LARRY, YOU SHOULD OF HAD FOLLOW UP APPOINTMENTS WITH A NEURO OR A
NEUROLOGIST.
IF NOTHING HAS CHANGED IN 2 YEARS I SEE NO REASON FOR A SPINAL TAP.
YOUR DOCTOR IS JUST COVERING ALL HIS BASES. I HAD ONE 3 MONTHS AGO , I HAVE
HAD MANY. I FELT NOTHING. THEY INJECT THE AREA WHERE THEY WILL GO IN SO
The frequent return trips most likely is related to the age of your Neuro. If he/she is young, it's student loans, building a new practice, house payments ect If he/she is older it's most likely college fund for theirs, alimoney payments a new BMW, country club dues ect
Larry in Oklahoma
Gary,
I am pretty much in the same boat as you. I was diagnosed with TM July
2005. At that time, I had spinal taps and plasmapheresis. I stayed in the
hospital for four months for rehabilitation. Since I've left the hospital, I
have
not seen a neurologist. I do not have a regular
Larry in Oklahoma, you are one crazy guy.
Naomi
C-4 quad, incomplete since July 2, 2005
** See what's free at http://www.aol.com.
HI, I had been seing a neurologist - in New York- about every 3-6 mos.
since I was hit with TM (Labor Day Weekend 2005) - still a question of my
diagnosis. I have no idea why I go because he looks at me and says what's
doing.
Tests the strength of my legs, watch me try to walk with a
I was diagnosed with TM five yrs. ago. When I went over to Medicare I had to
get all new doctors.. My new neuro decided it was MS. So he did a spinal tap
(thankfully, he's very good at it) but I did have to lay there for two hours
afterwards so bring some tapes!! The spinal tap was no more
Rosalie,
I was diagnosed with TM fourth of July weekend, 2005. As I said in my
e-mail, I saw the neurologist while I was in the hospital. I think I hit one
visit, while I was in the nursing facility, and like you said, he checked the
strength in my arms and legs, and told me the same
Gary,
I'm no expert here but this sounds concerning to me. It was my impression that
the spinal tap they did in the ER was to establish if there was a viral cause
of the TM (or was it bacterial? - sorry I always get the 2 confused). They
even put me on meds just in case and sent the sample
Sally,
I think I agree with your statement
Unless you feel like you're having another attack, it seems to me that the
original 'attack' of TM is long past and you're just dealing with the aftermath
of the attack and treatment meds, like most of us.
I think my neuro's idea is that if the
Here's what I can't figure out. I have symptoms of TM and MS. The
doctor thinks it's TM only because they don't see any lesions on my
brain or spine. BUT...when they did the spinal tap, the only thing they
found was that the myelin protein level was raised. Which should show
that there is a
I HAVE HAD A FEW. WHEN I HAVE A FLARE UP OR MY LEGS STOP MOVING FOR A DAY OR
TWO THEY WILL DO ONE. THEY DO THE MRIS AND ALL THE TESTS THEY NEED TO DO.
THE TAP DOES NOT HURT AT ALL. YOU JUST HAVE TO LAY STILL FOR HOURS AFTER OR
YOU COULD GET A HORRIBLE HEADACHE.MY TESTS ALL CAME BACK LIKE THEY
Pam,
What is the difference between a neuro, and a neurologist? I thought neuro
was short for neurologist. The only issues that I have had that need
attending to, are a lingering side affects of TM. Either my primary care
physician
or my physical medicine and rehab doctor takes care
Sally,
You are so, so right. I did not get my plasma exchange until arriving at a
second hospital, eight days later. I think that time difference makes the
difference between walking and paralyze. Not until I received the exchange,
that I get any movement back. I am still classified
I was in the bed for almost a week after my spinal tap. No one told me
it is VERY helpful to drink caffeine. So, I got a 2 litre Mountain Dew
and drank a glass full every couple of hours. I was feeling good enough
to sit up within about 4 hours. Drink LOTS of caffeine after the spinal
tap and
Before recently changing physicians it had been five years, since the onset
of my TM since I had seen a Neurologist. My new doc found that unacceptable
and immediately set me up with one at our local hospital. Now, I am seeing
the neuro for a second appt. in three months.
It only takes
Naomi, I was told by one neurologist that it takes a year to to see where
you are at and that is probably where you will stay. I am in a wheel chair
although I can drag myself around with a walker. I can walk with it but
cannot
stand on my own so that when I get anywhere in my house I
Jude,
Medical information that was given to me, states that plasma exchange should
be done within the first 48 hours. The sooner, the better. Although some
information states, it can be done as late as 20 days later. So in your case,
I wouldn't expect a great improvement, but with this
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