Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-14 Thread Richard H
Thanks!! Richard H. On Thursday, November 12, 2015 at 11:55:03 PM UTC-6, wa2yyx wrote: > > Hi Joyce, this is for you. > > So you sound like a real sweet person, so why should you loose even a > grain of your sweetness because of not trying to be positive because did > you know that it takes a p

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-14 Thread Richard H
Thanks. A doctor suggested a med that was causing the problem and called the Dr. prescribing it to put in on an ask for. Right now we are dealing mental stress and worry. I found she is taking medication but nurses and therapy are suggesting a change. She is jumping from highs to lows and w

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-13 Thread 'Icandoallttc' via CMLHope
Hi Richard, I was my hubbies caregiver and we had an episode of him being very grouchy. He had been given several drugs and he finally told his doctor that his wife was going to divorce him if he didn't take him off the drug. Of course I never would have but he seemed to know it was a drug cau

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-13 Thread 'Icandoallttc' via CMLHope
- > From: Marty Gartenberg > Date: Wed, Nov 11, 2015 12:02 PM > To: cmlhope@googlegroups.com; > Subject:Re: [CMLHope] Hi john 11th month on ponatinib > > Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be > going through and I can say that I am fa

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread Marty Gartenberg
Hi Joyce, this is for you. So you sound like a real sweet person, so why should you loose even a grain of your sweetness because of not trying to be positive because did you know that it takes a positive person to have a positive mind... Be sure to gain your attitude and smile every once in a whi

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread Richard H
Thanks Marty. Joyce(my wife) read it and promised she would try to be positive. I told a therapy nurse and a floor nurse in rehab that the message was in her room and after they read it it would be okay for them to copy it and use it to help other patients when their depression is stopping t

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread 'Susan Zimmerman' via CMLHope
Sent from my Sprint phone -- Original message--From: Marty GartenbergDate: Wed, Nov 11, 2015 12:02 PMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Hi john 11th month on ponatinib Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be going through and I can say that I

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread 'Icandoallttc' via CMLHope
Thanks Marty for the uplift. I have to tell you I have done every uplifting practice in the world but when I go to the doctor for tests my blood pressure goes up and my heart starts pounding!!! Only until I hear those magical words that my blood is good do I relax. It does help that my daughte

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread 'Icandoallttc' via CMLHope
Hi Beth and all Thanks much for the uplifts. I am so glad you are in remission. Do you have diarrhea? If so I will tell you what helped me. At one time my potassium was real high and I had gone out of hematology remission. Bi started having diarrhea really bad. My onc at the time told me my

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-12 Thread Marty Gartenberg
Hi Richard, Am am glad that this will help your wife, it did many times for me and my wife. Sorry that her healing is not as both of you expected, but sorry may not be the right word. What I mean it that when things may not be as you expected then just look at it as if there no healing at all. Ou

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-11 Thread Richard H
Thanks Marti! This is something I need to share with my wife. Things are progressing with her healing but not on her schedule. I was in need of some help and this is perfect for this moment in time. Richard H. On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote: > > Oh Jeanie,

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-11 Thread bkbarney via CMLHope
rappy parts. :) Beth -Original Message- From: John Barrons To: cmlhope Sent: Wed, Nov 11, 2015 9:31 am Subject: Re: [CMLHope] Hi john 11th month on ponatinib Hi Jeanie and all: I had cbc done yesterday and the counts were all stable. I have been on ponatinib for about three years n

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-11 Thread Marty Gartenberg
Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be going through and I can say that I am familiar with most of this stuff. Been there and done that, but I just know that your going to be alright. It's the same for me and mostly everyone that has to go through any type of

Re: [CMLHope] Hi john 11th month on ponatinib

2015-11-11 Thread John Barrons
Hi Jeanie and all: I had cbc done yesterday and the counts were all stable. I have been on ponatinib for about three years now. I have been taking only one pill every two weeks for about six weeks. My spleen is enlarged but the doctor said not to worry about. So I will just continue on and se

[CMLHope] Hi john 11th month on ponatinib

2015-11-11 Thread 'Icandoallttc' via CMLHope
Hi John and all. Just checking in to see how you are doing. I am in my 11th month of ponatinib. I seem to be doing good. WBC have been a little high but onc didn't seem to care. Now he worries about some nodes on lungs. Might do pet scan first of year. Have you had one? Still have dry sk