JaniceIt's incredible what a difference a really good therapist can do for
you! My new therapist has definitely made a difference in my walking and my
attitude. I had pretty much given up after 7yrs. of any real improvement.
The big BUT is you have to do your exercises faithfully every day. I
Yes, that's one of my continuing problems. My balance is worse when
standing still (even with eyes open) than walking, though I sometimes lose
balance while walking, too.
When I was taking physical therapy, my PT had a name for that, but I don't
remember what it was. She had me stand on a
I HAVE PROBLEMS WITH BALANCE ALSO. EXERCISE IS THE KEY. I HAVE BEEN
WORKING MY PART-TIME HOURS FOR THE PAST 2 MONTHS WHICH REQUIRES A LOT OF
GETTING UP AND WALKING AROUND. SINCE MY WORK AREA IS SMALL I HAVE TAKEN TO
PARKING MY WALKER AND WALKING ALONG DESK AND COUNTERS. SINCE DOING THAT I
HAVE
Trudy,
The font size is just fine with me. I can read it much better than some
others. I have found that with TM my vision sometimes blurs on me etc. Not
like in the beginning 5 1/2 yrs ago when I couldn't even read a page in a
magazine. However, once in a while I read the computer and end
Barbara,
I find the same thing. I was especially happy one day when I realized that I
could close my eyes in the shower when washing my hair. It doesn't 'always'
work as I do find myself closing my eyes but tend to keep the tip of my elbow
against the wall of the shower.the balance thing
Heather Barbara,I use a chair in the shower. I do not feel safe standing
in a shower.. My therapist also
recommended wearing ankle weights around the house. They definitely make you
aware of where your feet are most of the time. She has used the word
propreoception many times and I asked her can
Proprepceptionyep, that is the word the therapist used with me too.
However, I had the hardest time trying to figure out what she meant. I could
not figure out where my feet were unless I was looking at them or they had a
mirror in front of me and I was trying to move one foot then
If I can be regular on exercising, you can too. If you start giving up on
them, email me. I will kick your butt and you can do
likewise with me!Also, tried standing with my eyes shut - I
finally found something I can do, you will too eventually
because of all the exercising
Thank you.You are right about the exercise. I have never liked exercise
except for water aerobics, but now I have too
much at stake to not do it - we all do.I don't get dizzy standing, but my
legs start to give out. Hate TM.Janice
- Original Message -
From:
Heather,
As well as you are doing, I think you should try a week or so of targeted
exercise and see what happens. I am surprised
how much stronger my legs are. Just a thought.
We are having a long winter/spring here in Missouri. Several things pop out
and bloom and then we have a few
Barb, I am exactly the same way with balance. I didn't realize it until I
read what you said. I always touch something when
standing, etc. Doesn't take much, but I seem to need it too.Janice
- Original Message -
From: jharpe...@aol.com
To: mother...@gmail.com ;
So funny! I also find I am so much better at home but going anywhere at
all, I lose my confidence. At home I can whip around like a
who-da-thunk-it!!! Jeanne
---Original Message---
From: Janice
Date: 4/14/2009 7:21:39 PM
To: Trudy Ogilvie
Cc: transverse myelitis
Subject: Re: [TMIC]
IOh yes, right with you ladies on all of that. I always touch something when
I'm standing too, Janice. And Barb, for heavens sake. How in the world could
you stand on a pillow with your eyes closed and lean in any direction. You are
one brave woman. I also cannot close my eyes and have any
I think that this is something that most of us suffer from at some point during
our TM lives, skin sensitivity against fabric, and it's the worst when we are
trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T 8-10,
6/1/99), and I have
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