do know that we should not eat
grapefruit. Thats the one fruit that interferes with Gleevec. I have been on
Gleevec since 2000, and in the beginning I found that if I did not eat a good
meal before taking the Gleevec that I would get the nausea.
CONGRATULATIONS SANDY:
It is a wonderful feeling to get that news. We go through so much anxiety
in the beginning of our diagnosis, but we are blessed when we make these
achievements.
I Thank God Everyday for my remission also. Stay Well
Suzzie
--- On Tue, 11/3/09, Sandra Wells
Thanks Millie: I have to look up my paperwork as to when I got the last
Pneumonia Shot. I am thinking its 5 years for me now this year. I am trying
to see where I am going to go for the flu shot. Last year, my doctors office
was too busy too give out flu shots. I ended up at K-Mart. Can
Hi Patrick: Thank You for your response. I guess time will tell what we
should do, after they find out what they should do and make final decisions.
Everything is such a mess, and I am just going to keep things the way they are
for now.
Hi Gay: From all you have said is why I posted as I did, because that has been
the topic on everyone's minds. Its a big decision, and basically I heard the
same thing as far as doctors not wanting to be under the control of the
Government. I am not pleased with a lot of the things that have
Hi Julie: That was a real inspiration to all CML Patients. My prayers go out
for Rachel that she will continue to do well. I always say that Positive
Thinking And Faith Can Move Mountains. God Bless You Both.
Suzzie
--- On Fri, 6/12/09, Julie Workman jworkma...@hotmail.com wrote:
From:
Hi Greenie: You sound so happy, and things are going in your direction all
around. Thats great.
Suzzie
--- On Fri, 3/6/09, myvet...@aol.com myvet...@aol.com wrote:
From: myvet...@aol.com myvet...@aol.com
Subject: [CMLHope] Re: Grace and Greenie good news
To: CMLHope@googlegroups.com
Date:
Hi: Everyone has a different insurance, and different co-pays. This sounds
absolutely ridiculous. When my husband left work we took Cobra. Its cost us
$892.00 a month for the two of us, but our insurance coverage and prescription
coverage all stayed intact. Other than the price we were
Hi Greenie: That is fantastic news. I believe in miracles. Do You? Lets
just give all the glory and thanks to God for the good news. God Bless You Both
Love,
Suzzie
--- On Thu, 3/5/09, myvet...@aol.com myvet...@aol.com wrote:
From: myvet...@aol.com myvet...@aol.com
Subject: [CMLHope] Re:
Hi Greenie: I will keep Grace in my prayers, and you also. Lets pray the
surgery does the job to get all the cancer. Everyone is wishing you both the
best. Please keep us updated.
God
Bless You
Hi Daniel: I guess a lot of us have or have used antidepressants. I have been
on Zoloft for quite a few years now. I have no side effects. They tryed me on
Effexor, Paxil, but I had a bad reaction to them. I do not tolerate most meds
that well, so do not go by me. Someone told me Zoloft
Hi Greenie: I went into the study in Oct. of 2000. I was also told that if I
ever needed my Gleevec, and did not have insurance they would give it to me
free. When my husband was out of work for almost a year, they did give it to
me at no cost. I know where your coming from. You said you
God Bless You Jeanie. So glad your doing so well. I will pray that you
continue to stay on this path with Tasigna. Suzzie
--- On Wed, 1/14/09, icandoall...@aol.com icandoall...@aol.com wrote:
From: icandoall...@aol.com icandoall...@aol.com
Subject: [CMLHope] 111 days on Tasigna
To:
Hi Kelly: Take one thing at a time. Your husband should get unemployment, and
sometimes its almost near what you got as a pay. With all your problems, you
should apply for permanent disability if your long term runs out. I know your
job covers you for a little while on the temporary
Hi: Thanks for your reply. I have been on 400mg. of Gleevec since Oct. of
2000, and have been very fortunate with side effects etc. My husband and I
both thought it was odd also that we both had one. His is all cleared up, and
mine is looking better. My husband said that mine was much
Hi: Check out Vermont Country Store online, and type in powder. They list the
Monkey Butt Powder. I see it in their catalog all the time. Wondered if
anyone really used it.
I think they sell it for around $7.00.
--- On Fri, 12/5/08, JudyPrusky, Calgary [EMAIL PROTECTED] wrote:
From:
Hi: I just read everyones comments on leg cramps. I have been on Gleevec for
8 years, and I still get the foot and hand cramps. I have to jump up and walk
it out, or keep shaking my hands till they uncramp. I was in a store, and
trying to write out a check. My hands just cramped up and all
Thanks Greenie: That is a bummer to have to get out of the car to walk it
off. Never did learn how to drive a car with a clutch. Probably a good thing
LOL
--- On Sun, 11/23/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: [CMLHope] Re: Cramps
Hi: Welcome to our group. You will get to know all of us, and you can share anything at anytime with us. Somebody will always answer your questions, give you support, or whatever you need.
Suzzie--- On Tue, 10/28/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL
Hi: I just saw the post. I have been on Gleevec for 8 years, and I also had
poker straight hair my whole life. Now I have curly hair, but its real tight
and curly on the right side of my head, and only slightly on the left. My
hairdresser just laughs to see it like this after all these
I was not shocked by the article regarding liver failure with Gleevec. Prior
to them letting me start the Gleevec in the clinical trial, I had to sign an
affadavit saying that I was warned about Gleevec with Tylenol. They had deaths
due to people taking the two together before they realized
Hi Jeanie: You brought up a very good point regarding mistakes made at the
lab. I have seen it happen a lot with people. I used to get my blood taken at
my Oncologist's office. They just stopped doing it this year. Everyone goes
to the hospital or to Quest. My insurance will not let me go
Hi Jeanie: Allopurinol is used to treat gout. Never heard of it being used
with Gleevec, but I know it can do something to your blood cells possibly. I
do not know if anyone else heard of using it for any other reasons than Gout.
Did you have the gout at that point when it was given to you,
Hey Greenie: You are great inspiration for me, and everyone keeps the next one
going.
Have a great day.
Suzzie
--- On Fri, 8/29/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: [CMLHope] Re: Low Platelets
To: CMLHope@googlegroups.com
Date:
Hi Jeanie: I see everyone talking about different hospitals etc. I live in
N.J.,and I have been to a few hospitals in NJ well they were deciding if I
could get a BMT. Now thats back in 99.I really did not want one for fear of
GVHD, and my doctors said NO because I had no match, and it just
Hi Frank: Thank You for your prayers, and I will keep you in mine also. I
lived in South River, therefore, I know exactly where Kendall Park is. We
moved to South Jersey after we got married. The homes were cheaper down here.
Keep in Touch and Take Care.
--- On Sun, 8/31/08, [EMAIL
Hi Rosemary: My doctor never suggested Procrit, and I know someone who was
taken off the Procrit with her CML because of possible tumors. You know you
just do not know what to believe or what to do half the time. I have had a low
HGB, HCT, RBC, all these years, and my oncologist said he was
Hi Greenie: I love to see your posts. God Bless You for all the things your
fighting. My count is down to 109. It was up in the 200's all this time. I
am waiting for my oncologist to send me some kind of slips for tests he wants
me to do. I could have gone to his office by now to pick
Hi Skip: Thank You for giving me a little peace of mind. My worry was that
they would stop my medication, and I am afraid of the cancer cells multiplying
well I am off the Gleevec. How long have you had Leukemia? I went 7 years
without low platelets, and thats why I am concerned. Any
Hi Gail: If your doctor says that you need the Procrit for possibly low
platelets, or anemia then you might have to put in an appeal with your
insurance company. I am so fed up with the insurances. The oncologist who has
been taking care of me since day 1, now does not take my insurance. I
Hi Jeanie: We need to pray for each other. I am having a bad day too. My
Platelet count is dropping steadily month bymonth. My Oncologist never
picked-up on this, and I had to send him a Fax to show him the pattern. Now he
wants me to get more testing. I need someone who has had this
Hi Greenie: Its Suzzie. Does not seem like anyone is on here this morning,
but how are you doing? Have the dizzy spells subsided for you? Do you know
when you will go back on your Gleevec? If your still dizzy, then maybe the
Wellbutrin is just not for you. Did you start taking it for the
Hi Jeanie: When you got your results they should have told you what they
thought. My nurse calls me and goes over everything with me each time, but
anyhow I think only the doctor can really tell you. Blood values jump around
differently with everyone. My WBC has been 3, and my RBC has been
YES JEANIE I WILL PRAY FOR YOU. SUZZIE
--- On Thu, 8/7/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: [CMLHope] Re: (no subject)
To: CMLHope@googlegroups.com
Date: Thursday, August 7, 2008, 2:49 PM
In a message dated 8/6/2008 12:11:24 P.M.
Hi Greenie:
The Zoloft has worked for me, but with me it has taken away all types of
emotions. Since I am on it after a few years I noticed that I cannot cry. I
get upset and have a anxiety attack, but its very mild. Not the shortness of
breath etc. I get a rush of Adrenaline through
Hi: I am starting to get familiar with some of you. I went for my PCR this
morning, and as usual I still get anxious till my results come in. Could you
say a little prayer that it comes back good. THANKS SUZZIE
--~--~-~--~~~---~--~~
[CMLHope]
A support
Zoloft and Greenie:
I sent you the message on how I am doing with Zoloft, but Kelly has a very
good point on this whole thing. Ask your Oncologist as well as any other
doctors you have. Like I said everyone is different. We are not supposed to
take Tylenol, and I am not allowed
Hi Pete: I have been on Gleevec since 2000, and I have had bouts of nausea on
and off. I find its not as often as it used to be. I take my Gleevec every
morning with a decent breakfast, and then I am fine. If I just grab some toast
and coffee, sometimes I get nausea.
I think with Gleevec
Hi Greenie:
I am on Zoloft for almost the whole time I have been with the CML. It is
better than most of the other treatments. It has worked for me. If you have
any questions, please just ask.
Suzzie 60
--- On Mon, 8/4/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi Patrick: That information was very informative. I was told when I was
diagnosed that they did not see a genetic relationship to CML, but yet my Aunt
and Grandmother on my fathers side died from Leukemia. Nobody every checked to
see what type they had, also it was many years ago before
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