Candis Kalley
[EMAIL PROTECTED]
EarthLink Revolves Around You.
> [Original Message]
> From: Candis Kalley <[EMAIL PROTECTED]>
> To: Kevin Wolfthal <[EMAIL PROTECTED]>; Lynn Pouliot
<[EMAIL PROTECTED]>;
> Date: 5/11/2007 1:31:28 AM
> Subject: Re: [TMIC] allodynia - Lynn
>
> Lynn and Kevin,
>
>
Lynn and Kevin,
Is it just great to not "feel" unless it feels like a thunderbolt has it
you!
I fell one night and it took 3 more falls before I realized that the "pain"
was what was making my legs give out - dah. But, this was the first time
that a fall had caused real pain and I am a little sl
BEST WISHES on the Hugo. I think you will be happy with it.
I'm sorry that you will probably have to fight the insurance company - I
know how that goes. I had to buy my Hugo because the insurance co. would
only pay for the "old" silver 2 wheel/2 slider leg walker - which is totaly
worthless if y
I started the process going today on getting a Hugo X5 rolling walker.
It's the larger model and can only be purchased directly from Hugo.
I'm trying to get my insurance to pay part of it, so it's going to
take awhile. The company Hugo referred me to that handles
the insurance process said th
Lynn,
This is one of the oddest things I've noticed with my own symptoms.
My feet are numb to the touch, I can't tell what direction my big
toe is pointing when the neurologist moves it up or down, yet, if
I stub my toe it is like I put my foot in a light socket, and I have
to catch my breath.
I have "had" tm since 1992. I have had flare ups but do get somewhat better
each time. But I can't say I am in lots of pain. And don't notice lots of
increase in pain. Now that i am on the lyrica the pain in my legs is not
too bad. I do get feelings of cold or burning sometimes but it is no
I am taking lyrica. I have been on it about 1 year and it has helped with
pain in my legs. My legs were aching and hurting all the time before
lyrica. Now they still hurt on accasion but not all the time.
Lynn in RI
- Original Message -
From: "Gunny" <[EMAIL PROTECTED]>
To:
Sent
I found one at Office Max.It is nice sized. I think it was a Souders but not
sure. Guess would need to take the wheelchair along or measure. It will not
work unless the wheelchair armrests are the lower half type(not sure how to
explain that). Office Max had a lot of desks I think would work. I am
- Original Message -
From: Heather & Pieter
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Thursday, May 10, 2007 3:27 PM
Subject: Re: [TMIC] Another Symptom
I also see a Physiatrist. I see him every 6 months since I left hospital in
fall of 2003. I have sta
TM anniversary? Hmmm, that made me think. I do believe mine is 5/15, just
several days after my son't birthday, although it started coming on about a
week or so before that. We were in the mountains of NC, had gone to see
husband's grandmother for Mother's Day, and that's when the sympto
What if we all set a date to email and/or call Oprah then Discovery Health?
Oprah has Dr. Oz on - maybe we could request that he discuss the autoimmune
diseases.
I never knew about TM or other autoimmune diseases until 01//09/2006 and I
doubt that very many people in the US alone know about a
I had 2 episodes of TM the first 1/5/06 with T10 - T12 with just the legs
affected and the second 1/31/06 with C4 to T2 affected which left me a quad
for 3 days.
With PLEX treatments, on the second episode, I was able to start moving within
30 hours, THANK GOD - I say that now but for the 3 we
Naomi,
I see my neurologist every 3 months along with my PCP. My next appt. is 6/27
for my neuro and 6/29 for my PCP. I had PT/OT in the hospital along with 6
month outpatient PT/OT.
I had 7 PLEX treatments in the hospital along with 4 over 2 month as
outpatient. I can't believe that either
My daughter was using Dr. Kerr but it sounds like the same situation. I
used to email him with questions/concerns and he would tell me what to
do. When my daughter hit a plateau in November of last year, he is the
one that put me in contact with the Kennedy Krieger Institute for
Children with Spina
I saw a neurologist regularly for about the first year -- he kept track of
my progress and answered hundreds of questions for me. But after we moved away
from the area I didn't seek out a new one because there was really no need
for me to -- though still having problems I was on a stable pl
Does everyone here on this site have a neurologist? I have only seen the
neurologist once since I let the hospital, which was in November 2005. My
healthcare is managed by my Physical Medicine and Rehabilitation
doctor(Physiatrist). Any problems that I have had since my diagnosis in July
I would love for my daughter to get to meet all of you. Unfortunately, I
am the one that emails you guys and not her b/c she is in school all
day. I would love her to meet various people, from all walks of life,
with the same type of issues that she has.
Tracey L. Black
Certified Insurance Servic
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