[QUAD-L] inspire surgery for sleep apnea

hi team my sleep apnea has been getting worse and being a quadrature doesn't help. Dental devices and CPAP is no longer effective-- for example I can't keep the CPAP mask on when I have bad night spasms and dysreflexia after a long battle my insurer is approve me for surgery this July 30

Re: [QUAD-L] Venous Insufficiency

todd.daughe...@gmail.com] > *Sent:* Friday, July 5, 2024 5:44 PM > *To:* Eric Olson > *Cc:* Nichole Rohling; quad-list@eskimo.com > *Subject:* Re: [QUAD-L] Venous Insufficiency > > > > I had 2 vein surgeries on both legs and still had problems. I'm c6 from > 1989, went to

RE: [QUAD-L] Venous Insufficiency

Eric, My doctor was ordering them but I haven’t heard anything from anyone. Nicki From: Eric Olson [mailto:whee...@wi.rr.com] Sent: Friday, July 5, 2024 5:21 PM To: Nichole Rohling Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Venous Insufficiency Like I said, when I was first injured

RE: [QUAD-L] Venous Insufficiency

Todd, What procedures did you have? Vein removal? Nicki From: Todd D [mailto:todd.daughe...@gmail.com] Sent: Friday, July 5, 2024 5:44 PM To: Eric Olson Cc: Nichole Rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] Venous Insufficiency I had 2 vein surgeries on both legs and still

Re: [QUAD-L] Venous Insufficiency

gt;> to propping them up in a wedge. My legs are definitely higher than >> >> my heart. >> >> >> >> Nicki >> >> >> >> *From:* Eric Olson [mailto:whee...@wi.rr.com] >> *Sent:* Friday, July 5, 2024 1:37 PM >> *To:* Nichole Rohling

Re: [QUAD-L] Venous Insufficiency

ely higher than > > my heart. > > > > Nicki > > > > *From:* Eric Olson [mailto:whee...@wi.rr.com] > *Sent:* Friday, July 5, 2024 1:37 PM > *To:* Nichole Rohling > *Subject:* Re: [QUAD-L] Venous Insufficiency > > > > The only thing I co

RE: [QUAD-L] Venous Insufficiency

My bed is adjustable and I do elevate the foot of it in addition to propping them up in a wedge. My legs are definitely higher than my heart. Nicki From: Eric Olson [mailto:whee...@wi.rr.com] Sent: Friday, July 5, 2024 1:37 PM To: Nichole Rohling Subject: Re: [QUAD-L] Venous

Re: [QUAD-L] Venous Insufficiency

rious if > anyone has had vein > > removal, laser, or radiofrequency treatment. > > > > Nicki > > > > *From:* Eric Olson [mailto:whee...@wi.rr.com] > *Sent:* Tuesday, July 2, 2024 2:34 PM > *To:* Nichole Rohling > *Cc:* quad-list@eskimo.com > *Subject:* Re: [QUA

RE: [QUAD-L] Venous Insufficiency

not sure what the doctor’s solution is going to be so I was curious if anyone has had vein removal, laser, or radiofrequency treatment. Nicki From: Eric Olson [mailto:whee...@wi.rr.com] Sent: Tuesday, July 2, 2024 2:34 PM To: Nichole Rohling Cc: quad-list@eskimo.com Subject: Re: [QUAD-L

Re: [QUAD-L] Venous Insufficiency

When able bodied people walk, the muscles in their feet and legs push fluid back to the heart. Our bodies don't do that, so fluid pools in our feet. My feet are always swollen to some degree. Compression stockings are a must. When I was in rehab, they would wrap my legs with ace bandages, but

[QUAD-L] Venous Insufficiency

Anyone else here have Chronic Venous Insufficiency of your lower legs? I'm having issues with a bulging vein, venous ulcer (hole), etc If so, what treatments have you received? Nicki C5

Re: [QUAD-L] HEMORRHOID BANDING

Years ago, I had several roids. I researched for months, tried eating different foods, and bought many products. None of them helped. I would bleed every bowel movement.I lost so much blood, I became anemic. I decided to have surgery to remove. After surgery I had issue of myblood pressure

Re: [QUAD-L] HEMORRHOID BANDING

I know I have hemorrhoids, but I can't feel them and they aren't causing any problems. So, I am not going to do anything about it On Thu, Jun 27, 2024 at 8:59 PM Paul Jacobson wrote: > Hi, I have 3 hemorrhoids, one internal and two external. > > I am considering banding the internal hemorrhoid.

[QUAD-L] HEMORRHOID BANDING

Hi, I have 3 hemorrhoids, one internal and two external. I am considering banding the internal hemorrhoid. Has anyone ever done this and what were the results? How long did your pain last and would you do it again, if need be? Thank you, Paul Jacobson c5/6 complete

[QUAD-L] Medical Supplies

Sorry for the delay of information about the medical supplies. Something has come up that has delayed me in getting this information to you. When I get it together, I will post it and I will respond to the first person who responded when I first listed it. Again, sorry for the delay. PQ

[QUAD-L] Medical supplies

I'll get that info out in a day or two. Virus-free.www.avast.com

Re: [QUAD-L] medical supplies

What is the material and size of the catheters? Get Outlook for iOS<https://aka.ms/o0ukef> From: Nichole Rohling Sent: Tuesday, May 28, 2024 11:56:02 AM To: 'Michael Galvin' ; quad-list@eskimo.com Subject: RE: [QUAD-L] medical supplies What brand l

RE: [QUAD-L] medical supplies

What brand leg bag and what tubing? From: Michael Galvin [mailto:whatsu...@gmail.com] Sent: Tuesday, May 28, 2024 9:33 AM To: quad-list@eskimo.com Subject: [QUAD-L] medical supplies I have a bunch of leg bags, tubing and catheters. If anyone is interested and willing to pay

Re: [QUAD-L] medical supplies

It depends on what brand of leg bags and extension tubes. Also, what brand and size are the catheters? On Tue, May 28, 2024 at 9:32 AM Michael Galvin wrote: > > I have a bunch of leg bags, tubing and catheters. If anyone is interested > and willing to pay for the shipping, I will send them to

[QUAD-L] medical supplies

I have a bunch of leg bags, tubing and catheters. If anyone is interested and willing to pay for the shipping, I will send them to you. PQ C5/C6 / 54 years

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

; 'Dan G.' <dng47...@gmail.com>; 'Daniel Gove' <quadz...@optonline.net>; wheel...@centurylink.net; 'Edward Tessier' <e...@artecopartners.com>Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

, April 11, 2024 11:28 AM > *To:* 'Ben Mattlin' ; 'Jeffrey Gaede' < > jsga...@yahoo.com>; quad-list@eskimo.com; 'Dan G.' ; > 'Daniel Gove' ; wheel...@centurylink.net; 'Edward > Tessier' > *Subject:* RE: [QUAD-

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

nt: Thursday, April 11, 2024 11:28 AM To: 'Ben Mattlin' ; 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/re

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

Probably right. Many thanks. From: Eric Olson Sent: Thursday, April 11, 2024 11:48 AM To: Ben Mattlin Cc: Jeffrey Gaede ; quad-list@eskimo.com; Dan G. ; Daniel Gove ; wheel...@centurylink.net; Edward Tessier Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

*Sent:* Wednesday, April 10, 2024 8:44 PM > *To:* quad-list@eskimo.com; Dan G. ; Daniel Gove < > quadz...@optonline.net>; wheel...@centurylink.net; Edward Tessier < > e...@artecopartners.com> > *Subject:* Re: [QUAD-L] > https://www.amazon.com/Orthopedic-Cushion-H

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

to you. Hope this helps. Paul From: Ben Mattlin Sent: Thursday, April 11, 2024 10:44 AM To: 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

, quad from spinal muscular atrophy) From: Jeffrey Gaede Sent: Wednesday, April 10, 2024 8:44 PM To: quad-list@eskimo.com; Dan G. ; Daniel Gove ; wheel...@centurylink.net; Edward Tessier Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

to go back to work and be more active raising my kids https://www.ridedesigns.com/wheelchair-cushionsFrom: Jeffrey Gaede Sent: Tuesday, April 9, 2024 10:33 AM To: quad-list@eskimo.com ; Dan G. ; Daniel Gove ; wheel...@centurylink.net Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

From: Jeffrey Gaede Sent: Tuesday, April 9, 2024 10:33 AM To: quad-list@eskimo.com ; Dan G. ; Daniel Gove ; wheel...@centurylink.net Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

True On Tuesday, April 9, 2024 at 10:26:34 AM PDT, wheel...@centurylink.net wrote: i bought one like this and it made me so unbalance that i could not sit on it. i am thinking of designing and making my own cushion with cutout for groin area. get really thick memory foam or other

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

i bought one like this and it made me so unbalance that i could not sit on it. i am thinking of designing and making my own cushion with cutout for groin area. get really thick memory foam or other material and cut out a hole. or use donut cushion with other material around it. there is a

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

One thing I was warned about this type of objects a long time ago was that, while you are relieving pressure to the area in the middle, the outside rings can be cutting off at least some blood flow to where you are relieving pressure. Not saying that it shouldn't be used. Just say be careful. 

[QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuyn

[QUAD-L] Automatic Leg Bag Emptier and Reservoir System

Looking for feedback from potential users of our new ALBERS Automatic Leg Bag Emptier & Reservoir System. This product follows a much earlier version that included a wand so that users could empty their leg bag into a toilet or urinal without assistance. The new system empties your leg bag

Re: [QUAD-L] Question about lockdown systems.

I have a manual chair with ez lock > On 02/19/2024 5:53 PM EST wheelch...@aol.com wrote: > > > > Greetings, > I've never seen a manual wheelchair, using a single post on an EZ Lock > System, for driving or riding. I have seen double wheel securement for > riding wheelchairs. The

Re: [QUAD-L] Question about lockdown systems.

Hi everyone! Invacare is in business again and has released a rear-wheel drive Storm model. I have one and so far it has worked well for me (I've been using it about a year now.)It's probably very different from the old Storm model, but if you're an Invacare fan it's worth looking into. Mine

Re: [QUAD-L] Question about lockdown systems.

Subject: Re: [QUAD-L] Question about lockdown systems. Thank you Nicki & EVERYONE ! All input is very much appreciated! Shelly c5-c6-c7 On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling wrote: I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any o

Re: [QUAD-L] Question about lockdown systems.

ink.net] *Sent:* Tuesday, February 20, 2024 1:11 PM *To:* wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL *Subject:* Re: [QUAD-L] Question about lockdown systems. I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have

Re: [QUAD-L] Question about lockdown systems.

ered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive   Nicki C5/6   From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] Sent: Tuesday, February 20, 2024 1:11 PM To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL Subject: Re: [QUAD-L] Question about lockdown sys

RE: [QUAD-L] Question about lockdown systems.

1:11 PM To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL Subject: Re: [QUAD-L] Question about lockdown systems. I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have invacare storm series but invacare went

Re: [QUAD-L] Question about lockdown systems.

Invacare is still in business Worldwide and continues to make some excellent electric wheelchairs.Second, Dealers should not advise you of which brand and model is best for you.  They have an agenda to sell YOU something, to make a profit.  Same as a car dealer, trying to telling YOU to buy a

Re: [QUAD-L] Question about lockdown systems.

I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have invacare storm series but invacare went bankrupt, and dealer wants me to switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for quantum chair? I

Re: [QUAD-L] Cordless phone do you all use?

Mine is a Panasonic KX-TGE23. It's an older model now, but I just searched for - Panasonic cordless phone on Best Buy and there is a bunch to choose from. Happy hunting On Mon, Feb 19, 2024 at 2:39 PM Daniel Gove wrote: > Hello Everyone, > I just have a quick question for the group. I'm

Re: [QUAD-L] Question about lockdown systems.

I have a power wheelchair and an EZ lock system in my van. The one thing I would warn about is to make sure they don't install that "single post" so low on your chair, manual or not, that it interferes with bumps, curb cuts or anything else. That's an issue I'm dealing with now.Jeff On

Re: [QUAD-L] Question about lockdown systems.

Thank you! So very much! I no longer feel so very alone! On Monday, February 19, 2024 at 05:53:18 PM EST, wheelch...@aol.com wrote: Greetings,I've never seen a manual wheelchair, using a single post on an EZ Lock System, for driving or riding.   I have seen double wheel securement

Re: [QUAD-L] Question about lockdown systems.

Greetings,I've never seen a manual wheelchair, using a single post on an EZ Lock System, for driving or riding.   I have seen double wheel securement for riding wheelchairs.  The design of an EZ lock system was designed for drivers and riders using powered chairs.  I would consider going

Re: [QUAD-L] Question about lockdown systems.

Hi Shelly, are you in the new England area? > On 02/19/2024 2:40 PM EST Shelly Kerchner wrote: > > > hi to all ! Past two years been having health issues/skin breakdown, rotator > cuff surgery, recovery, etc. so I have been absent from this group! I hope > everyone is well! > >

[QUAD-L] Cordless phone do you all use?

Hello Everyone, I just have a quick question for the group. I'm wondering what brand cordless phone you all use? I ask because I'm in the market myself and need to get one as soon as possible as both of mine are falling apart. The older they get the more difficult they are to dial! I'm

[QUAD-L] Question about lockdown systems.

hi to all ! Past two years been having health issues/skin breakdown, rotator cuff surgery, recovery, etc. so I have been absent from this group! I hope everyone is well!  Currently, I’m driving my motorized chair using the easy lock system.  I want to be able to use my manual chair and

RE: [QUAD-L] CNA rates?

- $30/hr. It seems to work. Thank you, Paul c5/6 From: Aaron Mann Sent: Monday, January 29, 2024 3:41 PM To: Eric Olson Cc: Dana ; Daniel Gove ; quad-list@eskimo.com Subject: Re: [QUAD-L] CNA rates? I know the rate that we pay our attendants can vary based on where we live, but I

Re: [QUAD-L] CNA rates?

I know the rate that we pay our attendants can vary based on where we live, but I have a hard time seeing more than $25 an hour being the top end. Especially just for basic ADLs. If you are paying $30 an hour, I sure hope your expectation of care is stellar. I mean immaculate care, always on time,

Re: [QUAD-L] CNA rates?

I agree that you are over paying for ADL'S. $30/hr is nurse pay. not CNA. I live in rural area. Agencys here pay workers $9.50/hour for part time. Other pays $14/hour. If I paid $30/hour, there would be a line of people wanting the job. You should look to hire young people just out of school. I

Re: [QUAD-L] CNA rates?

I agree. $30/hour seems awfully generous even if your cares were extensive and more complex. Doing just basic ADL'S seems like a pretty easy gig especially for that money On Sat, Jan 27, 2024 at 5:54 AM Dana wrote: > That is way above the average pay a CNA makes. They should not be asking >

Re: [QUAD-L] CNA rates?

That is way above the average pay a CNA makes. They should not be asking for a raise if so I try to find other people. That's just my opinion. It will be great to hear, what others have to say from the list. Thank you for asking pertinent questions. Dana On Thu, Jan 25, 2024 at 3:18 PM Daniel

[QUAD-L] CNA rates?

Hello everyone, A question for all on the list who use private duty CNA/Home Health Aide Care and pay for it out of pocket, how much you pay your CNA/Home health aide per hour? I have two excellent CIA's and both are complaining that they are not earning enough. Thing is, I gave them both

[QUAD-L] Subscribe

Re: [QUAD-L] sweating profusely when laying on my side at night

A lot of this sounds way too familiar for me. I would be thinking hip bones/heads of your femur pressure points or less likely your ischeal (butt) bone. You may want to have it checked out now because if it's started something inside that's yet to show itself, there may be something that can

Re: [QUAD-L] sweating profusely when laying on my side at night

Wish I could help. You could just monitor it, but if it continues, I would assume something is going on. I don't have any sweating issues so I can't really relate.Regardless, sweating is probably not a good sign. Sorry I couldn't be more helpful On Thu, Jan 11, 2024 at 10:37 PM Michelle Harkness

Re: [QUAD-L] sweating profusely when laying on my side at night

Hey Greg! I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel or UTI for me. Bowel and UTI are usually not constant though, they come and go for sweats, like when I'm actually pooping. I also use a magic bullet every other night and have been successful with it for 30

[QUAD-L] sweating profusely when laying on my side at night

Hi all. I'm a C5 quad since a diving accident in August 1987 when I was 23. I just turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this time last year. Amazingly enough I have used the same bowel program since leaving the hospital in 1988. Every other night I lay on my left side

Re: [QUAD-L] Leg Fracture - Above knee

40 years this August > -- > *From:* Edward Tessier > *Sent:* Wednesday, January 3, 2024 4:22 PM > *To:* Tod Santee ; Philip Wells < > philipdwe...@gmail.com> > *Cc:* quad-list > *Subject:* Re: [QUAD-L] Leg Fracture - Above knee > > hey Ph

Re: [QUAD-L] Leg Fracture - Above knee

sorry for my typo! I'll be a quad 40 years this August From: Edward Tessier Sent: Wednesday, January 3, 2024 4:22 PM To: Tod Santee ; Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee hey Philip and Todd, Thank you so much for posting

Re: [QUAD-L] Leg Fracture - Above knee

From: Tod Santee Sent: Wednesday, January 3, 2024 4:15 PM To: Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even with my advanced

Re: [QUAD-L] Leg Fracture - Above knee

From: Tod Santee Sent: Wednesday, January 3, 2024 4:15 PM To: Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even

Re: [QUAD-L] Leg Fracture - Above knee

Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even with my advanced osteoporosis it healed well with no bracing needed. I also had a burst fracture at L4 that was a whole different story. We thought my leg was causing autonomic

Re: [QUAD-L] PROLIA

Hi Paul, I'm also a C5/6 quad. I've been getting Prolia for the past 3 yrs and haven't felt any difference after any injections. It seems to have, at least, slowed my bone loss. My SCI was in 1983 so I'm 40 yrs into this. I started with Fosamax pills around 2000, then moved on to another

[QUAD-L] PROLIA

Getting my first PROLIA injection next week to increase bone density. Is it a good idea? What are the initial side effects? Thank you, Paul c5/6 20 yrs post

Re: [QUAD-L] BONE DENISITY

I gree, I tied some shots, they did help but would have to keep doing and they have side effects. My primary said the same. plus no weight bearing. > On 12/27/2023 3:00 PM EST Eric Olson wrote: > > > This is just my opinion, but I think you hit the nail on the head. Without > weight

Re: [QUAD-L] BONE DENISITY

This is just my opinion, but I think you hit the nail on the head. Without weight bearing, do these drugs do anything? They were not developed to be used for people that are not weight bearing, Just my 2 cents. On Wed, Dec 27, 2023 at 2:35 AM Dana wrote: > I wonder why they took me off

[QUAD-L] Leg Fracture - Above knee

Evening Disabled Community Hey a few days ago I fall from my chair, slo mo fall onto footpath. X-ray yesterday showed the break, Doctors not confident its going to heal. I have it in a brace to keep knee joint at 60 degrees. Anyone have experience of  a 40+ year vet breaking his leg ? All

Re: [QUAD-L] BONE DENISITY

I wonder why they took me off Fosamax, maybe my bone density had not improved. I don’t know if our bone density can ever improve since we aren’t able to bear weight. What do you think? Dana On Thu, Dec 14, 2023 at 8:35 AM Noel wrote: > I was diagnosed with osteoporosis about 10 years ago, high

Re: [QUAD-L] Prolia to treat osteoporosis

2023 1:42:27 PM > *To:* 'Paul Jacobson' ; 'quad-list' < > quad-list@eskimo.com> > *Subject:* RE: [QUAD-L] Prolia to treat osteoporosis > > > Yup. I've been on it for several years now. One shot every six months. > Other quads had warned me about bad side effects, but

[QUAD-L] Fwd: ICYMI: Momentum to Update SSI's Asset Limits

https://www.votervoice.net/UnitedSpinal/campaigns/107795/respond -- Forwarded message - From: United Spinal Association I know with the holiday season, travel plans, and last-minute shopping, things can get hectic for all of us. But in case you missed the email we sent

Re: [QUAD-L] BONE DENISITY

I was diagnosed with osteoporosis about 10 years ago, high risk of fracture. I've been taking Fosamax ever since. I had another bone density test a couple of months ago, to see if the Fosamax was working. She didn't give me the results of the latest bone density test, just tell me to keep taking

Re: [QUAD-L] bladder update

PMNR = Physical Medicine and Rehabilitation I'm not sure if you fully understand what a supra pubic catheter is? It's a foley catheter, inserted in the hole they make in your abdomen that sits in your bladder. There is literally an open hole in your abdomen and that is where the catheter comes

Re: [QUAD-L] BONE DENISITY

Yes I have taken for several years. I need to get a DEXA scan before I can get another injection. This is my third type of treatment for osteoporosis. I was injured at 20 and the state would not pay for a standing frame like they suggested at rehab, this caused me to get osteoporosis. I go to a

Re: [QUAD-L] bladder update

what is a PMNR doc? When you used a night bag you must have used a floley. Also, when you capped off the s pubic, did you use a reg cath to drain it intermittently? Also, where did you have these surgeries? I am in RI sorry to keep asking, it is confusing. I read online that with a supra pub

Re: [QUAD-L] bladder update

Hey Shirley, I actually capped mine off and drained it periodically - trying to sustain some bladder capacity. It was tiny though, and only could hold about 100-150 cc's before I had to empty it. I did use a night bag when sleeping to make things easier though. I would speak with your quad doc

Re: [QUAD-L] bladder update

Hi Michelle, one question, when you did supra pubic did you use a Foley catheter? you would have had to? Please let me know thanks! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from y'all, but > I tend to keep

Re: [QUAD-L] bladder update

Thank you Michelle. I don't think I would be a candidate for this because I used a foley all these yrs but I will ask. Good luck to us all on this quad journey! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from

Re: [QUAD-L] bladder update

How can you have this Mitrofinoff surgery after yrs of a folley? > On 12/12/2023 4:12 PM EST Michelle Harkness > wrote: > > > Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had > never had a surgery other than my spinal fusion, so I was not on board with >

Re: [QUAD-L] bladder update

Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had never had a surgery other than my spinal fusion, so I was not on board with signing up for anything major! I'm also on blood thinners because of blood clots/pulmonary embolism and I'm overweight, so add those two layers

Re: [QUAD-L] bladder update

I had my supra pubic done a couple decades ago and it certainly makes things easier for my care givers. I still have problems with uti's. I was thinking about the Mitrofinoff,but it is a no joke surgery. I have started doing gentamicin bladder irrigations. Gentamicin is an antibiotic. It's

Re: [QUAD-L] bladder update

Hey Shirley! I've been on this page forever and learned lots from y'all, but I tend to keep kinda quiet. Not sure what your situation is exactly, but I've been a C5-6 quad for 30 years and I had always done intermittent cathing, relying on someone else for help with it. In February of this

Re: [QUAD-L] bladder update

Thanks for the update.  The bladder, over time, for those with indwelling caths, will/can shrink to the size of a walnut, compared to what it used to be.  When you consider the size of the cath, plus the balloon, inside a walnut.  there is not much room for urine to collect and it may pass

[QUAD-L] bladder update

Hi all, well I had my cystoscopy and all he found was a shrunken bladder. That is what is causing spasms on and off and rejecting catheters on and off. Not lasting as long. They are going to change my meds to see if that helps. Botox is an option as well. 47 years of indwelling catheter use has

[QUAD-L] BONE DENISITY

Has anyone taken PROLIA for better bone density? Can you share your results and thoughts? Thank you! Paul c5/6 San Diego, CA

Re: [QUAD-L] Ileostomy

al Cleroux Subject: Re: [QUAD-L] Ileostomy   I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started cal

Re: [QUAD-L] Ileostomy

Wednesday, December 6, 2023 10:39 PM To: Eric Olson Cc: Quad List ; Val Cleroux Subject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another il

Re: [QUAD-L] Ileostomy

ubject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started calling every kid

Re: [QUAD-L] Ileostomy

Wow, what a journey Dana So glad you are still with us From: Dana Sent: Wednesday, December 6, 2023 10:39 PM To: Eric Olson Cc: Quad List ; Val Cleroux Subject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept

Re: [QUAD-L] Ileostomy

I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started calling every kidney doctor and that was able to do

Re: [QUAD-L] Ileostomy

to the procedure. if that's what's needed someday, I've made my peace with it. Ed From: Val Cleroux Sent: Monday, October 9, 2023 11:08 AM To: Quad List Subject: [QUAD-L] Ileostomy Hi everyone: I am a C3/4 quad from a motor vehicle accident in 2000. I have

Re: [QUAD-L] Prolia to treat osteoporosis

Outlook for iOS<https://aka.ms/o0ukef> From: Ben Mattlin Sent: Sunday, December 3, 2023 1:42:27 PM To: 'Paul Jacobson' ; 'quad-list' Subject: RE: [QUAD-L] Prolia to treat osteoporosis Yup. I've been on it for several years now. One shot every six months.

RE: [QUAD-L] Prolia to treat osteoporosis

: Paul Jacobson Sent: Sunday, December 3, 2023 10:28 AM To: quad-list Subject: [QUAD-L] Prolia to treat osteoporosis Hi, Has anyone ever tried Prolia or anything similar to treat osteoporosis? What were your results and concerns. Thanks, Paul c5/6

[QUAD-L] Prolia to treat osteoporosis

Hi, Has anyone ever tried Prolia or anything similar to treat osteoporosis? What were your results and concerns. Thanks, Paul c5/6

Re: [QUAD-L] PLAN F PLANS

never heard of? > On 11/30/2023 3:11 AM EST Dana wrote: > > > What is plan F, As I have never heard of before. Thank you Paul > > On Wed, Nov 29, 2023 at 5:25 PM Paul Jacobson mailto:pjacob...@san.rr.com> wrote: > > > > > Hi, it is that time of the year where I need to renew Plan F. > >

Re: [QUAD-L] PLAN F PLANS

What is plan F, As I have never heard of before. Thank you Paul On Wed, Nov 29, 2023 at 5:25 PM Paul Jacobson wrote: > Hi, it is that time of the year where I need to renew Plan F. > > Does anyone know where I can find simple cost comparisons? > > > > Thank you, > > > > Paul > > C5/6 Injured

[QUAD-L] PLAN F PLANS

Hi, it is that time of the year where I need to renew Plan F. Does anyone know where I can find simple cost comparisons? Thank you, Paul C5/6 Injured 11/05/03

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