Re: [TMIC] Traveling with TM

2008-03-28 Thread Balmatmic
Hi Heather, I absolutely agree. I give the airline all the information I can that will help me, from the time that I will get to the airport until the time that I will get off of the plane. I travel with my own manual wheelchair, as I generally cannot walk more than a block with my

Re: [TMIC] Traveling with TM

2008-03-28 Thread Balmatmic
Yikes Cindy, You certainly wouldn't want to crawl on the airlines floor! You've got very good suggestions for people! Sorry to copy what you had written, I hadn't realized that so much had been added in the short time I had been off the list tonight. Wow. This list has been jumping.

[TMIC] Air Travel

2008-03-28 Thread Bgunny7682
I remeber the first sympoium I went to in Seattle. I had to fly out of Cleveland. It seems when I got the wheel chair to the door of the plane, a sweet youg thing, stewardessI guess, or flight attendant, whichever you prefer lloked at me straight in eyes. She said, I have a very simple

Re: [TMIC] Air Travel

2008-03-28 Thread Sandy Heidel
Again...A YouTube video would help a lot. Sandy - Original Message - From: [EMAIL PROTECTED] To: Tmic-list@eskimo.com Sent: Friday, March 28, 2008 10:21 AM Subject: [TMIC] Air Travel I remeber the first sympoium I went to in Seattle. I had to fly out of Cleveland. It

Re: [TMIC] Fluid retention

2008-03-28 Thread [EMAIL PROTECTED]
I'd be so light-headed after hanging upside down I'd have to lay down the rest of the day. Are you harnessed in or what? How the heck do you hang upside down?? I get in this Tilt machine, close an ankle lock around my ankles (foam lined steel; then I raise my arms to my chest and my

Re: [TMIC] Traveling with TM

2008-03-28 Thread Akua
Thanks for your affirming reply. I've already had friends fundraise when this ordeal began--- I had just begun a new job, was in another city, had no money. Then friends fundraised again and a grant to return home and rehab my house. I am awaiting medicare--- kicks in after two years on

Re: [TMIC] Air Travel

2008-03-28 Thread Heather Pieter
I ditto that Sandy. - Original Message - From: Sandy Heidel To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Friday, March 28, 2008 9:34 AM Subject: Re: [TMIC] Air Travel Again...A YouTube video would help a lot. Sandy - Original Message - From: [EMAIL

[TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

2008-03-28 Thread MontzMagic
WELL ITS NOT THE NEWS WE WANT TO HEAR.THE STAPH AND MSRA HAS WENT TO HER BLOODSTREAM.THIS HAPPENED A FEW DAYS AGO. THEY TOLD HER THEY HAD NO IDEA WHAT ANTIBIOTIC TO USE. SHE TOLD THEM SHE DID NOT WANT TO DIE IN THE HOME. SHE WOULD GO HOME WITH HOSPICE. I COULD BARELY TALK FROM FEAR OF CRYING.

Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

2008-03-28 Thread Westgold
This is appalling. I told you guys last month that you have to contact the ombudsman of the place where she is, they all have them. I know that one person called, but you need to call again. You need to call everyday! The ombudsman's job is make sure that things like this don't happen to

Re: [TMIC] Re: Sweating

2008-03-28 Thread LinLeftwi
HI LYNN, USUALLY A VIRUS CAN LAY DORMANT IN YOUR SYSTEM FOR MANY YEARS AND SOMETHING CAN CAUSE IT TO BECOME ACTIVE AGAIN. I'M NOT SAYING THAT MONO CAUSED TM, BUT I AM TRYING TO FIND OUT THINGS THAT WE ALL HAVE IN COMMON. ONE OF MY FRIENDS HAS SACOIDOSIS AND IS RECOVERING NOW. SHE

RE: [TMIC] UNBELIEVABLE!

2008-03-28 Thread jrushton
...but we sure as heck won't give up, will we??? j ---Original Message--- From: Robert Pall Date: 3/28/2008 6:42:19 AM To: jrushton Subject: RE: [TMIC] UNBELIEVABLE! Jeanne: Dr Kerr told me as well that stem cells was the only cure. The problem is that the first people in the

Re: [TMIC] Fluid retention

2008-03-28 Thread jrushton
Hey, that would probably work way better than my suggestion!! You are too funny, Gunny! j ---Original Message--- From: [EMAIL PROTECTED] Date: 3/28/2008 10:13:43 AM To: [EMAIL PROTECTED] Subject: Re: [TMIC] Fluid retention I learned early on the grab the sock with my teeth, pull

Re: [TMIC] Fluid retention

2008-03-28 Thread jrushton
Frank, they advertise this on TV for back pain which a good lot of us have. Some of us who have gotten to the point where we can walk but drag a foot, it throws our balance off and then our backs as any of us who have gone to a chiropractor will find out. Do you think it would help make a short

[TMIC] Jude's Hospital (for all)

2008-03-28 Thread Lawrence King
I found this on Jude's hospitals web site: If you have a quality or patient safety concern, please contact your physician, nurse, nurse manager, or another member of your healthcare team who will work with you to resolve your concern. If you feel the issue is not resolved, call the Genesys

[TMIC] on Jude's behalf (for all)

2008-03-28 Thread Lawrence King
Michigan Department of Community Health Any person may file a complaint about a health facility with the Michigan Department of Community Health, Bureau of Health Systems, Division of Operations, Complaint Investigations Unit, P.O. Box 30664, Lansing, Michigan 48909. If you need assistance or

[TMIC] Jude's info

2008-03-28 Thread Lawrence King
It's: Judy Hoops Room 4159 Genesys Health System One Genesys Parkway Grand Blanc, MI 48439 Mindy the Artist