Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread bkbarney
ginal Message- From: ICANDOALLTTC To: cmlhope Sent: Thu, Jun 6, 2013 10:30 am Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic Hi Carol, I have been on Sprycel since 2009 with no PE. I reached remission on Sprycel. Cutting back on the dose makes sense to me.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread ICANDOALLTTC
Hi Carol, I have been on Sprycel since 2009 with no PE. I reached remission on Sprycel. Cutting back on the dose makes sense to me. Good luck, Jeanie<3 In a message dated 6/6/2013 9:35:44 A.M. Eastern Daylight Time, sion...@aol.com writes: What is your dose and your PCR results? On Jun

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread ICANDOALLTTC
Hi Tom and all, My onc doesn't want me to reduce my meds, he says if it's not broke don't fix it and told me not to worry about PE, but I do worry about it and I took it upon myself to reduce down from 100mgs to 50. I am doing good; still in full remission. I think it is the fear that keeps

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread ICANDOALLTTC
In a message dated 6/6/2013 10:19:31 A.M. Eastern Daylight Time, ted...@aol.com writes: Carol.I had the same problemwhat finally fixed the Pleural Effusion for me was to reduce the doseThey (MD Anderson) took me down gradually from 100 mg/dayand I have been on 20 mgs/day

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread TEDBDD
Carol.I had the same problemwhat finally fixed the Pleural Effusion for me was to reduce the doseThey (MD Anderson) took me down gradually from 100 mg/dayand I have been on 20 mgs/day for over a year now and it seems to be workingno PE and good blood results/PCR's. In add

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread sionito
What is your dose and your PCR results? On Jun 6, 2013, at 7:46 AM, cak...@aol.com wrote: I haven't posted in a while, but always read everyone else's...now i have a question for everyone on Sprycel. I was switched to Sprycel 2 years ago due to kidney issues with the Gleevec. I was diagnosed i

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2013-06-06 Thread Cakrek
I haven't posted in a while, but always read everyone else's...now i have a question for everyone on Sprycel. I was switched to Sprycel 2 years ago due to kidney issues with the Gleevec. I was diagnosed in July of 2001.Have been undetectable for years...now I am getting pluerral effusions.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-08-08 Thread Martin Gartenberg
Dear Virginia, Only one thing to say. 18's This is the symbol for life. Marty On Wed, Aug 8, 2012 at 5:12 AM, Poongothai R wrote: > > > > > > -- > To: cmlhope@googlegroups.com > From: cmlhope@googlegroups.com > Subject: [CMLHope] Digest for cmlhope@googlegroups.com

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-08-08 Thread Marwan Abdeh
Dear Friends Help is needed Pls help by sending me any leftover of Gleevec from you or from people you know for my son who si suffering from Dermatofibrosarcoma . Pls do all your best to help . Thanks rgds Marwan Abde Damascus/Syria P S we are at war and have no possibility to get Gleevec. On 8 Au

RE: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-08-08 Thread Poongothai R
To: cmlhope@googlegroups.com From: cmlhope@googlegroups.com Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic Date: Tue, 7 Aug 2012 11:34:21 + Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics 15th CML Anniversary Today [4 Update

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-05-19 Thread Marwan Abdeh
Dear friends My son is diagnosed with Dermatofibrosarcoma.He needs Gleevec badly. Pls help by finding donators of the medecine Kind regards Marwan Abdeh Damascus/Syria On 19 May 2012 05:22, Martin Gartenberg wrote: > Great news Kelly > > Now you can understand what 18's means. > > Marty > > On Fr

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-05-18 Thread Martin Gartenberg
Great news Kelly Now you can understand what 18's means. Marty On Fri, May 18, 2012 at 3:41 PM, Victoria Reiter wrote: > Congratulations Kelly! What wonderful news for you and yours. Vivi > > > > On Thu, May 17, 2012 at 7:07 AM, wrote: > >> Today's Topic Summary >> >> Group: http://group

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-05-18 Thread Suzan Collins
lhope@googlegroups.com Sent: Friday, May 18, 2012 5:41 PM Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic Congratulations Kelly!  What  wonderful news for you and yours.  Vivi On Thu, May 17, 2012 at 7:07 AM, wrote:   Today's Topic Summary >Group: http://grou

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-05-18 Thread Victoria Reiter
Congratulations Kelly! What wonderful news for you and yours. Vivi On Thu, May 17, 2012 at 7:07 AM, wrote: > Today's Topic Summary > > Group: http://groups.google.com/group/cmlhope/topics > >- Tasigna <#1375a7baf2bb03d1_group_thread_0> [4 Updates] > > Tasigna

RE: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2012-05-03 Thread Poongothai R
To: cmlhope@googlegroups.com From: cmlhope@googlegroups.com Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic Date: Thu, 3 May 2012 11:04:15 + Hi Thanks everyone for sharing I ll checkup with my dr on my next visit to know what is happening in me kothai T

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2011-02-01 Thread Daniel Brown
If you choose to place your healthcare in the hands of politicians and beauraucrats then go ahead, but don't force your blind faith in government on me. There is only one way to reduce healthcare costs, reduce the amount of healthcare delivered, especially at the end of life where the most expen

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 Messages in 1 Topic

2011-02-01 Thread Victoria Reiter
The new health care bill does NOT include the "End of Life" provision so many people fear. There is NO provision for planned euthanasia or refusal of services. What was provided for (although after all that kerfuffle in the media and people thinking they were going to be refused service because t