ologist about whatever
you decide and get his opinion. Some people can handle the vacation and
others can't. I'll write to you later.
Hugs,
Millie
- Original Message -
From: icandoall...@aol.com
To: cmlhope@googlegroups.com
Sent: Thu, 06 Feb 2014 17:54:53 -0500 (EST)
Subj
rnToBallroomDanceOnline.com_ (mailto:ballroom...@gmail.com)
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)
Sent: Thursday, January 30, 2014 6:41 PM
Subject: [CMLHope] Pain, MRI and Neurologist
Hi Jeannie,
Yup. I am still on the Sprycel "pain" train, too! I actually
e the side effects some how. You take care and keep on dancing, my
> friend. Hugs and 18's , Millie
>
> - Original Message -
> *From:* LearnToBallroomDanceOnline.com
> *To:* cmlhope@googlegroups.com
> *Sent:* Thursday, January 30, 2014 6:41 PM
> *Subject:* [CMLHope]
cation and others
can't. I'll write to you later.
Hugs,
Millie
- Original Message -
From: icandoall...@aol.com
To: cmlhope@googlegroups.com
Sent: Thu, 06 Feb 2014 17:54:53 -0500 (EST)
Subject: Re: [CMLHope] Pain, MRI and Neurologist
Hi Michele,
I am still in a lot of side pain.
Hi Michele,
I am still in a lot of side pain. I had the cat scan done and the doctor
never discussed anything that could be causing my pain. My liver, spleen,
and etc. were ok.
I'm thinking of taking a Sprycel vacation just to see if the pain will go
away.
Take care and let us know what hap
Hi Peg,
Thank you so much for this message! I would love to repost it on my blog,
if that is alright with you.
I have been swimming in your pool! I am sticking with a lower dose of
Sprycel through one more PCR and then may consider a switch to Tasigna as
well, I am a bit reluctant to switch no as I
Thanks, Peg. You hit the nail on the head!
Things aren't any better up here in Canada.
Doctors show very little interest in side effects.They prefer to boast with
the great survival rates these drugs produce. I wonder what the REAL
survival rates are, once you factor in deaths due to these side
Hi Marty,
You went through this not only in the dark ages of CML treatment, but even
the dark ages of bone marrow transplant. You are a survivor in every sense
of the word, and we all owe you our gratitude for paving the way. I
absolutely agree that when considering quality of life we all mus
Hi Peg,
Truer words were never said. Yes, we are all different and what effects
someone may not effect someone else, or visa versa...
Anyway, just so you know, I have never been on any TKI's because there were
none around when I was diagnosed with CML in 1988, there were only two
options, one was
Hi Guys,
Just wanted to add my two cents regarding this topic. Was on Sprycel for
three years, every time I took a dose, at exactly two hours later, it was
like I stuck my finger in a light socket! Muscle spasms, bone pain, muscle
pain...it actually would put me in bed for about 20 hours befo
, and there are no options except to take the meds. and hope that
we survive the side effects some how. You take care and keep on dancing, my
friend. Hugs and 18's , Millie
- Original Message -
From: LearnToBallroomDanceOnline.com
To: cmlhope@googlegroups.com
Sent:
Millie, good luck with the blood work..Hope it went really well!!! Thinking of
you Beth
-Original Message-
From: Marty Gartenberg
To: cmlhope
Sent: Thu, Jan 30, 2014 7:21 am
Subject: Re: [CMLHope] pain and hunger Millie
Dear Millie,
I hope your blood work goes well. You know
Hi Jeannie,
Yup. I am still on the Sprycel "pain" train, too! I actually was sent for
MRI's and to see a neurologist; if interested, here is the beginning of the
blog post; of course, as I figured, there really isn't anything wrong with
me...lol
http://www.leukemiasurvivor.co/2014/01/musculoskelet
at I'm hearing. I'll
> just stay in the house.
>
> Hugs and 18's
> Millie
>
> - Original Message -
> *From:* Marty Gartenberg
> *To:* cmlhope@googlegroups.com
> *Sent:* Thursday, January 30, 2014 8:21 AM
> *Subject:* Re: [CMLHope] pain and hunger M
ida. We're
going to have more bad weather next week from what I'm hearing. I'll just stay
in the house.
Hugs and 18's
Millie
- Original Message -
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Thursday, January 30, 2014 8:21 AM
Subject: R
>
> Millie
>
> - Original Message -
> From: Marty Gartenberg
> To: cmlhope@googlegroups.com
> Sent: Wed, 29 Jan 2014 21:47:38 -0500 (EST)
> Subject: Re: [CMLHope] pain and hunger Millie
>
> Hi Millie,
>
> Here is a little present for you.
>
> 18's
7;s cold enough for me. I must go out
>>> tomorrow and get blood work done. I hate the thoughts, but it's suppose to
>>> be a little warmer, so maybe it won't be so bad.
>>>
>>> Hugs...Millie
>>>
>>> - Original Message -
iendship with you or the others for
anything.
Lots of hugs, and 18's,
Millie
- Original Message -
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Wed, 29 Jan 2014 21:47:38 -0500 (EST)
Subject: Re: [CMLHope] pain and hunger Millie
Hi Millie,
Here is a little present f
ne. I hate the thoughts, but it's suppose to
> be a little warmer, so maybe it won't be so bad.
>
> Hugs...Millie
>
> - Original Message -
> *From:* Joyce Mesnarich
> *To:* cmlhope@googlegroups.com
> *Sent:* Wednesday, January 29, 2014 1:29 AM
> *Subject:
There are so many that experience
> terrible side effects, so some of us are lucky. I just take one day at a
> time, and pray that it will work out.
>
> You take care. I think you have a difficult job taking care of him. Not
> knowing what to do is difficult. I know what t
go out tomorrow and get
blood work done. I hate the thoughts, but it's suppose to be a little warmer,
so maybe it won't be so bad.
Hugs...Millie
- Original Message -
From: Joyce Mesnarich
To: cmlhope@googlegroups.com
Sent: Wednesday, January 29, 2014 1:29 AM
Subje
t. I know what to do, I'm just not doing it.
> Hugs,
> Millie
> - Original Message -
> From: Joyce Mesnarich
> To: cmlhope@googlegroups.com
> Sent: Saturday, January 25, 2014 4:57 PM
> Subject: Re: [CMLHope] pain and hunger Millie
>
> Jeanie,
> Hunger!!!
Hi Joyce and good to hear from you. I'm glad that we can blame that
hunger on Sprycel. I just couldn't figure it out. I too have those same
colon
problems and my right side under my ribs is very painful. They are trying
to find out what the problem is but so far no luck. It could have
taking care of him. Not
knowing what to do is difficult. I know what to do, I'm just not doing it.
Hugs,
Millie
- Original Message -
From: Joyce Mesnarich
To: cmlhope@googlegroups.com
Sent: Saturday, January 25, 2014 4:57 PM
Subject: Re: [CMLHope] pain and hunger Millie
Jeanie,
Hunger!!! My hubby, who is the CML patient, is constantly hungry and we think
it is the Sprycel. When he was on Gleevec he was not hungry. Now 2 hours
after he eats he is ready for more. He has gained weight which in his case is
NOT good. He also has colon problems.constipation
Hi Millie, Stay warm. Here in sunny FL we have had the heat on for days.
It usually warms up during the day but lately the cold has set in. Oh
well, we will soon be complaining it's too hot hehe.
My pain has also been bad, but other than having more test, I don't see
how to fix it. The t
Regarding pain following BMB or BMA.
I have always had the same doctor to do all of
mine. I haven't experienced severe pain during
or following the procedure. I feel most fortunate
in this regard. However, every time I have a
procedure scheduled I feel apprehension. I
think that this will be t
I believe in my gut that the pain is real. Since I am one of the
lucky ones to have had most of the side effects of Gleevec, I think
that I am pretty good at diagnosing. The problem is is that none of
us are willing to go off Gleevec to tell you definitely that Gleevec
is the culprit or not. Fo
Hi everyone!
I have posted on here a few times before and have received replies that
were very helpful. I have another question. According to what I have read,
one is not permitted to take Tylenol ( acetaminophen) while taking Gleevec.
Does anyone know what pain medications are allowed
Hi everyone I always here we are not supposed to use Tylenol , what can we
safely take for pain? ThanksTony.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message becaus
Hi,
I was diagnosed almost 4 years ago..had a few side
effects...nothing to
really complain about. The last 3 months I have been plagued by
sudden stabbing pains in the ankle and shinbone area...it stops as
suddenly
as it starts. The pain has me rolling around on the floor in tears
till it
I was diagnosed with CML 4 1/2 yrs ago. I was Interferon for 12mths &
started getting pain off & on which ended up so bad I was approved for
Gleevec. My pain improved for a while then it started to get worse &
worse. I ended up on morpheine & I still couldn't control the pain. My
doctor has taken
Hello everyone, I have been using hydrocodone which is generic for
vicodin, and the label says apap 5mg/500mg tabs. I take two at a time
usually twice a day and I am interested to know if any of you know if
this is safe or if I should try to find another pain reliever. Bless
you all, Tony
--~
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