From: [EMAIL PROTECTED] Date: Sun Feb 12 22:34:43 CST 2006 To: Deborah Nord Capen <[EMAIL PROTECTED]> Subject: Re: Re: [TMIC] TM or MS
Yes, the lesions were there and I have had no real changes in four years?? Dr. Pardo saw me four years ago and his diagnosis was TM. Thanks for your reply! Marie >From: Deborah Nord Capen <[EMAIL PROTECTED]> >Date: Sun Feb 12 22:30:11 CST 2006 >To: [EMAIL PROTECTED] >Subject: Re: [TMIC] TM or MS >Dear Marie,Did you have these lesions on your brain four years ago when you >went to Johns Hopkins?? Or are these new developments?? Johns Hopkins >Transverse Myelopathy Center is the only center in the world that has the most >knowledge and treats approximately 700 patients (more than any other doctor) >with TM.? ?The brain lesions may be something that came on after your initial >diagnosis.?Take care,Debbie? ----- Original Message ----- From: [EMAIL >PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, February 12, 2006 8:12 >PM Subject: [TMIC] TM or MS >Feb. 7th was my 4th year anniversary of having TM... I have come a long way >from that night from "hell" when no-one could figure out exactly what was >wrong with me... Finally, it was decided TM was the diagnosis. Johns Hopkins >agreed with this diagnosis.I take 600mg of neurontin 4 times a day... tho am >never without pain.. I now walk with a walker, have hand controls on my car >and with my faith and family have adjusted to my new life style. Due to >Medicare I had to switch all my doctors. A Neurologist was highly recommened >as one of the best in the area. Long story short...after all new MRI's >etc... etc.. he informed me that without a doubt I have Multiple Sclerosis. >I am still in shock and not sure what is my next step. I have made an >appointment with another "top" neurologist in the D.C area..? I have 5 >lesions on? my brain which supposedly indicate MS. I am 59 years old. Also >my brother -55- was just diagnosed with underlying MS.... >Any thoughts, suggestions would be greatly, greatly accepted... Anyone of >you with TM have lesions on the brain???? >Thanks so much! >Marie Arthur