[TMIC] Fatigue/Devic's vent/Frank

2006-05-31 Thread Grace Mitchell
Exactly Frank---demyelinization (sp?) is demyelinization. Overactive immune sytem---not immunodeficiency. You know it amazes me whenever I go to some of the Devic's sites---relapsing Devic's having such a poor prognosis---that people truly have no idea of the nature of their disease. There's

[TMIC] Non specific white matter lesions.

2006-05-30 Thread Grace Mitchell
The University of Pittsburgh and also Northwestern here in Chicago, have both told me that non specific white matter lesions in TM or Devic's are more common than previously thought. These lesions do not follow the typical pattern of MS, however. I currently have four of them in my brain, BUT, I

Re: [TMIC] Fatigue

2006-05-30 Thread Grace Mitchell
Hello Judy, You have voiced exactly what my own neuros have told me over this last year. Recently at one of the Devic's sites, someone mentioned Provigil as a possibledrug forfighting fatigue. The thing is, with every drug there are side effects. and unless you are willing to bear down and grit