Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Linda Egli
I took the 4AP for about 4months - did help alittle with the fatigue, but the side effects were extreme muscle weakness. I was about to no longer be able to walk so I stopped it & about 2 weeks later my muscles were much better. Linda E. - Original Message From: sal r <[EMAIL PROTECTE

[TMIC] Re: Diet Soda

2008-05-10 Thread Akua
Hmmm, nice reminder but old news. My parents never let us drink soda, except ginger ale when we were ill I am so grateful to them and my grandparents for their whole foods, real food approach. I stopped drinking soda over 30 years ago, except for the occasional nostalgia comfort of ginger ale

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Akua
Thanks for the affirmation,Jenna! And thank you for mentioning Ambien CR! My best friend has sleep difficulties and I will mention this as something she can explore. Congrats on being down to just one RX! that's the ticket! Best to you, Akua Hi Akua, I have to agree with you. I read what y

[TMIC] Memory Loss and DEtrol

2008-05-10 Thread Akua
This bothers me a lot Trudy!!! My dad had Alzheimer's and after my experience in the nursing home and hospital with TM where i documented months of daily mis-doses (!!) i MUST keep my few wits about me. I saw and heard a lovely elderly woman get undone. She had back surgery and was given a d

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Jenna
Hi Akua, I have to agree with you.  I read what you write all the time and you are very hopeful.  I am also.  I know that you have to find what works for you.  I have done that also.  The only RX I take is Ambien CR.  I have had sleep problems most of my life.  But once TM hit in 2000 things got

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread pjv1234
I saw a news clip a few weeks ago regarding memory loss and bladder control meds. It refers to "older" patients, however, my worse loss of memory time with TM was also during the time I was taking Detrol LA. It might have been a coincidence, but the FDA is making the makers add memory loss to

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Akua
So, my dear Akua, I must ask of you, what is the meaning of your email? I am getting mixed messages. Are you filled with hope or dispare? Hope, Jude. Hope is my middle name. As I wrote there is something that can be done. What was mixed about my message? Though I know that my solutions ar

RE: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Akua
What's wrong with me? Fatigue is a 10 most of the time. Chronic fatigue is truly a handicap. I I honestly feel that it's because we both know that there is nothing that can be done for me. That we're both waisting our time. . There is something that can be done! I'm sure of

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Linda Egli
Regina. Have you tried Amantadine? I had terrible fatigue for 31/2 years & tried Provigil & 4AP without sucess. only side effects as bad as the fatigue. I started Amantadine the end of December & noticed a marked improvement in 2 days & now generally no fatigue unless I am really stressed & p

[TMIC] Fatigue

2008-05-10 Thread Cindy McLeroy
I just read several notes discussing the fatigue some folks have and how using the walkers, canes and such still makes it difficult to get around. I realize that to a lot a people walking is very important, BUT...have any of you thought of getting the small 4 wheeled scooters? They are light,

Re: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Trudy Ogilvie
Regina,I have been exactly where you are now what a bummer. I too am going to the "top" neuro in the area, but he no longer has time for me. In fact I came in for an appointment and it wasn't with him anymore my year was up and the diagnosis was TM/MS so now I am with his Nurse Practioner... Sh

[TMIC] Fwd: (no subject)

2008-05-10 Thread PGE231
**Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) --- Begin Message --- This was sent to me and I wanted to pass it on. Subject: Nutra-sweet/Subject: Nutra-sweet/ > > > Hi

RE: [TMIC] Dr's visit, just a follow up

2008-05-10 Thread Gerry Surette
Regina; I take baclofin for spasticity I can not walk without it. re fatigue; it is a side effect of your medication you are taking; I found that out the hard way. I asked my pharmacist to list all the side effects of the medication I was taking. lo and behold three of the8 I take have fatuque a