Re: [TMIC] 6th anniversary

2010-10-06 Thread pkeene2002
Nine years for me! Up with the warm, down with the cold; up with the sun, down with the gloom. Yesterday, with the cold and rain, my arm got literally stuck when it was bent at the elbow. I had to get my son to pull it out straight; today it's warmer and it doesn't freeze up. Time to get

[TMIC]

2010-10-01 Thread pkeene2002

[TMIC]

2010-09-29 Thread pkeene2002
http://www.pnlx.cpxstore.com

Re: [TMIC] Be my strength

2009-02-21 Thread pkeene2002
Dear Jude, As you face this surgery,?just remember that we are all with you in spirit, even though you may not know all of us.? We are right by your side with powerful energy and prayers as you enter the unknown.? As frightening as it is, God will lead you through it.? He will be there

Re: [TMIC] OT!!!!MARDI GRA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

2009-02-20 Thread pkeene2002
Hi Pam, I would love to be in NOLA again. I've been there twice and even got a rare tour of Ann Rice's home in 1999 before TM hit me. I would love to participate in Mardi Gras; my brother works on Carnival Cruise ships that come into NO and also loves the town and has lots of friends there.

Re: [TMIC] Lyrica

2009-01-25 Thread pkeene2002
I have been taking Lyrica for quite a while and it really helps me walk better. Lately, I have had pain in my arm muscles; my orthopedic doctor said my left arm has slipped out of the socket two inches. I wonder if this is caused by the Lyrica? Would steroids help my muscles? I am going to

Re: [TMIC] Re: tmic-digest Digest V2008 #332

2008-09-12 Thread pkeene2002
In 2001 I had an acute attack of transverse myelitis, paralyzing me from the chest down. I was in rehab hospital for eight weeks and I slowly recovered and finally I was able to walk. From the beginning, they told me that I would never use my hands because I was struck at c5 and c6.. I can't

Re: [TMIC] Re: tmic-digest Digest V2008 #332

2008-09-12 Thread pkeene2002
Hi Amanda, I can type with my thumb and I sometimes use a voice recognition program called Dragon-Naturally Speaking.? I went to JH and saw Dr. Kerr about?6 months after I had the attack.? He prescribed neurontin for me which helped the tingling and burning in my legs and the banding.? I really

[TMIC] Fwd: Check this out!

2008-07-27 Thread pkeene2002
Have a wonderful day! Priscilla -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Sun, 27 Jul 2008 7:28 pm Subject: Check this out! We are sending you this email on behalf of Priscilla Keene ([EMAIL PROTECTED]): I found this page at AllegroMedical.com and

Fwd: [TMIC] Frustrated!!

2008-07-20 Thread pkeene2002
I think I understand why some babies cry and scream for no apparent reason.? After living with TM for 7 years I've learned that certain scented lotions make my dry, scaly legs burn like fire, I can't find a bra that doesn't make my banding even more painful, my feet burn when they are ice cold,

Fwd: [TMIC] just another gloomy day

2008-03-24 Thread pkeene2002
Hello everyone, I have a lot of trouble typing as my hands are paralyzed, and I can only use my thumb, so I don't post often.? From the very beginning of this condition, I have been very positive, and I have felt God's presence with me constantly. Some members of my church tell me I have

Re: [TMIC] Vitamins

2007-07-26 Thread Pkeene2002
In a message dated 7/26/2007 7:23:51 PM Pacific Standard Time, [EMAIL PROTECTED] writes: I learned thru this group that you cannot take Metamucil within (I think) 2 hours before meds and one hour after meds. I was wondering about vitamins. Are there any vitamins that might interact

Re: [TMIC] Renal problems

2007-06-01 Thread Pkeene2002
Dear Franque et al, For four years I had diarrhea every time I ate a meal; the doctor said I had Crohn's disease, but I was in denial of having that and ignored him. Then I changed meds--from a high dosage of neurontin to lyrica and cymbalta. Now I have chronic constipation and I think the

[TMIC] Re: Reason for TM

2007-05-22 Thread Pkeene2002
My TM, is it that goes as idiopathic (that means the idiots can't figure out what's going on) :-) I love that explanation, Naomi; it's a classic. You have a great attitude! Hugs, Priscilla in TN ** See what's free at http://www.aol.com.

Re: [TMIC] Re: Who's got what?/ Photos

2007-05-15 Thread Pkeene2002
I WAS ALSO ABLE TO UPLOAD A PICTURE. I WILL ADD MORE LATER. PRISCILLA IN TN ** See what's free at http://www.aol.com.

Fwd: [TMIC] TM and Chemical Sensitivity

2007-05-14 Thread Pkeene2002
** See what's free at http://www.aol.com. ---BeginMessage--- Johnson and Johnson Baby Wash with Lavender and also their Baby Bath (that states no soap and hyperallergenic) burn my legs and feet. The latter has a red dye in it. Think how it must feel to

[TMIC] OT: The most amazing Dad ever!!

2007-04-29 Thread Pkeene2002
Remember to thank your caregivers after you see this video. This is awesome! Hugs to all, Priscilla in TN ** See what's free at http://www.aol.com. ---BeginMessage--- You won't believe this father. Kind of makes us all a little ashamed. Please read the

Re: [TMIC] Cold Spots

2007-04-20 Thread Pkeene2002
Dear Kristy, I also have cold spots on my legs and arms, but only when I lie down at night. When I am upright and walking, I don't feel cold at all. In fact, I have a burning and tingling sensation in my legs. I take lyrica for that. Sometimes when I'm sitting next to a lamp, I feel

Re: [TMIC] Re: [Transverse Myelitis Support] I'm a newbie

2007-03-22 Thread Pkeene2002
I use the same program but I have a lot of mistakes, because of my Southern accent. :-). Priscilla in Tennessee In a message dated 3/22/2007 1:52:50 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Jude, I use the Dragon Naturally Speaking voice recognition program. It's a

[TMIC] OT-Merry Christmas

2006-12-24 Thread pkeene2002
Merrry Christmas and Happy New Year from Priscilla Keene in TN I'm happy to be celebrating Christmas with my lst grandchild Caden Isaiah Arnold--5 months old! God Bless you Everyone P.S.I just made a donation through Yahoo. How wonderful to get matching funds!!!

Re: [TMIC] Lyrica and my EMG results-- my update

2006-10-29 Thread Pkeene2002
I started at 50mg three times a day, then increased it after a couple of weeks. I didn't wean off neurontin but started lyrica immediately after stopping neurontin with no problems. Priscilla in spooky TN

Re: [TMIC] Lyrica and my EMG results-- my update

2006-10-28 Thread Pkeene2002
I'm taking 75 mg three times a day at 10, 2, and 6pm. Priscilla in TN

[TMIC] (TMIC) Causes of TM

2006-08-31 Thread Pkeene2002
Other forms of myelitis may result from poliovirus, herpes zoster, herpesvirus B, or rabies virus; disorders that cause meningeal inflammation, such as syphilis, abscesses and other suppurative conditions, and tuberculosis; smallpox or polio vaccination; parasitic and fungal infections; and

Fwd: [TMIC] OT-HOUSE

2006-06-22 Thread Pkeene2002
---BeginMessage--- Yes, the name is "House" and it's on Fox on Tuesday nights from 8-10 this summer, showing 2 reruns each week. PK in TN ---End Message---

[TMIC] OT: Dr. Kerr on TLC

2006-06-22 Thread Pkeene2002
The TLC program that Dr. Kerr was on was "Lethal Diet" on "Mystery Diagnosis." It was about a young boy whose body was producing too much lactic acid; Dr. Kerr put him on a special diet. Priscilla in TN

[TMIC] OT-HOUSE

2006-06-21 Thread Pkeene2002
Did anyone see "House" last night? The patient was diagnosed with TM which was a result of an extremely high exposure to radiation; consequently, the patient died. Dr. House has mentioned TM several times. Priscilla in TN

Re: [TMIC] JUDE coming off Neurontin onto Lyrica!!!

2006-04-09 Thread Pkeene2002
I also came off neurontin (3600 mg a day) and went on lyrica (225 mg a day) and had no trouble changing over. Lyrica has helped the burning and tingling in my legs tremendously, and I no longer have the diarrhea caused by neurontin. Priscilla in TN

[TMIC] Check out Lifeline - the most trusted medical alert service provider

2006-02-27 Thread Pkeene2002
I have a Life Line, and even though I've never had to use it yet, I feel much more secure. Click here: Lifeline - the most trusted medical alert service provider Priscilla in TN

Re: [TMIC] this about Lyrca and it works for a friend

2006-02-24 Thread Pkeene2002
In a message dated 2/23/2006 12:45:51 PM Eastern Standard Time, [EMAIL PROTECTED] writes: In a message dated 2/23/2006 12:34:59 AM Central Standard Time, [EMAIL PROTECTED] writes: Hi all I told my other group about Lyrca and Robyn has tried it. Well it sure worked for her and I didn't get

Re: [TMIC] dizziness

2006-02-13 Thread Pkeene2002
In a message dated 2/13/2006 2:07:45 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Since the end of January, I seem to have been losing ground. I can still walk, though I use a cane more often. I probably actually have more strength, but my energy (when I have it) doesn't last long, and

[TMIC] Lyrica

2006-01-28 Thread Pkeene2002
I don't write often, but I read the posts every day. I am 63 and I have had TM since May of 2001. I can walk short distances like from my front door down the sidewalk to a car, and then my legs get weak, and I have to sit a while. I have very little use of my fingers, hands, and arms which makes

[TMIC] October birthday babies

2005-10-09 Thread Pkeene2002
Havahappy day, Peachy in TN