now you have had so many tests..maybe a
> hernia they cannot see??? something is hiding..but not life threatening..just
> a serious nuisance.
>
> I am thinking of you..
>
> Love, B
>
>
> -Original Message-----
> From: 'Jeanie' via CMLHope
> To: cm
s..maybe a hernia they cannot
see??? something is hiding..but not life threatening..just a serious nuisance.
I am thinking of you..
Love, B
-Original Message-
From: 'Jeanie' via CMLHope
To: cmlhope
Sent: Mon, Sep 12, 2016 6:12 pm
Subject: Re: [CMLHope] Just checking in
Hi
th.
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Sun, Sep 11, 2016 4:04 pm
> Subject: Re: [CMLHope] Just checking in
>
> Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That
> really hurt.
-
From: 'Jeanie' via CMLHope
To: cmlhope
Sent: Sun, Sep 11, 2016 4:04 pm
Subject: Re: [CMLHope] Just checking in
Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That
really hurt.
Yes it's good to hear from everyone so keep posting.
My ct scan showed
16 9:01 am
Subject: Re: [CMLHope] Just checking in
very hard to type so if you could let everyone know I could save the time
trying to contact everyone don't worry I will be back
18's
Marty
On Sun, Sep 11, 2016 at 12:02 AM, Richard H wrote:
Great to see your post. Positive
Norm (Lucky),
I enjoyed your interesting letter. I have been monitoring this site since 2009
when my husband (not an internet enthusiast) was diagnosed with CML. I don’t
remember ever seeing your story before. You certainly have had a blessed life.
Sorry to hear of the loss of Mr Hans. They
d the coming fall...and my
> 17 year old pouch.. Graciejust adore here to pieces... so understand
> Norm, your comments about Hans.
>
> Love to all, 18's Beth
>
>
>
>
> -Original Message-
> From: Norm
> To: CMLHope
> Sent: Sat, Sep 10
Hi Marty
Just wondered how you fell.
Love ya
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Sep 11, 2016, at 5:39 AM, sherri swanson
> wr
ouch.. Gracie....just adore here to pieces... so understand
>> Norm, your comments about Hans.
>>
>> Love to all, 18's Beth
>>
>>
>>
>>
>> -Original Message-
>> From: Norm
>> To: CMLHope
>> Sent: Sat, Sep 10, 20
very hard to type so if you could let everyone know I could save the time
trying to contact everyone don't worry I will be back
18's
Marty
On Sun, Sep 11, 2016 at 12:02 AM, Richard H wrote:
> Great to see your post. Positive thoughts for you and prayers still going
> your way.
> I understand
MARTY
It is so good to see your words. I'm sorry you're hurt and pray that you
are better soon. Understand that it is a struggle to type us a message,
just say hi to let us know you are OK and we won't worry. Please feel
better soon as we all miss you and want you back when you are able.
18's
Great to see your post. Positive thoughts for you and prayers still going
your way.
I understand your struggle, just say hi on occasion and my concerns about
you will ease.
18's
Richard H.
--
--
[CMLHope]
A support group of http://cmlhope.com
-Original Message-
From: Norm <_norm5674@hotmail.com_ (mailto:norm5...@hotmail.com) >
To: CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Sat, Sep 10, 2016 9:14 am
Subject: [CMLHope] Just checking in
Just wanted to check in with the group.
I miss
t adore here to pieces... so understand
> Norm, your comments about Hans.
>
> Love to all, 18's Beth
>
>
>
>
> -----Original Message-
> From: Norm
> To: CMLHope
> Sent: Sat, Sep 10, 2016 9:14 am
> Subject: [CMLHope] Just checking in
>
> Just want
Hope
Sent: Sat, Sep 10, 2016 9:14 am
Subject: [CMLHope] Just checking in
Just wanted to check in with the group.
I miss Millie too. We both owned dachshunds.
We lost Mr. Hans to lymphoma earlier this year which was one of the hardest
things I have ever had to do.
It was the first time in my life
Just wanted to check in with the group.
I miss Millie too. We both owned dachshunds.
We lost Mr. Hans to lymphoma earlier this year which was one of the hardest
things I have ever had to do.
It was the first time in my life that I had the responsibility for ending
his suffering. The vet was just
ying praying praying your body can do
> thisstay positive...and be patient know matter what the results.only
> 16 days!! an hurray for no side effects!!!
>
> love, Beth
>
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope
> To: cml
ed, Feb 11, 2015 4:04 pm
Subject: Re: [CMLHope] Just checking in
Hello everyone.
So glad everyone is checking in. Thanks for all the updates.
This is my 16 th day on ponatinib. No major side effects so far. Going to
doctor tomorrow to get blood done. Also getting a cat scan done. Pray that
ssage-
From: 'Holly' via CMLHope
To: cmlhope
Sent: Wed, Feb 11, 2015 9:48 am
Subject: Re: [CMLHope] Just checking in
Sent from my iPhone
On Feb 11, 2015, at 8:44 AM, Suzieq wrote:
Hello CML Survivors:
It's been some time since I stopped by and left word. Thought tha
Hi Suzieq,
Don't worry about this to much. Remember there was a different lab used and
they used a more sensitive test. I would just wait until your next ABL/PCR
test and see what happens. I have already seen this many times.
I keep on saying that there will be a cure for CML soon. It is only a
w
Hello everyone.
So glad everyone is checking in. Thanks for all the updates.
This is my 16 th day on ponatinib. No major side effects so far. Going to
doctor tomorrow to get blood done. Also getting a cat scan done. Pray that my
counts are on the way down.
Prayers & Blessings Jeanie 18'
Hi SusieQ,
Good to catch up with you. I know that same worry when you go from undetected
to a positive reading. And you are correct that we aren't cured even if
undetected, just cells hiding due to our TKIs. Hang in there and please let us
know the results in March
Marcie
Sent from my iPhone
Suziq
I am due to see Dr. Cashen at Siteman March 2nd. Are all tests being done in
house? I just lowered my Tasigna to 300 mgs and am concerned about your test
results.
Thanks
Holly
Sent from my iPhone
> On Feb 11, 2015, at 8:44 AM, Suzieq wrote:
>
> Hello CML Survivors:
>
> It's been s
Sent from my iPhone
> On Feb 11, 2015, at 8:44 AM, Suzieq wrote:
>
> Hello CML Survivors:
>
> It's been some time since I stopped by and left word. Thought that I should
> check on ya'll.sorry to hear of the troubles you are having Marty. I do
> hope you receive your Kidney and all go
Hello CML Survivors:
It's been some time since I stopped by and left word. Thought that I
should check on ya'll.sorry to hear of the troubles you are having
Marty. I do hope you receive your Kidney and all goes well. Jeanie...I
see you are having a few problems once again and I hope that
Hello to all my friends and family. I hope everyone is enjoying the
summer season and their health as much as humanly possible. I still
read the posts every 2 or 3 days but I notice activity is still
considerably low compared to when I came on board in 2004.
I don't have much input anymore...for 2
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