[CMLHope] Re: My Genzyme Report

2007-06-25 Thread anjana
Dear Suzieq, Roy has had several PCR spikes but never consecutive ones. Like he was 0.3% and went up to 0.6% but the next one was back to 0.2%. Doctors look at a rising PCR trend to order mutations testing. So, if you have rising PCR values over several values, only then is it a cause for con

[CMLHope] Re: My Genzyme Report

2007-06-25 Thread Suzieq
Thank you everyone who responded: I appreciated the responsesome of these things you all mentioned have ran through my mind since receiving the test. And, my husband wasn't real concerned.he said had it been say 1.000% or higher, then he would start to worry. He asked me if I was ta

[CMLHope] Re: My Genzyme Report

2007-06-24 Thread livia klescova
Hi, I have always had only a down trend with my PCR results, except of one time. I was concerned at that time, but my oncologist told me that a lot of times they see this up and down shifts in PCR's. However I understand your concern. It doesn't make any sense. One time it says that your test

[CMLHope] Re: My Genzyme Report

2007-06-24 Thread [EMAIL PROTECTED]
Suzie I do not think you need to worry. Some variation is common, particularly in people with very low PCR numbers. There are certain labs in the world that are supposedly so good they think they can predict a relapse if the test result only doubles on 2 consecutive tests. Most CML experts thin

[CMLHope] Re: My Genzyme Report

2007-06-24 Thread Annie
Oh Suzie I dont have any answer for you - just a hug. I know that no matter what anyone says, you will probably be a tad more concerned until the next one shows a downward trend again... Maybe its not such a big jump, but that does not stop everything jumping to the front of your mind in a big wa