[TMIC] New Medications

2009-09-03 Thread Robert Pall
Readers of my postings will remember that I saw Dr Kerr in July and we decided to wean myself off of 2 of my medications. The first one I went off of was 4-Aminopyridine (a Potassium channel blocker) and the second med is Lyrica. Anyway I did not notice any change in my banding going off

Re: [TMIC] New Medications

2009-09-03 Thread Grace M.
*Hi Robert, * ** *I took 60 mgs of Cymbalta per day for about two years. It didn't really help with the banding, pain, or sensory symptoms, but it was great for depression. I didn't have any side effects.* ** *Gracie*

RE: [TMIC] Digital

2009-09-03 Thread Patricia Cooley
HEY JUDE I LIKE THE NEW NAME. IT SAYS IT ALL. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, September 02, 2009 11:20 PM To: cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Digital Or, how about the TMBM ASS.? LOL,

RE: [TMIC] Swine flu vaccine

2009-09-03 Thread Patricia Cooley
JUDE I THINK EVERYONE, WITH THEIR DOCTOR, WILL HAVE TO MAKE THEIR OWN DECISION ON FLU SHOTS. IT’S TOO BAD WE CAN’T GET DEFINITE INFORMATION, BUT THEN AGAIN EVERYONE IS DIFFERENT AND HAS DIFFERENT PROBLEMS WITH TM. I BELIEVE MY DAUGHTER WILL HAVE HER TWO GIRLS GET THE SHOT AFTER SHE TALKS TO

Re: [TMIC] New Medications

2009-09-03 Thread kimr1999
Same here, I could NOT take Lyrica and Cymbalta at the same time.. just Lyrcia alone made me loopy, and lathargic, From: Grace M. grace...@gmail.com To: Robert Pall rp...@neillsupply.com Cc: tmic-list@eskimo.com Sent: Thursday, September 3, 2009 9:58:46 AM

[TMIC] Need info---does anyone have a port?

2009-09-03 Thread Grace M.
*Hi Guys, * ** *My infusion nurse discussed the possibility of having a port inserted for my Rituximab infusions. Does anyone here have one, and if so, what has your experience been? My veins are a really hard stick and blow easily. I've read about using a port, and it sounds quite innocuous

Re: [TMIC] New Medications

2009-09-03 Thread Lawrence King
I was on both Lyrica and 40 mg Cymbalta, I found that Cymbalta helped with the pain though I don't suffer from banding so I can't speak to that. It also helped with my anger and depression. As for side effects it made me want to sleep 16 hrs a day and I had difficulty multi-tracking my

Re: [TMIC] Swine flu vaccine

2009-09-03 Thread ROSEOFRENO
Hi Cheryl ~ To answer your question.I would have asked that nurse what TM was I guess it would have depended on her answer at the time. If she had told me it was a paralyzing eventthen my answer would be, No way do I want the shot. Bill and I were discussing all of these

Re: [TMIC] New Medications

2009-09-03 Thread jrushton
I take both, Rob, and the Cymbalta does help with the pain. The Lyrica 75mg 8AM and noon, I take with Tramadol and together they really help with taking the bad edge of the pain away. I tried taking something different than Cymbalta because it is so horribly expensive $150+/month but it didn't

[TMIC] BMer's Club and new medication

2009-09-03 Thread anndillon
I note no one has said anything about being treasurer?? I will be glad to serve as same.? Please send dues to me. Rob I tried Cymbalta and the only effect it had on me was I could not pee.? Decided I sitll had to put up with the banding. Ann in Virginia

[TMIC] Gunny's book

2009-09-03 Thread Alton Ryder
1 The newcomers may not be aware that Gunny, aka Richard Boyle, is the author of Living With Spinal Cord Injury. 2 Gunny, how well did that book sell? Alton

Re: [TMIC] Swine flu vaccine

2009-09-03 Thread Akua
I was hit by the episode of TM in October 2005 Me too--- and then again in December leaving me paralyzed the FIRST question they asked was if I had a flu shot. The only repeated questions were about the flu shot. I too, was deemed idiopathic but I too am nervous about getting a flu shot

Re: [TMIC] Swine flu vaccine

2009-09-03 Thread fr...@franksheldon.com
is there a half dead virus in the swine flu vaccine..? Lynn, I've never thought of IT that way...a half dead virus. Something like a Zombi movie, night of the LIVING DEAD. What does a Half dead virus look like ? Is it like being Partially Pregnant?? I think it's against the law to

[TMIC] spousal support

2009-09-03 Thread Alton Ryder
I stumbled upon this old note, posted to the list a decade ago, and decided to post it again. Subject: spousal support Date: Mon, 29 Mar 1999 I'm ready to carve a piece of granite with my fingernails or do something else as difficult to show my appreciation for my wife. I have before stated

[TMIC] Update on Mike

2009-09-03 Thread Jill Hammond
Well, everyone, here is your first update. Before I begin, however, I would like to thank all of you who have kept me and my family in your prayers, it means a lot. Don't stop, though, as the next 7 weeks or so are going to be a little rough. I especially want to thank my family, without their

Re: [TMIC] Update on Mike

2009-09-03 Thread Barbara H.
Thanks for the update, Mike. I am so very sorry you have to go through all of this. I will be praying for you and your family. Barbara H. On Thu, Sep 3, 2009 at 7:40 PM, Jill Hammond 3jmhamm...@clearwire.netwrote: Well, everyone, here is your first update. Before I begin, however, I would

Re: [TMIC] Update on Mike

2009-09-03 Thread jrushton
Bless your hearts, Mike and Jill.. We will all be holding you in our hearts, minds, and prayers. I wish we could be close to help you with other things...Jeanne ---Original Message--- From: Jill Hammond Date: 9/3/2009 6:47:19 PM To: tmic-list@eskimo.com Subject: [TMIC] Update on

Re: [TMIC] BMer's Club and new medication

2009-09-03 Thread jrushton
I'll work in PR... That should be fun??!! Jeanne :D ---Original Message--- From: anndil...@aol.com Date: 9/3/2009 1:27:46 PM To: tmic-list@eskimo.com Subject: [TMIC] BMer's Club and new medication I note no one has said anything about being treasurer I will be glad to serve as

Re: [TMIC] Update on Mike

2009-09-03 Thread kimr1999
Mike and Jill Through every trial and moment of pain, we stand together to help one another. Sometimes the hand of a stranger comes along and lifts up our hearts.. Our responsibility is to continue that selfless act of love and pass on the comfort. Blessed are those who mourn for they shall

Re: [TMIC] Update on Mike

2009-09-03 Thread Akua
Heal Fast! Know Peace! Heal and be Well! Wishing you strength and perseverance, Akua --