[QUAD-L] Greg

Well he makes sure its a high chevy truck or a high profile car. Usually you can make a good judgement.Besides even people with invisible disabilities should use tags. If you ask me I think places should put ample handicapspaces like Walmart, then their wouldnt be a problem. Maybe I need to put my

[QUAD-L] Hey Dan, Meds Question

Hi Dan,I was wondering how the lyrica is working for you? Also Ive been on 50 mg of Amytriptyline at night for close to two years and have noticed my guts some bigger. Have you experienced any weights issues with this medication.?Ron c7 8.5 years in quadadise

[QUAD-L] About auto seatbelt on p-222

Hey,Someone asked about the auto style seatbelt I put on my Quickie P-222 power wheelchair. I just ordered it from a place called the Aftermarket Group. It looks similar to a lap seatbelt in a car. Cost 15.00, I keep a couple in stock at all times, lol.Ron c7 8.5years Everydays a

[QUAD-L] 4x4 wheelchairs and indoor use

Hey, I dont have a 4x4 wheelchair but was an avid atv rider for years, anything with those aggressive, big tires is going to track mud, dirt andgrass indoors. And for the carpet, well you might as well rip it out and put tile in, lol. If you had wide doors, tile, and a dual arm van lift, then it

[QUAD-L] Question for the group

Hey, What do you guys do when you enter a restroom and their are several stalls but a walking Joe is in the handicapped stall. This forces you to wait awhile, then the Joe walks out of the stall finally, do you guys say something, stare him or her down, or let it go. When I let it go I feel like

[QUAD-L] About off road wheelchairs

Hey, The majic mobility x4 and x5 look like pretty tough chairs, but I have a Quickie p-222 special edition chair that I was given at Gateway International Raceway in Illinois and its a damn tough chair as well and parts are easy to attain. After I installed an auto seatbelt, and adjusted the

[QUAD-L] ABOUT STANDING FRAMES HOUSTON

i HAVE AN EASYSTAND 5000 HERE AT MY HOUSE. it has thecapability to be rolled around independently while you are in standing position. anyway when you first start standing you will feel light headed, kind of a tingling feeling. to combat this problem youshouldnt stand in the frame to long for any

[QUAD-L] Dillion, setting yourself up for semi-independent quad life

Hey, Im a c7 quad and live with my father in a house he owns. I think the best thing to do is be realistic and realize that our fathers wont be around forever . Sitting and talking with your father and family can help prepare you for the day it happens. I have done things such as set up a special

[QUAD-L] syrinx diagnosis

Hi, The only way you can know if you have a syrinx is through an mri. The number one symptom is new pain that you havent experienced before. I thought I had a bladder infection for the longest time when my pain started. I finally requested full testing from my primary physician and the syrinx was

[QUAD-L] syrinx pain

It really does suck to have a syrinx. Its the biggest no win situation Ive ever been in besides spinal injury itself. I ask myself why suffer everyday if I can get it drained or shunted? Then the docs tell you about the major risks and people that have had syrinx operations tell you the horror

[QUAD-L] Hey Dan...about lyrica

Hey, Let me know when you try lyrica. im struggling with this syrinx pain.Its not stopping me but its not letting me pursue some of the goals I wanted. The amytriptyline does a lil good at night but not to much. Its hard for me to commit to obligations such as school, when im in this pain.

[QUAD-L] Hey Dan, about syrinx pain and meds

Hey, Im still dealing with nerve pain in back and stomach areas. I take 50 mg amytriptyline at night when I need it, and two lorezapams a day when I need it. I find that swimming helps me, I do that twice a week through a program here called Show Me Aquatics which is a swimming program for the

[QUAD-L] Hey Dan, about syrinx pain and meds

Hey, Im still dealing with nerve pain in back and stomach areas. I take 50 mg amytriptyline at night when I need it, and two lorezapams a day when I need it. I find that swimming helps me, I do that twice a week through a program here called Show Me Aquatics which is a swimming program for the

[QUAD-L] About cleanups

When i said the tile floor is great for cleanups I mean when I roll my shower wheelchair from bed to shower and back water is left on floor which is easy to mop up. Also I do my bowell routines on a transfer bench next to my bed and watch tv, occasionally a mess gets on floor...carpet would ssuck

[QUAD-L] About cleanups

When i said the tile floor is great for cleanups I mean when I roll my shower wheelchair from bed to shower and back water is left on floor which is easy to mop up. Also I do my bowell routines on a transfer bench next to my bed and watch tv, occasionally a mess gets on floor...carpet would ssuck

[QUAD-L] Answering about transfer bench

Well I use a Guardian transfer bench with the commode opening . Its an older model and it has a nice tall back. I just take the pail put a plastic bag in it and im ready to go. This way I can watch tv whileI get the routine done. Ive thought of starting to use my guardian rolling shower chair for

[QUAD-L] Roho cushions

If you ask me roho cushions are a joke. You cant transfer off of them because you sink in like a waterbed. They also pop easily , and you get this all for 400.00, what a deal, lol. Ive used a J2 gel for 8 years and never had a sore problem. The cushion is great because is has a solid front to

[QUAD-L] Beds

I got a Temperpedic queen size adjustable bed, has a wireless remote to operate the legs and head , even had vibrating modes. The bed is greatits firm enough to transfer, but gives you plenty of pressure relief. I sleep on my stomach to give my butt a vbreak at night , and even with my knees

[QUAD-L] Beds

I got a Temperpedic queen size adjustable bed, has a wireless remote to operate the legs and head , even had vibrating modes. The bed is greatits firm enough to transfer, but gives you plenty of pressure relief. I sleep on my stomach to give my butt a vbreak at night , and even with my knees

[QUAD-L] Beds

I got a Temperpedic queen size adjustable bed, has a wireless remote to operate the legs and head , even had vibrating modes. The bed is greatits firm enough to transfer, but gives you plenty of pressure relief. I sleep on my stomach to give my butt a vbreak at night , and even with my knees

[QUAD-L] about colonostopy

I had one a couple years back when my syrinx was found. I just went in the hospital for three days because i knew my dad would cuss me out half a dozen times when i was going number 2 all day. It was embarassing going constantly the day b4 but at least i was in the hospital. When they put the iv

[QUAD-L] being cold

I too deal with the cold sensations when i try to sleep, and yes it sucks. Just dont use a heating blanket as I was burned in three places when I awoke one morning. I keep a walmart oil filled heater next to my bed, a ceiling fan with remote, and a small fan on my table next to bed. I also keep a

[QUAD-L] Dan....about SBC

Hey, You can keep aol instant messenger for free and use your old screennames to talk to people. Im not sure how many screennames you can have with the free instant messenger but i have 2. Your profiles will be deleted, but oh well the SBC service is cheap and fast. I talk to people now using

[QUAD-L] Wheres the matress covers??

Hey guys,I have a queen size temperpedic bed. I have been using walmart matress covers , they just go over the top of the matress. Anyway these covers are crap , every three days I have to get my dad to put the cover back on , or its torn from transferring. Is there any place out there that

[QUAD-L] To Dan

Hey, Im a c7 going on 8 years post. As far as popping in the shoulders , this is normal to some extent. Ranging your shoulders out should help this. If your shoulders are hurting badly for a long period of time I would go easy on them for awhile and see if it gets any better. All the doc is going

[QUAD-L] Hey DAN

hi, I had aol dial up for three years, paid 23.90 a month. When I heard about yahoo dsl going for 19.95 a month with a one year contract I jumped on it. I did have some trouble cancelling aol but after three talks with them they sent me a letter terminating service. Yahoo dsl is many times

[QUAD-L] Those asking about Lorezapam

Hi, Well after I started having new pain from syrinx I tried many meds to no avail. My mom had a few lorezapams from when she was having anxiety probs, I tried one and it knocked the edge off my pain.To better describe I have a central pain in my back about injury level, but at times this pain

[QUAD-L] Dan

Hi, My pain lately has been about the same, when I wake up its pretty intense. If I get myself going and in a positive mindframe things roll along better. But I have my down days. Ive been taking the 50 mg amytriptyline and am concerned about future weight gain from it, so Im closely monitoring

[QUAD-L] Brien

I agree with the quality of life aspect. A person in our situation must take what medications he/she needs to be able to go on with life and face each day. Walking individuals cant understand these thoughts. Anyway I take lorezapam as needed (about 2-3 pills a day). This somehow knocks down the

[QUAD-L] Brien

I agree with the quality of life aspect. A person in our situation must take what medications he/she needs to be able to go on with life and face each day. Walking individuals cant understand these thoughts. Anyway I take lorezapam as needed (about 2-3 pills a day). This somehow knocks down the

[QUAD-L] Brien

I agree with the quality of life aspect. A person in our situation must take what medications he/she needs to be able to go on with life and face each day. Walking individuals cant understand these thoughts. Anyway I take lorezapam as needed (about 2-3 pills a day). This somehow knocks down the

[QUAD-L] About valium

I take lorezapam twice a day, 1mg tablet. This helps me somewhat, I have always been kinda scared of valium, never tried it. Are most quadstaking valium for spasms, pain or both? ron c7.about 8 yrs post

[QUAD-L] Quick poem

I found my fate on a cold day in 98. Now I have a choice to either move on or hate. Its twice the fun now to find a mate. But many people have died from 98 to now. Those dont have a chance to see a star or a cow So I guess Id call myself fortunate. Lifes all what you make it rolling or not. So ill

[QUAD-L] Appreciate your response Lori

Thanks, Sorry if I seemed a lil out of line. Pain gets my moods up and down. I knew you would have experience in the pain med situation. Its like a catch 22, you take it and have side affects, or you dont and have pain, lol. Im only about 8 years into my injury guess I have lots to learn and

[QUAD-L] Hi Lori, one question

Hi, I remember you saying you were on 50mg amytriptyline for a few years. Did this medication make you gain weight over time? Im on 50mg and notice a slight weight increase Im just trying to be proactive because weight gain is no fun for us. You are a strong woman to have rolled on for 25 yrs

[QUAD-L] Re Diane

Wow, How many mgs of it were you on? People try to tell me that medication cant make you gain weight, lol. Im taking this amytriptyline to help with syrinx nerve pain. Could you suggest any alternatives? Thanks Ron c7

[QUAD-L] Dan

Hi, Ill try to get my dad to measure the size of the bearings I used as replacements for the Guardian shower chair.Hopefully in the next few days. He works at Boeing and got them through there. If their good enough for an f-15 they will work great and do in a shower chair lol. Ron

[QUAD-L] to dan

Hi, I have a guardian shower chair with the 24 inch wheels and is stainless steel. I believe the problem with your chair is the bearings are bad where the forkstem inserts into the chair frame. I had the same problem, rust was actually running down the sides of the fork. My dad replaced the

[QUAD-L] To Dan....Majic Bullets

Hey, You can get them through Express Medical Supply 1 800 633 2139. They are the same price there and you will get them in 2 days as they are shipped from a missouri location. Another source you can use is Sportaid, they are pretty good yto deal with and same price. I prefer Express because they

[QUAD-L] Lori

Hi, You are an asset to this list, I have read every post on here for over a year and printed your information on your shunt experience. Your posts may have saved my butt from letting some neurosurgeon screw me up. In your experience with a syrinx does activity or lifting, straining etc make you

[QUAD-L] Dan

Hi, Was wondering how your infection is going?I had my problem where my cathe tube wouldnt go in, luckily it cleared up but Im keeping my wheels crossedhehe. How does that amytriptyline make u feel? Is it helping pain and sleep? I started with 10mg then 25 mg, now Im up to 50mg and it helps

[QUAD-L] intermitent catherization and insertion problems

Hi, Im a c7 quad 7 years post. I intermitent cathe{straight cathe) every 5 hrs or so. For over three weeks its been very difficult to insert tube. Once urine flow is started it looks clear not infected. Any of you guys have any suggestions.? Ive been doing the ibuprofen thing trying to help the

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