RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5 days. There is no reason to have it more often UNLESS you have a recurring autoimmune disorder, ie: if your TM is recurring. No point if you had ONE attack many years ago, it would not change anything now. I got some movement back following the IVIG, but no one knows if it was due to that or the steroids or.... Marieke RN TM @T1 since March 2004
Date: Sun, 11 Jan 2009 14:28:43 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #20 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 20 Today's Topics: [TMIC] Washington Post article/Intra [ "Trudy Ogilvie" <mother...@gmail.co ] RE: [TMIC] Washington Post article/I [ "Gerry Surette" <suret...@sympatico ] --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 13:16:24 -0500 From: mother...@gmail.com To: snow121...@hotmail.com CC: tmic-list@eskimo.com Subject: [TMIC] Washington Post article/Intravenous immune globulin Did anyone get a chance to read the Washington Post article I sent out. A young teenager was given intravenous immune globulin." at Children's hospital after he was diagnosed with Transverse Myelitis, when the steroids didn't work. Two weeks later he walked out and has made the basketball team at his college. I asked my neuro about this and she said that it was too late for me, but if I insisted she would help me work with Medicare (they really give you a hard time!) to give it a try. Tho she said I would have to have these infusions every 8 weeks or so for the rest of my life? She did say that she doubted very much that it would help at all..... Has anyone here ever had these infusions...?? Carol I was wondering if you could talk to your neuro? Just a thought! Also I use the same quote as you but it's only on my Hotmail account.. It was nice to see it again! Trudy --Forwarded Message Attachment-- Date: Sun, 11 Jan 2009 15:47:55 -0500 From: suret...@sympatico.ca To: mother...@gmail.com CC: tmic-list@eskimo.com Subject: RE: [TMIC] Washington Post article/Intravenous immune globulin yes I have had that treatment twice; having had ItP this procedure helped raise my white blood cell count. It didn't help me otherwise; the treament last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to the hospital to have the trreatments my hemotologist recemmended I have someone with me on my way home. Scince the "bag" is keept cold prior to use they usually cover you up with a blanket. otherwise I had no side effects. the nurse who gave me the treatment was gorgeous so the day went by fast >From: "Trudy Ogilvie" <mother...@gmail.com> >To: "C E" <snow121...@hotmail.com> >CC: tmic-list@eskimo.com >Subject: [TMIC] Washington Post article/Intravenous immune globulin >Date: Sun, 11 Jan 2009 13:16:24 -0500 > >Did anyone get a chance to read the Washington Post article I sent out. A >young teenager was given intravenous immune globulin." at Children's >hospital after he was diagnosed with Transverse Myelitis, when the steroids >didn't work. Two weeks later he walked out and has made the basketball team >at his college. I asked my neuro about this and she said that it was too >late for me, but if I insisted she would help me work with Medicare (they >really give you a hard time!) to give it a try. Tho she said I would have >to >have these infusions every 8 weeks or so for the rest of my life? She did >say that she doubted very much that it would help at all..... Has anyone >here ever had these infusions...?? > >Carol I was wondering if you could talk to your neuro? Just a thought! > >Also I use the same quote as you but it's only on my Hotmail account.. It >was nice to see it again! >Trudy _________________________________________________________________ Keep in touch and up to date with friends and family. Make the connection now. http://www.microsoft.com/windows/windowslive/
