Hi Tobe,
Nice to see you.
Some of the doctors think some other inflammatory process is causing my
hand problems, which
started about 15 years after the onset of TM. So I don't know.
Re: the cost, wow! Sorry it didn't help you.:(
Take care,
Kevin
T Kanon wrote:
Kevin, I had the IVIG tr
Does IVIG reduce inflammation? I think a doctor wants to try it on me,
but they
want me to have a nerve biopsy first and I don't want to because I've
read that
a nerve biopsy can cause permanent numbness in the biopsy site, and I don't
want or need any more numbness. However, I may get despe
RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5
days. There is no reason to have it more often UNLESS you have a recurring
autoimmune disorder, ie: if your TM is recurring. No point if you had ONE
attack many years ago, it would not change anything now.
I got some mov
Thank you, Carol and Jim! What a nice note you wrote!
We, too, have an old converted theater in our little town which is
beautiful! There are current movies shown and all that work there are
volunteers. They also have the most wonderful plays I've ever seen and
those are put on using our own to
Good Girl, Gilly Jeanne in Dayton
---Original Message---
From: Jan Hargrove
Date: 1/11/2009 12:02:14 PM
To: TM list; Gillian Clark
Subject: Re: [TMIC] Don't Worry About Me
Good for you, Gilly!! You said it like an experienced tmer!! It's tough,
but we've got to speak out to
Oh, Cheryl, you are so right. Thank you for sharing. Jeanne in Dayton
---Original Message---
From: rn11...@yahoo.com
Date: 1/11/2009 12:10:35 PM
To: tmic-list@eskimo.com
Subject: [TMIC] posting to the list
Hi Everyone,
I guess I didn't get the email that upset some members.
I l
Gerry, this is one of the most beautifully put e-mail I've ever read and it
is so clear that it comes from the heart. I couldn't agree with you more in
all that you say. I've been gone awhile and don't know what has happened
but I truly hope that it isn't serious enough that we lost some of our
w
yes I have had that treatment twice; having had ItP this procedure helped
raise my white blood cell count. It didn't help me otherwise; the treament
last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to
the hospital to have the trreatments my hemotologist recemmended I have
Did anyone get a chance to read the Washington Post article I sent out. A
young teenager was given intravenous immune globulin." at Children's
hospital after he was diagnosed with Transverse Myelitis, when the steroids
didn't work. Two weeks later he walked out and has made the basketball team
at h
Hi Everyone,
I guess I didn't get the email that upset some members.
I live by the old saying "If you can't say something good,don't say anything
at all."It keeps me from saying something that can hurt the feelings of another
person.
Sometimes it is very hard not to post a comment,but I'd
Good for you, Gilly!! You said it like an experienced tmer!! It's tough, but
we've got to speak out to beat the tm away from "our doors"!!! Everyone fights
this thing in his/her own way, but getting to share it with those who really
know where we're coming from is our salvation!!
janh, tmer
Who can tell me if this still sounds like a Transverse Myelitis Diagnosis? My
right leg including up to my waist, was originally affected at the onset of my
illness in June 2005. I had hyper reflex in that leg and the left leg was
normal. I now have numbness in the left leg and hyper reflex.
I just read Jude's email to all of us. You Jude are the reason why I joined
the list your words and thoughts of what you and many of us are going
through with TM is not only an inspiration but an encouragement for those of
us who feel sometimes that tm is more than we can bear. If I were with yo
Gerry and all..
I've attached a screen shot of the website with a little note on where to enter
your chat message.
Once you enter your chat message you just hit your Enter key and it will post
your message.
The one thing to remember though...is to look and see who all is signed on. If
you are th
This is only for those of you that give a damn.
In an effort to write of things regarding the
topic of Transverse Myelitis I thought some of
you might find what I am going through to be
somewhat interesting. If not, delete this email
now, because that's what this is about.
You
15 matches
Mail list logo
