Re: [CMLHope] Just checking in

2016-09-13 Thread 'Jeanie' via CMLHope
now you have had so many tests..maybe a > hernia they cannot see??? something is hiding..but not life threatening..just > a serious nuisance. > > I am thinking of you.. > > Love, B > > > -Original Message----- > From: 'Jeanie' via CMLHope > To: cm

Re: [CMLHope] Just checking in

2016-09-12 Thread bkbarney via CMLHope
s..maybe a hernia they cannot see??? something is hiding..but not life threatening..just a serious nuisance. I am thinking of you.. Love, B -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Mon, Sep 12, 2016 6:12 pm Subject: Re: [CMLHope] Just checking in Hi

Re: [CMLHope] Just checking in

2016-09-12 Thread 'Jeanie' via CMLHope
th. > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Sun, Sep 11, 2016 4:04 pm > Subject: Re: [CMLHope] Just checking in > > Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That > really hurt.

Re: [CMLHope] Just checking in

2016-09-12 Thread bkbarney via CMLHope
- From: 'Jeanie' via CMLHope To: cmlhope Sent: Sun, Sep 11, 2016 4:04 pm Subject: Re: [CMLHope] Just checking in Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That really hurt. Yes it's good to hear from everyone so keep posting. My ct scan showed

Re: [CMLHope] Just checking in

2016-09-12 Thread bkbarney via CMLHope
16 9:01 am Subject: Re: [CMLHope] Just checking in very hard to type so if you could let everyone know I could save the time trying to contact everyone don't worry I will be back 18's Marty On Sun, Sep 11, 2016 at 12:02 AM, Richard H wrote: Great to see your post. Positive

Re: [CMLHope] Just checking in

2016-09-11 Thread Joyce Mesnarich
Norm (Lucky), I enjoyed your interesting letter. I have been monitoring this site since 2009 when my husband (not an internet enthusiast) was diagnosed with CML. I don’t remember ever seeing your story before. You certainly have had a blessed life. Sorry to hear of the loss of Mr Hans. They

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
d the coming fall...and my > 17 year old pouch.. Graciejust adore here to pieces... so understand > Norm, your comments about Hans. > > Love to all, 18's Beth > > > > > -Original Message- > From: Norm > To: CMLHope > Sent: Sat, Sep 10

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
Hi Marty Just wondered how you fell. Love ya My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 11, 2016, at 5:39 AM, sherri swanson > wr

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
ouch.. Gracie....just adore here to pieces... so understand >> Norm, your comments about Hans. >> >> Love to all, 18's Beth >> >> >> >> >> -Original Message- >> From: Norm >> To: CMLHope >> Sent: Sat, Sep 10, 20

Re: [CMLHope] Just checking in

2016-09-11 Thread Marty Gartenberg
very hard to type so if you could let everyone know I could save the time trying to contact everyone don't worry I will be back 18's Marty On Sun, Sep 11, 2016 at 12:02 AM, Richard H wrote: > Great to see your post. Positive thoughts for you and prayers still going > your way. > I understand

Re: [CMLHope] Just checking in

2016-09-11 Thread sherri swanson
MARTY It is so good to see your words. I'm sorry you're hurt and pray that you are better soon. Understand that it is a struggle to type us a message, just say hi to let us know you are OK and we won't worry. Please feel better soon as we all miss you and want you back when you are able. 18's

Re: [CMLHope] Just checking in

2016-09-10 Thread Richard H
Great to see your post. Positive thoughts for you and prayers still going your way. I understand your struggle, just say hi on occasion and my concerns about you will ease. 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Just checking in

2016-09-10 Thread Myvety2k via CMLHope
-Original Message- From: Norm <_norm5674@hotmail.com_ (mailto:norm5...@hotmail.com) > To: CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Sat, Sep 10, 2016 9:14 am Subject: [CMLHope] Just checking in Just wanted to check in with the group. I miss

Re: [CMLHope] Just checking in

2016-09-10 Thread Marty Gartenberg
t adore here to pieces... so understand > Norm, your comments about Hans. > > Love to all, 18's Beth > > > > > -----Original Message- > From: Norm > To: CMLHope > Sent: Sat, Sep 10, 2016 9:14 am > Subject: [CMLHope] Just checking in > > Just want

Re: [CMLHope] Just checking in

2016-09-10 Thread bkbarney via CMLHope
Hope Sent: Sat, Sep 10, 2016 9:14 am Subject: [CMLHope] Just checking in Just wanted to check in with the group. I miss Millie too. We both owned dachshunds. We lost Mr. Hans to lymphoma earlier this year which was one of the hardest things I have ever had to do. It was the first time in my life

[CMLHope] Just checking in

2016-09-10 Thread Norm
Just wanted to check in with the group. I miss Millie too. We both owned dachshunds. We lost Mr. Hans to lymphoma earlier this year which was one of the hardest things I have ever had to do. It was the first time in my life that I had the responsibility for ending his suffering. The vet was just

Re: [CMLHope] Just checking in

2015-02-12 Thread 'Icandoallttc' via CMLHope
ying praying praying your body can do > thisstay positive...and be patient know matter what the results.only > 16 days!! an hurray for no side effects!!! > > love, Beth > > > -Original Message- > From: 'Icandoallttc' via CMLHope > To: cml

Re: [CMLHope] Just checking in

2015-02-11 Thread bkbarney via CMLHope
ed, Feb 11, 2015 4:04 pm Subject: Re: [CMLHope] Just checking in Hello everyone. So glad everyone is checking in. Thanks for all the updates. This is my 16 th day on ponatinib. No major side effects so far. Going to doctor tomorrow to get blood done. Also getting a cat scan done. Pray that

Re: [CMLHope] Just checking in

2015-02-11 Thread bkbarney via CMLHope
ssage- From: 'Holly' via CMLHope To: cmlhope Sent: Wed, Feb 11, 2015 9:48 am Subject: Re: [CMLHope] Just checking in Sent from my iPhone On Feb 11, 2015, at 8:44 AM, Suzieq wrote: Hello CML Survivors: It's been some time since I stopped by and left word. Thought tha

Re: [CMLHope] Just checking in

2015-02-11 Thread Marty Gartenberg
Hi Suzieq, Don't worry about this to much. Remember there was a different lab used and they used a more sensitive test. I would just wait until your next ABL/PCR test and see what happens. I have already seen this many times. I keep on saying that there will be a cure for CML soon. It is only a w

Re: [CMLHope] Just checking in

2015-02-11 Thread 'Icandoallttc' via CMLHope
Hello everyone. So glad everyone is checking in. Thanks for all the updates. This is my 16 th day on ponatinib. No major side effects so far. Going to doctor tomorrow to get blood done. Also getting a cat scan done. Pray that my counts are on the way down. Prayers & Blessings Jeanie 18'

Re: [CMLHope] Just checking in

2015-02-11 Thread 'Marcie Goodman' via CMLHope
Hi SusieQ, Good to catch up with you. I know that same worry when you go from undetected to a positive reading. And you are correct that we aren't cured even if undetected, just cells hiding due to our TKIs. Hang in there and please let us know the results in March Marcie Sent from my iPhone

Re: [CMLHope] Just checking in

2015-02-11 Thread 'Holly' via CMLHope
Suziq I am due to see Dr. Cashen at Siteman March 2nd. Are all tests being done in house? I just lowered my Tasigna to 300 mgs and am concerned about your test results. Thanks Holly Sent from my iPhone > On Feb 11, 2015, at 8:44 AM, Suzieq wrote: > > Hello CML Survivors: > > It's been s

Re: [CMLHope] Just checking in

2015-02-11 Thread 'Holly' via CMLHope
Sent from my iPhone > On Feb 11, 2015, at 8:44 AM, Suzieq wrote: > > Hello CML Survivors: > > It's been some time since I stopped by and left word. Thought that I should > check on ya'll.sorry to hear of the troubles you are having Marty. I do > hope you receive your Kidney and all go

[CMLHope] Just checking in

2015-02-11 Thread Suzieq
Hello CML Survivors: It's been some time since I stopped by and left word. Thought that I should check on ya'll.sorry to hear of the troubles you are having Marty. I do hope you receive your Kidney and all goes well. Jeanie...I see you are having a few problems once again and I hope that

[CMLHope] Just Checking In....

2007-06-23 Thread [EMAIL PROTECTED]
Hello to all my friends and family. I hope everyone is enjoying the summer season and their health as much as humanly possible. I still read the posts every 2 or 3 days but I notice activity is still considerably low compared to when I came on board in 2004. I don't have much input anymore...for 2