Hi,
Was wondering how your infection is going?I had my problem where my cathe tube wouldnt go in, luckily it cleared up but Im keeping my wheels crossedhehe. How does that amytriptyline make u feel? Is it helping pain and sleep? I started with 10mg then 25 mg, now Im up to 50mg and it helps s
Hi,
You are an asset to this list, I have read every post on here for over a year and printed your information on your shunt experience. Your posts may have saved my butt from letting some neurosurgeon screw me up. In your experience with a syrinx does activity or lifting, straining etc make you
Hi all,
I have trouble sleeping at night especially if I'm hot. This summer was brutal
but I learned how to use ice packs, a fan, and a spray bottle to cool off. Now
it's wood stove season up north and I need to be careful it doesn't get to hot
because of that.
My dilemma with sleeping, is
Hi all,
I have trouble sleeping at night especially if I'm hot. This summer was brutal
but I learned how to use ice packs, a fan, and a spray bottle to cool off. Now
it's wood stove season up north and I need to be careful it doesn't get to hot
because of that.
My dilemma with sleeping, is
Thank you so much for that email.
I found it incredible that some of the postings mentioned how my father
might be feeling and when I spoke with him on the phone about the Quad
List and my short, but what I'm finding amazing, experience he expressed
exactly what some of you said he might be feelin
Hi Tim,
I could drop off to sleep in a matter of minutes pre-SCI, and am still the same way post. I also wake up at 5:55 AM at the latest each morning. I have a stop-watch with a beep alarm hanging by my bed set to go off at 6 AM but am always awake when it goes off. I sleep straight through
Hi Susan
I just have to say the quad list has been one of my saviors. My accident was
on August 2 last year and I am just now accepting many of the changes. I am 33
years old and sometimes when you get more set in your ways, it is harder to
accept change. The big thing that the Quad list ha
If I try to go to sleep in a dark quiet
room my mind roams, every negative thought that I can dream of (past or future)
scrolls through my mind. The noise from the television prevents me from
thinking while trying to sleep.
T. Houston Post 11 years
C5-C6
- Original Message -
Title: New Therapy for Paraplegia and Quadriplegia
Anybody familiar with this? Wally what have you heard?
New Therapy for Paraplegia and Quadriplegia
GIGER MD® Therapy is a unique therapy method
Dear Sir or Madam
The damaged or functionally impaired CNS (central nervous system) is f
That was my experience in N. Virginia. *All* my aides were African American (most new from Ethiopia or Guana). I think they thought AMERICA OWED THEM or something. If they had to do ANY more than a bed bath ... never seen again.
With MEDICARE Agencies that holds true for anyone (aide)
She's the one who told me to look up the Quad List. She was amazing to
speak with. And my dad just received the packet of info from her today
and he's pretty darn excited.
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, October 20, 2005 4:40 PM
To: [
I find that I cannot go to sleep without the
television on.
T. Houston 11 years post-C5-C6
- Original Message -
From:
Jeremy
Dickinson
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED] ; quad-list@eskimo.com
Sent: Tuesday, October 18, 2005 5:18
PM
Subject: Re: [QU
Precisely what my husband says!
Lori Michaelson
Age - 41
C4/5 complete quad, 26 years post
Tucson, AZ
---Original Message---
From: [EMAIL PROTECTED]
This is why Medicine is still referred to as a practice..
W
This is why Medicine is still referred to as a practice..
W
In a message dated 10/20/05 4:28:36 PM, [EMAIL PROTECTED] writes:
<< The renowned neurosurgeon who did my surgery in Brooklyn, NY ... couldn't
believe "his baby" of a shunt failed. But it did.
>>
Lucky for you, the Chicago Chapter of the National Spinal Cord Injury Assoc,
is the
largest and most active Chapter in the USA. It has 5-6 support groups in the
region.
To gain even more information, you can email Mercedes Raun, the Executive
Director
for the Chicago Chapter for alot more info
Welcome Susan
Youre in the right place. See if you can get him to read and post. Theres
yrs of knowledge and encouragement here.
I'm Houston C6/C7 complete gunshot wound Aug. 98
On 10/19/05 8:35 PM, "Susan Johnson" <[EMAIL PROTECTED]> wrote:
> Hi All,
>
> I've been working up the courage to pos
Mark, you may never know the lives you have saves since joining the Quad-List,
Life, ain't for the dead and those who think that way. Make the most of
life, and
watch people follow you..
Best Wishes
W
In a message dated 10/20/05 1:42:48 PM, [EMAIL PROTECTED] writes:
<< I tell people all the
In a message dated 10/20/2005 6:11:46 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
I have had 44 caregivers in 23 months.
That's terrible! Most are just insensitive to our situations. I don't think
I could be employed caring for a quad and not wonder 'what if I was like that'.
Most
Thanks for all of the postings. It's amazing that for the past year my
family has been searching the web for information with very little luck
and within one week I have found a wealth of information and I'm very
grateful for that.
My dad is almost 69 and he lives in IL. He's is doing remarkably
I like to hold restaurant's "feat to da fire." If they say that they are
accessible, to me, that doesn't mean that I have to be seated in the aisle and
be
the "Floor Show"
for entertainment of all who pass by, or a fire hazard by blocking the aisle
and having
people interrupt my dinner with, "
FY I Dana
--- Begin Message ---
Asclepios
Your Weekly Medicare Consumer Advocacy Update
ACT NOW: Medicare Fumble Highlights the Need for a Simple, Standardized Medicare Drug Benefit
October 20, 2005 • Volume 5, Issue 42
As the Medicare drug benefit nears, a growing
Hi Paul,What a drag to train that many. My sympathies go out
to you, and I hate training new aides especially if they don't stay. I have
heard of a lot of companies having that problem also. The caliber of
workers is poor, especially without rewards of any kind. There should be
some kind
I had never heard anyone
else complain about their wheelchairs sitting up high and not being able to fit
under tables at home or at restaurants. I always felt this was another way
that I looked singled out and will only eat at food courts where I can turn side
ways to the table. I have mis
I'm usually with someone so I have them swing my foot rests out and put my feet on the floor. Most of the time it works.
Tim
Paul Jacobson <[EMAIL PROTECTED]> wrote:
I am 6 ft tall and with my powerchair and 4" cushion, I can not get under any table in a restaurant.
Has anyone solved th
Hi Paul ,Especially with a tall powered wheelchair, and I only have to
deal with being 5 6, I can imagine being 6 4. My Permobile is very tall
with three motors for elevator, tilt and recline. I have my desk made the
right height because my previous old E. and J. was to, because I ordered i
Same here, most I can't fit under--- at some I fit under but a tight
fit .
Dan
I am 6 ft tall and with my powerchair and 4" cushion, I can
not get under any table in a restaurant.
Has anyone solved this issue?
Thanks,
Paul c5/6
- Original Message -
From:
Paul
Jacobson
To: Lori Michaelson ; Quad
Sent: Thursday, October 20, 2005 3:10
PM
I have had 44 caregivers in 23 months.
- Original Message -
From:
Lori
Michaelson
To: Quad
Sent: Thursday, October 20, 2005 2:33
PM
Subject: Re: [QUAD-L] Caregivers
This is an ongoing problem for a majority of us. My aide
called
i do the same thing, Keith. If I don't go to sleep immediately, i have a
rough night.
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] falling asleep
Date: Thu, 20 Oct 2005 11:53:18 EDT
Jkrocks writes:
I normally watch TV a couple of hours before I go to sleep. If I'm
Yes, I tried to sue but got nowhere.
Lori Michaelson
Hm..-- Eric W Rudd[EMAIL PROTECTED]
This is an ongoing problem for a majority of us. My aide called an hour
before coming on Wednesday saying she couldn't come as her
hubby was in the hospital.
And now she can't make it tomorrow either but I'm having another
lady come in. I haven't had my hair washed since Monday!
THIS IS
My experience getting a shunt was a nightmare. The first one (a research kind)
failed in the first month and put my body into uncontrolled AD.
The renowned neurosurgeon who did my surgery in Brooklyn, NY ... couldn't
believe "his baby" of a shunt failed. But it did.
He revised it by tak
Also ... take a Benadryl once at bedtime. I take one nightly for my sensitive skin rashes.
We give our doggie one at bedtime too as she has terrible nose & ear allergies.
My husband took one, after ten yrs of not, on Monday for severe sinus trouble. It
made him take a long nap!
My siste
Hey Susan,
Welcome to the list.
If you could just get him on a computer to let him know he's not alone by no means it might help.
I tell people all the time this list saved my life and in many ways it did by just letting me know I wasn't alone and there's a life after sci and in a lot of way
[EMAIL PROTECTED] wrote:
Tim, Eric and Mark,
I have the same symptoms. I wake up so many times and it takes hours
to fall asleep along with the freezing and suffocatingly hot flashes.
I think you are right about it being neurological like so many other
things we experience. I wis
Hey Susan,
I'm Smurf (real name Sarah) and I'm 21 from the UK. I became a para
3.5years ago after a road accident.
Well done for plucking the courage up to email here, it's a fantastic place
to be for both a listening ear and to have a joke and a laugh! I really
hope both yourself an
Jkrocks writes:
I normally watch TV a couple of hours before I go to sleep. If I'm really tired I can fall asleep right away but if I'm not tired I will lay their and my mind will start to wonder and start thinking of things that I should not be thinking of.
This is what I do every night.
Ke
colander on a hanger over your head and
Velcro straps on wrists and ankles - ELECTRIC CHAIR with condemned
prisoner.
SHOPPING CART
GOLF CART
My prize winner: Rabbit ears fluffy tail
on back of chair, toy drum on lap, sun glasses - ENERGIZER
BUNNY
THIS YEAR I GO AS ROBBIE THE ROBOT. Ca
DAANOO writes:
Mark,I have the exact same feelings. It is miserable. I cannot sleep when I am hot or cold it is impossible to find a happy medium. I wish there was a way to remove blankets and put back on for these flashes.Dana (C4-5, 31 years post, 52 KC)
Dana,
That's why I just sleep wit
In a message dated 10/19/2005 9:31:29 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Do any
of you have any ideas what I can possibly do to encourage him toreach
out?He was a very private person to begin with and I don't think he
canunderstand that other people going through simi
Welcome Susan and dad
I'm Jim, a C-5/6 incomplete, married with two children, 45 and five years
post injury. This group is a great place to learn a wealth of information
from the people that know all too well what it is like to be a quadriplegic or a
paraplegic. Never be afraid to ask a
Yes, Only because I work. If I did not work I would be on my
own.
Jim
You sound like me mark.
Jim
Try drinking a glass of wine right before bedtime. I do this every
now and then on cold winter nights because it helps relax me and also warms me
up. Now, I only said a glass and not a bottle.
Jim
I'm the same way.
Jim
get in touch w/ your local Independnet Living center.
where r you located?
join www.unitedspinal.org
- Original Message -
From:
[EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; quad-list@eskimo.com
Sent: Thursday, October 20, 2005 10:10
AM
Subject: Re: [QUAD-L] New membe
I normally watch TV a couple of hours before I go to sleep. If I'm
really tired I can fall asleep right away but if I'm not tired I will lay their
and my mind will start to wonder and start thinking of things that I should not
be thinking of. I consider myself having a full night's sleep
Hi, welcome to the list, Does your Dad use the
computer himself ? Using the computer has been a major help for most of
usI'm a c-6 but many here are higher level quads like your dad. They
use Dragon Dictate and other methods of voice recognition to use their
computers. It is nice f
Hiya Susan!
You just wouldn't understand what he has been thru.
He should be doing outpatient therapy with others in his condition
to support what he is personally experiencing.
What area of the country does he live in? This is important
for the support part.
Until then, support and listen. D
Hi Ron, good to hear from
you. I'm pretty much the same as you on meds. I take 10mg of amitriptyline (
elavil ) every night to help with pain and sleeping-- Doctor Wice said in the
future I can increase the dosage from 10mg to higher if I need to. Like You I
will take Lorazapam at t
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