Hi Candy,
I watched it last night. Very interesting and hopeful info. I am not
wanting to live to be 100, but it would be nice to get rid of the TM! It
sounds like they can do a lot, but still in experimental stage.
DID ANYONE SEE THAT SHOW? I DO NOT WATCH HIM UNLESS ITS VERY IMPORTANT TO ME.
IT WAS ABOUT THE BUG THEY CALL IT.
ITS REALLY ABOUT MSRA AND STAPH.THEY SAID THAT NOW MORE PEOPLE WILL DIE FROM
THIS THAN AIDS.
THEY HAVE CLOSED SCHOOLS DOWN AND HAVE TRIED TO STERILIZE THEM.SO MANY
CHILDREN ARE
I am not sure where you are anyone has the idea that we have weak immune
systems. If anything our immune systems where working TO well because my
doctor
told me that the lesion in my cord was caused by a foreign body/virus that
was attacked violently in by spinal cord by my immune system.
*Hi Gaylon,*
*In my case---Devic's NMO---I do, in fact have an extremely weak immune
system. Because my immune system continued to attack my spinal cord and
optic nerves, it became necessary to *shut it down*. Right now, it is
depleted by chemo. Even something so trivial as a cold has the
It is funny after having TM for more than 10 years I still don't
truly understand it. Do we have weak immune systems or did we merely
have an episode in which our immune system did not work properly...a one
time (for many of us) thing?
Rob in New Jersey
Rob, we get so many different theories from so many doctors and neurologists
The answer I've gotten more than any is that it is a one time episode(in
most cases) BUT we each have to relearn so much because the lesion in our
spinal cord blocks what used to run freely from our brain. We have to
Funny how one persons good news is another prsons bad. Whereas
Jeanne is excited (rightfully so) that she can feel temperature...I am
upset that my left leg that has never in 10 years felt temperature is
now freezing or burning...I am not sure how to describe it other than
lousy!
Rob in
Me, too!! It seems my immune system is stronger and each time the flu or
colds go around I might seem to 'start' it but my body seems to fight it
off! I have been really healthy as far as flu and colds! I was just
thinking of that very thing during the flu and cold season last Fall! Good
point
I've been grieving, so was behind on Jude's trials.
I am willing and able to call.
I can be articulate and polite while irate
and express my concern and their need
to improve, reform, make immediate amends.
However, the last e-mail I read is saying not to call or
write?
Please clarify.
I was
From: GAYLON123
To: Bgunny7682
Sent: 4/2/2008 4:18:12 P.M. Eastern Daylight Time
Subj: Re: [TMIC] DR. PHIL SHOW YESTERDAY!
If this would be the diag. then I see it as: The immune system simply
Malfunctioned and put
Terry's immune system has improved over the past few years. Initially after
TM, he would get a cold which would last several weeks, as well as
bronchitis for 3 mos. We were very careful as to who he was exposed to. Now,
I am
catching everything that goes around, and his effects are
I was told the reason I don't get sick is because of the immune system is
way high...I haven't been sick but twice in my life.
Debi Wall
T4 incomplete
Spastic Paraplegic
---Original Message---
From: jrushton
Date: 4/2/2008 10:50:00 AM
To: Robert Pall; tmic-list@eskimo.com
Subject:
I HAVEN'T BEEN SICK ALL THAT MUCH EITHER SINCE TM HIT. MY SYSTEM'S ONE
WEAKNESS IS SINUS INFECTIONS. I BELIEVE THAT IS WHAT INITIALLY CAUSED ALL THE
PROBLEMS. I THINK I TOLD YOU I HAD A ROUGH 2 MONTHS AND WHEN I HAD AN MRI
DONE, SINUS INFECTION WAS BACK AFTER 5 YEARS. A WEEK AFTER
Interesting. Other than the virus I had 3 wks prior to TM I was rather healthy
other than occasional minor colds. I did get another virus about 4 wks ago
than landed me on the couch for about 3 days. Rita
bradebi [EMAIL PROTECTED] wrote:
I was told the reason I don't get sick is
You are in my thoughts and in my little prayer pot, Gerry, and I know God
will give you strength to get through this. The hardest part is letting go
so he can take over..
Jeanne
---Original Message---
From: Gerry Surette
Date: 4/2/2008 4:52:52 PM
To: [EMAIL PROTECTED]
Subject:
I got sick while in the hospital and nursing home.
I KNOW that in one case it was because the hordes of people
and children visiting a matriarch ( up to 30 holding a prayer meeting)
brought germs. In another case, it was sick aides. I told her/them
that the clipboard that she sneezed on and laid
I ditto your sentiments Rob. Same Same for me.
Heather in Calgary
- Original Message -
From: Robert Pall [EMAIL PROTECTED]
To: Akua [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Wednesday, April 02, 2008 11:45 AM
Subject: RE: [TMIC] queston
Funny how one persons good news is another
I was visiting Jude when the PA for the infectious disease doctor checked on
her last Friday. He told her that she would be on antibiotics for at least six
weeks and they were using vancomycin, but would likely combine it with others
depending on her cultures. The term osteomyelitis was used
You just made me laugh right out loud! Thanks for the chuckle!
Patti - Michigan
[EMAIL PROTECTED] wrote:
OH MY GOD!!
I SENT OUT THAT REPLY TOO EARLY THIS MORNING! I WAS 6 POUNDS, NOT
16. SORRY!!!
LINDA IN PA
I take 10mg Baclofen every 6 hours and wouldn't want to be without it. Stay on
as low dose as possible and build up graqduallt if possible. You might
experience additional fatigue in the beginning, but the fatigue is worth the
relief from the muscle pain.
Patti - Michigan
[EMAIL
Jude isn't in isolation, however she is in a private room. I wasn't required
to wear protective clothing and neither did any of the hospital staff. I asked
her RN the first day and was told it is spread by touch not by breathing. That
is why it is importand to keep our own cuts covered. I
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